Starting Chemo March 2015
Comments
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welcome Marciabh- I did look into hats with hair/chemodiva. Very nice woman. My brother was all set to spring the $300 as a bday prez. But my hair was too short. You need to have 6-7 inches for them to work with it. I was disappointed because my hair was very pretty strawberry blond. Gone now, and who knows how it will grow back in. I didn't exactly like the losing my hair thing, but it isn't even in the top 5 of my issues at the moment to worry about. I'm getting along just fine without it. There must have been a bald lady inside me tring get out
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welcome also to you, Leigh! Sorry to meet this way. This is an excellent group and it will save your sanity! We've only known each other a few weeks and I feel we've been friends for years. It just works.
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Hello Ladies, just checking in, spent 7 days in the hospital so I have had a rough ride. My first infusion was Feb 26 went in to hospital March 3rd. I am glad to hear you all seem to be doing well, my wishes go out to you for that to continue.
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Wow, this is a busy thread.
Rleep: I am so sorry you have having so much pain. I am thinking the claritan will dry all your sinuses up pretty good, too. I hope you can find some relief soon.
WP: That's a tough situation. It's good that Italy knows a lot about that stuff.
I think the hair is hard because it is such an obvious representation to the world that you have cancer. Other than that, it is like people might not have to know.
Italy: I think it would be a great idea to open the chemo centers at off hours for people who work.
Supernanny: Wow, you have a lot on your plate. What do you teach? I can't imagine homeschooling 2, let alone 4 AND teaching.
Went to have biopsies of my cancer breast and lymph node. The team was amazing and took every measure to make me comfortable. The hardest part were the numbing injections into my node. Hopefully, this added info will finally guide these doctors to my final plan. I think the only question now is chemo before or after surgery.
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OMG Revup- so very sorry you are here, and had to be hospitalized. Do you feel a little better to be back home again? What a nightmare for you. Sending a big hug your way.
Katy
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Rev: Why were you in the hospital?
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Trvler, congrats and good on you for bravely making it through a very hard day. You will be a little sore and bruised. Big, but gentle, hug, going out to you.
Katy
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Bekah That's what I had its horribly painful. Do you have any oxy? I'm so sorry I'm sending healing thoughts to you.
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Thanks, Katy.
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I'm so sorry to hear that revup. What happened? Are you OK now?
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jackbirdie- i'm sending you big big hugs. keep pushing sister..
my week has been rough. emotional high/low from the steroids, and the sleeplessness and sweating. face and chest redness,nausea and bone pain (from the neulasta) achy, persistent headache and today started with funky skin rash around my neck and cleavage and back (probably from the taxotere) and sore throat. i saw psych today and on call MO who gave me some things to hopefully relieve the symptoms. fingers crossed. glad theres 2 weeks between now and the next dose. i don't think i could take it if it were starting again on monday.
good weekend - easy weekend- symptom free weekend to you all.
michele
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Oh, Michelle. I am sorry you are having a rough time. Take it easy this weekend.
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Hi everyone. I was just diagnosed yesterday so have no plans made yet for my treatment. I just know I'll be having chemo, surgery & possibly radiotherapy. I'm waiting for a date for a body scan to see if the cancer has spread to any wear else. I have a 2-4 INCH lump on my right breast, left is clear but cancerous cells found in a swollen node in my right armpit. Have no idea what to expect and I'm petrified. I've got 4 children aged 24, 22, 17 & a little 6yr old girl. It's her I fear for the most.
Thank you all for sharing on here it helps so much.
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Michelle- you poor thing- I guess your BC didn't get the memo huh. Not all symptoms for all people. Simply not fair. I will continue to keep you in my thoughts.
