Winter rads 2014-2015

Options
16667697172106

Comments

  • MagicalBean
    MagicalBean Member Posts: 362
    edited March 2015

    It's nice to see so many of you who are closing in on the end. Congratulations.

  • shelleym1
    shelleym1 Member Posts: 298
    edited March 2015

    Hi everyone, I am starting radiation this month. Is this the right thread for me?

  • cbooklvr
    cbooklvr Member Posts: 66
    edited March 2015

    Hey ladies, thanks for all the support, you rock . The simulation went fine, I was surprised that the tattoos kinda hurt. They were so small.

    I start treatment in 2 weeks, the will call to let me know the date and time close to my start. The nurse said the recommend going bra less during rads. My D cups can't be jigging around at work. LOOL, so looking for sports bra

  • cbooklvr
    cbooklvr Member Posts: 66
    edited March 2015

    Ladyb1234, waving at you from Berkeley.

    CoyoteNV, cookbooks are included! I am making a new recipe, Mango chicken, for dinner.

  • cbooklvr
    cbooklvr Member Posts: 66
    edited March 2015

    welcome Shelleym! Yes this is the right thread, I also start this month. You will find some great info from the ladies on this thread

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited March 2015

    Shellym1 - I'm thinking this is a good place for you to start. Welcome.  You might also be one of the starters for the Spring 2015 group - one of you March warriors could start that group and carry all the information and experience to those who will need it in the near future.  I really wish that this were the end of it... with no more sisters needing rads. Sadly, that won't be the way of it.

    cbooklvr - Yeah - those buggers sting! Hmm. We have a house full of books of all sorts.  My favorite books are old ones with a print date of the time when the books were popular.  I swear you can feel the energy from the hands that held them.

    Mango-chicken sounds good.  Love mango.

  • kayfry
    kayfry Member Posts: 481
    edited March 2015

    Hi, Shelley. Good to see you here! I start rads tomorrow, had my set-up today. How many treatments will you have?

    Here's what was funny about my set-up today, but "funny" in quotes: what's bothering me most is an arthritic right shoulder I forgot I had, with both arms overhead, locked in place by my "cradle" that was made for me. It's on the opposite side from my BC, and also NOT the shoulder that has a complete separation of the A/C joint from a riding accident years ago. Go figure. Ugh. Looks like I'll have to take NSAIDS to get through this. Luckily, the treatment time is very short, and I only have 19 treatments. "Only."

    Techs were lovely and everything was smooth. Tomorrow after my first treatment, I meet with my RO.

  • kayfry
    kayfry Member Posts: 481
    edited March 2015

    cbooklvr, no D cups here, barely A, but I'm really hoping to be able to wear a bra through treatment, which starts tomorrow. I have really soft, stretchy wireless bras—probably the best ones are the Coobie "comfort bras" for this purpose. Hoping I can get through with them.

  • gtlucky
    gtlucky Member Posts: 6
    edited March 2015

    wheelygirl - no I am in Pennsylvania. My RO says she has been using the Canadian protocol. ( for lack of a better title) for several years. Finished day 2 today!

    I anguished over the choice of 3 1\2 weeks versus 6 1\2 weeks....finally decided on 3 1\2 and the song playing during my very first treatment ...Beatle's "let it be"...it felt like such a God moment for me. Had a little tear sliding down my cheek and I couldn't move, which gave me a little chuckle!.

    After this week of trying to " decide" I almost feel like in addition to being a treatment survivor I will be a decision maker survivor!

    Keep on slathering those breasts!

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited March 2015

    gtlucky - When I had my simulation appointment on the 25th I must have looked shocked when he said 6 weeks or 25 reg & 5 boosts because he said in Canada they do fewer appointments due to the distance they have to travel for treatment.  I didn't tell him the shocked look was because he originally told me 5 weeks.  My treatment center is only about 5 minutes from where I work and 25-30 minutes from home so I am one of the lucky ones who do not have to travel far.  I could not imagine traveling 45 min to an hour everyday for treatments.

  • scubawoman
    scubawoman Member Posts: 19
    edited March 2015

    cbooklvr and kayfry-- I got some really cheap, but stretchy crop tank tops that I'm wearing under my soft sports bra after I've slathered on the Aquaphor. I'm also trying to work and my treatments are at 8:00 a.m., so I go there half dressed, get treated, and then put on the Aquaphor, tank top, bra, blouse and blazer and off to work. It's working so far and am keeping fingers crossed that it will continue to work. I'm a quarter of the way done tomorrow!

    Thanks for being so welcoming for all of us March girls.



  • ladyb1234
    ladyb1234 Member Posts: 1,426
    edited March 2015

    cbooklvr and kayfry, I invested in soft sports bras and really soft camis from Uniqlo that are pretty supportive. I am a D cub also so needed something to hold these girls up and steady.

