Starting Chemo February 2015

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  • rleepac
    rleepac Member Posts: 755
    edited March 2015

    Take your Claritin!!!!!!! That bone pain is no joke!!!

  • rleepac
    rleepac Member Posts: 755
    edited March 2015

    Take your Claritin!!!!!!! That bone pain is no joke!!!

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited March 2015

    I put my Claritan in a pill dispenser that has the days of the week on it. Take it every night when I brush my teeth as don't want that bone pain. My friend said it was the worst part of chemo and if she had a choice to do chemo again she wouldn't as it was so bad for her. Knock on wood it has worked for me. Get CT#3 tomorrow and Neulasta Wed.

  • Bikerbabe17
    Bikerbabe17 Member Posts: 116
    edited March 2015

    Good morning everyone.  It's been great reading about who everyone is, I'm writing down everyone's name--because I keep forgetting--go figure, and now I get peoples user names:)  Funny how that all comes together.  I have been feeling so like my self these past 2 days, it's been great.  But the #2 is right is just a few days away...so I know this feeling is short lived.  My mom took me shopping yesterday, I got some lovely spring dress and shoes to die for...I'm so looking forward for the mud to go away so I can wear them, and such pretty spring colors.  I love my mom.  And she has made several hats witch are beautiful. 

    My insurance company sends me my nuelasta shot.  I guess it's less expensive, I'm not quite sure.  My OC told me I could give it to myself or bring it in and they would give it to me.  Since I work in the same town, I am having them give it to me, but it sounds like that might be a good option for you wrmbrownie.  I'm not crazy about giving it to myself, but sound like it might be ok to do.

    My hair is really shedding now, it's cut short so it's not too bad, just one more thing about this journey that we all find challenging in our own way.  Damsefly, where in NH are you?  I live in the southern part of VT, right on the CT river.  What a exciting job :)  I bet it's like riding a bike, once you get back in the seat, it will all come back to you.

    Have a great Monday everyone, hope the SE are minimal for all, and hugs to those of you in need--well hugs to everyone, that's another thing I'm learning--hugs are so welcomed!


  • wrmbrownie
    wrmbrownie Member Posts: 114
    edited March 2015


    I'm going to have to start writing names down too to learn who is who. Thanks live_deliciously and bikerbabe for the info on nuelesta. I also found/watched the Joan Lunden video blog too. I really enjoy everyone's responses on here and feel like I'm not so alone when I come to this forum.

  • Damselfly
    Damselfly Member Posts: 62
    edited March 2015

    Bikerbabe, I'm from Portsmouth, which I love, though I fly down in the Gulf of Mexico. We have lost almost all of our snow by now and are in the stage where I keep taking off my coat and then putting it on again... I am loving the milder weather.

    Thanks for the Claritin reminders everyone! I am on week 2 now and last time I think I stopped earlier because I had heard that people just took it for a couple of days after the shot, but last time Tuesday and Wednesday of week 2 sucked so I will take it for a couple more days this time. It's not doing any harm at any rate.

  • Nina2015
    Nina2015 Member Posts: 16
    edited March 2015

    ^I only took Claritin for a few days and it helped. My first round I had to wait until Monday because I got chemo Fri and it hurt a lot more than this round when I was able to get it 24hrs after chemo. Actually I didn't feel anything this time.

    Had a very rough night, puking, runs, hot and cold flashes. Ended up having to go in and get fluids and zofran today and feel a lot better. I'm hoping the zofran I got to take home can keep the sickness away. Not sure where that came from, but I never want to be in that spot again. Here's to happy Tuesday soon!

  • Paddymom
    Paddymom Member Posts: 29
    edited March 2015

    I enjoy reading all of the posts, but never get around to posting myself. I am 60 years old and from central Kentucky (go Wildcats!). I am the mother of three sons, one daughter,and grandmother of three. My user-name comes from one of my other loves, my 8-year-old miniature poodle. I have a wonderful husband of 39 years. I retired from teaching middle school 7 years ago and have since kept two of our grandchildren while the parents work. I love being outdoors in the sunshine, gardening, canning, crafts of all kinds, and reading.

    I will be going in for chemo #2 on Thursday. The first one left me weakened from a lot of the big D but the past two weeks have felt more like myself. My hair began falling out today with a vengeance. I have a really dumb question. What do I wash my hair (or lack thereof) with now? My scalp is really itchy and dry.

    Hang in there, ladies. Tomorrow is one day closer to the end.

  • Jaejk5
    Jaejk5 Member Posts: 29
    edited March 2015

    Paddymom, we are on the same chemo time table. Thursday will be my second treatment. I'm dreading it because I feel like myself again. Oh well it will be over April 30!!!! I'm also 60 years old and retired now. I am so grateful to all the information shared on this site. Did you receive the Nuelesta shot the day after??