And a warm welcome to you Kazza. I can well imagine you are terrified. For yourself, and your children and rest of family. And so much information comes at you so fast. So many tests. Poking, prodding, sticking, stupid questions.... It goes on and on. Way too much to handle. You must lean on us for support and information. We have a magical caring group going on here and I amsure I speak for everyone when I say: it matters not when you start chemo, if you start chemo, whatever you're journey will be. You stick with us. No judging here, except we do love to judge and tear apart stupid people and insensitive doctors hahahaha. Check out other discussions as well for case sensitive info as you learn more about where you are going with your dx and treatment. We are here for you. A big warm hug from the bottom of my heart.
Katy
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Michelle So sorry you've had such a tough week. Big hugs to you.
Welcome kazza, ditto what jackbirdie has said. So sorry you're here. I can understand your fears for your young daughter. I worry about my daughter and she's 24 and independent!!!
Katy, how are you going? Any more online shopping or sleepless nights?
I've spent the night with a migraine. Its gone now, but its left me wiped out. But compared to some I'm doing really well now. So I'm looking forward to a great week.
Now back to our favorite topic... Hair, I'm planning on shaving my head tomorrow, but a little voice inside my head is saying " what if my hair isn't going to fall out!!!" Does everyone's?
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Shaz, is your scalp pink or red? I went and picked up my wig and saw Patti, my wig lady today. She is a 12 year metatastic colon cancer survivor. She told me my scalp isn't pink, red or tingling yet, so I have awhile to go. It may be Monday or Wednesday, but it isn't today or tomorrow. So I'm waiting. Foolish maybe, but it will be my first physical manifestation of breast cancer. And I want a normal weekend with my hair. Be warned. She said the headache when it does go can be terrible. Her company name is Patti's Pearls and she has an online website, and I think she is doing a sale next week if anybody needs to order a wig. Yes, I am shamelessly putting in a plug for my Kentucky Christian sweetheart. She is on chemo for life, has permanently lost her hair, and most of her teeth, but she has the most amazing attitude and looking at her you would never know she lives on chemo.
Kazza, the worst part for me was waiting. When action started being taken and I had a plan, I felt better. Don't let the Internet scare you. My oncologist said stay off the internet, and I said well I'm not giving up my breast cancer buds on my online forum lol. They are the only ones who understand what I am going through
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true that, Italychick.
Shaz, if I remember correctly you are on the Terrifly Awesome Chemo regimen?
I didn't forget haha. Never did come up with a name for mine though. I think the %s are quite high, in the 90 %tile that you will. That means, no, not everybody does. You should not force yourself to do anything you are not ready to do. Your body will let you know when it's time, if it ever is time.
You've had a lot of trauma. I worry about your headaches. It might be less stressful if you just make an airtight, military-like, campaign plan, that you will exercise with precision when the need arises. Ask your hairdresser how likely it is she could just squeeze you in on a moments notice. Or could your partner buy a good quality razor and do this for you at home when and if the time comes. Buzzing isn't styling up you know. One must know their way around the equipment safely. Bottom line is figure out your worst fear and plan for that. It sounds to me that taking your hair by your own hand is a kind of homicide. I know many feel that way. That is worse than becoming aware it's coming out, sitting down, and commanding your army to take Troy then!
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as for me, I am sleeping a little better, but definitely a bit manic. I have this recurring waking dream that I am part of a quadruple blind trial (the kind in my imagination where nobody knows anything haha) and I got the placebo. It's the only way to explain how I am not suffering along with my bco sisters. I feel good, I'm eating, and I celebrated another day of life today. Not a day of life with cancer. Just a day of life. That means everything to me
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Had my chemo port put in on Tuesday. It still feels very strange - like there is a lot of pressure in my throat when I bend down. Anyone else experience this? Can't believe I start chemo next week.
Msmath - I am a middle school science teacher and I, too, am missing my students. They would make me laugh every day and I am missing that immensely! (I'm not missing grading papers, though
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preemptive buzz done tonight. Hopefully the pic loads...
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you look great with short hair!
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Thanks Italy...DH says I don't even need to wear a scarf yet. I don't know about that but I wouldn't be embarrassed if my scarf fell off right now.
