January 2015 Surgery Sisters

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  • Jmo06
    Jmo06 Member Posts: 159
    edited February 2015

    anybody else go get fitted yet for bras? Mom did she was so happy to get rid of recovery cami , they did give her loaner bra and prosethsis (new) mom will donate. She has to go back in 3 weeks to get fitted and make sure swelling is done.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    So far I have been able to wear my own bras. They had been sitting in a drawer since my bmx.

  • emily_the_cat
    emily_the_cat Member Posts: 29
    edited March 2015

    I just got my hospital bill - $138,583.73!!! And that's just the hospital, not the surgeons or the anesthesiologist. Unbelievable. Thank God for insurance.

  • CassieCat
    CassieCat Member Posts: 1,257
    edited March 2015

    Yikes. How many nights/days were you in the hospital? I just checked mine, and it was about $22,000 (one night).

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited March 2015

    Medical costs are just crazy. My Herceptin / perjeta infusions are over $24,000 each time! I am grateful we live in a country where medical insurance makes this kind of treatment accessible. Love, Jean

  • emily_the_cat
    emily_the_cat Member Posts: 29
    edited March 2015

    I was in the hospital for five nights. It's ironic, because I recovered really well, but the first few days I kept spiking a fever, so my doctor didn't want to discharge me. I actually think part of the reason I recovered so well was that I spent so long in the hospital, but it really cost my insurance.

    BTW, I just looked at the bill again, and $68,000 of it was the operating room. So presumably that part would have been the same no matter how long I stayed

  • Msmath
    Msmath Member Posts: 77
    edited March 2015

    I finally had my drains removed! They were in over a month. I have a few days of freedom before starting chemo on Monday. Question?? Do the drains stay in as long after the exchange

  • CassieCat
    CassieCat Member Posts: 1,257
    edited March 2015

    MsMath, congrats on finally getting them out! That was a long time. Good luck with chemo. I hope you've found the March 2015 chemo board. I found my group to be SO helpful as I went through chemo.

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited March 2015

    Congratulations MsMath on getting your drains out! Cheers for you - what a relief.

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited March 2015

    On Monday, I will go in to meet my oncology team to decide the next course of treatment after BMX on Jan 30. I am scared...my oncotype dx is 20, I am healing okay, but now I have to face decisions about Chemo and/or radiation. Anyone else in this position? I can feel my anxiety and I am worried about the next steps.

  • CassieCat
    CassieCat Member Posts: 1,257
    edited March 2015

    Good luck to you, Positive Spirit. I did chemo then surgery and now rads, and the course was pretty well laid out for me from the very beginning.

  • trailrose
    trailrose Member Posts: 219
    edited March 2015

    I hope all of you are recovering well from your surgeries and for all of you going through treatments may they go smoothly.

    I had my last saline fill this past Thursday which puts me at 380 ccs in each TE. I'm experiencing some nerve pain in the form of burning/itchy/tickly feelings. My exchange surgery is set for May 1 and I'm looking forward to being on the squishy side!

  • Msmath
    Msmath Member Posts: 77
    edited March 2015

    that is so exciting knowing your exchange date. I've just started chemo and my TE'sare giving me all sorts of weird pain. I wake up and they feel like rocks that are suffocating me. I've tried sleeping on my side only to figure out that was a huge mistake. Also the change in temperature when I first go outside is a shocker. Please post back and update when you have squishy's that will hopefully give me something to look forward to.

  • CassieCat
    CassieCat Member Posts: 1,257
    edited March 2015

    trailrose, good luck to you. It's nice to have a date to look forward to! I'd always thought i'd do recon after rads at some point, but it's going to be a while before I can even consider it. I'm hoping that it is indeed an option. My BS seems to think so, but I know rads is damaging to the skin and tissue. Still, he did my MX with the thought that I'd be doing rads and still wanting to try for recon. So we'll see. Maybe over one of my school breaks next year I'll be healed enough to give it a go.

  • trailrose
    trailrose Member Posts: 219
    edited March 2015

    Thank you Msmath and CassieCat. I will be so happy to get rid of these TE! They are now causing me nerve pain. My sister really helped me with being prepared for all types of feelings and sensations as she went through this 11 years ago (but with chemo and radiation)

    CassieCat- You're doing it one step at a time. Glad to hear your BS is positive in that he believes you'll be able to have reconstruction.


  • SoccerMom20
    SoccerMom20 Member Posts: 20
    edited March 2015

    I have a question. I had my lumpectomy on January 30 and finally, had my drainage tube on March 10. Now, I'm noticing my breast has turned red and it's warm (not near the incision). I'm also having white, milky fluid coming out of my nipple. I didn't have this before my surgery. I'm going back to the surgeon tomorrow just trying to calm down...

    I know things can happen and it takes time...I'm just worried. Has anyone had this happen after surgery?

  • CassieCat
    CassieCat Member Posts: 1,257
    edited March 2015

    I haven't, but I'm glad you're seeing your surgeon tomorrow to have it looked at.

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited March 2015

    SoccerMom, hope everything went well with your visit. I would be nervous too if milky fluid were coming out of my nipple.

    Trailrose, good to hear you are in the waiting for exchange stage now. I also had the burning/itchy/tickly feelings mostly near the sternum and at the bottom at the beginning. Right now it's the lateral side (armpit) that's tender to the touch-I can actually feel the hard edge of the TE! Can't wait to get on the squishy side either.

    MsMath, hang in there. Praying for a smooth ride for you.

    CassieCat, it seems like there are quite a few people on the discussion boards with successful reconstructive surgery. Do you use anything on your radiated skin to soften it?

