New Diagnosis of ILC

hartrish
hartrish Member Posts: 380
edited March 2015 in ILC (Invasive Lobular Carcinoma)

Hi Everyone

I was diagnosed yesterday with ILC of the left breast. Next week I will have an MRI and genetic counseling. I am most likely going to do a BMX with reconstruction. My mom had breast cancer too and had several lumpectomies, followed by BMX. I really don't want to go through with all of that but once. Been a tough few days emotionally but I know I will feel better once I have a treatment plan. Does anyone know a PS named Dr Theresa Wang in Atlanta or Dr Symbas in Marietta Georgia? I am interviewing both of them to decide on which PS to use. First hand experiences with either physician would be most appreciated.

I appreciate all the encouragement and sharing on this site. I know I am not alone in this battle. Always nice to connect with individuals who have lived the same experience as you are going through.

Tricia

· Share on FacebookShare on Twitter

Comments

  • mary625
    mary625 Member Posts: 1,056
    edited March 2015

    Hi, Tricia. I'm so sorry you've had to join us, but we are a supportive group! I do not know of either surgeon. I was just wondering if you will be seeing an oncologist. I hope your MRI shows a very small area and you won't have to

    · Share on FacebookShare on Twitter
  • hartrish
    hartrish Member Posts: 380
    edited March 2015

    I have not been referred to an oncologist yet. I have an MRI on Monday so I am thinking that will occur after the results. The waiting is the hard part as several individuals have indicated on the threads. Thanks for touching base with me.

    · Share on FacebookShare on Twitter
  • wallycat
    wallycat Member Posts: 3,227
    edited March 2015

    So sorry you are joining us.

    Waiting is the WORST.

    I remember the day I came here like it was yesterday.....all the ladies here are helpful and kind and gentle.

    We'll help you through this as best we can as you learn more.

    Again, so very sorry you are joining the club no one wants to join.

    Curious your age and how you found out.....many of us think ILC is sneaky, so we try to figure out a game plan.....

    · Share on FacebookShare on Twitter
  • hartrish
    hartrish Member Posts: 380
    edited March 2015

    I have been getting mammos and ultrasounds every 6 months for about 3 years. My mom had breast cancer so started going to a breast specialist. This last mammo was normal but during my appointment the NP did an ultrasound and found a shadow. Biopsy recommended and was positive. I am hoping it is localized since I have had mammos and ultrasounds so frequently. I am 58.

    · Share on FacebookShare on Twitter
  • Trvler
    Trvler Member Posts: 3,159
    edited March 2015

    Do you know how big your tumor is? ER, PR, HER +/-?


    Also, if you are interested in plastic surgeons, try the reconstruction area. There are tons listed on there. A lot of good ones are in your area of the country.

    · Share on FacebookShare on Twitter
  • hartrish
    hartrish Member Posts: 380
    edited March 2015

    I don't know how big the tumor is since it did not show up on mammo and only looked like a shadow on the ultrasound. I have an MRI on Monday so I should have more information at that time. It is ER and PR positive. I don't have HER2 results yet. Hopefully next week. I have decided to use Dr Therese Wang in Atlanta for a DIEP procedure. She has had extension training in this area. I also talked to an OR nurse at the hospital (I worked there previously) where I will have the procedure done and she said Dr Wang had excellent outcomes. If anyone had surgery by Dr Theresa Wang (Atlanta), please share your experience with me.

    · Share on FacebookShare on Twitter
  • vlnrph
    vlnrph Member Posts: 1,632
    edited March 2015

    Did not have Dr Wang but my DIEP went well and hope yours will be fine also. Never ceases to amaze me how lobular lesions are so difficult to detect. Your NP did a good job!

    Excellent idea to go for genetic counseling: whatever knowledge we can glean now will help those who follow after us. Perhaps your mom will be tested also?

    · Share on FacebookShare on Twitter
  • hartrish
    hartrish Member Posts: 380
    edited March 2015

    Hi vlnrph. My mom did have genetic evaluation. At that time, they said my sister and I had no more chance of getting BC than the general population. Go figure. We have 8 cases of breast cases in 3 generations of my family. My mom had DCIS where I have ILC. Will be interesting to see what they tell us this time around. I have one daughter so I want to be sure to have her follow up frequently with breast exams.

    · Share on FacebookShare on Twitter

Categories