INSOMNIACS place to talk in the wee hours

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2015

    blushing

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited March 2015

    TANG YOOHOOoooooooo, thought allot about my last post to you about kicking the worry to the side-------lots--------almost the entire drive time to Tampa . The point of the drive to Tampa was for a bx of the neck. You were with me on the bladder scare and wrote your support. I'm sure you read my reactions after the bladder scare was over. That was the direct scare. The direct scare is over. Now need to deal with the contaminant scare of the urine source. Which is the vulva. Most women can't say vulva. Have to call it hoo-hoo, down there, all kinds o strange things other than vulva. Penis can be mentioned in most cop shows and situation comedies---not vulva. Normal anatomy --two standards. Point is, I know the urine path report was abnormal, did the correct steps to get it ruled in or out. Already made the gyn appointment b/c it was unlikely urine origin---but had to go through the motions to prove/disprove. Still working that one. The abnormal on the neck is being worked at the same time.

    After allowing myself to get worked up about the bladder thingy------and everyone here(sorry)--------I listened to what I wrote about cancer after the brain tumor removal. "Don't let cancer be a thief".

    What I needed to say to you was, your worry is real. I wasn't trying to discount it. Worry is protective. It causes us to take action. BUT at a given point it is crippling. It bleeds us of life. Never ever saw my Aunt Viola without her wringing her hands. Her sister was less of a worrier---my Mom, but still had to remind her---lets worry about what is real versus the unknown.

    You worried and were fearful when you found the new thingy. You took the correct action to get it dx'd. You have been through enough. Say to yourself fuck cancer. Then do whatever makes you most happy........until a diagnosis. Don't let the thief rob you of anymore peace.

    If something new happens---we just deal with it.

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2015

    I had an Aunt Viola!!! Don't hear that name now!!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited March 2015


    Oh Patty, I would so love to join DH & DS's-------then walk through the looking glass to doors still open with a gentle lovely breeze--a dream. Still savor the skiing days of standing on a hill before going down. Snifting the cold air. Then the descent..........the unknown-- would I ski brilliantly or flail. The risk-------oh so much fun.

    Patty --Unless they have done all the basics-----don't let them keep going for every test in the books. Gastric emptying is appropriate in certain defined situations. Your presenting problem is diarrhea. Gastric emptying study is not an appropriate study to diarrhea. Gastric emptying is appropriate to vomiting post eating with feelings of severe distention followed by vomiting. Can gastric emptying be associated with diarrhea-------anything's possible. Gastric emptying is looking for the stomach not working right--------is there not a forward movement in the wall of the stomach to cause the contents of the stomach to move forward into the small intestine.

    The discussion of all those docs regarding a twist in the gastro-------Stomach twist-----Gi doc would have seen it----or with the scope he could have caused it to flip----he could have seen it or not. When it happens in front of the GI docs eyes during the scope--it's majorly cool and leads to and absolute recommendation for surgical treatment. It's called a Fundiplication. Smarrty would love this. They go in and do a three or four point tack down so the stomach can't twist. A simple sewing maneuver.

    But when the stomach twists there is acute abdominal pain. ACUTE---painful. Double over pain. Distress. Haven't heard you describe this. Have had several patients though in the past that had flip-floppy stomachs that didn't present as acute sustained distress. b/c their stomachs were so flip-floppy, they floppy flipped(reversed) before they got into serious trouble.

    This does not explain your diarrhea. Where are you on diarrhea?

     

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2015

    Susan- not sure where that is from. Taken off a jazz group on FB called Smoothjazzspot. Try to find it and they post the most amazing pics there as well as great jazz videos.

    My guess for that picture is Thailand.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited March 2015

    Spookie- Moms side was>>Joe, Stanislaus(Stance)Francis(frank), Leo.....Girls >>Viola, , Mabel, Gertrude(Gertie), Mary.. Joe married a Mary, Frank married a Mary. So, when we'd  talk, we had to say>>Joe's Mary, Franks Mary, and Joe Smith's Mary( she was the sister). Now, I have a Stephen, Dear cousin has a brother Stephen and she has a son Stephen. We are now into defining talk by origin of the Stephens.