    Scubawoman, my appts are at 8:30am in the morning, except for Tuesday @ 8:06. I too go there full dressed waist down and neck up. LoL. I put on my bra/cami, shirt and blazer after treatment. Of course this is all after slathering on the caldula ointment, aloe vera and aquaphor -- big smile. One day someone at work asked me if I had a new perfume as it smelled good. I said NO with a chuckle and said it must be my lotion (big smile). I just finished week 3 of a 5 week schedule and anxiously counting down.

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited March 2015

    Ok Ladies I need a lifeline - I thought I was going to be done with 28 rads on Thursday, but the RO today added 5 boosts to the tumor bed because my skin is looking so good. Define good please! I look like a hot mess rash on my chest and the back of my shoulder. My scar is turning dark red and all puffy and puckered, and the armpit will probably peel off tomorrow. I do not want to know what bad looks like. My arm is very tight also so I have to slowly exercise it to gain range of motion. 7 more to go. Grrr........hating this. On the plus side, I can drink since I am done with chemo. :) I'm pretty sure the RO said I could drink, oh maybe she meant water. Too Late!

  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    mqt64: Sorry the boost is causing burns. I totally understand the frustration and pain.

    Hopefully the xylocaine cream will soothe things a little.

    You, Beachbum and Sjacobs are nearly there!! Woooohooo!

    is too. Stomp on! Gentle hugs.

    (Note: Some content may be stripped.)

    Turn off email notifications for this favorite Topics:

    http://community.breastcancer.org/monitorships/tog...

    Sincerely,

    The Breastcancer.org Team

  • windgirl
    windgirl Member Posts: 340
    edited March 2015

    Hi everyone, hope you all are doing great under the circumstances. I start my boosts tomorrow, can't believe how fast it past. I'm pretty tanned, look reddish brown, crispy. mainly around my breast and towards my clavicle. the nurse told me today that i could get worse before i get better, as its cumulative, but that overall i look like what they expect to see after 25 treatments.

    i will miss my rads techs. I worked so hard during this time (70-80 hour weeks) that going to rads was like taking a break, and the techs made it great. I would like to do something for them but have not been able to figure out yet. What I really want is to take the whole crew for drinks when done but that may be just a bit inappropriate given that I am not supposed to really drink :) If you have recommendations let me know please :)

    I am wondering when we lumpectomy girls will see the shape/size/texture differences. My BS was saying it takes about a year to settle in. Next comes tamoxifen, another step i dread...

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited March 2015

    Got my drain out this morning. Good report on the nodes, 2 out of 14 positive but cancer cells dead from chemo. Counting the 3 positive from the sentinal biopsy, that is a total of 5 out of 17. So now it looks like all positive nodes have been removed. Then went on to the RO this afternoon. No rads to the axilla. They will be doing the breast and the sub and super clavicular. Sims Thursday, rehersal a week from Friday then start rads Monday, March 16th. There will be 6 weeks of rads including 5 boosts to the tumor site. Glad to be getting on with this. The chemo seemed endless then more surgery to the axilla. I actually feel relieved to finally be starting rads. Love, Jean

  • chrissie29
    chrissie29 Member Posts: 121
    edited March 2015


    Beachbum-I wondered what bad skin looked like too.  

    My skin is red/brown and has areas that are peeling off with new pink areas-? new skin underneath.  My RO said my skin looked good even with the few peeling areas and she pulled up a picture of what looked bad which was a complete open area over the entire radiated area.  She said with the bolus that is a common happening.  She also told me why she thinks some ROs might say no lotions-seems the lotion if on too thick can act as a bolus and make the skin reaction worse.  I can't wait for the end of next week and radiation to be done!

     

  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    Yahoo windgirl!! Onto your boosts and start your count down.

  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    Beachbum1023, that totally sucks! Sorry they "added" to your total. I can imagine how frustrated and angry you must feel.

    I'm walking this with you. Be strong sister, you've been through so much, you can do a few more. 💪

  • Reader425
    Reader425 Member Posts: 653
    edited March 2015

    Windgirl, I felt the same way about my techs. The made it all easier. I got a thank you cake for them ( and the dept. Since I wanted to include my RO, etc.). It seemed to brighten their day. Glad you are on the countdown!


  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    Geezz, almost forgot.... raising my virtual cocktail to toast the killing of all those cancer cells! Cheers Beachbum1023! 🍷

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited March 2015

    Hey Quiggy, thanks for the toast! I am sucking down a pitcher of Margaritas, cheers is right!

