Anyone experienced a DX of residual disease soon after MX

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Nolton9
Nolton9 Member Posts: 25
edited March 2015 in Breast Reconstruction

Good Afternoon Ladies,

Very Interested, to find out, if any of you have experienced a diagnosis of either RESIDUAL (or RECURRENT) disease, following a mastectomy (especially a skin sparing mastectomy), please? especially anyone, within a year of first op, as I'm told this almost certainly points to a technical fault with the mastectomy rather than recurrence.

if that is you, too, I'd really like to hear from you (by PM if you prefer), if you are happy to share, please?

My 'story' follows - I am 44, mum of 3 - I had a MX with DIEP for widespread DCIS in April, 2014. I then found more, similar evidence of disease, just 8 months out from intial operation. I am going through further treatments (2 x WLE to date and planned radiotherapy), with a new clinic , just now - (v thankfully still with a good prognosis). But whilst I thought I was a 'rare breed' (don't we all want to be that? - just not in this context tho!) to be back so soon, after mastectomy..... Whilst booking another element of my treatment, I have already been approached by another lady, to say that her friend has had a very similar issue, at the same hospital - and is also back in treatment.

Unexpected outcomes do happen, but they can't just happen and not be improved upon quickly and openly, I firmly believe that. This site is a great, reasurring resource for sharing and support and generally looking out for each other; during what can be a very isolating, frustrating experience. There are alot of us and that helps to change things.

Thanks for reading my post....

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