February 2015 surgery
Comments
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Hi ladies,I'm new to this forum. I just wanted to say you all inspire. I will soon have to think about going in for a 2nd revision to correct rippling and was wondering if any of you ladies from NY could PM me the names of the PS you have used. My PS that I've had for a year doesn't know why my last revision didn't work so I must start anew. Thanks for any advice or suggestions you have.
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Greenae... congrats on the drain removal! It makes a huge difference, doesn't it?
My nsbmx was 2/13. PS last week continues with my 10 lb (push, pull, lift) activity restriction so you should definitely wait until you have clearance, either from BS or PS.
Good luck!
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Hi ladies,I went for my second and final fill yesterday. If all things go well I will have my exchange the beginning of June.
They did what is called a rapid fill. I am at 600cc now.
I think I was right, that because I had lost weight there was more skin than they thought.
Jilly, I hope your first day back to work went okay.
Jean, you always make me smile as well.
Arlene, my PS told me I can begin to exercise in another 4 weeks. I'm glad you are drain free!
Justamy, I really am praying for everything to get better for you. You need a break now.
Nurseshark, you sound like you and your husband are being very considerate and sweet with each other.
Love Robin
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Hi Rak!
Glad to hear all going well for you!
First day back to work yesterday was exhausting... grateful I am part-time.
Saw psych this morning for an anti depressant before I start aromatase inhibitors. Yikes! He gave me Effexor and within a few hours of taking one (37mg) I guess I had what's referred to as a panic attack. Scary. Immediately took xanax and now okay. Back to the drawing-board. Sigh.
My current 'side effects' are a result of going off hrt after 17 years. Would be nice if there was a pill that mimicked estrogen.
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jilly59 - yes, some of those antidepressants can make you feel like you're having an anxiety attack. You just need to find the right one for you. Call your psych and tell him you want a differnent script. When my was battlling leukemia and before he passed away two years ago, I went to a psych and he said I have acute anxiety and stress so he prescribed one of the newer antidepressants that's on the market (I forget which one) and also Klonopin cause he said it works longer in your system than Xanax or Valium. Anyway, I took only half a tablet (10 mg) the first night and I thought my heart was going to come out of my chest and also had to take a Klonopin to calm down. I called the pysh the next morning and gave him an earful. He was supposed to make my anxiety better not ten times worse. I don't care what all the literature says, find something else. So he switched me to Remeron and I didn't have those side effects anymore. Good luck!! -
Psyc docs always want to give you the latest greatest thing. Even if its not the best for you. They tried several with me before going to the old Prozac. That was the one that worked for me. Glad you got something that works. Jilly, keep at it till you get the right one for you. Hugs Amy
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Thank you, Amy! I have been reading you're posts and glad you're doing better than last month!
MJH1- Thanks! I just googled it and will definitely ask him about it!
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Arlene- def find out from your PS on exercise. Mine said walking was always fine. Between weeks 4&5 is when I started back at the gym, treadmill and recumbent bike- and not aggressive. Toward the end of that week I did a bit of light jogging and it felt ok. This week I moved to the elliptical. I haven't done any weights at all and nothing that uses chest muscles. I'll be six weeks post op on Friday and have no official restrictions after that.
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justamy, get the sleep while u can! Give urself a break and enjoy it.
Speaking of depressants..I've been put on Pristiq, it's supposed to be kinda like Effexor but it doesn't go through ur liver apparently. Still waiting for it to work. I thought these things r supposed to make u less anxious
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Thank you, JustaJenn. I am trying to do the post drain removal arm stretches my BS gave me, and am struggling. My left arm is so tight, I guess from the SLNB. I don't want to overdo, but don't want to lose my strength. I think I will ask for a PT consult when I go to Doc tomorrow. Thanks for your advice!
arlene
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Thank you, Rak1 and Jilly
Oh, the Drain SUCKED! I am sorry...I had to say that.
And I will wait on the exercise...just wondering if I can ride my stationary bike a bit...I will definitely ask, first.
