MIDDLE-AGED WOMEN 40-60ish

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  • Valjean
    Valjean Member Posts: 1,898
    edited March 2015


    Hello everyone! It has been awhile since I've posted on this thread. In fact, I don't get to BCO nearly as often as I used to. You know, I remember early on in this ...... gosh, I so hate to say **journey** .... I'll just say, I remember gals here saying they don't think about what they've been through, this SFBC thing, every day.... the days just pass by & they are so busy doin' their thing, they just DON'T...... And I guess that has been me for the last several months.

    My 6th year cancerversay was last Nov 5th & I didn't even think about it that day. I went to lunch & shopping with a couple of special friends & we had a wonderful time. I didn't think about what the significance of that day was until a few days later. How cool is that?!? I had a beautiful Christmas with my daughters, SIL's & Grandchildren & loved the smell of the cold, snowy air & am awaiting the arrival of the leaves & flowers of spring.

    I passed my Feb 20 date of beginning Aromasin, of which I have been on for exactly six years now. Doing well & hope to continue to. I see my MO every 6 months with my next appointment April 1st. I had my labs done a couple of days ago & am keeping my fingers crossed that all is well with that.   

    Life does move forward. I lost my Mother 37 years ago.........so far, that was the worst day of my life..... You hear this often, but it is true... she really was my best friend.... And guess what I did that day......I celebrated my life by having a very long conversation with a dear friend....laughing....sharing.....just living. And as this friend said to me, that is what she would want, me living.

    So, it does happen. We move forward because that is what we do.

    I think of all of you; I do see some of the great gals (friends) here on FB & we share there. It saddens me to see the new gals (& guys) here.... welcome. I am glad you found us.

    I have made some lasting friendships here, I do know that. And I wish that for all of you here, as well. I will continue to **pop** in every once in a while, if not to post, then to at least check out Elimar's pic at the top!!

    Ô¿Ô 

     

     

     

  • Dianarose
    Dianarose Member Posts: 2,407
    edited March 2015

    way to go Elimar!


  • elimar86861
    elimar86861 Member Posts: 7,416
    edited March 2015

    Glad to hear from you, Valjean. You always do quite well with those routine labs, so I do believe the results from your blood work results will be very undramatic (and we likes it that way!) It probably does make some kind of difference, the age we are when we lose out moms BUT it is one of the greatest losses we can have no matter when it occurs. I think we have to honor our moms by living full and happy lives (like they would want for us) even tho' we might miss them daily. Sounds like you have a wise friend!

    In case if the newer ladies think, "Why do some Middies bother to come on this thread just to say they don't hardly think about their BC," well, we are really trying to pass on a form of encouragement...that you just might reach a point where it does not occupy your mind all day, every day, like it does in the beginning. It's like most things of a traumatic nature, your mind does you the kindness of removing some of the horror over time. It will happen for you too. Meanwhile, while the horror is fresh, you can be as open as you wish here and we ALL understand it. Yes, we do.

  • DayLily15
    DayLily15 Member Posts: 144
    edited March 2015

    Thank you Elimar and the ladies like you who do pop in to tell their news, and the knowledge here is profound .

    Health to All :)

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited March 2015

    Hi, DayLily15! I am sure the fresh horror I was just talking about rings a bell with you right now. Want to wish you the best for upcoming surgery. If we can assist you with any info. or anxiety, let us know.

    Just had a thought of how a few people don't care for the "fight" cancer or "battle" cancer phrases because they don't feel like "cancer warriors." I get it, but then I just don't think you can really have a "peaceful co-existance" with cancer. There is just no "cancer detente," is there?



  • Deborah2012
    Deborah2012 Member Posts: 234
    edited March 2015

    Elimar, The post about why some middies come to post when we don't think of our BC was a truly beautiful post. Thank you for that one. Super meaningful.

    I just saw the bacon tiara!!!!!! How on earth did you manage the rosettes?????? Very artistic! I love it!

    Valjean's post really touched me. So glad she made friends here on BCO. I made one of my best friends here on BCO.

