recurrence

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  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited February 2015

    Kbeee, sorry about the node and chemo but plow through and get to the other side. And yes, plan that trip while you are doing all this and then take it! I don't think I got the message about enjoying life my first cancer experience, but I certainly did the second time. We went on vacation about two weeks after I finished rads and I'm going every year on vacation now, and maybe twice.

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  • KBeee
    KBeee Member Posts: 5,109
    edited February 2015

    My head is spinning. I had sent MO a message to not send out Oncotype since node was positive. He just replied that they sent the sample to Mayo because they are not sure if it is a lymph node or residual primary tumor. What???!!!! It was not anywhere near the primary tumor! That tells me that it maybe was in 2 spots? I don't see how it could be residual so far from the original spot. I obviously replied with about 10 more questions. He must hate me. Uuuugh. I just want a plan, and now I won't have one for weeks. What the heck? it was about 6 inches from the spot where the tumor was

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  • katcar0001
    katcar0001 Member Posts: 621
    edited February 2015

    OMG, you must be in a state. I cannot imagine. So if it's confirmed residual, then what? Oncotype or no? But you are right--six inches away--that makes no sense! I am so sorry. Hang in there and keep the pressure on your docs.

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  • KBeee
    KBeee Member Posts: 5,109
    edited February 2015

    I have sent messages to my MO, BS and I sent one up to my doc at Mayo asking them to call me when they have the path results. Hopefully I'll get a little more information sometime today...but I am not betting on it. I am soooooooo not patient.

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  • KBeee
    KBeee Member Posts: 5,109
    edited February 2015

    BS called back tonight. There were 13 nodes removed. All of those were clear. The "node" that was cancerous was high up in the armpit (my tumor was near my nipple). Pathology here did not find any lymph tissue in this, so they think this may be a totally different tumor. That is why it was sent to Mayo. His comment to me was "nothing is simple with you." Ack!!!

    Skin and muscle were clear.

    Ithink I can make a pretty good case for chemo regardless of what oncotype is. Geez...Bilateral mastectomy with teeny bit of breast tissue left in 2 areas and BOTH grow cancer within 2 years?! Apparently my body likes to make cancer. Time to do some serious world traveling!

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  • katcar0001
    katcar0001 Member Posts: 621
    edited February 2015

    Karen, I am glad your docs called you tonight with a bit more info. It sucks to be going into the weekend, and I know you're still waiting for the final results. But it sounds like the most if not all of your nodes are clear. And your skin and muscle were clear! So there are some positives there. As many have said before, it's impossible to get out 100% of the breast tissue, so I would not assume your body likes to make cancer. Somehow, a bit got left behind, and you have a good game plan to tackle it. We are all here rooting for you, and I hope you can do something nice for yourself this weekend to get your mind off it. (((Hugs)))

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  • wrenn
    wrenn Member Posts: 2,707
    edited February 2015

    Ditto what Katcar said. Hang in there Karen.

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  • GrammyR
    GrammyR Member Posts: 702
    edited February 2015

    Kbeee- I had re-coccurance after 6 years w/ a node under collar bone same side as mastectomy. I had 6 weeks of RADS and now it is not seen on CT scan after a year and half. No more chemo - still crossing fingers and praying . So please remember many of us surviving a long time even after re- occurance. Hugs and prayer coming out to you.

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  • KBeee
    KBeee Member Posts: 5,109
    edited March 2015

    Well, the current scoop is as follows: Pathology came back that not only was there no lymph tissue, there was also no breast tissue....none. nada. It was a IDC tumor growing in the soft tissue. It did not show up on CT, MRI, ultrasounds, or PET. I was worried and really wanted them to order chemo to get rid of it...I was worried they wouldn't since it was a small tumor. Thankfully, my awesome MO is as aggressive as me and we're totally on the same page. Chemo starts sometime March 30-April 1, depending on when I can schedule the port. I never ever thought I would say I am glad to be headed back to teh chemo bar, but I was so afraid they wouldn't that I am thrilled nad relieved to get to go! 5 months of crap is well worth years on the other end.

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  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited March 2015

    Mine did not have breast tissue either, and i felt it seemed to be on the move so I agree with you to go aggressive. I felt it might be my last chance to stop it in its tracks. No one looks forward to chemo, but you're experienced at least! I hope everything goes smoothly. Did they say what chemo they want to do this time?

    Oops, edited to add that I see you have it listed at the end of your signature.

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  • dltnhm
    dltnhm Member Posts: 873
    edited March 2015

    Karen

    Thankful that you have answers, that you & your oncologist are on the same page & that you have a course of action.

    Diana

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  • GrammyR
    GrammyR Member Posts: 702
    edited March 2015

    Kbeee- I am puzzled as to why they would use the same chemo drugs that obviously did not stop spread earlier. I had the Adriamycin 1st go around w/the C and T also.Hugs!

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  • KBeee
    KBeee Member Posts: 5,109
    edited March 2015

    I did not have adriamycin or taxol last time. I had Taxotere and cytoxan

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  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited March 2015

    KBeee - adriamycin is suppose to be the silver bullet of chemo so I hope once you get this chemo (and taxol) you never see this beast again.

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  • KBeee
    KBeee Member Posts: 5,109
    edited March 2015

    Thanks! I definitely preferred to be aggressive and hit this beast from all angles this time. Between the stronger chemo and the radiation, I am hoping it's gone for good

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