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  • dutchiris
    dutchiris Member Posts: 855
    edited March 2015

    " Can diarrhea be associated with diarrhea-------anything's possible. "

    Is this what you meant to say, Sas? Lol

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited March 2015

    sassy, thas funny on names. My family collects Chris's. So we have my niece kris, DH's Chris, Julie's Chris, Casey's Chris, sister's Chris, and 1 more I can't think of right now. It will come to me.

    Got home fine, it's was 73. Seattle was in the low 60s. Clear but cold. It's suppose to be in 75 by Saturday. Sorry Chevy. I'd send it your way if you send us the snow!

    This is mt rainier this morning. A little over cast. (I'm in the plane :). It's seldom you can see the top because it's usually in clouds. Not this trip.

    image

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  • dutchiris
    dutchiris Member Posts: 855
    edited March 2015

    I think my Tamoxifen might be getting replaced with an AI. My onc wants to look over the SOFT trial results in more depth. She says given My stats she want to give me every little percent that she can. My tumor markers drawn 3/4 look great. I hope that mean something.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2015

    my son and I went out to dinner tonite at a Mongolian barbecue place. Not the best but it's always great to be with him. He's hilarious!

    Sassy, glad you made a potentially stressful trip into something fun! Also glad you're home safe.

    Patty, sorry you have to go through all of that. Maybe you should eat some M&Ms! I'm using them in my own clinical trial to cure my cancer. No results yet but I'm documenting it all! Disclaimer: I don't have my medical or M&M licenses.


    Blondie!! Hello. I've missed you.

    Phyllis

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  • dutchiris
    dutchiris Member Posts: 855
    edited March 2015

    Oh Phyllom&mresearcher, you crack me up. I missed you ya know.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2015

    Sharon, aww thanks. I took my break and now it looks like I'm back to confound and irritate at will. :O

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited March 2015


    Rosie, the craziness of the everything goes back to page 180 there abouts. I was being stalked. I came and made it my home social thread b/c I started the thread. The Mods protected me from the two stalkers coming here. My safe place. Before that it truly was mostly a USA insomniacs night thread. What was immense fun in the early days of the thread is the southlanders-----below the equator---Australia &  Auckland were here b/c it was their daytime. In order to understand all the references to what appears to be private stuff----you would have to read hundreds of pages as it's one of BCO's fastests moving threads along with Warm and Fuzzies which I started in April last year. Multiple times you have identified the reason why on each thread why they do so well---upbeat and support---whatever the need--

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited March 2015

    For real stalkers or just teasing? ick... It took me a while to figure out some of the bantering and I just wanted the newbies to "heads up." I like reading the posts - fun. I especially like to hear when folks visit places and share their experiences. Vicarious traveling... or show things they do. Like Smarty's quilting, since I don't and I admire the craft and skill it takes. Then just talking about little things of interest... like brats who live where it's 70 and up. They said on the news it might hit 70 on Sunday. I'll believe it when I feel it. Be well!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited March 2015

    FOR those going to Ma111 death and dying thread-----please......it's not to get involved in the discussion......unless that's the need...........I'm suggesting looking for the info that you can use in your life. Bon(Bonnie) did a synopsis of the first 25 pages that is amazing. Scanning the pages for useful info from page one to last look page 56. is okay, but don't dwell on unneeded info. Every suggestion here or there may cause you to have a thought that is relevant to you.

    MammaRay----DH isn't ready------doesn't mean you can't prepare

    Around 1979, Dh and I flew to San Fran. I wouldn't go unless we had a Will. DH picked a guy out of the phonebook. He looked like a character out of Saturday Night Live. BUT got what I needed to feel secure. Learned allot since.

    I may have been ahead of the be prepared thought in 1979, but was learned from 9/11 was---that many were not prepared.

