Starting Chemo March 2015
Comments
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Trvler- My center had a nice kitchen area where they had beverages available - both hot and cold including gatorade and juice and an ice / water machine. For both infusions I made sure I had a gatorade with crushed ice and sipped on it the whole time. When I got home I also drank ice water. It made my stomach feel better too.
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I do not think mine provides them... guess I will see Thursday, but I plan to bring a cooler with some popsicles in it!
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I bring a litre bottle of water with me when I go and I drink that through the treatment. I'm going to add a thermos of tea for the ride home to relax me this next go-round. I agree with the popsicle idea. Now that my tastebuds are taking a hiatus I find popsicles to be a go-to food.
Any other ladies out there not lose any hair yet? My first chemo was on 03/12 and I have lost less hair than I did on a daily basis before all this. I'm sure this next chemo will have it falling out of my head like crazy, but I find it strange that it hasn't started shedding yet. I did notice that my leg and underarm hair is super slow growing now. I just assumed I would be bald by day 14.
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Ninjamary: I think someone said a couple of pages back it happens around Day 17-18?
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ninjamary, I started the day before you and I still have all mine as well. I'm expecting it to start going any time.
My chemo center has a little cart they wheel around with snacks and beverages. It's great! Except I drink so much water during treatment I feel like I have to get up to pee every 45 minutes and it's such a pain dragging that IV to the bathroom!
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Hi All
Welcome NurseJules! Thank you for the ice chip hint!
And I will try the ice chips hint at my first chemo on Thursday. I will bring my own in a ziplock bag in my lunchbag. In the recovery area, after MX, I ate a whole pitcherful, nurse thought I was crazy
... and now it will be for a good cause.
Jackbirdie, I Love the earrings...and your story is even better! lolol
arlene
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I really liked the Lindy's Italian Ice for my first infusion day. I also beat the hell out of some ice that morning with the meat tenderizer (felt good to let go of some of the nerves and emotions that way) and brought ice chips. I used both during the Taxotere since that was recommended by many on this site. I have a funky feeling tongue but no mouth sores as of yet.
Jackbirdie - I'm drooling over those earrings and loved the story behind them. What a sweet brother you have!
I have my first post-chemo appointment with my oncologist today. I'm hoping he can sort out my back pain so I can get on with my life for the time being.
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ninjamary, I had at least half my hair left a good 5 days into my second round, but by then it was falling out enough to really bother me and I buzzed it to about half an inch. I think it started coming out around day 18 or so.
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SC, you look GREAT!
My port was achy for a couple weeks, but I don't notice it now.
Ninja, I started on the 12th and my stubble's still hanging on too.
The cancer center gave me a popsicle and a cup of ice to suck on and I also rinsed my mouth in the baking soda/water mix every time I went to the bathroom -- no mouth sores for me! They also brought around a snack cart at the cancer center, but I'm going early in the morning this time so I think I'll take in my own snacks, just in case.
I combed my neon green wig this morning, planning to wear it to pick up my sons after school today. HEE HEE HEE
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my scalp hurts like the dickens third day in a row. On day 19. I already shaved which has been great butit huts to even lay my head on the pillow! Boohoo n
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so-she-did: I told my little brother what you said and he's busting with pride.
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My chemo infusion was March 2nd, and my hair went March 22nd in a big way. Prior to that, it was strands coming out every time I combed my hair. But Sunday night I washed my hair and when I combed it, half the hair on one side of my head came out in one swoop! So I guess I lasted 20 days.
Chemo tomorrow, totally doing the ice thing. Coffee Bean has this really fine ice, like old fashioned kind, and I am thinking of stopping by there and asking them for a Ziplock baggie full of it. But I also have an ice crusher on my refrigerator, and I crushed up two bags of ice in preparation for tomorrow.
My brother-in-law turned me on to a drink mix called Electro Mix made by Emergen-C, but not a fan of lemon lime flavor, which is all I think it comes in. Still, it is an electrolyte replacement and has no sugars. It contains Stevia, but it doesn't taste funny. I wish I could drink Gatorade, but it tastes like sweat to me - lol!
Shaz101, please let us know as soon as you get CT scan results back. I have been thinking about you since last night San Diego time. Fingers crossed!
Jackbirdie, the only area of my head that kind of hurts is in the back at the top (the occipital part?), where my head juts out around my brain. It feels like somebody pulled my hair really hard. Other than that, today I just look like a dog with the mange - super attractive - not!
Second infusion tomorrow, so back on the Decadron today. Feeling wired.
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Hi all!
I'm trying to catch up on posts since I took the weekend off from reading - you've all been busy!
ItalyChick - my hair is still in tact, but shedding a little more than normal day-to-day shedding the past two days, from what I can tell. No big clumps falling out yet, though. So keeping my fingers crossed that the caps are working - if not, then buzzed it goes and I'l go get the wig!
