Winter rads 2014-2015

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  • WndrWoman
    WndrWoman Member Posts: 333
    edited March 2015

    Good for you fionascottie. Enjoy a week and onward with no daily rads appointments.

    Cbooklvr. You will be fine. Try to relax muscles as the Sims and first zap session are longer than the routine ones during treatment. I found the sting of the tattoos similar to getting a flu shot.

    Beachbum102 and ladyb1234 You've run a marathon and are entitled to being fatigued. Once finished energy will return although the first several days you will still feel the impact of the boosts. 3 weeks and my zapped breast still feels a little warm.

    Gotta go help my husband shovel. Rads got me out of a lot of that but now I can do it with being nicey nice to my left arm

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited March 2015

    As much pain as I had with my shoulders at the beginning, it's nothing compared to the pain of raw skin on my chest. To add insult to injury, it stinks to high heaven and seeps through my clothes. Even with telfa pads, I wake up in the morning with wet spots on my nightshirts.

    If some one had told me, when I was griping about the shoulder pain at the beginning, that by the time it was over I would be praying to have only that level of pain, I would have just walked away. I don't know of a percentage of "cure" possibility that would make it worth it.

    Your results may differ, of course.

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited March 2015

    gtlucky - are you by any chance in Canada?

  • JustJean
    JustJean Member Posts: 327
    edited March 2015

    Ah, Mags, I hear ya. I really do.


    Gentle hugs comin' your way...


    JJ

  • farmerma
    farmerma Member Posts: 83
    edited March 2015

    Starting week 2 today. I have a schedule that they provided me that shows each appointment and what is to be done. At the end of each treatment, I'm crossing off that day on the schedule with a black marker. Helps me to see there IS progress. If I look too far down the paper I'm reminded it's just the beginning, but crossing off the dates helps me feel better anyway.

    How are my fellow late February ladies doing?

    Dotwithkitties, SunnySydeUp, Allmodestyisgone, brandyrose, Scubawoman -- Are you all doing okay going into week 2?

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited March 2015

    Hi Ladies, I hope everyone is doing well. I have 3 more rads then done. Still dealing with the itchy on the chest, and the armpit is pretty dark brown/red and a little tender. I have a rash on the back of my shoulder, a little tan but not too bad, just itching. So I hope I make it past the next three intact. Uh maybe on the that! Keep going Ladies, you got this!

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited March 2015

    Mags ~ I'm so sorry to hear that you are suffering so. This has been super hard on you from early daysย in July.ย  Your spirit is so strong and your heart is so big. ย Many prayers and as JJ says, "gentle hugs."

  • WndrWoman
    WndrWoman Member Posts: 333
    edited March 2015

    Could people who have finished or are just finishing please share their care instructions? I am 3 weeks out but don't have my follow-up appointment with the RO for 10 more days. Just wondering if you all are still creaming/geling and if you were instructed to use some other lotion at this stage. I remember way back someone mentioned using a lotion with cocoa butter. To me that says suntan lotion.

  • scubawoman
    scubawoman Member Posts: 19
    edited March 2015

    Had third treatment today, so 1/7 of way done, tomorrow is 1/5, Wednesday is 1/4 and Friday is 1/3. This is same way I stay on track with treadmill workouts - when I make it to half, then get to start counting down as my reward. RO said SE probably wouldn't start to be felt until last 1/3. See him tomorrow.

    Gentle hugs to all.

  • CassieCat
    CassieCat Member Posts: 1,257
    edited March 2015

    I've had 13 of 28 regular treatments so far, and then I'll have 7 boosts. So I'm almost halfway through the main part. I'm getting a little itchy now, and the RO suggested 1% hydrocortisone. They also gave me some Domeboro, with instructions to soak a gauze pad or washcloth in it and then apply for 15-20 minutes, 3-4 times a day. They said it should feel soothing. Has anyone else used this or had it suggested to them? I've used it once before, many years ago.

  • SunnySydeUp
    SunnySydeUp Member Posts: 21
    edited March 2015

    Farmerma - thanks for checking in! Finished #4 of 32 tx (last 7 are boosts). The Rad Center was very reassuring that my insurance issue will be straightened out, apparently my insurance company automatically denies IMRT so they are used to the appeal process. So far, no SE at all, still managing to work full time and make it to the gym!

    To those of you so close to finishing - we'll be cheering you on at the finish line and celebrating your perseverance!

    Welcome to those just going through Sim and initial tx. Take a deep breath, you go this!

  • Allmodestyisgone
    Allmodestyisgone Member Posts: 18
    edited March 2015

    I am now done 5 of 20 accelerated treatments so 1/4 of the way done. So far not too bad - no redness yet and just slight tiredness but maybe just from the travel to and from treatment? I do have a bit of pain in my left arm (rad side) that hurts when I stretch my arm to reach something but don't know if this is rad related - I see my RO on Wednesday and will ask her about it.

  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    magdalene51 sorry your having pain and such a crapy time of this. My heart goes out to you. I hope relief comes your way soon.

    We're going to get through this!!!

    Stay strong sister. Sending you gentle hugs.

  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    Made it through today's tx. I thought hard on the idea of quitting. I appreciate all the input and support from so many of you. It was hard to make myself walk in to the cancer center but I'm glad I did. I reminded myself that I am doing this to myself to help improve my odds of -0-recurrence and should I loose that battle, I will know that I did what I could, at all costs.

    Cancer really screws with our minds, emotions, self, health and every aspect of our life.