    DayLily15, private message me if you've a moment. My right MX was in 2012. Sorry you're part of the "club".

  • DayLily15
    DayLily15 Member Posts: 144
    edited March 2015

    So far this site has helped me pretty much keep it together, and it has answered most questions i have had, plus some i didnt know i had [ like silky satin pj bottoms to slide out of bed :)]. im concentrating on being ready and able for the surgery.

    Telling my loved ones was horrible, but now thats done i feel much better. i had to practise saying "i have BC "

    Thank you all for the welcome

    Health to all :)




  • glennie19
    glennie19 Member Posts: 6,398
    edited March 2015


    Daylily: some like to sleep in a recliner after surgery. I don't have one of those, but I got a bed wedge pillow that looks like a big triangle and that was really helpful for me.  Bring a pillow in the car for the ride home to cushion your chest from the seat belt. 

  • chipmunk57
    chipmunk57 Member Posts: 58
    edited March 2015

    Daylily, make sure you have some button-front shirts to wear, as you won't be able to pull anything on over your head for a while. Also, you won't be able to shower until your drains come out, so some facial cleansing wipes that don't need rinsing are easier for sponge baths than a facecloth and soap. I loved my satiny pj's too!

    Best of luck for your upcoming surgery !

  • glennie19
    glennie19 Member Posts: 6,398
    edited March 2015

    Walgreens has really great large size cleaning cloths that need no rinsing. Look in the "medical supplies" aisle for them. They are large enough that your hand fits inside the "glove".

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited March 2015

    I LOVE how we help!

    E, I'm reading a book called Time is A River. by Mary Alice Monroe. It's about fly fishing & BC recovery. It talks about Casting for Recovery which you and I weren't successful in getting to go to (I still want to learn to fly fish especially re-fueled by accidentally picking this book up at Barnes & Noble in the sale row; started it have to finish) I think this up-coming season is a great time to learn it!

  • heartnsoul76
    heartnsoul76 Member Posts: 1,648
    edited March 2015

    I love how we help, too! A lot of this info is good to know for anytime in our lives. I had a lumpectomy and it didn't take me long to realize I needed a pillow for that seat belt. Maybe seat belts are more adjustable in newer cars than they are in my old one, but after a while mine works its way up to my neck and starts choking me. I have to pull it down every now and then. I think, if I had a wreck and it was on my neck it would snap it! Aren't I little Miss Sunshine?

    Eph, I would love to learn fly fishing too. I'm sure you have actual edible fish in Oregon, but there is a river that runs through Atlanta that my brother fly fishes (?) in. He said he just throws the fish back but that would be so fun and relaxing. I remember Sherry who used to come here was able to do that with the Casting For Recovery people and she loved it! I wonder if we're too far out from cancer to participate now?

    I just had a breast MRI and everything looks good, so I'm thrilled about that! It's just that it was ordered because my side boob is pink and hot. My BS, who ordered it, said it will rule out a malignancy and an infection. So now he's perplexed and is sending me to his dermatologist. I think it might be related to the radiation booth I had to stand in for about a minute or two at the airport recently. The pink area is the same area that had the 6 extra boosts of radiation. I think the skin may be especially fragile there and susceptible to a dermal reaction with extra radiation. But who am I to say. Hopefully, this most excellent dermatologist I'm going to see will solve the problem once and for all. And as long as it's not a malignancy I can cope. Honestly, I was changing the whole course of my future because of this pink spot. Since my BS was dismissive of the likelihood of it being an infection, I was afraid he was fairly certain it was a malignancy. And on top of that I just quit the Tamoxifen in October so I was freaked out. Ugh, it's amazing how fast you can sink back into that dark place when something scares you again.