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you look FABULOUS!!!
That's a great pic, I love the soft lighting, background color and flowers. Love it.,
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Bekah you look hot!!!
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yes, so-she-did! I had exactly that sensation, like pressure on my windpipe, every time I got out of bed, into bed, leaned over, sat down. Awful! I thought something was wrong with it. But just your body saying it doesn't like a foreign body in your chest.
I am a slow healer, and it took about two weeks for that sensation to go away. It's still somewhat sensitive to the touch.
But they've used it several times now for chemo, draws, etc., and it is functioning fine. Because it is sensitive, I asked for and received the prescription cream that numbs it. I put on a dollop an hour before use and gently cover with press and seal. Except I don't press. Hah! They still use the freeze spray too and that helps also. Because I have turned out to be such a wuss, I take all the help I can get. All the time.
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I went to the hospital because of the intense pain that didn't let up for 4 days. Still have some pain but nothing like it was. I feel blessed they almost took out my gallbladder but I demanded a test to make sure it was bad my white counts were so low they were waitning anyway, it was due to be done Monday. It was perfectly healty so now I am trying to figure out if this really is Diverticulitis or just an inflamed colon. I wont know until next week. I praying for no fever this weekend and the pain begins to lighten up. It was a nighmare for sure. Bascically I am in netural until it gets straightened out.
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Thanks gals! I let my 13-yr-old DD chop and style for a good hour before we got to that point. She had a blast and said it was the best day of her life!
Update on pain. Pain is controlled by Percocet (Oxy) but when that wears off I'm back to agony. No worries...better living through chemistry right?
It's so weird because I took the Claritin starting the day before my shot and for 4 days after like I've seen recommended. Apparently, I'm one who needs to take it 7-10 days! So I'm back on Claritin for now.
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IC, I've just had a shower and I have a towel on my head. I'll have a look when I dry my hair.. I'll let you know.
Katy, you have a great memory...😊 I'm used to the migraines I've had them since I was 8 unfortunately. Stress just makes them ocurr more often. I don't feel stressed, but I'm sure my body is. Maybe its related to the upcoming hair loss. My head feels like it does when my scalp is dirty even though I washed it yesterday, so maybe I'm about to shed. I have lost a bit in the shower, but its probably only a little more than normal. Andrew was going to do my buzz for me, but I think he's struggling with the thought of it, so I may need to find a volunteer or hairdresser to do it on Monday. I've got the look good feel good program on Tuesday and I think I'll get more out of it if I get rid of my hair beforehand. Seeing yours and bekahs photos does help and you both look great.
I'm trying to think of some wise words to help you take control and intercept your dream but I can't 😕 its horrible that are bodies and brains can be against us sometimes. I'm sure if you can make a plan to change the dream it will empower you... Well I'm not sure, just hoping. I want the best for you, you're one amazing woman. You give me strength! Thank you xxx
So_she did, I don't have a port so can't help, but wanted to say Im thinking of you. I'm also missing work. My boss is organizing a laptop for me so I can logon remotely and do a little when I can. Hopefully without stress. Unfortunately my job is stressful and nobody is doing it while I'm away. My boss is starting to get worried about the budget and future projects that aren't being created. But at the end of the day, my priority is me! So if I start worrying about work, someone smack me across the head.
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Dropping by with some love for you all. I wish none of you were having to go through this but how fortunate are we to have these drugs with such a high efficacy rate.
One person told me as I was terrified at the start of treatment last year that I shouldn't be afraid or angry but to embrace the healing power of the drugs. It was a good shift for me to make to get into a better headspace.
Since Taxols work by making the cytoskeleton rigid and brittle I decided to call it Medusa. Carboplatin and platinum based drugs work by messing up DNA replication so I named it for the Greek god of war and confusion, Cydoemus.
I hope that you are kept safe through treatment and that it goes by quickly for you.
Ann
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Thank you Ann
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