So helpful to read others have panic attacks

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windingshores
windingshores Member Posts: 704

I felt fluish all day yesterday, the same day that I got biopsy results around noon by phone (invasive ductal carcinoma, estrogen and progesterone positive, HER2 pending for FISH). Around 7pm I just all of a sudden started shaking uncontrollably. I didn't really have any thoughts except that the fluishness and residual pain from biopsy made me feel all of a sudden that I had cancer everywhere in my body!! I called the covering MD at my primary's practice thinking something was terribly wrong, maybe a kidney infection-!! I am so embarrassed. I see my primary today. She was sweet to me on the phone. I barely know her: she found my lump on my very first appointment with her.

The comments on here about panic were really helpful and I will ask for something in case it happens again. Also, getting up at 4 am every day. Children's chewable cherry Benadryl not making it for me!

I have an appointment with a surgeon at the smaller hospital where the biopsy was done, tomorrow. Another appt. w/surgeon at Dana Farber next week but oncologist there not until 3/4. That seems so far away. I am thinking of calling back to see who else might be available or checking the schedules at MGH. I really don't know how much difference a few weeks makes but understand some may want to do treatment before surgery. I want a mastectomy, preferably double. Any advice on timing, delaying for the best cancer center versus going with smaller hospital surgeon, etc?


Comments

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 645
    edited February 2015

    I had major panic attacks early on after diagnosis and in the middle of the night. I would panic and break out in sweat from head to toe. The steroids and Ativan administered with chemo made me practically psychotic at times. It all got better and over time got less and less and now I don't have them anymore.

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    windingshores, take a deep breath and try to relax. It will help with the anxiety. You need to get all the info in front of you to see what you are really dealing with. Our heads will go to that dark place when we don't know, and so we panic. Once that sets in, it is hard to get the train on the track. You need to have your head on, gather up some close family and friends, and game on! Take someone you trust to the appointment so you gather all of the info. Record your appointments with your smart phone. Make notes so you can ask questions. The timing is slow, we all hurry up to wait for those appointments, and then hurry up to wait for the results, and on it goes.

    We all feel better when we control the process and the people. Look through the boards, there are excellent threads to answer some questions, but also to suggest what to ask the Doctors. Please remember that knowledge is power, and power will give you some control. Now is the time to be ready, ask all the questions, look at the info on the boards and be prepared when you see the Doctors. You can do this, it is amazing what one can do when the time is now to do it. Please visit us often, we all help each other get through this. Take Care.

  • windingshores
    windingshores Member Posts: 704
    edited February 2015

    I've read three books and researched every MD in town in the last week. Too much. I think Netflix is healthier!

    Even the most prepared and together of us can have a panic attack- that's why I appreciated the posts mentioning it. It is involuntary, not attached to thoughts. Reiki and things like that can help but I think the shaking is a good thing. I read that deer shake off trauma, and if they don't they die.

    Better today but not going to do any reading unless it's a mystery!


  • labelle
    labelle Member Posts: 721
    edited February 2015

    I've suffered from panic attacks most of my adult life, but I pretty much lived on Xanax for the first 2 months after being diagnosed with BC. I was in panic mode most of the time and couldn't even think about sleeping without the Xanax. My PC was great about prescribing it and basically told me w a diagnosis of BC she'd give me as much as I wanted. Eventually I started getting back to new "normal" and stopped taking the Xanax. Sometimes we need a bit of chemical help, but you won't turn into a junkie! Not too long ago, I switched to 3 mg of melatonin at bedtime to help me sleep and I swear it works just as well as the Xanax did-in the vitamins section, no need for a script.

    My personal choice was to go to a large university breast center. This setting is very helpful in coordinating your care, having all the specialists you will need in one place and makes referrals to each specialist easy. I saw a local, small hospital surgeon initially when trying to decide where to have my surgery done and he said he could do the surgery, but I'd need to find and choose an OC and a radiologist and if I wanted genetic testing done, a geneticist. A large breast center basically puts your team together for you. But, if I hadn't liked my oncologist at Vanderbilt, I could have asked for another. They have several at their breast center. Just remember 2 doctors can get together and call themselves a Breast Center. If going that route I'd look for a university breast center. While the breast center was a long drive for us, both breast centers I consulted said doing radiation therapy closer to home was fine, even though my care was primarily thru the breast center. Radiation is an every day gig, and convenience becomes a bigger question if that is in your future.

  • windingshores
    windingshores Member Posts: 704
    edited February 2015

    My anxiety improved after the big panic attack. Not taking anything, not even my chewable cherry kid's Benadryl, at this point, but who knows what else is in store. Our nervous systems have to "get it out" somehow and I am generally way too calm on the surface.

    I made an appointment with a surgeon at one of the best cancer centers anywhere- moments after I got the biopsy results. Next week, and the oncologist the following week. They told me if they get the HER2 test that is pending the surgeon will look at it, and i general if anything needs to happen on the oncology end the surgeon will get me in earlier.

    The surgeon at the smaller cancer center was today- do not want to use the center but they did all my testing and I at least got more info on my situation.