  • heartnsoul76
    heartnsoul76 Member Posts: 1,648
    edited March 2015

    I love how we help, too! A lot of this info is good to know for anytime in our lives. I had a lumpectomy and it didn't take me long to realize I needed a pillow for that seat belt. Maybe seat belts are more adjustable in newer cars than they are in my old one, but after a while mine works its way up to my neck and starts choking me. I have to pull it down every now and then. I think, if I had a wreck and it was on my neck it would snap it! Aren't I little Miss Sunshine? Loopy

    Eph, I would love to learn fly fishing too! I'm sure you have actual edible fish in Oregon, but there is a river that runs through Atlanta that my brother fly fishes (?) in. He said he just throws the fish back but that would be so fun and relaxing! I remember Sherry who used to come here was able to do that with the Casting For Recovery people and she loved it! I wonder if we're too far out from cancer to participate now?

    I just had a breast MRI and everything looks good, so I'm thrilled about that! It's just that it was ordered because my side boob is pink and hot. My BS, who ordered it, said it will rule out a malignancy and an infection. So now he's perplexed and is sending me to his dermatologist. I think it might be related to the radiation booth I had to stand in for about a minute or two at the airport recently. The pink area is the same area that had the 6 extra boosts of radiation. I think the skin may be especially fragile there and susceptible to a dermal reaction with extra radiation. But who am I to say. Hopefully, this most excellent dermatologist I'm going to see will solve the problem once and for all. And as long as it's not a malignancy I can cope. Honestly, I was changing the whole course of my future because of this pink spot. Since my BS was dismissive of the likelihood of it being an infection, I was afraid he was fairly certain it was a malignancy. And on top of that I just quit the Tamoxifen in October so I was freaked out. Ugh, it's amazing how fast you can sink back into that dark place when something scares you again.


  • DayLily15
    DayLily15 Member Posts: 144
    edited March 2015

    hello, great suggestions, i spent some time today on line looking for a recliner, well gosh diggidy they all have right side handles... so little bonus splurge i think for me to a power recline.

    i really like fly fishing, walking up creeks in waders is neat even if you never catch one :)


  • glennie19
    glennie19 Member Posts: 6,398
    edited March 2015


    Go for the power recliner, DayLily!!  Park it in front of your TV and you are all set. Have a tray table next to you for snacks and drinks and the remote control,, books, laptop, phone etc.   Do you have a way to hold up the drain(s)? You can pin them to your shirt, or to a lanyard around your neck.  A male friend of mine used a nail pouch from Home Depot to hold his. It is just this little apron thing that had 3 pockets (he had 3 drains so it was perfect) and it costs like $2.    It can be uncomfortable to just let them dangle, and putting them in pants pocket is ok,, as long as you remember them when you pull your pants down!  I had a camisole from TLC that had drain pockets,,, it also had foob pockets and soft foobs which I didn't use,,, I just wanted the drain pocket.  And it opened in the front with velcro so really easy to wear. I had two of them and lived in them. They are a little pricey,,, $50.   I didn't know about the nail pouch when I had my MX done or I would have used that! My friend was able to easily hide the nail pouch under his button-down shirts, not tucked in.

  • staynsane
    staynsane Member Posts: 213
    edited March 2015

    HnS- So sorry to read that you have a new concern to stress over. I am thinking positive thoughts and sending them your way! I firmly believe that "not knowing" is the worst situation. Hopefully it will turn out to be a minor hiccup and quickly resolved.

  • Deborah2012
    Deborah2012 Member Posts: 234
    edited March 2015

    DayLily,

    I didn't rent a recliner. To the ladies that did, did you still have to have numerous and various pillows (your fortress) with a recliner?

    I had a bolster cushion and an assortment of many small pillows and a bed tray. The numerous small square pillows, rolled pillows, rectangular decorative pillows- I just wandered around my house pre-surgery and grabbed all manner of bizarre pillows. They held up my elbow and braced my body in various non-chest areas. What hurt was MOVING. You'll find the most comfortable position. I kept my bed tray in the bed beside, not across me to hold my breathing dealie they give you to inhale into, my meds,WATER, Kindle reader, food etc. I slept- a lot.

    Frozen pea bags were useful as well for swelling.

