Winter rads 2014-2015

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  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    I don't care about the tats. The ones on the side won't be seen. The one in the center, very visible and I keep forgetting and think I dropped something there. LOL

    No biggie to me. My scared and misshapen boob is much more noticeable.

  • ladyb1234
    ladyb1234 Member Posts: 1,426
    edited March 2015

    Thought I would weigh in on the tat discussion.

    I have 4 tats and the only two I can see are the two down the center of my chest. I have a nice birthmark that one is right above and at times I can't tell the two apart. T tat on top I feel as time goes on I will think it is one of many moles that I have. The two on the left and right side I have to be in an akward position to see them. So NO I don't care about my tats when the other scars are a more noticeable reminder of BC.

    Have a great weekend everyone.

  • cbooklvr
    cbooklvr Member Posts: 66
    edited March 2015

    Wow busy discussion this weekend.

    JenniferE no I will be going to the hospital Summitt in Oakland. The techs and my RO were great for my simulation. I don't start rads for about a week

    My RO said not to put antany lotions or creams on my skin. They will give me stuff as needed depending on my skin condition. Aloe vera gel is the only thing is should get.




  • cbooklvr
    cbooklvr Member Posts: 66
    edited March 2015

    I also can't find my tattoo, it blends in with my moles

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited March 2015

    I can barely see my tattoos. They do blend in with the freckles, etc. that I already have. Sometimes the techs had to use a marker on top of the tats just so they could see them better. Now that I'm going the boosts, they have a clear plastic template that they drew my scars on, so they are actually using my scars as a reference point. Once I'm lined up, they take out the plastic and put in the lead form

  • WndrWoman
    WndrWoman Member Posts: 333
    edited March 2015

    BookLady1. LOL!

  • windgirl
    windgirl Member Posts: 340
    edited March 2015

    Hi! My cording pain which had resolved itself has now come back for a week now. Guess it's due to rads, can't think of anything else. This time I can't see a thick cord like before but it goes all the way down to my hand and reminds me that it exists every time I extend my arm sideways. I know this is something very minor and can be fixed, but wanted to post and let you all know since we report possible side effects here. Hope everyone has a great Sunday

  • scubawoman
    scubawoman Member Posts: 19
    edited March 2015

    My tats are so small I cannot even find them amongst the other freckles, moles, and zits from the Aquaphor. Haven't seen anybody else reference the zits -- they are on my cleavage and get a little itchy when I perspire. I'm pretty sure they are from the Aquaphor clogging some of the pores.

    Told the 30 yo kids (I'm the wicked step-monster) and grandkids about the bc yesterday. Reassured them that its going to be okay, and I'm still their Gran who wants to go to all their athletic events, movies, school shows, etc. They were concerned we hadn't told them when we've known since before Christmas, but understood when we explained we aren't telling my 93 yo parents (at least not until end of treatment) because my dad is a retired doctor and lost all of his female cousins to bc 40 years ago. His only reference point is that and he'll go to pieces if we tell him.

    Luckily, none of the SE of rads are so bad I cannot hide them for a few hours to see my parents.

    ,

  • CassieCat
    CassieCat Member Posts: 1,257
    edited March 2015

    scubawoman, I have had some minor breakouts as well. Nothing too terrible, but I have noticed that SE.

    Today I'm very itchy/irritated. It's a patch of skin below my clavicle, toward the middle of my chest as opposed to near my armpit. 11 more treatments and 7 boosts...

  • WndrWoman
    WndrWoman Member Posts: 333
    edited March 2015

    scubawoman and CassieCat. Some of the breakouts and itchiness might be hair follicles reacting to the radiation. I was told that was what I had fairly early in the treatment weeks. Mostly as CassieCat describes - above and upper breast and also toward cleavage - like red bumps.

  • Mm68
    Mm68 Member Posts: 64
    edited March 2015

    I was fine up until #13, then the rawness and itchiness started. Ugh, RO gave me cortisone cream which has hekped but half my chest is still red. I am allergic to Aloe so can't use anything with it. Are the boosts really much more intense and are they everyday? I was under the assumption they were?

  • windgirl
    windgirl Member Posts: 340
    edited March 2015

    The boosts are less intense as they aresuperficial meaning they don't go through the breast. They are every day as well.

  • Mm68
    Mm68 Member Posts: 64
    edited March 2015

    Thanks windgirl, I was hoping they were everyday so not to make this any longer!

  • gemmafromlondon
    gemmafromlondon Member Posts: 138
    edited March 2015

    scubawoman - I think you are very wise not to tell your parents. What good can it possibly do?. It can only distress them. I decided to tell no one - I am sure my family will be furious if and when I finally do but when I was dx they had problems and I could see no benefit to anyone to burden them with further worries. As I was fine on my own and got through treatment quite easily I am pleased I did not say anything. Now it is over (of course it may never be over I know) I don't think I will tell them until such time that I have to for one reason or another. Perhaps I am wrong but it has saved endless handwringing and distressing conversations and has been one decision I could make for myself - bc has made too many for me already!

