Starting Chemo March 2015
Comments
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I have a magnesium spray I use too. It can kind of tingle, so I mix it with lotion. Honestly, the baths with Epsom salts are awesome.
Just research the potassium and magnesium issues. Those two substances sure seem to be helping me.
I still have my hair, I look at it everyday right now. I think I am going next weekend for haircut, etc., so once I get it perfectly fitted I will post a picture.
I'm gonna miss my hair....
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Hi, all! I'm 44, married 20+ years, 3 kids (ages 22, 16, 14). I don't have a date for when I start yet, but I got my port right before the weekend (on Thursday), already had my echo and did the chemo intake education. So...soon. I'm supposed to do 4 A/C every two weeks, then switch to weekly T for 12 weeks. I'm also supposed to get the shot that starts with L that you take Claritin for. I invested last week making freezer meals and this weekend in the family, who helped me assemble my chemo bag of tricks of OTCs & etc, but after reading this thread, it appears I need at least one more weapon in my arsenal (lysine). I'll wait until my first treatment to get my hair buzzed and already have a wig, though I expect to be rocking hats more than anything else. I work from home, self-employed, and hope to continue doing that.
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welcome Princess! I'm sorry you have to join us but it's a nice group and we have all learned a lot from each other already.
Sounds like your bag of tricks is about ready! Best of luck. Check in anytime you feel like sharing, venting, whining, whatever. We will be here for you.
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yes welcome PrincessofMeh! I welcome any tips, etc. you know about to help in this battle.
I am waiting until the last possible moment to cut my hair. It might be crazy, but a long term chemo patient said my hair might actually stick around until a little bit after round 2. Other than surgery, a port, scans, chemo, etc., I don't have any physical sign yet of being a cancer patient, and I think the hair loss will hit me hard and make it real. On the other hand, I might just go bald, who knows?
One other item I added to my chemo kit today is saline nose spray, the atomized stuff like for little kids. Dry nose set in today. I thought my nose was supposed to run lol.
You sound so organized and prepared, and as if you have a great support group.
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I think I'm ready to start this chemo journey. My DH walked in as I was ironing my top for tomorrow and said "why are you ironing your not going to work?" I replied, "I need to look good to feel good. Plus my DD went out and bought me a chalk board and a photo album so I can document my chemo journey and I want to look myself for week one." I have 1 wig at home and 1 on order. I Have my emla cream ready and my press and seal to cover it
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I am so envious of those who can go out hiking and biking after treatment. I would be grateful to get up out of bed and not feel dizzy and have enough energy to do a load of laundry. I did go for a 5 min walk with DH but that was about all I could muster.
I had about 2 good hours this afternoon before the nausea started back in. I think I'm almost out of the woods...I hope
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Rleepac, I'm worried you aren't eating enough to keep your strength up. Some people drink those protein drinks if they can't eat, not sure if that would work for you.
Anybody have any blood when they wiped? Not in urine or poop, but just on toilet paper? Freaking right now. Glad doctor is open tomorrow.
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I actually did have a protein shake this morning. It's my usual breakfast and my tummy was cooperating so I got about 3/4 of it down. Today I managed the protein shake, an apple, a pudding cup, 1 ravioli, and a few bites of chicken cor don bleu. I feel like I'm on the rebound
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awesome Rleepac!
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ItalyChick, I did have a little blood when I wiped and it was during the actual infusion. I thought my period was starting, even though I wasn't due yet, and I didn't even think to mention it to the nurse. And it went away the same day.
I'm curious what you find out from the doctor tomorrow. I hope you could post about it
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Good morning Ladies, I just dropped in to see how everyone is doing with the first week of March gone by already. If you need something for the tummy, good old Jell-O works well and counts as a liquid. Fresh fruit, cottage cheese, baked potatoes, soups, yogurts, chicken, all small meals or snacks will help you feel better with a little something in your stomach. Don't forget cold water to hydrate. Biotine mouthwash and Brach's Lemon Drops help with dry mouth. Whatever works and helps to feel better.
Shaz - check out www.finnleo.com for the info on infrared saunas. I used to sell them along with hot tubs and pools. But the saunas are wonderful for pain relief, a great feel good. If you think you want to purchase a home unit, just ask and I would be happy to help you select the correct unit. I love them!
