February 2015 surgery

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  • farmerjo
    farmerjo Member Posts: 518
    edited March 2015

    I also wanted to add I've posted before and after pics in the picture forum. 

    Good to hear from you Greenae! Congrats on the negative node!

  • greenae
    greenae Member Posts: 540
    edited March 2015

    Hi Joanne My BS, PS, and MO are at NYU. Had my imaging done at Regional Radiology on SI. Have had good experiences with family members being cared for at NYU, in the past, so I have been paying a lot of tolls...lol

    Hi Nurseshark- wondering if you could add me to the February 2015 Surgery List?

    I had Left MX with TE and 400cc fill on 02/26/15.

    I hope everyone has a relaxing weekend...

    Arlene

    oops, almost forgot-how do we get on Picture Forum? I need some help/advice...I am 34-36 G on right breast and Left mx is sort of Cish. I Need a bra for my right breast (will have reduction after all chemo, rads done), and I have bought at least 8 different bras trying to find one that is comfortable for my two uneven breasts. I understand some members have posted pics on Picture Forum...but I can't find it? Ty!

  • RAK1
    RAK1 Member Posts: 240
    edited March 2015

    Smile
    Good Morning Sisters,

    Dancingdiva, I have this tearing sensation on the sides of where my TEs are. Ps said that is from the nerves being cut. She said it will go away as I heal. It hurts a lot. I am only taking Motrin. 

    Jean, I am praying you are feeling better much love to you, {{{Hugs}}}

    JustAJennifer , Even though I am grateful for how things are going for me, I look in the mirror and I cannot believe it is me.

    AudreyB, I have had both and surely this is very different for me. I receive my strength and courage from the rest of you ladies.

    Arlene, I am praying for healing with the anemia. I am getting another fill this Monday, hopefully it will be the last. I am experiencing such discomfort from them and underneath my foobs too!  PS said that my pectoral muscles have been stretched up to cover the TEs and that is why I am having this pain and discomfort below foobs around my ribs.  I still don't have a lot of strength yet. It comes and goes in spurts. Yes, spring break is in full gear now. My brother was wanting to take my niece down to Miami to visit my sons and everything is booked and overpriced right now. I am in Brooklyn Maybe you and Joanne would like to meet up, I could use some friends who have been through this too! PM me and let me know. I don't know anything about the flying saucer drain.

    Joanne, how are you doing? I hope you are recovering well. Are you still getting help with the grandkids? Maybe you would like to meet up?

    Nurseshark, Nerve pain is awful! I am praying all will go well as you begin RADs. Are you able to hold the baby now? I thank God for healed nipples. I certainly don't think my foobs look good. I share the pics because I want you all to see and know you are not alone. I know you all understand what we are going through. This thread gives me a connection to others like me, and I have you to thank for that!  Hug I am praying after all we gone and continue to go through on this journey we will be happy with the decisions we have made. And happy with how we look also. I have no idea how anyone else looks, but I figured if you can see mine, maybe you won't feel so alone and sad.

    PS reassures me my foobs won't look like this in the end. I sure hope not! There is a purplish line going across my left foob. That is where the drain cord was strangling my swollen foob. I hope that goes away! 

    Jilly59, The scabbing I had on my nipples has healed so far. I am also finding myself being sad. I am missing being in contact with you ladies.

    Sunseta1069, How are you doing? Your grandchildren must be a joy for you! I thought there was a three month wait between last fills and exchange surgery?

    Melanie-c, I hope you are well also!

    Jabec, I still can't drive yet.

    Roadrash,   How are you recovering? Not working?I have been concerned about you.

    BB, Waiting to exhale, Jeeper4, JustAmy, Leighrh, Novena70, Raindew, Horsemom, Fourminor, Therockadrollmom, Nmh35, LisaZak,

    Kaiesmom, Kimba87, RTchris, Copperlisa, Dentalchick, Dianeism, Ksusan, rose0766, Shoppingmommmy, Lovemylab, Loulee, Shelly76, 

     I miss hearing from you all!

    My Prayer for all is we recover and heal being cancer free, with little or no SEs! Amen!

