Waiting for the phone call

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Wrinklequeen
Wrinklequeen Member Posts: 45
edited March 2015 in Waiting for Test Results

Today will probably be the day I get my results from the core biopsy. They called yesterday and said the results had not arrived, and that she would call them if I hadn't heard by noon today.

Two of the Ladies I have been talking with on this site both received unhappy news yesterday, and I am so saddened by their diagnosis. They are both very strong women, and very determined to beat this, and I know they will. :)

Please keep me in your thoughts and prayers. The waiting is really hard, as you all know, and hearing words of support from others is so encouraging. :)

Thanks for listening, and sending good thoughts my way! :)

Love & Hugs,

Wrinklequeen

Comments

  • libra79
    libra79 Member Posts: 64
    edited March 2015

    Praying for u wrinklequeen.. I know the wait is unbearable but hang in there keeping fingers cross for b9 results. Let us know wen u get them

  • Hopefulmom6
    Hopefulmom6 Member Posts: 2
    edited March 2015

    I am right there with you.... Getting results back today hopefully. Hang in there! Prayers and best wishes to you:

  • Wrinklequeen
    Wrinklequeen Member Posts: 45
    edited March 2015

    They called to say the results were benign, but that there were a few wording issues so they would have to wait until the Dr got in next week to look it over, and then she would meet me with me to let me know what's next.

    I asked if I could see the report, and the Nurse said they didn't have it yet, but that was what the Breast Diagnostic Center said.

    She went on to say that the results said it was benign, and not cancer.

    So...what does this really mean? Anyone else ever heard this wording from a Nurse sharing the results before?

    I'm not sure if I should be guardedly happy, or just plain old HAPPY? :)

    Love & Hugs,

    Wrinklequeen

  • Wrinklequeen
    Wrinklequeen Member Posts: 45
    edited March 2015

    Hopefulmom6,

    Have you heard anything yet?

    Let us know when you hear something. I'll be praying for you! :)

    Love & Hugs,

    Wrinklequeen

  • Bendi
    Bendi Member Posts: 50
    edited March 2015

    wrinklequeen ( love that name btw), happy to hear that your test was benign! It must be very frustrating to know that there is some wording that needs to be deciphered ...uggg! Try not to fret (ok, I know that's hard to do) and hopefully Monday will come quickly for you.

    I have a good week to wait as I don't get biopsy til Wednesday .....dreamt last night it was benign.

  • gypsyjo
    gypsyjo Member Posts: 304
    edited March 2015

    Hugs to you, Wrinklequeen. I think everything in this journey can be summed up with "waiting". My results came in dribbles. First from the radiologist, then from the lab. Interestingly, I picked up the latest copy from the radiologist and they had added more detail in the report on my numbing and how I weathered the procedures, much more than I initially received. After a review by a panel at the Breast Clinic, I am deemed a stage 1. That will be at least until the full lumpectomy and a few corresponding nodes are fully examined. I had to ask the surgeon what stage I was to find out. It wasn't in any report that I received. Your information might come in small bits of information.

    The good news is found early and not fast spreading. I spent most of yesterday waiting for various consults at the Breast Clinic. Though even a coordinated group, my information has arrived in pieces of information.  I have met with the oncology surgeon and oncology radiologist and have a plan in place. Scheduling today for about 2 weeks out, the first available opening since it requires coordination between the 2 doctors.  It does get better once you know and feel like you are more in control.

    I still find my emotions swinging.  I was ecstatic when told mine was "very treatable", very different from my immobilization when I first saw the word "invasive". While sitting in the surgical oncology waiting room and seeing all the brave women in various stages of recovery, the reality hit me. It was hard holding back the tears.

    I still have some second thoughts on treatment of choice, but each time I reevaluate I come up with the same answer. I'm scheduling a lumpectomy to be followed with a one time intraoperative radiation therapy. I may be done for the moment at that point, or my have to go through a reduced radiation therapy to supplement the intraoperative one if they find evidence in my nodes or margins. They believe I am a good candidate for this lesser radiation treatment, but it doesn't have the established track record as a full radiation treatment. My risks of reoccurrence will be slightly higher, but side effects less. Longevity rates the same.

    Whatever the outcome, my life and perspective have changed forever. I am more grateful than ever for medical advances, caring people and life in general.


     

  • gypsyjo
    gypsyjo Member Posts: 304
    edited March 2015


    Wrinklequeen, I just saw your results. I am so happy for you! Benign. Like I said in prior post, information, even good seems to come in small pieces! Hopefullmom6 and Bendi, hope and prayers for your results.

  • Wrinklequeen
    Wrinklequeen Member Posts: 45
    edited March 2015

    gypsyjo,

    Thanks so much! I did call the Breast Diagnostic Center and talked to the nurse there today. She pulled up my report and could not find any wording in the report to worry about. She did not see the word "atypical" either, she said. She thinks the issue w/ wording is referring to what to do next.

    I am leaning towards a lumpectomy to just get it out of there so I don't go through all of this every 6 months, and stress as I am a HUGE worrier!

    She gave me a list of surgeons they work with to call for a consult. I'm thinking of calling next week and setting up the consultation. The mass was only 5mm, so I wonder if they will think that is too small to do anything with?

    I think your plan of the lumpectomy plus the special type of radiation sounds like a great way for you to go. :) I can feel your power, determination, and sense of peace down deep when I read your posts. :) I'm so glad I heard back from you. :)

    One thing I feel bad about is getting a dx of benign, while other new friends on this site did not get a similar dx. I find it hard to celebrate while others are having to walk a very different path. I wish everyone could hear those same words; benign.

    gypsyjo, thanks again for your reply, it gave me a smile! :)

    Wrinklequeen,

    P.S: Here's hugs & hopes, good wishes & prayers to everyone still waiting for their diagnosis, and also to everyone who is no longer waiting to hear. My thoughts and my heart are with all of you. All that is within all of us will help others summon the drive, determination, and sheer spirit that will carry you through this. Hundreds and hundreds of prayers are spoken, mumbled, or shouted every day for our new friends we have found here - and hopefully we can gain some strength from the prayers and well wishes from others on our part. Hugs & love to all of you...today, tomorrow, and always. :)

  • libra79
    libra79 Member Posts: 64
    edited March 2015

    its so wonderful tht u got back b9 results so happy for u wrinklequeen

  • Hopefulmom6
    Hopefulmom6 Member Posts: 2
    edited March 2015

    Benign!! I had three biopsies and all are benign, one turned out to be a papilloma. Dr. likened it to a polyp on your colon, benign, but better to take out anyway, so I have an appointment with the surgeon next week. So glad your results are benign, Wrinklequeen!!

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