  • Damselfly
    Damselfly Member Posts: 62
    edited March 2015

    Hi Paddymom! Welcome!

    I have heard of other people just continuing to use shampoo and conditioner on their scalp, maybe if you are flaking some dandruff shampoo would help with that and the itching. Don't know from personal experience.

    Hang in there Nina2015! Hope the worst is over for you.

  • Paddymom
    Paddymom Member Posts: 29
    edited March 2015

    Jaejk5, I did not have neulasta since my insurance did not approve it. Since my blood counts were quite low I had two Neupogen injections last Thursday and Friday. Hopefully that will bring counts up so that Thursday's treatment will be a go. I too dread it but am looking forward to having another one behind me.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited March 2015

    Paddymom. My dog Chloe looks like a poodle even though she is 1/2 border collie. She is white and fluffy. Great minds think alike!

    I wash the stubble with a rich conditioner. Rub it on- take a shower- rinse it off. The hairdresser suggested that. Don't need drying shampoo to remove oil. Then I massage my head with coconut oil. Bought a jar to cook with and scooped out a bunch and put it in a small container. I rub in between my palms to melt it and then rub away. Any stubble that sheds sticks to my hands and it has cleared up red sore blotches that I was getting

  • Paddymom
    Paddymom Member Posts: 29
    edited March 2015

    Chloesmom. I think I will try the coconut oil. That seems like it would be soothing for the tender follicles! Thanks for the tip.

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited March 2015

    Paddymom, I use Johnson's Baby Shampoo and Pantene Conditioner. I use the conditioner just because it is my usual, and it reminds me of when I had hair. But my hair is over 1" long already! It does come around.

  • Bikerbabe17
    Bikerbabe17 Member Posts: 116
    edited March 2015

    Top of the Mornin' to everyone, have a great day with minimal SE.  Happy Birthday to me, I spent the morning crying, because...well I just don't know why.  Thankfully I have my day and evening filled with friends and cupcakes at work so I can keep my self focused on other things.  What is it about birthdays that can get to you.  I don't usally have any difficulities with birthdays, I love them--it means cake.  Today I just feel sad and a bit scared that these days might be numbered.  Sigh.

    Welcome Paddymom, Thursday is my 2nd as well.  My scalp is really getting sore, and the little hairs are everywhere.  I just want it all to fall out so I don't see it on my clothes, my keyboard, everywhere.  I will get some coconut oil, my DD uses it for just about everything, and I bet it smells nice. 

    Damselfly, it sure is nice seeing the snow melt and the warmer temps, we are all ready for spring.

    Ok, I'm putting my smile on for the rest of the day Happy


     

  • wrmbrownie
    wrmbrownie Member Posts: 114
    edited March 2015


    Happy Birthday Bikerbabe!

  • Nina2015
    Nina2015 Member Posts: 16
    edited March 2015

    Happy birthday bikerbabe! I use Johnson and Johnsons shampoo, but put coconut oil on the other night and it was very soothing. I got sick of the little hairs so I buzzed it and then actually shaved it with the razor. Fewer hairs come out now. The only good thing is I haven't had to shave my legs...has yet to grow back.

    met with my surgeon today, and he was rushed, so he touched on the fact that I could get lymphedema from axillary lymph node removal. Now it has me in a tizzy about how bad it is and what it is like if you do get it. Anyone have any experience? Any just little notes about it? My hopes and dreams were to travel a bunch, and I'm reading online that flying should be limited?! I guess I thought come February, life would be somewhat back to normal...always have a chance of recurrence, but that I could go back to my everyday lifestyle...

  • Jaejk5
    Jaejk5 Member Posts: 29
    edited March 2015

    Happy Birthday, Bikerbabe. Sometimes a good cry feels very therapeutic.

  • Dianneryan1
    Dianneryan1 Member Posts: 1
    edited March 2015

    I was also told by surgeon no chemo necessary. Oncologist explained that because my cancer wa her2 positive, it would be to my benefit to do 12 weeks taxol and herceptin, to finish the year with herceptin every 3 weeks. Just finished 7th week. My hair fallen out. On day 2 I have severe flu like symptoms and body aches. I want to stop taxol but I'm afraid to. Any suggestions

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited March 2015

    Happy BD Bikerbabe!!! Many more healthy and happy!

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2015

    Dianneryan1, welcome to our Community, and so sorry for what you are going through with your Taxol treatment. Have you discussed with your treatment team?


  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited March 2015

    3 down - 1 to go! Had my infusion today. Was easier than the others as long as they kept a warm pack on the IV I didn't think about what was happening. No SEs. Biggest issue is still fatigue. Glad to be home in my recliner with a furry pooch on my lap. I know I have to drink water to flush and hate to disturb her to get up. If that's my biggest problem with my body today, I don't have problems myself.