    {{{{Hugs}}}} To all of you ladies,

    I still wish we were able to be in the same room together, I can just imagine the warmth love and support we would each receive from one another!

    May you each have a blessed weekend!

    Love Robin

    image

     

  • RAK1
    RAK1 Member Posts: 240
    edited March 2015


    P.S. Where is the picture forum?

    Robin

  • jabec
    jabec Member Posts: 70
    edited March 2015

    Hi Everyone. I haven't had too much to report lately. I'm just over 5 weeks out from BMX and TE placement. I started physical therapy yesterday because there is still a lot of tightness in my chest and my range of motion is limited when I lie on my back. The PT did a lot of massaging under my arms and sides and on my pec muscles. It felt so good!!! When she finished, for the first time, I could like on my back, put my hands behind my head and even almost get my elbows out to the sides! By the time I drove home things started to tighten again and I can't wait to go back to PT next week. I'm trying to stretch at home, but it's hard. I had just one 25cc fill on the 3rd and don't have another one scheduled until Friday. I'm thinking that I don't want to be all that much bigger so hopefully the fills will end soon. I think my size is not bad, but the shape is weird - too wide and flat for me. Maybe with more fills they will round out? How long has everyone's doctors said they have to wait from last fill until exchange surgery? I have to ask mine. Also, does anyone else have broken blood vessels on their boobs from the skin stretching? As if this whole thing isn't crazy and ugly enough, I now have stretch marks and broken blood vessels. I'm hoping that my PS will address this at a later time because I don't think these things go away on their own. I've been massaging cocoa butter in at least 2x/day and it's still happening - sigh! My pain seems to be slightly better these days. Instead of feeling like I'm wearing a bra that's 3 sizes too small, it now feels like it's only 1-2 sizes too small - small victories :)


  • farmerjo
    farmerjo Member Posts: 518
    edited March 2015

    Rak...PM the mods.  They'll guide you. 

    Glad to hear you're doing well! 

  • RAK1
    RAK1 Member Posts: 240
    edited March 2015


    Jabec, that is funny, I feel like I am wearing a bra 3 sizes too small. Normally when I get home my bra would be the first item I took off, this is so uncomfortable indeed! The stretch marks I had from pregnancy were never seen because they were at the bottom, but now as you can see they are front and center. I don't really care about the stretch marks, but the shape....they look and feel like I have a balloon full of rocks in there! I just keep reminding myself they won't stay that way! Are you going to do any tattooing or anything concerning nipples? Just curios? {{Hugs}} Robin   

  • RAK1
    RAK1 Member Posts: 240
    edited March 2015


    Thank you Jilly59. Smile

  • RAK1
    RAK1 Member Posts: 240
    edited March 2015


    Jilly59 I have access to that site, but found it a little confusing navigating around.

    I hadn't been on for a few weeks. I'm on now.

    Robin

  • farmerjo
    farmerjo Member Posts: 518
    edited March 2015

    Yep. I have the same problems with navigation.  I am under the same username. I had direct implants since I wanted to downsize. The scary part was seeing my pudgy stomach from above. Yikes.

  • RAK1
    RAK1 Member Posts: 240
    edited March 2015


    Jilly59, I just found you there and posted! lol

    I don't look like me either!

    I have same username also

     

  • 925
    925 Member Posts: 5
    edited March 2015

    Hi everyone. I had a bilateral mastectomy on 2/5/15 and then reconstruction (DIEP flap) on 2/18/15. They had to do separate surgeries because they weren't 100% sure my cancer wasn't invasive and they didn't want the new tissue to be subjected to radiation if it was invasive. God was great and it wasn't invasive. My recovery is going as well as can be expected I guess. Sleeping in the power recliner is getting to me now but I only have one more week I think and I get to transition to the bed with pillow propping. Definitely excited about that because I'm only sleeping off and on at night now.