    Changes on the State and Federal level were done to make sure that we can protect our families by passing laws. The federal government did so, the states followed.

    Making wrong choices based on really nice laws and really nice thoughts can mess with your life. Say,  I put dear son on my property to avoid probate. What can happen is if he is sued and a judgment is against him, because he has an interest(big time legal term) in my property, I can have my home taken from me to satisfy a judgment against him. For example, Ds gets in a car accident and he his sued. The plantiff seeks all assets as redress. DS is on my deed. I'm an asset. Property gone. Also, example, If have DS on my bank account as a co-signor that can be attached to a lawsuit against him. Same with any mutual fund. But if he's identified as the beneficiary it's not attached.

    A better approach is a Trust with a Will, or at the minimum a Will.

     The way to work the system, centuries old law, have a Durable Power of Attorney DPOA


     

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited March 2015

    Rosie, the stalking got so bad I provided the Mods with the Florida law on cyber stalking. It worked.. I'm secure here.

    Smarrty, LOL on Chris-----Trends on names.  How it's worked over time. Right at the time that my relatives were being named, Mary was popular because of George M Cohan's song Mary.

     

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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited March 2015

    I'm going to jump in on the subject of legal matters - read or not, as you wish.

    A little knowledge can get you in a world of trouble. The $$ spent with a good atty. can save you, your family and your heirs from a world of unintended consequences.

    If you're concerned about the costs, make lists in advance of your appt. of what your goals are for the documents, what items you'd want to go to whom, what particular concerns you have, etc. Talk with the atty. by phone (or his/her asst.) before hand to find out what to bring that will be most helpful, what discussions to have with each other.

    I am not an atty. but am close to several. I have also seen first hand what can happen when people think they will save $$ by drafting documents themselves. If you choose to do that, at least plan to have them reviewed by an atty. who can check for issues you may have overlooked.

    End of lecture. I'm not trying to sell anyone on anything, just suggesting that good legal advice can be a very good investment.

    On a lighter note, we continue to have the entire nation's quota of spring weather here in the Pacific Northwest. I am going to have to sort through my seeds this weekend and do some pre-soaking and sowing. There is a reasonable chance that I will only have to plant my annuals once this year - usually they drown the first couple of times. This year the bunnies may be able to dine on them for Easter.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2015

    Patty, your attitude is amazing! Hoping docs can find some relief for you - and soon!

    Sassy, thinking? Too late to think? About what?

    Ok, so far behind, I'm just lurking. My life, the soap opera As the Stomach Turns, continues. Or, maybe that's Patty's line?

    Ciao....

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited March 2015

    Patty what is happening now. Don't want them to let u go til they figure it out. 

    Phyyli, miss u 2.

    BIG HUGS ALL AROUND 

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited March 2015

    WOW, Wow and on and on.............Tinnitus down to as close to absent. as near absent could be. Silence. yes , silence-----waiting for the noise. Thinking why isn't there noise. Am I dying? Okay, it's been several minutes.

    Tinnitus-------a sound--------lots of different things.

    Last month has been particularly, irritable. Wouldn't have mentioned it exceptttt....silence.. How precious silence.. Mentioned to Spookie last night how irritating it was, and if I was home what I would do to try to make it less.

    Now silence.

    Only happened a few times in the last 17 years. Always tried to figure out why, so, I could repeat whatever caused the silence. Never could. How delicious.

    Chevy & Spookie know you both have tinnitus----------oh so wish the silence stays

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited March 2015


    Dutchy-----------no clue---let us know RE:SOFT trial?

    Phyliss-------oh Thanks, so glad to see you here :)--------Of course I did something wrong. Left the band aid on too long --with my skin sensitivities should have taken off way before--now  hours and it was screaming at me. Did soap & water.---hope

    2         Maddy---thinking turned to lost the thought, but the lack of the tinnitus absence continues at least to 2:37 EST--cool, so very cool. every moment..............