  • scubawoman
    scubawoman Member Posts: 19
    edited March 2015

    Thanks Gemma. Sounds like we are of the same temperment. Am meeting with a genetic counselor on Wednesday, and if they do the tests will probably tell my brothers if results might be important for them, but probably won't tell them until radiation therapy is over and I'm on the hormonal therapy for a while. Part of this is self-preservation, I'm not sure I could endure the hand wringing and constant anxiety.

    Here's to moving forward on our own!

  • WndrWoman
    WndrWoman Member Posts: 333
    edited March 2015

    Mm68. Boosts target a smaller area focusing on the tumor site so other areas get a break and can begin to heal. Not sure about dosage strength.

  • JeniferE
    JeniferE Member Posts: 130
    edited March 2015

    y boosts will be the same dosage strength but just focused on the tumor bed.

  • gemmafromlondon
    gemmafromlondon Member Posts: 138
    edited March 2015

    Scubawoman - Yup! I reckon we are of the same mind! I think it is doubly difficult for men to get a handle on the psychological side. It is not just self-preservation for me it also trying not to be a burden on others but I can see that you may think your brothers have a right to know. I am very pleased not to be the subject of local gossip and everlasting sympathy from friends and I think it is bonus for me that as it is unknown I can try and put it behind me whereas I might be being driven mad by all the solicitous comments and annoying people trying to take over my life!! How can one possibly say "buzz off, butt out, leave me in peace"?

    All the best for your final rads.

  • kayfry
    kayfry Member Posts: 481
    edited March 2015

    This is a great conversation. I decided not to tell my 93-year-old mother (who lives in another state) about my Dx until after I'd had my surgery, at least, and probably not until after all treatment was completed. Unfortunately, my plan was foiled in a way I never anticipated, when the brother of my closest childhood friend, who still lives in my hometown and is my mother's dentist, happened to tell her when my mother went there for a routine dental exam! My friend had just been home for a visit and had told her brother, but he was not supposed to pass that along to my mom, and it was just chance that she then had the appointment with him. I got a frantic call from her, of course, and had to talk her down and reassure her that I was going to be fine. It was okay after that, but I would much rather she had heard it from me first, and I was really mad about it. I didn't tell a lot of people in my life, because I didn't and don't want a lot of sympathy, and I don't want to talk about it all the time in other walks of life. I did tell my close family members and several close friends, eventually, but not that many friends. It's not a secret and I don't care if people know, but at the same time, I don't want it to be the focus of my life any more than it already is! Of course I felt my daughter should know, because it's now part of her family medical history, too. We're very close, so I would have told her anyway. My close friends who know are there for me without being overbearing about it, so I feel fortunate in that.

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited March 2015

    Kayfry, I feel the same as you. I'd prefer that people know only if they need to. Unfortunately, due to chemo, more people found out than I'd have liked. For some reason my DH wants to tell everyone. He told our tax preparer for goodness sake! He wanted to post it on FaceBook, but I convinced him not to.

  • Mm68
    Mm68 Member Posts: 64
    edited March 2015

    I did the same only told my son, mother, sister and close friends. I told my direct boss and the owner of the company but did - do not want all employees to know. Since I only have had rads so far so good.

  • kayfry
    kayfry Member Posts: 481
    edited March 2015

    Sjacobs, I hope your husband starts to get it that privacy counts for something when we're going through this. I'm sure he means no harm at all, but I think I'd kill my husband if he did that :) Post it on Facebook????

    This is the one place where I feel I can share all of this, honestly. We're all going through it, or recently went through it, and that makes all the difference.

  • windgirl
    windgirl Member Posts: 340
    edited March 2015

    I was told that the boosts are electrons and to expect less issues even though they are concentrated to the tumor bed area.

    By the way, my radiation therapists said my skin looks great. I told them that to me it looks like my boob is gonna fall off :) they said they have seen thousands and I'm good. I say this because I know how darkening of the area can look scary to us, especially those who are just starting. I posted a pic of my skin below, I didn't have peeling or discomfort other than the occasional swelling. So if you are headed to where I am in terms of color, you may not have a tough time. My underboob is significantly darker than this, yet no issues there as well. Fingers crossed for boosts! I finish Friday the 13 😱

    image

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited March 2015

    Windgirl, thanks for the picture. I start March 16th so it helps,to know what to expect. Doesn't look too bad at all. Did you use any cream or lotion, and if so which one (s)? Love, Jean

  • CassieCat
    CassieCat Member Posts: 1,257
    edited March 2015

    windgirl, my skin is looking similar, maybe a touch lighter, after 17 rads.