    I used an elastic drain minder belt with velcro tabs. I could hide it easily under street clothes. I could easily sling it around my neck for tub bathing from waist down. www.promedicsproducts.com

  • beergirl63
    beergirl63 Member Posts: 15
    edited March 2015

    Hi, everyone! I just got the pathology from my biopsy. I have a low-grade, local recurrence (current Dx) of the cancer whose butt I kicked 6 years ago (Stage 1 DCIS, ER+; treatment - lump with RADS and HT [Tamoxifen], followed 2 years later with TAH-BSO). I meet with my oncologist on Thursday to form a game plan. Just thought I would get on here and introduce myself. I have been reading some of the threads and have found some very helpful information.

  • Tomboy
    Tomboy Member Posts: 3,945
    edited March 2015

    Welcome, beergirl63. With a name like beergirl, you will probably get along fine here! Sorry that you are having a recurrence, that is truly sucky. There are a great bunch of gals here- as long as you don't talk about the weather!

  • beergirl63
    beergirl63 Member Posts: 15
    edited March 2015

    Thanks! I guess if we were going to talk about the weather, we would be somewhere else!

  • Tomboy
    Tomboy Member Posts: 3,945
    edited March 2015

    HAHAHHAAHHaaaahaa!!! Ok, I am nearly an idiot today, slept in, and am on y first espresso, but what is TAH-BSO?

  • beergirl63
    beergirl63 Member Posts: 15
    edited March 2015

    Nahhh, it would take more than one espresso to decrypt that one.... Total Abdominal Hysterectomy with Bilateral Salingo Oopherectomy. In other words, I have no internal ladyparts left!!! ;-)

  • Tomboy
    Tomboy Member Posts: 3,945
    edited March 2015
  • Momine
    Momine Member Posts: 7,859
    edited March 2015

    Beergirl, welcome! I had my lady parts razed as well, in connection with cancer treatment. Oh, and I had a double mastectomy too, so I am pretty much all set to transition ;P

    Is the recurrence more DCIS or is it invasive this time? Either way, what a drag and I am sorry.

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited March 2015

    Beergirl--welcome to the Middies, and so sorry to hear about the recurrence.So not fair after all you did 6 years ago.

  • beergirl63
    beergirl63 Member Posts: 15
    edited March 2015

    Momine....LOL about your comment about transitioning! We have to have a good sense of humor - laughing is much better than crying. :-)

    Cancer isn't fair - not for ANY of us. But, we deal with it and go on forward with our lives. There is no other option, because if we do it any other way, cancer wins and controls us.

    As far as my current Dx, I'm not sure yet if it's DCIS again or if it's invasive. I should know at least something more after Thursday morning's appointment, since it will be more informative than the brief phone call (per my request) to tell me that we were dealing with a malignancy.

  • JJ62
    JJ62 Member Posts: 65
    edited March 2015

    Eph3_12, beergirl63 and heartsoul76 - good news from Tiffany L. Greene, Program Department Assistant, Casting For Recovery- the only requirements to attend a FfR retreat is that you are female and a breast cancer survivor. She also says it doesn't matter how many years you have been in remission. I guess you just have to be unlucky enough to have had bc and lucky with the lottery to be accepted. It does look like a number of the retreats are limited to residents of that particular state, and the the Canadian arm of the organization is not active. :-( Flyfishing is awesome and time spent in or beside a river is good for the soul.

    www.castingforrecovery.org

    Thanks for mentioning "Time is a River" Eph3_12. I will look for it. beergirl63- best wishes for good news this week.


  • IDartist
    IDartist Member Posts: 40
    edited March 2015

    Hello Ladies,

    I am fairly new to these conversations and how it all works so I am sure there is a place here already that has already discussed this.

    I am 46 yrs dx Stage 1 BC back in 2012. I was given Tamoxifen treatment and have been on it for 3 years this September. I had a total hysterectomy July 2013 and between that and the Tamoxifen, I have very little estrogen in my body.

