Still Unsure on what surgery type to do...
So here is my timeline of my diagnoses and I go back on Monday the 16th...and I really have no idea what to do. Sorry its so long...but I really don't know what to do. If I do a lumpectomy, ok...quicker healing, etc. If I do a mastectomy- then all the extra armpit tissue that i hate can get sucked out! I don't care if they keep my nipples or not, since I have always hated them, but reconstruction I told wouldn't happen for months....but I just don't know!!
December 29, 2014 - routine doctor examine, nothing out of ordinary...everything good, did ask about starting to get mammograms, and stuff...but was told not until next year...dont worry!
First week of 2015, noticed a lump in the shower....thought not much on it, thinking I got hurt...but had a nagging feeling since it wasn't going away
January 12, 2015 - happy 39th birthday....call the doctor...something isnt right.
January 15, 2015 - got into to see the doctor and she was shocked at what she felt and mentioned I was the third person to come back with an issue (you think then something maybe wrong with her exam?)
January 19- Mammo and Ultrasound - they didn't like what they saw and even before calling my doctor they said, we need to schedule you a biopsy...how is 630am on Thursday...
January 22- very painful biopsy...the needle hurt more then the tissue sample gun!
January 28....about 330....my doctor calls....its not good...it came back as cancer, you need to find a breast surgeon. L
February 9- first appointment at roswell cancer center in Buffalo NY
after being examined a bunch....she believes its stage 1, and once I have surgery, they will look at my lymph nodes, and if it spread, then stage 2, but she also believes I found it really early. She advised I tested for the brca gene. Regardless, she said I need a year of chemo, with a port to be in place. So, if my test comes back positive, then she recommends a double mastectomy, if negative, then a lumpectomy, would be the best option since there is no reason to do the mastectomy, unless I really really want to.
Feb. 12 I go back to Roswell, and met with a plastic surgeon, since if I need the mastectomy, we need a plan in place and then later that day, met with the genetics department and went over as much family health history as possible, then my favorite....blood being taken.
Now its a waiting game....they said it takes about 2 weeks for the first part of the test to come back...and then on March 9th is when I come back and decide all the treatment options...oh but wait...the plastics doctors office tells me that I dont have anything for March 9th, they moved my appointments to March 16, without telling me......needless to say, I was not happy!
Now the past few days my armpit is sore and hurts....which is freaking me out....but i know i have an appointment and if its spread, going in now or monday isn't going to make any difference in my opinion...so,
on March 16 I will have my appointment to make a decision and preop tests. after that appointment, go back to the plastics doc and get everything decided on what will take place during surgery.
In case you want to know what was on my biopsy results on what we are dealing with here goes: Poorly differentiated invasive ductal carcinoma, nuclear grade 3, ER-, PR-, HER2/neu+
Comments
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sounds alot like my story, foundlump in shower, and everythingmoved fast, as i workedin city clinic at the time,we were planning our 2nd wedding, i was 42yrsold no history of breast cancer in family, had biopsy surgery, L mast, chemo andrads and Blessed to say that was 21 yrs ago this Survivor(Praise GOD), so iam here to Inspire others going thru now, take a breath and once treatment plan in effect things will calm down some,docs will help with advise,get 2nd opinion most of us did.(msphil, idc,stage 2, 0/3 nodes, L mast, chemo and rads and 5 yrs on tamoxifen -
I think your best option is to do the lumpectomy as it is the least invasive and you would not need a plastic surgeon. If you are concerned about how your breast will look after a lumpectomy then look into an oncoplastic surgeon. That person specializes in breast cancer, but in surgically removing it to give you the best looking result .
After your lumpectomy, you would have to undergo radiation treatment.
With a mastectomy, most of the time, you would not be required to do radiation treatment.
There are no guarantees that a lumpectomy will remove all the cancer cells, and you may have to under more surgery in the future. But many women like this option because it is the least invasive and they get to keep their own breast.
There is no guarantee that a double mastectomy will get rid of all the cancer as well. Quite frankly, there are many women that got a double mastectomy on the belief that they will not get breast cancer because all of their breast tissues has been removed. But they have a recurrence in the chest area or it metastasize elsewhere in the body.