  • windgirl
    windgirl Member Posts: 340
    edited March 2015

    Jean I use aloe only based on instructions so far, three times a day: when I wake up, after treatment before getting dressed and before going to sleep. The one I use at home is 100% fruit of the earth brand, and the one I carry with me to treatment is 99% Lilly of the desert brand. Don't think the brand really matters but writing it in case you are shopping for one.

    Cassie that's great, I had 25 treatments before boosts and it has not changed much during the last week. Hopefully you will finish with no issues

  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    Tomorrow is my final Rad treatment, I'm thrilled and nervous about the next step. My RO said I'm NAD (no evidence of disease) as of tomorrow.

    I put together a gift basket with "cuties" and chocolates. I'll give to them along with this message:

    Thank you to the entire Salem Cancer Center team.

    From my initial visit, you've all been warm and thoughtful. Each of you, in your way, helped me to endure weeks of treatment and difficult times.

    From ....

    - the friendly and helpful reception team

    - the house keeping team whose hard work gave me a clean and pleasant place to wait or change for treatment

    - the friendly radiation technicians with their warm smiles and respectful and gentle care (gonna miss the warm blankets)

    - the entire nursing team, you showed me compassion and care and were always ready with ideas to help me make it through treatment -- when I fell to pieces and tears, there you were there helping me face another day

    - the doctors with the life saving expertise and guidance

    Cancer is painful, overwhelming, depressing, scary and life changing. Remember that many of us have no medical experience so this is pretty foreign territory! When fighting this battle, acts of compassion and gentle care impact us in ways you may not ever know. A look, a word, a touch, warm tea, warm blankets.. it all matters.

    I thank each of you for the role you played in helping me beat cancer.

    I wish you all good health and long happy lives.

  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    Hi everyone!

    I shared this before but wanted to share again for new readers and as a reminder to those of us finishing or recently finished. Please share as you like.

    ___________________________________

    NEW NORMAL

    You are certain to feel sheer joy and relief at the end of breast cancer treatment!

    Whew, you think, I finally made it to the end of a long and painful process! Ending treatment is definitely a reason to celebrate and you probably can hardly wait to return to life as "normal!"

    But, you may quickly find out that life as you knew it before treatment just isn't the same.

    Gone is the safety net of a team of doctors, nurses, technicians, and other means of support that are no longer there for you on a daily or weekly basis.

    Family, friends, and employers may have high expectations that you will be the same person you were before treatment. You will probably have the same high expectations of yourself.

    However, cancer is a life-altering experience and you will most likely be faced with establishing a new "normal" as a breast cancer survivor.

    3A myriad of things may present themselves at the end of treatment and it's quite typical to go through an adjustment period. Experts estimate that it takes as long for you to rebound from treatment as it did for you to go through treatment.

    However, we are each different and it may take weeks, months, or even years to make the adjustment.

    It's myriad of things may present themselves at the end of treatment and it's quite typical to go through an adjustment period. Experts estimate that it takes as long for you to rebound from treatment as it did for you to go through treatment*. However, we are each different and it may take weeks, months, or even years to make the treatment.

    But there are also positive things that can happen at the end of treatment. You may appreciate life more, become more spiritual, change how you think about life, reduce your stress at work and at home, adopt healthier eating and sleeping habits, and you may even decide to channel your energy into becoming a breast cancer advocate or become a source of support to others who have been just diagnosed or are undergoing treatment.

    The biggest thing you need to give yourself is adequate time to heal and adjust. Be reasonable with your expectations and be kind to yourself.

  • gemmafromlondon
    gemmafromlondon Member Posts: 138
    edited March 2015

    Well said quiggy - it is all too true. There are many medical conditions which change life but possibly cancer is the most scary. Let us hope we all stay fit and well for a long time. Are we all Naddies now? I hope so. But especially for you today - open up the champagne and celebrate!

    Windgirl - good pic! Mine was paler but a bit mottler and quite dark under the breast ( the tumour was right underneath the saggy! fold). It's two weeks now and it is getting a little paler I think.

    sjacobs146 - heck! that's bit much. Hope you get a tax rebate on the strength of it!

    Sorry Kayfry that your mother learned the way she did - that is just the problem - people yap and do not seem to think that it is an invasion of privacy to spread other's health matters around. I am sure your mother understands your concerns for her.

    It has been truly wonderful to share concerns, opinions and hopes with you all and to know that each and every one of you have trodden or are treading this path. All the very best.,

  • WndrWoman
    WndrWoman Member Posts: 333
    edited March 2015

    Quiggy. That is one beautiful message! And the social worker running the 6 week group I am in plans to share "New Normal" with the group. Congrats in advance on your final treatment. You made it!!

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