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  • dutchiris
    dutchiris Member Posts: 855
    edited March 2015

    Maybe i mean the TEXT trial. It compared ovarian suppression and either Tamoxifen or an AI.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited March 2015

    Morning gals! PEPPERMINT !!! I think we can all learn something here, from YOU! We are all blessed to have YOU in our lives... to see how you handle things!

    I think I would just plumb fall over, and stay there, if I were in your shoes sometimes.... You GO girl!

    And you NAILED the picture posting thing! YOU got snow in ARKANSAS? I think you are in Utah or somewhere.... Not Arizona. Yes, your family is just precious! Isn't ARKANSAS somewhere South? Okay never mind... I didn't do well with State Locations....

    I'll post a picture of one I took yesterday.... of our piles of snow... Yeah.... I'm about DONE with Winter too...

    Beaches.... I never thought of donating my whole body.... and then getting the ashes... but I'm doing a pretty good job of using it all up anyway... I AM a donor on my drivers license.... but I can't imagine what I will have LEFT, the older I get.... :).... Maybe .... wait.... nope, not my ears.... or my teeth... I'll think of something tomorrow...

    Sass! You and Spookie should not go out un-supervised! What is this with "oh boy did we do some visit packing." Is that a new way of talking while you are packing?

    You are talking in code again.....

    And why is Spookie blushing? You TWO!!! I get embarrassed even LISTENING to both of you~!

    And then she goes on telling us about things that we don't even KNOW about. And is "thingy" some sort of new term that is in Websters New World Dictionary? That's all I want to know.....

    And further ON, she says.... FFFF!!!! And I can't even say OMG? I have to say OMD???

    You guys.... don't pay any attention here.... I'll have a talk with her, and see if I can calm this girl down......

    Oh sure! And Spookie is covering for her.... "Aunt Viola".... No she didn't. See? They ARE in cahoots together!

    Okay, now further on.... she straightens up.... And DAMN that girl knows what she is talking about! EYE even understood her! Can't you just GO there Sass, and give her Doc's a talking to?

    I have HEARD of that stomach thing happening in dogs, and yes, they ARE in severe pain! Well.... between us, we will probably figure out just exactly is wrong with Peppermint.

    And Dutchess is trying to explain what Sassy said! HaaaaaahHHHHHaa! Like that's gonna happen.

    Smarty.... BEAUTIFUL picture! And from the PLANE yet... I could tell...

    Oh? And PhyllidoctorNO has her own opinion here? M & M's???? Yes, we KNOW you have no licenses.... you barely even have your DRIVERS license. Or did you lose that too?

    M&M's???? She's not serious, is she? You guys don't listen to her.... She has one foot on the ground and one foot on the door-step of the big-house.

    Hah! Dutchess called her "phyllom&mresearcher"..... I get it.... Like Phyllirinkadink........ Nah.... it's okay..... she doesn't mind.

    No Rosie! Don't go asking Sass something she will tell you! She will get into TRUBBLE..... And then we are in TRUBBLE..... All of us!

    Okay.... I have to go now.... enough of my expert advice.... Hah!

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  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    Chevy,

    image

    Wisest Owl

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2015

    imageThese are the stag horns in my trees.

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2015

    not sure if this is what you meant, it's a Banyon tree at the Thomas Edison home in FtMeyersimage

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited March 2015

    image

    Yes Spookie.... like this one.... We saw on with a huge Staghorn fern hanging from it.! Your Staghorn is BEAUTIFUL! And I see Spanish Moss hanging from it! I used to go across the street from Sheri, by the golf course, and pull the moss out of the trees to take home! It was soooooo beautiful.

    Then she wouldn't let me.... said it was full of bugs and things.... So I bought some "artificial" moss.... to put on top of my plants.... Ha!

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2015

    We were in LA years ago, thought it would be neat to bring a bag full home. We were all itching so bad we threw the moss out. I've heard it can be nuked, to kill the bugs but have never done it.

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2015

    image

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited March 2015

    ooohhhhh!! You like to rub it in

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