Yesterday was my chemo #2. Blood draw was Sunday, and the phlebotomist had to poke me twice since my blood wasn't flowing - guess I didn't drink enough fluids the few days prior. Need to be better about that. My arm is super bruised since she did the second draw from a weird spot. Meeting with my MO before the infusion. My blood counts look good, he was shocked that I'm still doing okay with working, and agreed that my rash thing is likely from the Docetaxol (Taxotere), so we'll see if it happens this go around and he said he'll prescribe steroids to help it, but that's a last resort since those are harsh on the heart, especially during chemo. The infusion went MUCH smoother this time around. Was there from around 10-1:30/2, then home to finish capping. SO much better than the horrifically long day from my first infusion where it took over 8 hours thanks to the pharmacy delay.
I decided to come out about my diagnosis on FB and Instagram while I sat in that chair yesterday. It's so bittersweet. I'm so overwhelmed with love for all of the support I'm getting, but in a way, I wish I could take it back. Having it out there in the open for the world to see makes it more real, where when only friends and family knew, it was something I could sort of hide from.
Okay, gonna sleep the day away since chemo days, especially with cold capping, are soooooo long.
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Oh! genetic testing! I had it done due to my age (27), and it was also to help determine if I wanted to go for a lumpectomy or a mastectomy, and also so I could let the other women in my family know, as well as for my own sake in regards to whether or not I was going to go through fertility preservation.
It's my understanding that they not only look at the BRCA genes, but there are now other genes that show if you might also be prone to ovarian cancer. All my tests came back negative, and I opted for a lumpectomy, and went through with fertility preservation as an "insurance policy". In a way, it is a little sucky, because now I just feel like I got hit with this sh*t stick for no reason. But I'm sure we all feel like that.
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i did the brca test and the cancerNext test as well at the time of my biopsy. i'm brca2+ and am positive for another gene that increases the possibility of colorectal cancer (by about 20%). it helped me to decide to do the double mastectomy i have scheduled for after chemo ends.
they told me the possibility of getting cancer in the breasts again within 5 years was up to 80% between family history (there's TONS of cancer in my family) and the brca result. i'm headed to the Center for Restorative Breast Surgery in New Orleans after i heal from chemo. i'm pretty scared about the surgery, but for now i'm just focussing on the chemo (that's difficult enough on it's own).
hair's coming out. cutting it shorter (almost buzz) tomorrow morning. then going for a mohawk and then it's the big buzz..
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Katy, I need pen and paper too! So many posts that I want to comment on and by the time I get to writing they're gone out of my brain! I love your earnings, and what a great story to share. I laughed site a bit and I can imagine me doing that. My purchases are all blending together. I bought another 4 tops, 3 scarves, a pair of pants and some earnings on the way to my oncologist appointment on Monday.
IC you look wonderful. I'm past the mangey dog style (mostly) I've got a few tufts on the crown of my head still. For anyone thinking of buzzing, try and leave it about 1cm long so when it is sensitive it doesn't feel like pins driving into your head when you lie down.
I was told by the pharmacist not to take probiotic. My mum asked because I have to take a coarse of antibiotics from day 5 of treatment for 10 days. She said it fights with my treatment. It may be worth asking about.
Welcome Nurse... I'm sorry you are here, but you will find us friendly (even though our brains may be fuzzy)
Sorry if I've forgotten anyone.
I had my CT yesterday morning followed by my treatment at 12. I was so teary all day. The nurse that did my catheter took 3 goes. My veins are terrible. She ended up using my best vein so she left the catheter in for the chemo nurse to uses. I'm really worried about it. They still don't want to put a port in. The nurse who took my blood a few days ago had to dig around a bit too. Apart from that the treatment went smoothly until after she took to catheter out. When she finished dressing it and left me to pack up it sprung a leak. Now I have a lumpy bruise on my only good vein 😕
The oncologist has flagged my case to be reviewed in 2 weeks, so I guess I'll either get a call or he'll wait until my next appointment for the results of the scan. Even though I think it'll be OK, I know its ticking away in the back of my head. I even started reading about it. And having a headache that wakes you during the night is not a good sign, but I know that its probably for someone who isn't a migraine suffer. Even though I've never woken at 1 or 2 am with them before, my migraines are often there normally in the morning when I wake. What's a few hours between old friends.
Good luck IC with your treatmen and to anyone else I've missed.
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Hang in there, Shaz!