    I have had some joint aches, knuckles, wrists, knees, toes, worse when it is really cold that come and go. They seem to be worse in the AM. Lately I have had minor muscle aches in my legs (at night). Not pain or restlessness, just tired feeling like I have been on my feet all day long. I just started taking Glucosamine/Chondroitin and was wondering if any one else has had similar symptoms and if there is anything they take to help with this.

    I see my Oncologist for my 6 mo follow up in May and will see if she has any recommendations.

    Thank you and I appreciate any info you can share. Blessings!!



  • elimar86861
    elimar86861 Member Posts: 7,416
    edited March 2015

    Welcome, beergirl63, and thanks for bringing your first posts to our group! Your story hits home (in a frightening way) because I am at 5 1/2 years myself and know I have to keep the watchful wariness going even still. I love the Nail Pouch idea they gave you. After you are done with the drains, keep the Pouch for toting those beers around! I had lumpectomy with my BC, so no drains, but then had one drain for another cancer surgery. I found it very unpleasant, but luckily it did not have to go home with me. With pillows, I went the route of Deb2012, just made myself a nest of them. That was a pertinent observation about all recliner handles being on the right. You definitely do not want to have to be leveraging on that side for a while. Finally, I LOVE your sensibility about the "no weather talk here" policy that I like to enforce to with my pink velvet fist. Now, if you also love Cheetos, I will set you up with a "premium membership" to this thread!

    Additional howdy to acalilgirl! To me, it sounds like you have middle-aged arthritis going on, but I recall others posting that the Tamox. seemed to worsen it. The aching muscles (especially in calf area) is very common with Tamox. I did have it. I've taken the glucosamine combo before, not for anything Tamox. related. I did not get any improvement, but that is one of the supplements that each person kind of has to guinea pig themselves with. If you are taking a supplement with hyaluronic acid as an additional component, I would say Google around about it. Seems I read something that it can encourage tumor growth. May be relevant, perhaps not, but you might want to check.

    Casting For Recovery - I wanted the getaway more than the fishing, but did not get chosen. The last notice I received, I did see that some states are woefully under-served. My nearest was 3-4 states away and I'm not that desperate to fish. Yes, Sherryc went and said it was great; so, with no expiration date on qualifying to go, why not keep entering? You would have to be "recovered" enough to use your casting arm, at least, so no one would be fresh out of a surgery, right?

    HnS, Now that malignancy is ruled out, I hope you find out what strange affliction is going on with your side boob. Let us know what the dermatoligist thinks about your airport radiation theory (even tho' the latent SE's usually get downplayed.)

    Speaking of radiation, I just had some...Got my CRC (that's colorectal cancer, my new gals) follow-up CT yesterday. Should have results this week or next. I think I aced this test, so don't feel worried. However, that still did not prevent me from asking how much radiation I got in that one fell swoop of chest, abdomen and pelvis views. I'm guessing a lot! Instead of a direct answer, the guy game me a website, which looks extensive and I haven't navigated around yet, but I want to pass it on. Looks like it is very informational, so all those with rads questions (before during and after) may like to look:

    www.radiologyinfo.org

    Woo-whee, I'm not used to typing these longer posts anymore. Cheerio, my lady-sister-girls.

    p.s. Found a bookmark, so while on subject...

    Radiation Risk (Harvard Med School)

  • beergirl63
    beergirl63 Member Posts: 15
    edited March 2015

    Woo-hoo! I love Cheetos, so I am in!!

    Thanks to all for the observations and information. So, I just met with my oncologist. My tumor is ER+/PR+ and we are still waiting on the HER2 results, which should be available Monday or so. I will have a bilateral mastectomy and unless the HER2 comes back positive, no chemo. I will have to go back on hormone blockers, so I'm ready for the increase in hot flashes. Good thing I am cold-natured! I have consults set up with 2 surgeons and their respective plastic surgeons they partner with. I just need to decide between going with the expanders or the DIEP flap. Any information is welcome.

    So, the wild ride begins....Glad I have all of you there for support.

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