Reconstruction after developing lymphedema?

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chipmunk57
chipmunk57 Member Posts: 58
edited March 2015 in Lymphedema

Anyone here have any experience or insight into having reconstruction surgery after developing lymphedema? Will it make the lymphedema worse? Tha

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  • mary625
    mary625 Member Posts: 1,056
    edited February 2015

    Yes, I do. Mine is about the same after--maybe slightly worse. I tried to get a VLNT with my recon but that didn't work out because the lymph flow in the donor area was insufficient

  • carol57
    carol57 Member Posts: 3,567
    edited February 2015

    chipmunk, there's some thought that scar tissue removal can improve LE. If one contributing factor to your LE is lymph node dissection, it may be interesting to discuss scar tissue clean-up with your surgeon. I just spent a few moments looking to see if I have anything about this in the folder of LE-related studies I seem to collected over the years, but I didn't find anything. I do recall hearing a microsurgeon--one who does the node transfers as well as diep recons--say that he believes that scar removal has helped some of his patients. I think the evidence, if any, is anecdotal however. My LE came after combined bmx/recon surgery, so I don't have personal experience with your question. Good luck to you in figuring out what to do.

  • doxie
    doxie Member Posts: 1,455
    edited February 2015

    I had very mild truncal and upper arm LE before nipple reconstruction. The radiated tissue became mildly infected. Afterwards I had a six month flare I was able to control and resolve. Having troubles again with a flare 1.5 years after that surgery. Hard to know if this latest one has at all been made worse by the reconstruction.


  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2015

    I was diagnosed with bi-lat lymphedema, worse on the right -  after BMX, ALND, and three additional surgeries on the left non-cancer side, including removal of the TE on that side.  My lymphedema stemmed from a body-wide swelling event during chemo. I have had eight additional reconstruction surgeries - some just on the left, some bi-lat, since my LE diagnosis, with no effect on my lymphedema.  I do have some level of discomfort after a surgery - which I would expect, but it has been temporary so far.

  • Jalsmama55
    Jalsmama55 Member Posts: 104
    edited February 2015

    Hello, I was diagnosed with lymphedema after my BMX and ALND on the right only. My experience was that initially after my unilateral DIEP, my lymphedema got better. And it was especially good while I still had JP drains in. I did however also notice that once I had the TE placed on my non cancer side, the lymphedema got a little bit worse. I assume from the TE and then subsequent placement of the implant causing more pressure and therefore blocking lymph channels. This is just my personal experience. Although it is a little bit worse, I would still do recon all over again. My lymphedema is mild truncal on cancer side and in my entire cancer side arm including hand and fingers. Hope this helps

  • chipmunk57
    chipmunk57 Member Posts: 58
    edited February 2015

    Thanks for your posts ladies. Much appreciated!  Happy

  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 645
    edited March 2015

    I had surgery after having Lymohedema. It neither made it better nor worse. It was a nice relief when I had drains in as for that time I had no Lymohedema and a skinny ar. This was a bizarre silver lining to one of the most miserable parts of surgery.

  • chipmunk57
    chipmunk57 Member Posts: 58
    edited March 2015

    Thanks Maria. Maybe I have something to look forward to !

  • scvmom65
    scvmom65 Member Posts: 88
    edited March 2015

    I do. Mine got initially worse right after but I blame that on being forced to be inactive. But once that passed, it got better. Way better. Hope this helps and good luck!

  • chipmunk57
    chipmunk57 Member Posts: 58
    edited March 2015

    Thanks scvmom!

  • cookiegal
    cookiegal Member Posts: 3,296
    edited March 2015

    Again, I wish there was a study on it, but anecdotally some people with LE have improvement with recon. I think the place in NOLA that does recon also can include a node transplant as part of it. I know the jury is still out on those, but perhaps it might work better as part of recon? I am just trying to recall what I have read here and online.

  • chipmunk57
    chipmunk57 Member Posts: 58
    edited March 2015

    Thanks cookiegal!

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