starting treatment for stage 4 IBC

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Sssonia
Sssonia Member Posts: 22
edited April 2015 in IBC (Inflammatory Breast Cancer)
starting treatment for stage 4 IBC
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  • Sssonia
    Sssonia Member Posts: 22
    edited March 2015

    Hi everone, I was Dx with invasive intraductal carcinoma back in January , I was scheduled for masectomy on3/10/15 and to my surprise I woke up with my breast intact. I received my Dx of IBC with Mets to the skin and one of my lymph nodes, she Bx 10 others and sent me to MO the next day to start neoadjunctive therapy . My prognosis went from 90% to 50%. They also sent me for all these scans (bobone,aabdomen,ppelvis and chest as well as a portacath placement. I will get those results in 2 days.

    I will start neoadjunctive therapy starting Monday next week. So scared it won't respond witch I been reading that it can, my MO is hopefull. I will receive dense AC 4Tx cycled in 8 weeks then Paclitaxel weekly for 12 weeks. I will also receive Herceptin but he will later decide if he will do it before or after my masectomy .

    So here I go ladies I may have to come back to forum to help me cope with the treatments I will be receiving .

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  • Sssonia
    Sssonia Member Posts: 22
    edited March 2015

    Also can anyone reassure me that there is a chance of living long term after this type, any long terms out there?

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  • Moderators
    Moderators Member Posts: 25,912
    edited March 2015

    Hi Sssonia! We're very sorry for your diagnosis... We wish treatment works well for you. Please come back to the forums whenever you want! Besides this IBC forum, there is a group starting chemo in April that you may want to join also, and learn and share your experiences while going through similar chemo treatments at the same time. See here: Topic: April 2015 Chemo Crew... Starting in April? Please join us!

    Hope this helps. Hang in there, you'll get through it!

    The Mods

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  • Kicks
    Kicks Member Posts: 4,131
    edited March 2015
    • I am not Stage IV but Stage IIIc and 5 1/2 yrs since IBC DX - I'm still here, NED and loving life! How long will I live - I don't know (there are no guarantees - period). I'm 68 now and still plan on outliving one of my G-mothers and 3 of my GG -mothers who all lived to mid/late 90's and VERY active .

    Neoadjuvant 4 DD A/C were not bad at all. 12 weekly adjuvant Taxol were not as nice. My TX plan was different than most as I did both neoadjuvant and adjuvant Chemo.

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  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited March 2015

    I'm stage IV IBC and I'm still kicking after 3 1/2 years. I've just had taxol (Abraxane). It's not too bad, I guess, looking back, but I sure didn't like the experience at the time. Actually I've had Abraxane twice and the second time was easier than the first.

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  • Sssonia
    Sssonia Member Posts: 22
    edited April 2015

    Thanks for posting Kicks, your treatment sounds almost like mine. Glad you are doing well , I like your goal to outlive your GM , awsome !!!

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