Thanks for your help,
arlene
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mjhi
I sent you some PMs with PS names in nyc
good luck!
arlene
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Arlene, I was sent to PT for lymphedema evaluation after my mx. They took the measurements of my arm, checked my range of motion and were quite happy about it, given the timing after my mc. I had already been doing the "hand walking on the wall" stretches after my first surgery, after being cleared for them by my BS.
The PT went over the exercises with me again, and I'm supposed to go for the follow up soon.
Don't be discouraged by the difficulties you're having with the stretches though. It takes time to stretch to the comfort level, it goes gradually.
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Arlene - thanks for the PM. As far as stretching, that will come gradually after the doctor allows. I did walkng up the wall exercises with my fingers, leaning on the wall and stretching and anything else that would stretch out my arms but gradually. I didn't do PT because I didn't see the need to pay a co-pay for every visit when I could do the same at home. Good luck and take it slow!!
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Thank you, mjh1 and BB!
I will keep up with the stretches, I just could not believe how "tight" I felt the first time I tried...I was in good shape on 2/25. My BS and MO don't think I need/should to go for PT now...going to start chemo next week. I just always feel I have to "overdo" everything...lol
arlene
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greenae - yes, it's quite tough telling yourself to take it easy when you're used to being active, but you just had major surgery not even a month ago so you need to give yourself a break.
P.S. We definitely must be tata sisters becaue I had my BMX 2/26/14. What a small world. And thanks again for the PM. Will definitely call their office to ask about insurance since Empire's website is never accurate. Somone should start a whole new forum just related to insurance issues. I could write three pages worth from my fiasco last year.
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MJH1
Wow...crazy coincidence with the dates...never was too fond of February...lol...but guess I should see the surgery as a good thing...getting rid of that BC Crap! Good luck with the insurance...Mine can also be a royal pain...I actually feel anxiety when I see an envelope from them in the mail. When I spoke with the PS office, insurance was my first question...and so far, no probs. Hope the same for you.
arlene
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Arlene - thanks again for the contact. My next question now when I call PS's after do you take my insurance and they tell me only out of network (which I don't have) is how much is a consult fee. They finally made it a law that insurance has to cover breast reconstruction but yet they didn't make it so that doctors had to accept your insurance to do the reconstruction. Go figure.. keep us posted on your progress!!!
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mjh1,
Why don't you work it the other way and call your insurance and ask what PS are in your network and start there? Make it their problem to find you a new PS.
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mjh, did you call my PS yet? I hope they take your insurance.
Love Robin
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fourminor - I don't call the insurance company and get referrrals because they all jackasses. Ever since Obamacare came into play Empire BCBS has been a nightmare. Every time you talk to a person you get a different answer. They're still trying to sort out all my claims from last year because I was enrolled in a plan January, somehow or other there was a glitch and I was accidentally disenrolled and reenrolled in May but with a higher deductible and then finally in October I was put pack to my original plan but of course all the claims they processes between May and October were wrong so they still trying to sort that out. Yes, since October. I found out at the end of January whoever was supposed to be taking care of it just left it open so they never went anywhere so that will take another two months. Their website is never up to date either as far as doctors in network so I learned it's just easier to ask dr's office.
RAK - no, I haven't called yet. Spoke with my PS last night and he really want's me to consult with the system chief at NS-LIJ said he would go with me cause he said he showed him and also the chief of plastic surgery my pics and they both said fat grafting now. I said well, did you tell them I don't have extra fat?? He also recommended a PS at NYU (you were right FK) and one at Lenox Hill if I didn't like the system chief. So I am slowly tryng to go through the list to see who takes my insurance and who doesn't and who I can get free consults with. RIght now I'm thinking consult the system chief at NS-LIJ since that's where I had everything done, go to NYU because I got a lot of recommendations for doctors at the breast reconstruction institute and also go to Lenox Hil and see what each of them has to say. Of course, I have to find the time to do all this since no doctors seem to open past 5. How is all going with you so far??.
