New to this and my mind is reeling
In the space of two weeks, I've had a mammogram, had an ultrasound because of a suspicious area that showed up on the mammogram, had an interview for a new job, had a biopsy of the suspicious spot, was offered and accepted the job, was told biopsy was positive for breast cancer (1cm, Nottingham scale 1,progesterin and estrogen positive), had a surgical consult and am scheduled for a mastectomy on 3/31/15. This is almost more than I can wrap my mind around.
I've spoken with my potential new employer and their response was to not make any rash decisions about the job, we would wait and see how things go. My current boss is willing to work around my schedule to keep me there. I'm just going to have to play it by ear.
I was given the options of mastectomy, lumpectomy with radiation, or lumpectomy without radiation. I did a lot of research prior to the surgical consult and had decided on the mastectomy, though the surgeon was pushing me toward the lumpectomy with radiation. I'd like to get your opinions. I'm nearly 69 years old, married with one adult daughter. My breast does not and never has defined me, so I doubt not having one will be traumatic for me. I lost my best friend to the treatment of her breast cancer that destroyed her kidneys, so I am very fearful of radiation - especially since the cancer is located right over my heart. To me the mastectomy is "one and done" as opposed to the lumpectomy which offers the increased risk of local recurrence, possibility of further surgeries to enlarge the margins, and six weeks of radiation.
I've scheduled an appointment with a therapist to talk out my options with an objective party. I've made pro and con lists for each surgery. I'm trying to be proactive about this. Am I overlooking something, do you have any words of wisdom, resources to share? The waiting and not knowing if I'm doing the right thing is excruciating.
Janet
Comments
-
Hi Jannylouise. Sorry you find yourself here but welcome!
Sounds to me like you are pretty well versed in your options and why they are best for you in each way. Now it is just a matter of deciding what works best for you personally.
I chose the lumpectomy and rads as the thought of such radical surgery for early BC was too much for me but I respect anyone's right to choose their own path. I was worried about rads and heart/lung involvement but nowadays, they have ways to minimize this, not like years ago. You could have your rads in the prone position for example.
Weigh all options carefully and you will figure it out. Wish you the best what ever you decide to do. You have a lot on your plate right now so just choose your path and don't look back!
There is no right/wrong answers with this! -
Honestly, in your situation, I might get the lumpectomy. Your tumor is small. So radiation isn't even a given? If they go in and do the lx, and you have concerns, you can always get the mastectomy.
-
I had lumpectomy and radiation as well. Sailed through both really. Also did you know that some who have mastectomy still need to have radiation?
-
I think the chance of needing radiation is small if you have the mastectomy, and your surgeon is probably the best source of information on this. I would do what makes you comfortable, bearing in mind that there are never any guarantees. Make your best decision with whatever resources you want to use and don't have any regrets. I wouldn't give up the new job if they are willing to be flexible and if it is one that you really want. It will take you some time to get over surgery, but unless it is a very physical job you may be able to work after a couple of weeks. Talk to your doctor about what to expect. Also think about whether you are going to want reconstruction or not, this may change how long it takes to recover from surgery. There are loads of decisions to make and it can be overwhelming, but don't let people pressure you one way or another if you know what you want.
Sorry you had to go through this, but welcome to the group. You will be fine.
-
The thing to remember is that these are two GOOD choices. It's not like one is right and one is wrong. I think your reasons for wanting a mastectomy are reasonable. I've had both -- a lumpectomy (actually two) and a mastectomy, all on the same side. I kind of wish I'd has a mastectomy to begin with, but who knows what's going to happen. I was free of cancer for 11 years after the lumpectomy. If I were you, choose the procedure you lean toward and be kind to yourself.
-
Your tumor is really very small. And a Nottingham score of 1 -- heck, that little sucker is hardly moving at all.
Seriously, I thought a mastectomy was the way to go, because it was CANCER, but they can be big tough surgeries, I decided that a lumpectomy would do it. I was back to work in 2 days. And the only side effect I had was an allergic reaction to the adhesive.
Your tumor may be small enough to skip radiation, but, if not, there are now techniques that allow them to avoid any problems with your heart and lungs. It sort of depends on where the tumor is. If the only reason you are considering a mastectomy is that you are concerned about radiation, I would consult with one (or more!) radiologists to find out if it's 1. necessary, 2. can be angled to avoid your heart and lungs, or 3. if it really is necessary, if they do the short-term radiation that gets you done in a jiffy.
I am 66 now - I was 59 when my 1.5 cm 3 Nottingham score tumor was found. I had a short radiation protocol, and my radiologist was able to position the beams so that it went no where near my heart or lungs. I don't even see an oncologist any more.
I am coming to believe that all the awareness has made us very frightened of BC -- but, in older women with small, slow tumors, beating cancer can be a very simple process.
Don't forget -- you can always go back and get your breast amputated if things turn out to be more complicated, or if you find it more difficult to handle. But, for me, I honestly think they could have just scooped the little sucker out with a melon baller and sent me back to my life.