    The question I wanted to ask is about intercourse. My husband is already wanting to have sex (because he read on the internet that 4 weeks was the recovery period for a "tummy tuck"). I'm still trying to deal with everything happening so fast, the diagnosis, the recovery from 2 major surgeries within 3 weeks, just everything. I love my husband very much but I just don't want or need that right now. Has anyone else experienced this? Should I be wanting sex now? Is it just me, am I selfish?

  • Newgirls
    Newgirls Member Posts: 81
    edited March 2015

    Hi Jabec.

    My doc said I could do the exchange a month after my last fill. He did some fill at surgery on jan 8. Had the drains in forever it seems! Had my first fill on march 3, 60cc then three weeks after that he did 120 cc. Feels fine. A little tight but okay. Like the look but thinking one more 60cc fill and then done. Will be about 400 ccs. Looking forward to having the TEs gone.

  • RAK1
    RAK1 Member Posts: 240
    edited March 2015


    Is it me Jilly, but the picture forum doesn't seem to active is it?

    Maybe I don't know how to use it?

  • farmerjo
    farmerjo Member Posts: 518
    edited March 2015

    Ok Rak! I will see you in there! I can't post any recent pics as I had dehiscence last week and PS has all my incisions taped-up. Still having the same issue with the one nipple, on good breast side. Ugh.

  • farmerjo
    farmerjo Member Posts: 518
    edited March 2015

    Rak...I find the forum to be much more quiet than here. The busiest threads are also the most common procedures...mx to te to implant. Nipple sparing not so common it seems. 

  • farmerjo
    farmerjo Member Posts: 518
    edited March 2015

    Oh my gosh, 925. I love my dh but for crying out loud, can't they just fend for themselves a bit? Arrrggg!!!!!! Fortunately for me,  mine is content with me taking care of him the other way.  There's a great forum here on sexuality you should visit. At the very least, it's a good laugh! The women there can be a riot.

    Big hugs to you!

  • RAK1
    RAK1 Member Posts: 240
    edited March 2015


    Welcome 925, I wish I had a recliner! Being propped up in the bed is not really comfortable. I usually wake up a least once a night, then take a Motrin and wait to fall back to sleep. I am not in a relationship now so I cannot speak on that. I will leave that one for the ladies here that have a mate! When I was married my husband didn't care what was going on he always wanted sex.

    {{Hugs}} Love Robin

  • RAK1
    RAK1 Member Posts: 240
    edited March 2015


    Jilly, I prefer this forum more because it is more active.

    What are you doing for the nipple?

    Jabec, A month later sounds good! I wish mine could be in a month. I don't want to go through the summer like this! I normally wear tank tops and I definitely won't like this!

    Robin

  • CaliRN
    CaliRN Member Posts: 54
    edited March 2015

    Jabec,

    My plastic surgeon said 3 to 4 weeks minimum after the last fill. Unfortunately they can't get me on the surgery schedule until April so it will be more like 6 weeks. Everything takes soooo long! I will be having gummy bear implants with some fat grafting. looking forward to getting the TE's out! 

  • jabec
    jabec Member Posts: 70
    edited March 2015

    Interesting about the time frame to exchange. I spoke to someone who ysed the PS I was thinking of using and supposedly he waits 8 weeks. I have to find out how long my PS will make me wait. If I can't do the surgery by the first week of June I will likely wait until September because I have a couple of trips planned this summer.

    Robin - I am planning on doing 3-D nipple tattoos. I keep hearing about Vinnie Myers in Maryland as being the best, but I have to assume there are good people in the NYC area. I am willing to travel to Vinnie if it's truly worth it.

    Barrie

  • nmh35
    nmh35 Member Posts: 96
    edited March 2015

    925- I also had DIEP on 2/13/15. I'm 4 weeks out and I can't even imagine having sex. My stomach incision is still healing and I don't want to do anything to jeopardize it! I know some people might, but I'm not doing anything at this poin until I feel fully healed

  • 925
    925 Member Posts: 5
    edited March 2015

    jilly59 - Thanks I will definitely try both of your suggestions

    RAK1 - I rented the recliner and the first two weeks were nice but this past week has been heck. Of course it could just be me being tired of sleeping in the same position night after night. I just keep telling myself it can only get better from here.

    nmh3 - That's EXACTLY how I feel!