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Good Morning Everyone!! Just thought I would check in and say hello. I've been reading through the posts and I am happy to see that many of you are doing so well. It really is true that you never really know how strong you can be until there is no other choice. All of you are an inspiration to me. Things are getting back to normal for me. More of a new normal. My PS is still away and because I had the infection, I have not been filled since my first week post-op. That's probably why I feel pretty damn good. I'm back to taking care of my granddaughter full time. PS has given me permission to work out on recumbent bike. Still restricted on lifting. I had my first appointment with MO. She talked with hubby and me at length. Went over pathology, oncotype, history and cancer math. She says she takes everything into consideration and does not make her decisions based on the oncotype score alone. My score was a 21. Low end of mid range. Based on the overall picture, my benefit from chemo did not out weigh the risks!!!! NO CHEMO!!!!!!!. I have my prescription for arimidex. Planning to start pills on Monday. 5 years of hormone treatment. I feel very blessed yet very nervous. Basically, I have to be very vigilant and aware of any changes that may happen that could signal a recurrence or metastasis. They do not do cancer markers on early stage breast cancer, nor will they do unnecessary scans. I feel like any new ache will terrify me.
Thank you all for allowing me to vent. Only those of us who have gone through this can truly understand. May we all continue to heal and find some normalcy. You are all always in my thoughts and prayers.
Love,
Joanne
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FaithHopeCourage-
Glad to hear you're doing well! My surgery was 2/13. Met with MO Friday and she too said she was ok with no chemo. My Oncotype was 19. They also told me no surveillance... Just to pay attention to pain that's not my typical pain.
She wants me to wait on starting arimidex until my infection issues resolve. They're currently on the fence about putting me in the hospital for IV abx. One of my incisions opened 4 weeks post op.
MO says arimidex 5 years...BS says 10. Hmmmmm.
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So sorry to here jilly!! My incision didn't open but was very red around incision. PS put me on high dose antibiotics, 2000mg/day with antibiotic cream. It looks a lot better but still a little pus on incision in areas. My breast was previously radiated in 2000 so higher risk for infection. I hope you can bypass the iv antibiotics and the hospital. I haven't been to BS since MO. Now you've made me curious. We shall see....
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first appointment with RO tomorrow. PS cleared to start anytime now.I am 5weeks post Op as of Friday. Finally slept in bed for first time didn't feel awful (lots of pillows). My range of motion is still not great chest is so tight. Starting pt on April 2.
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Good luck NurseShark!!!
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RO wanted to do simulation/ct scan / tattoos today start rads next Monday... I got on table to do ct scan and couldn't get my arms in correct position
Try again next Friday! Until then ROM and stretching.
RO said my reconstruction looked amazing though! A
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Hi everyone, hope your healing is all going well. I had a down couple of weeks 4-5 weeks post-op. Of course this coincided with beginning Tamoxifen so I'm not sure what to blame on what!
My TEs are at 420, still have a long way to go. I finally went bra shopping yesterday- with the right amount of lift and a little padding, I'm looking ok with clothes on. I'm impatient to have the exchange already when it is still months away.
I decided to look into physical therapy, and I also have an acupuncture appointment set for next week. I wandered into our local Cancer Center and the receptionist let me know of a number of resources including a "survivorship" appointment. I was so glad I stopped in. I recommend this to you all as well if you have a local center.
Keep on keepin on ladies!
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I am new to this forum but did lots of searching and reading before my February mastectomy and really appreciate the information and experiences that everyone shares so openly. It helped me as my surgery date came closer and inspired me to join the forum in case it can help someone else as you have helped me. Except for having to get the TE removed a couple weeks after placement (the original plan was to start reconstruction immediately) due to infection, everything was smooth and I'm feeling great. The worst part really was the drain, it was annoying when it was in and to get it out it hurt worse than anything up to that point. Looking forward to starting radiation soon and we'll try reconstruction again sometime in autumn.
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Tapanga - welcome to the sisterhood. Sorry, to hear you had to have your TE taken out. We've all had our fair share of complications in one form or another so we're all here for each other. Good luck with the radiation!!
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