Bringing in 2014 with Tamoxifen!

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  • Stenokim
    Stenokim Member Posts: 172
    edited January 2015

    thank you, Kruise, and cheers to 2015. Kim.

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  • Mouche
    Mouche Member Posts: 63
    edited January 2015

    I pray everyone is having a pain free/symptom free start of the year!!! I am doing well after my rough start on Tamoxifen, it has been 6 months since I started and with this new year came some changes in my insurance. BCBS is now covering my tamoxifen %100, I went to pick up my refilled and was told I owe nothing. I then wanted to make sure it wasn't a fluke:) so I inquired and yes my prescription of this drug is now 100% covered by my insurance. So if I have to take this drug for the next 4 1/2 years, I will say with it being free has made it a little easier. Oh I also was having some problems sleeping which can happen with this drug and I have found that 3-6mgs of Melatonin works well.

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  • ndgrrl
    ndgrrl Member Posts: 741
    edited January 2015

    Has anyone else developed ovarian cysts while on Tamoxifen. I found out today after a CT scan on Tues that I have very large cysts that are causing me pain. I had been complaining to the MO and he told me that since I was on Tamoxifen that I could not have ovarian pain as ovulating would be surpressed. He actually went as far as saying I was feeling pain because I thought I should as I was concentrating on them..Then  went on to describe what ovulation felt like- UFFF-- that was several months back.  I just went to the GP and asked him about my pain and he said he didn't like it at all so sent me right away for a CT scan.   So now an ultrasound is on the works on Monday. and since they are so large 7 cm x 5 cm x 5cm I will most likely have to find a OBGYN and have surgery.

     

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  • tlbradyful
    tlbradyful Member Posts: 134
    edited February 2015

    ngrrl, I am so sorry your MO did not take you seriously. I am prone to ovarian cysts, but have had none in the year and a half on Tamoxifen.

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  • JWoo
    JWoo Member Posts: 1,171
    edited March 2015

    ngrrl- i might be looking for a new MO if possible. Telling your patient that has pain "it's all in your head" is not okay. I hope you got some clear answers.


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  • ndgrrl
    ndgrrl Member Posts: 741
    edited March 2015

    The MO I had left and went home to Columbia so I have a fill in until the new one starts- the fill in DR is quite funny and 75 yrs old.

    I ended up on March 3 having my ovaries removed as well as many hernias fixed - good news no cancer. My MO wants me to stop tamoxifen a week before surgery and stay off it a month until I see him in April and then he will put me on an AI, not sure what to think about that.  My GP who believed my pain and scheduled my CT scan and Ultrasound said I was ovulating each month and not releasing the eggs so the cysts kept building up until one was a baseball size.  Wish I could send a pic to that first MO and say LOOK- it was not in my head U idiot!!

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  • Bounce
    Bounce Member Posts: 574
    edited March 2015

    Hi ndgrrl

    I am glad to hear you are on the mend after surgery.

    Take it easy - let yourself heal. (No doing too much too soon like with lumpectomy and radiation!)

    I hear your frustration at the doctor's attitude loud and clear.

    Maybe someone can give both of us some advise on how to "let go" of what we would like to tell doctors we no longer see but retain some animosity towards.

    I know I would be happier and mentally healthier if I could forget some of the doctors I have had.

    How does a person "forgive and forget" if it isn't just happening naturally?

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  • ndgrrl
    ndgrrl Member Posts: 741
    edited March 2015

    I agree Bounce on the needing to let go and forget but wow its hard to do. If this had been cancer, after telling him about it over a year ago I would have wanted to see what I could do legally.  But all is good with me and now you are right I need to give myself time to heal and not to do to much like I did with my lumpectomy and radiation. Scary thing is I do have a new job and after having a job eliminated from having treatment its so very hard to not be nervous- New boss and co-workers sent me flowers to the hospital though and they have all been great so I shouldn't worry.

    Doctors sometimes think we don't know our own bodies which drives me batty!!  I have been ovulating longer than that MO has been alive and I think I would know what it felt like, grrrrr 

    Here's to better doctors!!!!  

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  • lisa2012
    lisa2012 Member Posts: 652
    edited March 2016

    Yes, one tries to be positive. There are better and worse days. I have to admit sometime I am pissed off and jealous of my sister (glad for her though) for whom Tamoxifen and Aromasin were "non-issues." No aches, pain, stiffness, hobbling down the stairs, stiff hands, hips etc. It didn't bother her at all! Lucky girl. However I did have a great realization the other day when I actually almost couldn't get off the floor when i put my shoes on. I thought- from now on I should sit on the bed or the chair when I put my shoes on! Silly but a good plan, eh?

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