My son's friend now thinks I'm an undercover cop. I guess all undercover cops have green hair and drive a beat-up dodge. LOL
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Just got back from treatment #1. So far, so good. Just standing by waiting to see what my first SE will be. Anyone have any bets? lol
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Shaz- keeping the candle lit for you here - I sure hope you don't have to wait two weeks for your scan results. Maybe you could call in for them? In a day or two? I'm sure they must understand how difficult it is emotionally to wait for something like that. Anyway, a big but gentle hug for you. And great job on the purchases. On the way to an appt? An old friend of mine would give you bonus points for a high bucks per hour quotient. HAHAHAHA !
And yes, IC, that is exactly where my head is tender. Hurts to lay/lie (my mother the summa CL in English would be rolling in her grave that I never did get the lay/lie thing down) and all I want to do is lay/lie all day long.
I'm fatigued and bored and can't concentrate. I really cannot spend any more money on hats, bags, clothes, shoes, furniture or earrings. My birthday has passed and the party and all of the attendant excuses for buying stuff are over. So over. And besides, it's not 2am when I usually shop. I think i might be depressed.
I have chemo 2 in two days and I'm not looking forward to starting up the steroids tomorrow night, or any part of Thursday. But my niece comes on Monday and that should be fun. I can't wait to give her one of my last wee hours binges, a sterling charm bracelet made in infinity loops. I have 3 cute little charms to start her with. She is 20, so maybe this will be too juvenile a gift for her. Hopefully that old adage about the thought counting still applies.
Thinking of Trvler and Beatit, in the chair I think, as I write. And my usual apologies for anybody I overlooked today. Sending out good vibes to all March bco sisters. A blanket blessing of sorts. xoxo to all.
I'm going back to the supine, lay/lie position and try to find a way to place my head so it doesn't hurt. PS. I know complaining about this minor SE is SO LAME. And I'm sorry.
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Princess-made me LMAO- quite a feat for me today
Trvler- glad you're done and through for today. I will take that bet. No SEs at all for you and I'll gladly give the quarter.
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Katy: Is there any way you could exercise? I find that they main thing that keeps me from getting depression is exercise. I am not going to want to go to a class after my hair falls out but i have an elliptical in the basement I like to do. I don't want you to get depressed. Do you have a psychiatrist monitoring you?
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and Michelle- saving my strongest and bestest wishes for you. I have to say, it must have been really hard to hear those percentages. Really sucks. And there you are just standing there getting hit with the shhhttttt stick. Dang! Remember numbers and stastistics can only tell part of the story. Each case is individual.
I had my double 12/18/14. No picnic. However, believe it or not, I was more worried about the port, waaayyyy more worried about chemo. You will be such a warrior by then you'll barely flinch. I think you'll find many, many women only experience moderate discomfort. I felt a certain calm descend down in the days before the surgery. It was comforting to me to know I was doing the best thing for me and my situation.
So you are right to put it in a little box. Close the box and put it on the shelf for now. This week marked my 3 months since surgery. I don't miss those boobs. They tried to kill me.
Sorry about all the lint on the shirt. I can't be bothered with effing housework anymore!
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I LOVE the shirt!!!
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Trvler - a fabulous idea. It's been raining for days and I haven't taken Jack for a walk. I'm going to go do it RIGHT NOW.
and yes, I am personally sending my shrink's youngest through college. JK. He is a great doctor and I have his cell number and have been encouraged to use it freely. We've been together over 5 years and he knows me well. I might check in with him too. Thank you
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Enjoy your walk!
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How high of a fever before you call your doctor? DH is getting over a bug and my son has it and has a fever of 103, I gave him some Motrin and he's honky dory and his fever is gone but now I'm starting to get one. Last temp check was 99.9
seems to be climbing. Should I take motrin and wait?
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I would wait. Most fevers they can't do anything about anyway. Unless he has a sore throat. If they have a sore throat, I always get a strep test because untreated strep can cause heart damage. Another thing our ped taught me to do, is to stagger meds to keep his fever down. YOu can only give ibuprofen every 6 hours and tylenol every 6 hours so my doc said I can overlap and give one of them say at 8 am , then the other one at 11. That way, you can always time something to give to them at bedtime and it keeps their fever down. Does that make sense?
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I'm thinking for me. I made an appointment for him for tomorrow, but based on his peppiness i may just cancel.
For me, I looked online and it said a fever of 100.5 or higher that lasts for more than an hour. I guess I just need to monitor it. I'm kind of achy and light headed so we'll see.
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SC Coqui, I would call your doctor. Mine said at 100.5 I need to go to them or emergency room. I'm assuming you are asking about your fever? What was your white blood cell count? That's the most important part. My oncologist said if I got sick she would prophylactically put me on antibiotics.
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Also, just FYI, I had my primary care physician write me a prescription for an antibiotic and I keep it on hand just in case. The last thing I want to do is have to go wait at a pharmacy if I am sick. Just a thought.
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