My Cancer is back...any help is appreciated

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  • hopefour
    hopefour Member Posts: 459
    edited January 2015

    Pupfoster1...thank you for sharing an up-date about Pure. So sorry to hear of the blood clot and such, but am hopeful the treatment she is in will be effective. Thinking about you as you await your results....please let us know....scares are so very draining and exhausting!!

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  • SharonMH
    SharonMH Member Posts: 353
    edited January 2015

    Hi Pure, Just a note to say I am wishing you well. SharonMH

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited January 2015


    Pure, I'm so sorry to hear this.  My heart is breaking for you, just logged on...the first time in several weeks.  You know I'm in NC too if I can help in any way please let me know.  My thoughts and prayers are with you sweetie.

     

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  • SharonMH
    SharonMH Member Posts: 353
    edited February 2015

    Hi Pure, Just thinking of you tonight. SharonMH

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  • Kathleen26
    Kathleen26 Member Posts: 210
    edited February 2015

    Pure, we are thinking about you. I hope as you get going with treatment you come back and get strength from the other ladies on this site.

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited February 2015

    Pure....You've been on my mind, just wanted to check on you.

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  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2015

    Pure has been posting on fb. She has a private group where she is posting about her treatments. If you are fb friends with her, send her a private message to join the group.

    Here are her two most recent posts about her test results......

    I just got my mri results and all the tumors wrapped around my spine are gone!The tumor pressing against the spinal cord is gone.The mri shows a healthy amount of spinal fluid between the tumor and the cord. No surgery needed!


    I have been waiting on my tumor markers.

    CEA went from 80 to 40 which in a two month time period is fantastic.

    My CA 27.29 was at 6000 in December. As of today it's 1286 which is normal.

    My tx is working !!!!!!!!!

    It's very unusual for numbers to drop this much in a short period of time.

    Tears of joy..... Tears of joy:)!

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited February 2015

    I've also been seeing Pure's updates on FB. She posts on her personal page and also on the group she's in. However, the group she's in is for Stage IV so I hope my good friends in the Stage III forum NEVER EVER are eligible for it!

    I'll send her a message to ask if she wants those of us who see her on FB to keep you updated or if she feels up to coming back here.

    Leah

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited March 2015


    Thanks for posting.  I'm not FB friends with her and understand if she wants to stay private...she's on my mind and wanted to know how she was getting along.

     

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  • Pure
    Pure Member Posts: 1,796
    edited March 2015


    So sorry I haven't updated. I have been a bit overwhelmed with it all. I am doing well. My markers changed and I am now ER PR and Her two positive so I have a lot of tx options. BUT the tx I am on has been working incredible well and I have had an amazing and fast response. I have spinal mets so I had been in a wheel chair but here I am four months later walking, almost running:) I work out and swim. My doctors are very hopefull that the targeted tx I am going through will get me in remission for a very long time. I am on facebook so if you look me up I can invite you to my group for updates etc. Thank you for thinking of me:) Love and blessings to all of you. One day at a time.

     

     

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  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited March 2015

    I have been stunned at your wonderful response to chemo. I did not know about the Her+, but this means more treatment options. Agree that you should expect to be here a very long time. Did I mention, you are my hero!!! - Claire

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  • Moderators
    Moderators Member Posts: 25,912
    edited March 2015

    Pure, that is really amazing news! We're so glad to hear you're doing well in the face of your disease, thank you for updating us. Thinking of you!

    The Mods

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  • dltnhm
    dltnhm Member Posts: 873
    edited March 2015

    Thankful for you Pure. Rejoicing that you are having such a good response to your treatments. Walking ... almost running. .,. working out and swming ? Wow! Just wow !!

    Diana

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  • Momine
    Momine Member Posts: 7,859
    edited March 2015

    Pure, I am so glad to hear that. I have been thinking of you.

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  • Elizabeth1959
    Elizabeth1959 Member Posts: 346
    edited March 2015

    Pure

    Thank-you for letting us know how you are doing. I have wondered and worried about you. I hope your treatment continues to hold the @$&? Cancer away and you continue to heal and thrive. I am so sorry you have experienced so much suffering and sorrow


    Elizabeth

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  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2015

    Just saw this thread today... You are in my heart & prayers, Jen. (((Hugs))) Deanna

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited March 2015


    Thanks for the update...glad to hear tx is working and you're in good spirits, I think of you often.

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  • Pure
    Pure Member Posts: 1,796
    edited June 2015

    Hi Guys,

    Just wanted to update you. I have 1 chemo left and then they will be doing a CT scan. If I am stable or have improved more I will move to just Herceptin/Perjecta/Tamoxifin once a month. I feel really good. It's very strange but I am handling this diagnosis better then I did the first time. I know where I stand but I have a lot of hope. There is SO many tx's it's crazy. Seems like a new tx comes out every month.

    Chemo is hard...but I am getting through it and we have come together as a family. I feel surrounded by a lot of love and hope. If I were to give you any advice I would say this:


    GET tumour markers bc they do work for some and if caught early you can go into complete remission.......

    STOP your fear bc you will regret all the wasted years fearing what you can't/coud'nt control. Just like you take your meds to stay cancer free get help to stay fear free.


    Much love to you all......

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  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited June 2015

    Wonderful news, and I can vouch from your Facebook postings that you have been living a complete and full life recently. My learning is that we need to live for today, and make sure we do those things we had always planned to do.

    I am so proud of you! And I am also convinced you will be just fine. Life is wonderful. - Claire

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  • karen1956
    karen1956 Member Posts: 6,503
    edited June 2015

    Hi Pure...thanks for the update....love following your family on fb. You are a strong and amazing person. Hugs from Denver. Karen

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  • hopefour
    hopefour Member Posts: 459
    edited June 2015

    Thank you Pure for stopping by and sharing your encouragement!! You sound so strong and full of HOPE...we're cheering you on for complete remission that lasts for a very long time!! God bless you and your family

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited June 2015


    Thanks for the update, glad to hear your doing well and thanks for the advice...so true.  I'm right down the road if you need me :)

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  • NancyD
    NancyD Member Posts: 3,562
    edited February 2016

    It's very hard to write this post. Jen passed away earlier this week. If you followed her on Facebook, you already know, but I thought there might be others here who had not heard.

    Jen was such an inspiration to other Stage III-ers here when she was initially fighting this disease while pregnant. Chemo, surgery, radiation—she went through it all. And when her beautiful son Killian was born, healthy, all the "aunties" on here cheered and rejoiced with her and her family.

    Fourteen months of living with metastatic breast cancer is not very long. But she got to do things with her children that she hoped for.

    And Killian, the wonder baby, started school.

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  • geewhiz
    geewhiz Member Posts: 1,439
    edited February 2016

    Light and love to her family.

    She will be so missed by so many. She was an inspiration on living our lives authentically.

    I still can't believe it's true.

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  • lkc
    lkc Member Posts: 1,203
    edited February 2016

    RIP sweet Jenn, I was so hopeful that you would be ok. I guess another Angel was needed up stairs.

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  • Momine
    Momine Member Posts: 7,859
    edited February 2016

    I am very sorry to read this news.

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  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2016

    On fb, one of Jenn's friends has posted a mealtrain link to help with meals. Another friend make a beautiful montage video of Jenn. There is also a link for donations. So, so sad.

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