    Not sure if I shared this. My dad was diagnosed with CA 5 weeks ago. It's a fast progressing type and he may go any day now. Was in great shape when I visited him 7 weeks ago, now bedridden on heavy morphine. I am trying to not let this impact my recovery, but it's been an extra challenge. Got a meditation CD with charka breathing exercises that has helped me try to stay calm. We didn't tell him about my BC so as not to upset him. It's always something!

  • wrmbrownie
    wrmbrownie Member Posts: 114
    edited March 2015


    Chloesmom....sorry to hear about your dad. Keep drinking!!

  • live_deliciously
    live_deliciously Member Posts: 346
    edited March 2015

    welcome dianneryan1. I pray that you will find the strength and answers you need about taxol. We all go through having so much thrown at us at once. I too feel like crap 48 hours after a/c for about 6 hours or so. Hate it but then it starts to diminish and i start to feel better. At that point I'm so thankful and feel like I made it thru that cycle. And that's exciting! I think I said before I had to break it into phases or it would seem undoable.

    Happy birthday bikerbabe. I too have a birthday soon. Big 50. Was planning a big bash but not sure now. I love wine but haven't had any since chemo started.

    Chloesmom. So sorry about your dad. Pls keep us posted.

    I have a bff Pomeranian. Her name is jazz and she is like my kid. My youngest is 25 so she is like my dh and my kid. Had her almost 4 years.She is spoiled but gives us the greatest joy. Love her to the moon. Oh and I've been married 23 years in may. I tell him he's my rock. So thankful he is still by my side through all this. He still makes passes at me even though I told you guys I feel like a rag doll. He is good for myself esteem that is so sensitive right now. Glad I have him. Used to tease him i was gonna trade him for a young pool boy but now i tell him he is solid that I've worked too hard on him to trade him now. Haha .


  • Nina2015
    Nina2015 Member Posts: 16
    edited March 2015

    Chloesmom, you are so strong and selfless by keeping that from him. That is so nice of you to not put more on him during this time. I am sorry to hear he has such an aggressive form.


    Livedeliciousy, I hope 23 years down the road my husband and I are like that. We have been married three years in may and he does the same for me now. I feel bad for him because I still feel insecure with my bald head. He is a good support though and I don't know what I'd do without him.

    Hope all of you ladies have a good wednesday!

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited March 2015

    My Dad passed peacefully this morning. May we have as good a life as he had. Thankfully the last stage while bone cancer was short and well managed with wonderful hospice. May we all be blessedhave a quality life and graceful exit.

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited March 2015

    Chloesmom and Family, I am so very sorry for your loss. I hope knowing that your Father's last days were filled with love has brought you peace. Prayers and hugs. I hope to be as blessed for a graceful passing when my time comes. Take Care. Cheryl

  • Bikerbabe17
    Bikerbabe17 Member Posts: 116
    edited March 2015

    Hi All,  Can I just say I love my friends.  They were all so wonderful to me yesterday.  I had a very good day, and dare I even admit that at dinner, I even forgot about it for a few mins.  Yes, indeed I did :)  Champagne, balloons, cake, presents, a shot light on fire--which I promptly drank :), laughter, good food, and more laughter.  My coworkers and friends rock!

    Chloesmom, my prayers to you as you struggle thur your dad's illness.  It has to so difficult for you.  And yes...drink...water

    Welcome dianneryan1, to our club :) 

    I have a black lab, who has replaced the grown children, and is now our child.  He's such a good boy and so very handsome. Livedeliciousy, I got thur my 50th by giving myself a grand gift (my big girl motorcycle)  Had something to look forward to all year, I was ever so happy to turn 50.  When is your birthday?  Tomorrow is #2...

  • wrmbrownie
    wrmbrownie Member Posts: 114
    edited March 2015


    Chloesmom, I'll be sending you and your family positive thoughts and prayers. I'm sorry for your loss.

    Bikerbabe, glad you had a great night celebrating!

    Dianneryan, my surgeon told me chemo wasn't necessary also. But then I met with my radiation oncologist who explained it further and said that I did (he changed my stage from 2 to 3 based on my cluster of malignant lymph nodes.) It sounds like we're doing the same thing as I finished my 7th Taxol last Fri. I trust the oncologist more than I do the surgeon. However, that being said, when I initially saw the surgeon, I didn't have my her2 number in yet and they said if it were positive, chemo was definitely suggested. Hope this helps.

     

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited March 2015

    Wrmbrownie. It's a bummer when you think you don't need chemo and then you do. My BS told me no chemo in Dec. and we told the world it really blindsided us when the oncotype came back. All my support network thought I was on the homestretch and back to work

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