In fact, after any surgery, within the first 3 years, there is a very high likely chance of some kind of recurrence. That is why if you do a mastectomy, I would waiting to have plastic surgery for after 3 years at least.
BTW, a month after my biopsy, my nipple started getting some bloody discharge and pain in my breast that was not there to begin with. So, whatever you do, it the cancer removed ASAP. Just my two cents.
Bless you and hoped I was of some help.
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It's a very personal decision. But since you are asking, my opinion is: if you have the choice of a lumpectomy, take it. With a lumpectomy plus rads or mastectomy, your chances of being okay are exactly the same. A mastectomy is, indeed, a more serious surgery, a longer recovery time, more chances of complications and then, what do you do next? Are you okay emotionally with being flat? Do you want the hassle of a prosthesis? What about reconstruction? That means more downtime, more surgeries, more possible complications, uncertain results (check some of the reconstruction threads, for many it is not an easy road). Also, if you really aren't sure, you should choose a lumpectomy because if you find it is not the right choice for you, you could have a mastectomy later, but once your breasts are gone, they are gone forever! (As you can probably guess, I had a lumpectomy and am very, very happy I had that option.)
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Thank you....what you wrote is true...once they are gone, they are gone....i've been leaning towards the lumpectomy....so unless something dramectily changes my docs mind...i think that is what the choice will be. The plastic surgeon did mention to me that if they take a large portion of the breast, he is able to "fill it in" so that would be something I plan on getting more details about!
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If you do the lumpectomy and aren't thrilled with results, wait a year before you consider doing anything more surgically. The fat shifts around and fills in the gaps on it's own, usually quite well.
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We know how hard it is. But, cutting off your breasts doesn't decrease your chance of the cancer recurring (you may still have a new primary, but that is different).
If you are reading this board like a novel (like I did when I was first diagnosed), you will see a lot of postings from women who have had new primaries/recurrences. Remember that these are rare. The women who post here are often those who experience special problems or issues. Your chances as a stage I with no lymph node involvement that a lumpectomy or mastectomy alone, with no other treatment, will remove the cancer is 80%. Everything else that is recommended builds on that first 80% (10% for rads, 1-5% for chemo, same for tamox).
The only difference is, I was back to work in 2 days after my lumpectomy. The women I knew who had to have a mastectomy were home for 4-6 weeks, and then went thru extensive reconstruction. About 40% of all reconstructions fail in some way, and many require replacements or redos.
I know one woman who is on her 5th year of trying to get her body healed from recon (don't ask).
I would try the lumpectomy, and give yourself 6 months to 1 year to get used to the idea that you are probably going to be fine (it took me about 5 yrs to believe it, but I do now) -
Thank you. As long as nothing has spread into the lymph nodes, i am leaning towards the lumpectomy....
I have pages of questions that I am bringing to my appointment on Monday... -
Hi all.
I was just diagnosed with DCIS, Stage 0, Nuclear Grade 3. I am meeting with the Radiation Oncologist tomorrow and the surgeon on Monday to set up my surgery. He is recommending a Lumpectomy w/Radiation. Everything is happening so fast and I'm confused and unsure if I want and/or need the surgery at all. DCIS seems quite confusing from the research I have found.... then again, it seems like its a no-brainer. Did anyone here have 2nd thoughts on treatment? How long did it take any of you to make a decision?
Thanks
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After I was diagnosed, I talked to a friend who is a surgical nurse and a 30 plus years breast cancer survivor. When she went through it, the only choice with a mastectomy. Years later, when it became more readily available, she had reconstruction. So, she has seen it all from both sides of the operating table. When I asked her advice, without hesitation, she said, "If they offer you the choice of a lumpectomy, TAKE IT!" I did and have never regretted it. In fact, the more I have learned about reconstruction, the happier I am that I never put myself through it.....I think you get into it and it's like being a hamster on a wheel, you can't get back off.
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Maggie you need surgery. DCIS is simply the precursor to Stage 1.
I asked my surgeon what she would do: lumpectomy or mastectomy and she said lumpectomy is the best choice if you have a choice. Some women have no choice at all.
Christine
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