    Now, I need to hear about people's decisions on lumpectomy (w/radiation, maybe recurrences though they say nno) versus mastectomy (double or not, more hours under anesthesia, drains etc.) I don't care about reconstruction at all. I imagine there are a gazillion posts on this one. MD's so far certainly seem to think mastectomy is a huge deal to be avoided, but women sure seem to want them.


  • geewhiz
    geewhiz Member Posts: 1,439
    edited February 2015

    Windingshores..big hugs. I don't think I have had panic attacks...maybe I am not sure entirely what they are and I simply call it "stress" lol. But when I was diagnosed (as a young mom of 3 little ones)...I could not even see straight, literally. I got up one night, unable to sleep, and went downstairs. My head was spinning. I promptly threw up. Right there, was rock bottom. I think we have all had those dark moments. It's a part of being human. It gets easier. I promise.

    And the studies seem to show that lumpectomy has the same recurrence rates as mastectomy...so it's a very personal decision. I had rads after a mx with implants and I am fine.

    You are most definitely not alone here


  • kyra2007
    kyra2007 Member Posts: 2
    edited March 2015

    I have been having panic attacks since the diagnosis too. I have no details about my situation other than IDC found by a plastic surgeon removing a cyst. I will see a breast surgeon on Thursday. The pathology reports were not available when I had the stitches removed and received the news. I alternate between trying to get everything taken care of so I have time to be "down" for a while and not wanting to do anything at all. Whatever the news is - I just want to know so an action plan can be started.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited March 2015

    Kyra ... welcome to BCO.  I had panic attacks when I was diagnosed too.  The worst time for me was between when the cancer was identified by biopsy and when treatment actually began.  I asked my surgeon for some Xanax, which he prescribed.  It really helped me those couple of weeks.  Once you get more information and can get started on what's coming next, I think the panic attacks will start to go away.  I have to confess though, that radiation treatment brought on some panic as well. 

    Please keep posting and let us know how you're doing.

    hugs,

    Bren

  • Cmo65
    Cmo65 Member Posts: 96
    edited March 2015

    I haven't had panic attacks but anxiety comes and goes. Feeling sick to my stomach, aches and pains from head to toe, certain my entire body is full of cancer. It all feels so horrible. Everyone says it'll get better and I'm believing them! Be well.

    Christine

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited March 2015

    cmo65...I am still a little woozy from pain meds from my double mast yesterday but I just wanted to tell you that things do get better. I haven't gotten my final path report but look at it this way...you were healthy before diagnosis..just think how much healthier you will be as the cancer is removed from your body! You will be wonder woman! Big hug!

  • TinaMarie27
    TinaMarie27 Member Posts: 2
    edited March 2015

    Glad to see my anxiety bouts are likely not a sign that I am losing it entirely! I found a lump which ended up being a cyst that I can't even feel now. However, in the process of looking at that, a tumor was found. On 12/22-biopsy-12/29 met with surgeon and was diagnosed. 1/28 lumpectomy with a request for Oncotype DX testing. 2/27 re-excision-even with negative margins, margins weren't sufficient since I have both the invasive BC and DCIS. Through a series of clerical bumbles, I am still waiting for the results of log my test and the determination of chemo + radiation or just radiation. So frustrated to be nearly 3 months out from diagnosis and still not know if I will have chemo. Once I find out things will start immediately, but the waiting may drive me totally crazy.

    I am amazed at the community I have found myself part of since that day just after Christmas. So many strong and kind souls. Praying for quick and complete recoveries for my new neighbors

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2015

    Dear eTinaMarie27, welcome to Breastcancer.org. We're sorry you have to be here, but glad you found us!

    You may find it relevant to read from our main site reliable information on IDC — Invasive Ductal Carcinoma where you'll learn about symptoms, diagnosis, treatment, etc.

    We hope this helps, and wish you the best with recovery and getting your results and treatment plan!

    The Mods

  • Cmo65
    Cmo65 Member Posts: 96
    edited March 2015

    Little blue , what a great attitude! Wonder women indeed!

    Tinamarie, I hope you get answers soon. You're right... The waiting is the worst!

  • windingshores
    windingshores Member Posts: 704
    edited March 2015

    I just had that one panic attack and used 1/2 Klonopin once. After that first week, have felt quite calm honestly. Hope that helps someone else having a difficult first week after biopsy.

    Had a mastectomy a week ago, drain already out, taking walks and eating again. The wait for pathology isn't bothering me and I will do whatever I have to do.

    So if you are anxious, take heart, it is a natural flight or fight response to waiting for bad, scary news but it does go away quickly and you will be able to deal.


  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited March 2015

    I started shaking the moment I heard about the surprise IDC. The panic attacks started about a month later and continued for several months. It is a terrible feeling - that feeling of never feeling safe. I felt adrift on a raft in the middle on the ocean - like Tom Hanks in Cast Away. I had never used antianxiety meds before, but fortunately my PCP recognized the signs and gave me a prescription for xanax, I was so worried about getting addicted that I came off them too early and a month later I was back in that deep dark well of anxiety and depression. The second time my PCP gave me klonopin and ordered me to stay on it for a year. He also gave me an antidepressant. After a year on klonopin I weaned off with no problem. Watch for PTSD, it can hit some of us harderthan others. Often it hits at the end of active treatment.

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