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My chemo was started on March 2 and is 5 months I eat even though First Few days no appetite ." I plan to fight and eat even though no appetite and I hope no nausea at all . Also Awaiting my genetic tests Patiently week two starts Tomorrow ..Not looking forward to It but It has to be done .Tc Everyone
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something must be wrong with me lol. I just ate a grilled rib eye steak, potato skins, and grilled asparagus. Nothing seems to be wrong with my appetite. But thank god the 7 pounds that came on from the steroids is gone and I am back at my normal weight
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Did anyone have an allergic reaction/rash come up after their first tx? My face looks worse than when I went through puberty. I did a little researching and found that it's likely a rash and not acne like I'd originally thought, so it's looking like it probably is a side effect of chemo. Hoping my MO will give me an antibiotic prescription that I can pick up in the morning and that that'll take care of it... even though I don't even want to leave the house to go get it! My face literally HURTS. Not something I thought I'd have to deal with when they said "rash" might be a side effect, and this looks like horrible cystic acne..
thank you for all the love on the wig! makes me feel better about it, even though I still know it's a wig (duh, right?)
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Wpmoon, I think you should ring and ask. You may be having a reaction to the chemo. I wasn't told that I may get a rash, although we are on different drugs.
Beach bum thanks, I'll do a little more investigation. I live in Australia so I don't think that company will be able to help.
Lost sparrow and princess welcome, make yourself comfy. I hope you feel at home here. Although I'm so sorry you're here..
Italychick, you amaze me! Lol, I was thinking about a steak too, but I was worried about the taste. How was it?
Rleepac, I haven't done anything for the last 4-5 days. I did get on the bike but only for a few minutes.
Can I get some heavy duty help with constipation. I haven't really been since I had chemo (a week tomorrow) I'm feeling uncomfortable. I've tried magnesium, senna tabs and metamusil
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Shaz, please call your cancer care centre. I just spent a couple of days dealing with a constipation issue, and it was no fun. Things got a bit off the rails after I called the cancer centre. The nurse suggested an enema at home, but because I live very rural, she suggested I stop at the nearest hospital. That was a mistake, because as a satellite hospital (they mostly triage and transport), I wasn't examined for hours, and ended up going home with a scrip for Lactulose (which did help, though it took a while) and some mechanical help at the bottom end (glycerin and enema), but the hours of straining did do some damage and I was pretty uncomfortable for a couple of days, and didn't have much bowel control, either. I was taking Zofran for an extended time for nausea, and things just got backed up. I need to be more proactive about this, as I tend to become constipated even with small changes in my routine
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Thank you for the welcome! I'm envious of those of you who have a strong support system. My immediate family (hubby and kids) have been absolutely great, as have our friends, but we don't have any family nearby. Which is apparently a blessing in disguise considering my mother has taken over social media to crank up the drama machine over how MY cancer is all about her and her feewings. *snort* I've been somewhat of a couch potato the past few years, after I quit my day job to write full-time, but recently started walking. Every little bit helps, right?
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thanks Beachbum, for continuing to look in on us.
And Welcome Lost Sparrow. Too bad we meet here, but such a fun and caring group. It will help you manage I hope.
I slept better last night, still have swollen glands in my throat, general malaise, and a constant concern the nausea is around the corner.....
About protein shakes, I have been using whey protein powder instead of soy. For those of us ER+, it is best to stay away from too much soy, as there seems to be some connection between soy and estrogen. I put a little ground flaxseed oil in as well which is useful as lubrication. I keep organic frozen fruit in the freezer to keep it interesting and add to the roughage.
I started taking 3 colace and a Senekot daily,days before I started chemo and it helped. I had a horrible bout with constipation after surgery and did not want a repeat. Thankfully, I'm doing ok in that department now, but the surgery constipation took many days to dislodge once it got started. Drink lots and lots of water
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Wow, I was gone one day. So much to catch up on.
Italy: I love your story. I love Italy too. My husband and I took our two daughters 9 and 11 last fall and it was the trip of a lifetime. I even got to tour the factory of my favorite designer and meet him! My husband is of 100% Italian descent and his family (grandparents) came here from Sicily. I am just about to turn 52.