    Hope everyone else is healing well and for those who have to go through treatments, I am praying for strength and perseverance

  • CassieCat
    CassieCat Member Posts: 1,257
    edited March 2015

    loveroflife, I'm glad to hear that! I'm still in the midst of rads and use (in rotation) calendula cream, aloe vera gel, aquaphor and occasionally Vanicreme (I had a sample from my BS). I'll do what I can to keep the skin soft and pliable.

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited March 2015

    Nice to see you gals who are a month ahead or so getting better. It is very encouraging. There is an end to this. Love, Jean

  • trailrose
    trailrose Member Posts: 219
    edited April 2015

    I was checking in on all of my January surgery sisters. Hope you are all doing well. I ended up going for 1 more fill into the TE's two weeks ago. My exchange surgery is still set for May 1st. I was wondering how all of you are doing with range of motion in your arms since surgery.

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited April 2015

    Hi Trailrose! I will have exchange surgery in May(13th) also. I had TE placement on left, so range of motion is 90-95% on my left arm. My deltoid feels tight at a certain angle.

    The one thing that bugs me is when I shiver, my chest muscle on the left takes awhile to calm down. It feels as if the MX area is very sensitive to the cold temp

  • trailrose
    trailrose Member Posts: 219
    edited April 2015

    Hi Loveroflife! Awesome that your exchange surgery is coming up too! Sounds like you have progressed nicely with your range of motion. I would say I'm at 85% with my range of motion. The TE's seem to get in the way! The cold affects me the same way. I tighten up and it's almost like a quivering that I can't control unless I warm up. I also get feelings like my nipples are still there when it's cold. I'll keep my January sisters posted on my progess with the exchange surgery!

  • KbellaK
    KbellaK Member Posts: 15
    edited April 2015

    I'm new to this group. I had a bi-lateral mastectomy with tissue expanders on Jan. 12. I was dx with Invasive Ductal Carcinoma in my right breast and opted to have both removed. I'm surprised at how uncomfortable the TE's are this long after my surgery. I'm still on Vicodin at night.

    I haven't quite picked up the lingo and the acronyms yet so bear with me.

    Carrie, I'm ER/PR positive too which means my cancer should respond well to hormonal therapy, or Tamoxifin, which I'll be on for five years.

    I'm so grateful for these forums. I've tried talking to friends and family but they really just don't get it. They try but...

    All my best to all of you!

  • KbellaK
    KbellaK Member Posts: 15
    edited April 2015

    I'm new to this group. I had a bi-lateral mastectomy with tissue expanders on Jan. 12. I was dx with Invasive Ductal Carcinoma in my right breast and opted to have both removed. I'm surprised at how uncomfortable the TE's are this long after my surgery. I'm still on Vicodin at night.

    I haven't quite picked up the lingo and the acronyms yet so bear with me.

    Carrie, I'm ER/PR positive too which means my cancer should respond well to hormonal therapy, or Tamoxifin, which I'll be on for five years.

    I'm so grateful for these forums. I've tried talking to friends and family but they really just don't get it. They try but...

    All my best to all of you!

  • KbellaK
    KbellaK Member Posts: 15
    edited April 2015

    Trailrose, I just read your post about the tingly, burning sensations and I can totally relate. I'm still packing ice on both sides whenever I can, even at work. I use the binder to keep them in place but they still slip down all the time. I'm using an ace bandage tonight as my binder is in the wash. It's worst in the "side-boob" area, under my armpits. I get pretty miserable sometimes, especially after being on my feet for a while.

    I'm probably going to get my permanent implants in early June and I cannot wait!!!

  • trailrose
    trailrose Member Posts: 219
    edited April 2015

    Hi KbellaK, My plastic surgeon explained that the tingling, burning and even stabbing sensations are nerve related. Sometimes redirecting your attention/thoughts to something else positive can help. As of March 26th I had my last fill and am awaiting my exchange surgery May 1st. I, luckily am having none of those nerve pains anymore! Have you talked to your PS about this? Remember we all heal differently and have different tolerances for pain. The only thing that the TE's cause is some back discomfort due to them being a little heavy. My husband gives me a massage every evening along my upper back and shoulder blades and that helps tremendously. It's true that others don't understand what we are all going through. They haven't experienced it and I hope they don't but until one actually goes through this you don't know! When my little sister went through this with her TE 11 years ago I felt so bad for her but truly had NO idea what she was feeling until now. How exciting that your exchange surgery will be here soon!

  • CassieCat
    CassieCat Member Posts: 1,257
    edited April 2015

    Hi all. My team didn't want to do TEs yet, knowing I was going in for rads. So I've healed well from surgery and finished 7 weeks of rads, but no recon of any sort yet.

  • trailrose
    trailrose Member Posts: 219
    edited April 2015

    Hi Cassiecat! Good to hear you've healed nicely and finished your rad treatments. Sounds like you have a good team taking care of you. I saw in another post that you're doing a C25K! You go girl!

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited April 2015

    Cassie, I was just thinking about you. So glad to hear another treatment is behind you. Only a few months left of Herceptin right? Hoping for minimal side effects with tamoxifen. It is good that your PS wants to delay reconstruction to allow your body to heal properly. It can only increase your chance of a successful reconstruction. You seem like a patient person...well you have to right if you are a teacher?

    KBella, with my last fill, which was two weeks ago, I have been having burning/soreness more laterally near my armpit and incision sites where the drain were. I can feel the pull of my skin there. Trailrose is right about how massage really helps relieve the pain/soreness.

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