    Hoping that all of us can find the reserve of strength and courage to face, and defeat this disease.

  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    CassieCat, I don't have experience with Domeboro but sounds like the radiation gel pads. My RO nurses keep me well stocked with the pads and they are indeed soothing. They really pull the heat out.

    You can put in the fridge for a few minutes. I did freezer, very bad idea. Only 5 minutes and it was frozen and crystallized. LOL

  • WndrWoman
    WndrWoman Member Posts: 333
    edited March 2015

    scubawoman. I am impressed with your math ability :-)

    Good for you, quiggy!

  • Dotwithkitties
    Dotwithkitties Member Posts: 8
    edited March 2015

    hey Farmerma, I had number 6 today, saw the nurse and she recommended 1% hydrocortisone for a few days, my nipple is getting flaky even though I have been using aloe and aveeno 4x a day. I also didn't realize my whole breast would get sore, it feels like pms, not too bad I just wasn't expecting it.

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited March 2015

    Quiggy, I am doing a double happy dance. I have 3 more to go, and you did it for you! Doesn't get any better than that.

  • ladyb1234
    ladyb1234 Member Posts: 1,426
    edited March 2015

    Mags, a gentle and big hug for you (((hugs))). As you know I think of you often and what you have had to endure through this journey. My prayers are with you friend.

  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    Beachbum1023, sooooo happy you're down to 3!!! Freaken awesome!

    I'm down to 5 so you and I are rocking these last few together!

  • ladyb1234
    ladyb1234 Member Posts: 1,426
    edited March 2015

    Alrighty then Quiggy and Beachbum! So happy for both of you and it is just awesome. By Friday we will have two more smiley faces.

  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    thanks ladyb1234! I'm actually Monday because of my meltdown last Friday (grrrrr) but I'm nearly there and ready for the hormone phase!


  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited March 2015

    Ladyb1234, thank you so much, I can't wait to dance out that door!

    Quiggy, I'll be happy dancing for you on Monday! You know we never walk alone here.

  • LARock
    LARock Member Posts: 229
    edited March 2015

    Quiggy, way to go!

    Mags, many hugs.

    This Friday will be the last of my regular treatments. Then I have 2 weeks of boosts although my RO doesn't like to call them that. Hopefully my luck will hold out and I won't have any problems.

    I never liked the concept of "cancer survivor" but I'm starting to think about being a "cancer treatment survivor".

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited March 2015

    LARock - I think you may be on to something with all of us being treatment survivors! I think the song said something about what doesn't kill us makes us stronger, we should be able to move mountains!

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited March 2015

    Oh sweet sisters, thank you so much for your encouragement and gentle hugs. This has indeed been the hardest trial of my life โ€“ and at 63 I've had some doozies. The worst thing for me (besides the pain) has been that I feel like I've become a self-centered whiner. One of my dear friends, who lost her mom last fall, is now losing her aunt to stage 4 lung cancer, multiple tumors in both lungs. I try to be faithful in prayer, but it has become harder and harder. It's been bad โ€“ but others have it so much worse, including some of you. You have been an oasis of caring in this desert of treatment.

    LARock, you are so right about us being cancer treatment survivors.

  • quiggy
    quiggy Member Posts: 315
    edited March 2015

    LARock , I agree at this point in the process we are treatment survivors!

    I'm not sure if we are considered cancer free, that's strange to think??

    beachbum,pretty sure we're all "hulk" strong after all we've endured! Super power club. ๐Ÿ‘ธ

    Counting down!!!!!๐Ÿ™Œ

  • MagicalBean
    MagicalBean Member Posts: 362
    edited March 2015

    WndrWoman-the only thing I used during rads was Aquaphor. After rads I was instructed to keep using a lotion for 2 weeks because the skin would be dry. I used Vaseline intensive Care every day and it worked great. I had one spot that got "wheepy", and I used a dab of Bag Balm-healed in 2 days. That regimen was very effective for me. It's hard to tell because we all have such diverse reactions to this TX. I am very fair, burn immediately in the sun and I had very little reaction to rads other that a tightness under my arm and and that one spot. Others who tan easily, and /or have darker skin have had stronger reactions. It's a crap shoot.

    Best of luck on your adventure.


  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited March 2015

    magicalbean - Its a crap shoot alright! I finish Thursday and I hope to make it through. So far so good.

  • mqt64
    mqt64 Member Posts: 103
    edited March 2015

    Quiggy, Congratulations! Knew you could do this! Had my first boost yesterday and last night that side of my boob burned like hell, literally. I can't imagine it including the nipple. Saw my ro today and he asked if I wanted pain meds. I have too many left over from 2 surgeries. He also gave me a rx for a combination hydrocortisone/ xylocaine cream to try. We shall see.

    CassieCat, Dombrero soaks are usually used for open, weepy areas. They help dry them up. My ro actually mentioned them today if I have problems with blistering from the boosts.

    Wondrwoman, he also said to just continue with what I'm using now until symptoms subside afterwards. I meantioned the Palmer's pure cocoa butter a while ago. It's great for scars and stretch marks and restoring elasticity to the skin. It is thicker and has to be rubbed in so I've not been able to use for a while. If your skin is less sensitive now it might help.

    The breast cancer coordinator told me that the newest recommendation as far as mamms is one year from diagnosis. Depending on circumstances it might be earlier for some people but research has not shown increased benefit from doing it sooner.

    3 boosts left! Quiggy and Beachbum I'm right with you. I think Sjacobs is too. Stomp on! Gentle hugs.

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