  • gemmafromlondon
    gemmafromlondon Member Posts: 138
    edited March 2015

    Just for information - the "Csnadian" protocol is the standard drill at the leading cancer hospital where I was treated here in the UK as far as I could gather. I was fortunate to have only 3 weeks rads and despite the higher daily dosage had no bad ses. Nothing to do with distance. Sorry for you all having to do the longer time rads but who knows what the ins and outs are - you could ask your ROs.

    Anyway hang in there and best wishes for a happy return to 'normality'.

  • Bippy625
    Bippy625 Member Posts: 890
    edited March 2015

    tah dah! Been outta rads for over a week now, healing well but it was a struggle. My dead, purple black skin peeled off from my underarm, it is purdy new sensitive skin, but still have some leatherytype stuff on the chest. The underarm stuff went thru all healing stages, last was most painful, red, oozing, irritated.

    I know I sound like a broken record, but sunburn my ass. Unless of course my RO meant to say, 3rd degree sunburn with a side of ouch. All the crap they told me to do was a waste of time and money. At least my arm got stretched from holding it away from my body 24/7.

    Anyway, glad it is over, and glad I did it despite my bitching. It should prevent any local recurrence.

    One tip I got from a rad lady is to use neosporin once it gets to the peeling. Used the cream, not the ointment, and it was great and has pain relief in it! I am certain it healed it quicker. It sure felt better immediately.

    I am happy for those that have minimal effects, and jealous of you too. Hoping minimal SEs for all my sisters here. I am off the rads board for now....moving on to Tamoxifen soon, woohoo! Take care everyone

  • sybilskelton
    sybilskelton Member Posts: 77
    edited March 2015

    I'm cracking up reading some of your posts, and tearing up at some as well. I started my radiation this week. I've done rads before for cervical cancer and that was a nightmare because it affects surrounding organs. (Think diarrhea from hell.) I made it through that without so much as a sunburn though. Strange.

    I'm concerned about the skin problems that nearly everyone seems to have and the whole bra issue. Your suggestions are invaluable. I too am one of those D cup folks, actually after the lumpectomy one D and one DD. I am also 62 years old, and after carrying those girls around for the last 50 years, gravity has taken its toll and going braless is simply not an option, especially since I'm still working full time. I've been wondering what I was going to do if my skin gets bad, and I've got some great ideas here. So thanks, ladies.

  • Fionascottie
    Fionascottie Member Posts: 78
    edited March 2015

    Thanks, fellow Radiation Sisters, for the congrats on finishing my rads! It is nice to wake up and think about the day ahead without my first thought being my rads appointment that day! My skin is healing slowly, but is less tender every day. I'm still getting Herceptin infusions every three weeks until August so I'm being eased slowly back into life without treatment. I don't expect life to be quite like it was before BC because it will always be in the back of my mind and I won't neglect self exams or mammograms, that's for sure! I'm very grateful for this site and the discussion boards. You ladies are inspirational and I have learned coping skills for SEs all along the way...through chemo , surgery and rads!

  • Fionascottie
    Fionascottie Member Posts: 78
    edited March 2015

    Sybilskelton, I am a DD also, and 64 years old, so I understand the need for support. The nurse at radiation told me that what I wore was up to me. I wore ( and am still wearing) the stretchy multi size bras....when skin got tender I wore a cotton tank next to my skin and the stretchy bra on top. Usually I was actually most comfortable that way. No real movement of the skin when it was supported. I was instructed to use Aquaphor twice a day and I did not miss! I gloppedthat stuff on. There are several shirts (and pjs) that it seeped onto and they are now yard work shirts:) the 7 boosts at the end were the hardest on my skin, but it is improving every day. I had my last treatment 6 days ago.

    The days look long when you start several weeks of treatment, but it goes by more quickly than you expect.

  • Fionascottie
    Fionascottie Member Posts: 78
    edited March 2015

    I should have proofed that post! ..also, not Aldo !

  • dacre
    dacre Member Posts: 84
    edited March 2015
  • dacre
    dacre Member Posts: 84
    edited March 2015

    I have my last tx today...then 5 boosts...then hopefully done forever!

    I have very fair skin and expected to feel the "sunburn" effect immediately. Trust me....back in the '70's I was a life guard and there was no such thing as sunscreen...so I know all about "sunburn".

    I have to say, I was expecting the worst, but it hasn't been that bad. I use the 100% aloe and the aquaphor constantly (not every couple of hours....every hour I use one or the other). When I began to feel the "itchiness" I was concerned. I knew that I shouldn't keep rubbing but what I was using didn't help. Told the RO and he told me to use the hydrocortisone cream. BINGO! It made such difference. Now my routine is...aloe, aquaphor, hydro cream....every couple of hours.

    This may not help everyone, but it did help me.

    This may TMI, but I cannot wait until I can start using Deodorant again!!!!

    Hope everyone has a great day!


Categories