    Thank y'all, I really needed to vent a little.

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited March 2015

    925, my hubby has wanted me to "relieve" him all through chemo, surgeries and now rads! Traditional just doesn't work for me and there are times I'm ok with it and times I'm just resentful. I've warned him already that there probably won't be much "activity" during rads. I am definitely a senior so besides cancer treatment there are issues with dryness and arthritic pains. Aaaggghh, geriatric sex, such fun. Without a sense of humor I don't know where I'd be. Love, Jean

  • dancingdiva
    dancingdiva Member Posts: 475
    edited March 2015

    RAK robin u are so sweet...with ur huge email addressing pretty much everybody. There is so much activity here I don't know how u do it. Thank u

  • RAK1
    RAK1 Member Posts: 240
    edited March 2015

    jabec, that sounds cool! Any ideas about what you will get tattooed ? Just simple nipple or a little mor design?

  • jabec
    jabec Member Posts: 70
    edited March 2015

    Robin - funny you should ask about what I will get tattooed. I was assuming I would get regular nipples and areolas (although smaller than my natural ones). My husband and I were joking about the designs I could get - make them look like eyes, headlights, make them look like they're pierced, etc. Then he said that I should do something interesting - shape the areolas into hearts, get my kids names put around them, etc. I think I just want to look as "normal" as possible, but it is food for thought, especially since only my husband and I would ever see it. I have a while to think about it. If I went to Maryland for Vinnie, he makes you wait 6 months after exchange. I haven't talked to my PS about it yet. I think he can do the tattoos, but I'm not sure how good his are - I would want to see photos, and I don't know how long he makes you wait. I guess it makes sense to wait until the implants have fully settled into their final shape before doing the tattoos or else things can shift and the nipples could be facing in totally the wrong direction. what are you planning on doing?

  • RAK1
    RAK1 Member Posts: 240
    edited March 2015

    jabec, I like how you and your husband are discussing it even if you go more traditional. 👍 it looks like my nipples will live, so that's it. But last week when I went to the PS my daughter went went me, and we were looking at the choice of permanent implants. I think I am going for the round. She explained the difference in what they will look like. The gummy has the possiblity of moving, then not looking right. The round she said will keep it's shape not matter what. I'm not crazy about the either choice really, but I want as little problems in the future as possible. I was told they used alloderm to build me up inside. I pray we can have this exchange before summer.

  • RAK1
    RAK1 Member Posts: 240
    edited March 2015

    Hi dancingdiva,

    I just wanted to include everyone to let them know we care. The thread hasn't been as active lately. I'm sure everyone is busy. I wanted to send out some love and hugs. I hope you have a great week ahead. How are you doing with your TEs?

    Love Robin

  • jabec
    jabec Member Posts: 70
    edited March 2015

    robin, so glad your nipples survived!! One less thing to think about. I haven't yet discussed my final implants with my PS, but am going to start the discussion when I see him on Friday. I originally just wanted to get through the surgery and know that the TEs were working. Now I can start to think about the finish line. I already have Alloderm and I totally feel the support of it. My issue is that because I had an unncessary surgical biopsy on the bottom of my breast, the incision from it had to be incorporated into the MX incision and a lot of extra skin had to be taken out on that side. Even though my PS put the same amount of saline in during surgery, that side is smaller (I guess the skin just has to stretch more?). At my first fill he put the same in both sides because he wanted to wait and see what happens with the smaller side. He also said that that side is higher and he will have to fix that at exchange. the left is still smaller even a week and a half after the first fill and now that the weather is getting warmer and I will hopefully be able to shed the big, bulky sweaters soon, I want him to even me out. It's not totally noticeable in clothes to other people, but it bothers me. I'll see what he says at the next fill on Friday. It does look like I will need pocket work at the exchange though b/c of the height difference - sigh! Having the exchange before the summer would be great, but it sounds like most people have to wear a bra 24/7 for a while after. If that's the case for me, how do I go on a beach vacation in July? Another question I have to ask my PS (if it's even a possibility of doing the surgery before).

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