DCIS and Brac2 postive

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Zer35
Zer35 Member Posts: 8
edited March 2015 in Just Diagnosed

I am only 35 with no history in my family of breast or ovarian cancer so this is a bit shocking and hard to swallow.

Docs are amazing I even kept my mammo appt and positive that I found it so early. As anyone of you know this is not something you want to go through so its hard to hear one test result after another. I went in because I felt a lump. The lump seem to disapper after 4 to 5day however my mammo was 2 weeks after my doc appt. the doc thought is could just be a cyst but wanted to double check. This was my first mammo ever. There for first biopy ever which the biopsy was very uneasy painful and scary. 3 days later I got the call it was DCIS and meet with a breast surgeon. She thought it would be wise to take the gene testing. One week after gene testing I found to be postive for BRAC2. I am now facing to decide for a double mastectomy and revome my ovaries and tube (NOT in the same day). I feel my life has changed! My heart goes out to the women who are in later stages and I am grateful to find it early but I am still devasted and scared. I know I dont have the right (I think) to feel as bad as some who are going through worst then I am. I cant stop research about this. I cant stop wondering what I will look like after. I know this is something I must face and know what I have to do and dont want to seem vien but the part that sacres me most it looking disfiguered not having the outcome i want/need. I am not new to cosmtic surgies as I had a tummy tuck/lipo done and a breast aug but i was lucky for those result to come out as amazing as they did. I guess I felt how much more luck do i have left that this will goes as well as the others. The risks have me unable to sleep. to top it off I have to tell my family to get tested I am the oldest of 8 kids. my husband is great and really trying to be postive but he feels the less we talk about it the more positive we can be. But not talking it is driving me nuts. Sorry if I am ranting but I am all over the place with this. Some days I am ok with it but other I am overwhlemed with everything. I want to thank all of the women who speak up and have blogs or chats it does help but its still so hard.  I try to speak to my friend and I know its hard for them to heard but I get the "you will get through this" I know that I will get through and sometime dont want to heard I get through but cant help feeling lost and worried of the after math. I sat in my youngest childs room one and cried and felt grateful that I will be around for him and hopefully for my grandchild. am I really worrying too much am i stupid to feel this way knowing it could have been worst?? 

Comments

  • april485
    april485 Member Posts: 3,257
    edited July 2014

    You are NOT stupid for feeling this way! You are mourning your loss of innocence and soon the loss of your breasts. For what it is worth, you are doing the right thing regardless of how hard it is. You also did the right thing finding out your BRCA status for your children's sake. I am so sorry you have to go through this and that you are so young!

    Please ask your doctor for some xanax or ativan to help you not feel so overwhelmed. You are reacting completely normal given the gravity of what you are going through and what is about to happen to your breasts. As for hubby, it is hard for him too but in a different way. Gently nudge him to give you what you need in terms of support and if he does not want to talk about it then there is no use trying to force it. HUGS and you will be in my thoughts and prayers.

  • Scaredmama35
    Scaredmama35 Member Posts: 11
    edited July 2014

    Just last Monday I too was diagnosed and I too am 35. While I don't have many encouraging words, being that I might still be in a state of shock myself, I wanted to let you know that I am here. This place has truly been a blessing to me during such a dark time in our lives. I don't know why but seeing that you are 35 as well gave me some strange peace. (  of course I would rather you not have it, but taking comfort that we are the same age) I figured you might like knowing that about me as well! 

    One thing that I have finally convinced myself of is that this is NOT a death sentence, we will get through this. I am stage 1 grade 1 and just last week I took the test for those genes as well along with a whole panel of other genes. It scares the crap out of me but I must find out for the sake of my kids! Deep breaths....

  • besa
    besa Member Posts: 1,088
    edited July 2014

    You have a lot on your plate right now.  It is OK to feel whatever you feel.  There are no rules or right and wrong about this.  I just wanted to give you a good resource:

    www.facingourrisk.org     "FORCE" is a great source for information and support for women dealing with hereditary bc.  In addition to the web site with message boards and lots of current and accurate information they have local groups - so if you want to you can connect with other women dealing with exactly the same issues you are facing.  

  • Zer35
    Zer35 Member Posts: 8
    edited March 2015

    thanks for all comments and support . I am doing good and taking things day by day. I had my mastectomy in Sept and now recovering from a hysterectomy and final breast reconstruction in Jan 2015. To me the mastectomy was far worst. I am now seeing a pulmonary doctor because 2 nodules in my lungs was found. It was crazy to read an article that linked lung cancer and the brca 2 gene. I am foucing on my future and what is next. This is still a shock as my mom 2 sister has also found they are positive for this gene. I must say during this hard time it has brought me and my oldest child closer. This makes me happy and I now can see some good thing in the worst news. Everything happens for a reason and hope this is the of the cancer. Oh I was stage zero after mastectomy stage 1 and 5 types of cancer so I did make the right desicion. Had I not found it. It would have been far worst

  • Zer35
    Zer35 Member Posts: 8
    edited March 2015

    tHanks and I too am here being I went through so much and can now help someone else. My prayers are with you. And wish for the best outcome. THanks so much for your words

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