Constipation: I am not sure if you have this in Australia but I take a prescription med called Linzess for my chronic constipation. I am not sure if I will still be able to take it when I start chemo but it has been a godsend to me. I was miserable before I started it. I have to take one does of miralax a day with it to get it to work. My doctor says miralax is ok because it isn't like other laxatives that can damage your colon.
WP: You look very pretty in your wig. Welcome to the group.
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Doesn't glutamine come in pill form? Is there some reason you are taking it in liquid? I looked for it at Whole Foods the other day and saw it in the pills.
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L-glutamine comes in pills and in powder. Originally I thought pills would be ok, but from these boards I found out that we should be taking 30 grams (not milligrams) and it would not be feasible in pill form. The powder goes into the liquid , but it doesn't really dissolve well and I hate its taste. I started putting it into juice and it's more tolerable to me this way.
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Hi March gals! Sorry we're a little late jumping in here, but we wanted to provide some helpful links, starting with the main Breastcancer.org site's section on Chemotherapy, including info on what to expect with chemo, types of chemo meds, and side effect management. Also, the Treatment Side Effects section is a great resource for tips to help manage any side effects you may experience.
There are some really helpful key threads here in the Chemo forum too! Great tips and practical advice on the following discussion board threads:
- Tips for getting through chemotherapy
- More Tips (and a Shopping List) for Getting Through Chemo
- PORT PLACEMENT: Detailed description of process
- Head Covering Options for Hair Loss
- wig advice
- Cold Cap Users Past and Present, to Save Hair
Also, Last Month's Chemo thread might be informative!
Hope you find this helpful!
--Your Mods
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Can anyone tell me if they had the port in the upper arm?
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Shaz101, the steak last night was amazing. I think I needed some protein for healing or something.
Tvler, awesome about Italy. What region is your husband from? I have been everywhere there. Venice, all over Tuscany, Milan, Rome, Naples, all over Sicily. I love the Italian culture. Who is your favorite designer and where did you do the tour?
PrincessofMeh, my mom is forbidden from posting anything anywhere or I told her I will never speak to her again. Having said that, she lives in Chicago where most of my family is, and of course she has made the most of telling everybody about my diagnosis, probably to get sympathy for herself. I'm not bitter, just realistic about my mom being a manipulative, selfish woman. Wow, where did that come from lol?
Another pretty day here in San Diego! Be well, everybody!
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Trvler - my port, and most others I've heard of, are in the upper chest area, below the collar bone.
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Oh, and just to update - my MO thinks it's a reaction to the Lupron injection I had to suppress ovary function during chemo. Who knows. Either way, got a script for doxycycline and an antibiotic gel, and hoping those two help to clear up the issue. I think I'd rather have my head around the toilet than my face feeling like it's on fire...
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Italychick, your mom and my mom should be best buds, LOL. I didn't forbid my mom from sharing news/updates outright, but I told her I expected her to check with me first and told her I absolutely do not intend to share the details of my treatment plan with everyone. A little discretion, y'know? Just a little. You'd have thought I'd lobbed a brick at her the way she's been carrying on. Oh well, sucks to be her, I guess. ;-p
FWIW, my port site is just below my collarbone. Zero troubles with or anxieties about it. No more needle sticks (or at least fewer of them) sounded wonderful to me!
Got my walk in, beautiful warm weather. Appreciating the little things.
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Princess- love your attitude. Gotta...GOTTA appreciate the small stuff.
I just love everybody here. Hope all have the best possible day
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Italy: My husband's family is from Sicily. We went to Rome, Venice and Florence. The designer's name is Brunello Cucinelli and he bought the town his wife grew up in and restored it. It's called Solomeo. It is the most beautiful place I have ever seen. It is my 'happy place'.
My mom would never think of telling anyone. She is kind of self absorbed. I got mad at her because I was talking about my cancer to her and she abruptly changed the subject to how much snow they had gotten. I was like WTF? But once I told her, she was better.
BB: Where are you getting the glutamine? I am scared to buy anything at GNC after that story a few months ago about them. Maybe Whole Foods has it.
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Trvler - uh-oh, what story about GNC? That's where I bought mine. Walgreens and Target didn't have any. I'm not keen on buying drugs online either.
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