And I am grateful that I am no longer scared like I was -
Janny, I don't have the same diagnosis as you, but I was given the choice of lumpectomy with radiation or mastectomy. Since I was triple negative and had both mother and sister that had been diagnosed with breast cancer, I chose a bilateral mastectomy (without reconstruction). I know that the stats are about the same with mastectomy and lumpectomy, but...1) I wanted to reduce my risk of local recurrence as much as possible and...2) I wanted to avoid radiation...3) I wanted to avoid the stress of future mommograms, etc. As everyone will tell you, it is a very personal decision and you have to do what you are the most comfortable with.
My surgeon said he wanted to make me appointments with the plastic surgeon and radiology just in case I changed my mind. I told him there was no use wasting time and money...my mind was made up. He said ok. I have never regretted my decision. I am an anxious person my nature and I made a decision that I thought would give me the most peace of mind.
Wishing you the best.
-
Jannylouise, Will your health insurance be affected by the job change? Medicare is great for us Oldies, but does your current employer pay for your Supplemental Insurance? BC is expensive.
So sorry you are in this position, but so glad you found us. We rant, cry, laugh and share very personal information about our body parts. But the best thing about these discussion boards is that we understand each other because we have all experienced what you are going through. You are never alone here.
The journey forward will be easier once you make this decision. Talking to a therapist is a wonderful plan. Have you considered getting a second oncologist's opinion?
Best wishes, and please keep us posted.
-
Hi Jannylouise, sorry you have to be here, but we wanted to welcome you to Breastcancer.org where, as you can already tell, you'll find a wealth of knowledge, experience and support.
The decision you have to make right now is not a piece of cake, we all know, so hopefully our member's experiences and advice will help you a bit. Also, in our main site there is an article titled Mastectomy vs. Lumpectomy that you may find interesting.
We hope this helps! Please let everybody here know what your final decision is.
Best,
The Mods
-
Welcome Jennylouise, so sorry you have to be here. I chose mx, because it seemed "easier & safer" to me, if that makes any sense. None of this is easy, but we all process this decision differently and in the end the best choice is the one your gut tells you feels right you. Good luck to you.
-
You have done a lot more research than I did. I found a tiny lump near my nipple and my new doctor said all I needed was a lumpectomy and then before even knowing if it was benign or not, asked what kind of insurance I had. When she found out I had Blue Cross, she immediately decided I would have 6 weeks of radiation but no chemo. I did not know anyone who had had breast cancer. I was a single gal, 62, never married, few friends, and when I told someone I had breast cancer, most women would say "Oh, everyone gets breast cancer today." On the mammogram I was shown, I had a huge black cyst she would take out at the same time. My surgery was successful and I was released from the hospital the next day. Not much pain. Right breast is now no longer a C cup, but an A cup due to the cyst removed (negative). I went back to work a week later and had a blood clot in my right leg (same side as my lumpectomy) and was rushed to the same hospital. I happened to mention I had just been in this hospital for a lumpectomy and the ER doctor called in my surgeon's assistant. I had a huge blood clot due to having vascular disease (PAD). Anyway, my surgeon came in the next day to say her surgery caused the blood clot. I was started on thinners as I had NO pulses in my foot, which was bluish-grey and the pain was tremendous. I found out later they thought they'd be doing an ankle amputation on me (I'm diabetic Type II) but about an hour before I would go in for amputation, my pulses started working again. I healed and about a month later, I had an aneurysm in my left groin where they always put in the IV for the fluids. That required additional surgery and I healed fine. It was over six months before I started by six weeks of radiation. No one told me I would get so tired towards the end and I worked full-time at that time. If I had to do this over, I would not have had my two sentinel lymph nodes removed because what they don't tell you is that you can never have either blood pressure or an IV in the side they removed your lymph nodes (as a precaution). I was with a large teaching hospital and now believe that breast cancer is a money-making health issue for almost all hospitals. Look at all the buildings that get built to deal with cancer. My surgeon never did check to see when I was coming in for a follow-up and to this day she has never contacted me again. She was actually bored while she gave me my diagnosis, like it did not excite her. I should have gotten more opinions but did not. It is now 6 years out and have only had one mammogram and was fine. This experience taught me to rely on No one but Myself:) My friends were not there for me. Moirish
-
Dear moirish, welcome to BCO and we certainly hope your troubles are at an end. What a nightmare you have had over these six years. May you have good scans from now on. We hope you've found a new doctor.
All the best
The Mods
-
I have a diagnosis similar to yours. I also had some doubts about the radiation. One of the breast clinics in my area offered a intraoperative radiology feature. There are several criteria that your diagnosis needs to meet for this to be an effective treatment, but it seems like something that you might qualify for if you can find a center in your area that offers it. It is called Intrabeam. It might be worth looking into as an alternative between the options. -
I was diagnosed with DCIS a couple of months ago and recently had a lumpectomy. My cancer turned out to have clear margins and some sort of genetic test they did on my tissue predicted a very low likelihood of recurrence. Both my surgeon and oncologist agreed that I did not need radiation. I should point out that I am 79 years old with a number of other health problems, including several heart problems. My oncologist did say that an option to take Tamoxifen would be icing on the cake but he was not advocating it particularly. After doing some reading about Tamoxifen I decided not to take it. At my age, frankly, I think something else will get me first, given the low likelihood of recurrence and Tamoxifen would not give me enough benefit given the side effects . We will see!
-
find out about intra-operative radiation therapy. They do it at the time they do the lumpectomy, if you have a small enough area removed and you can find a facility close enough to do it. Just another option to think about
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team