Starting Chemo March 2015

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  • avmom
    avmom Member Posts: 324
    edited March 2015

    Hi Italychick, it looks like the two of us have the same start date, though with different chemo cocktails. I also had a lumpectomy (excision biopsy)directly after mammogram (birads 5) and ultrasound. The margins weren't clear after the biopsy, so I had a UMX with axillary lymph node dissection. Thankfully, the mastectomy didn't find any further IDC, though there was a lot of DCIS (margins clear, tho) and all of my lymph nodes were clear, despite being enlarged on the surgery date. My bone scan was clear, and I'm waiting on the results of the echocardiogram and CT scans. I'm ER, PR and HER2 negative, so my treatment won't include Herceptin. My port went in last week, and it has healed up pretty well. I guess I'm as ready as I'm going to get

    I've been very anxious to start chemo, and overall, I'm positive about getting it started, and getting it done, but as it gets closer (just over 12 hours away, now), I'm getting anxious. If it turns out like most of this adventure so far, the waiting and anticipation is harder to manage than the actual event. I'm hoping for some restful sleep tonight, but I'm not optimistic on that score.

    I'll be sending positive thoughts your way tomorrow.

    Gentle hugs to all.

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited March 2015

    Good luck tomorrow, ItalyChick! Let us know how the first treatment went.

    I'm following on Tuesday

  • rleepac
    rleepac Member Posts: 755
    edited March 2015

    Italychick and avmom - good luck tomorrow! I've read that the first infusion can be a little anti-climatic so please try not to worry too much. Your side effects (if you have any) will likely be hitting you the day of my 1st infusion 😳 on Thur.

    YOU'VE GOT THIS!!!

    Please report back how it went and know that we are sending virtual hugs and you are in my prayers tonight.

    Bekah


  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited March 2015

    Avmom, good luck tomorrow!

    BB

  • Italychick
    Italychick Member Posts: 2,343
    edited March 2015

    Thanks for the well wishes. Hope I can sleep tonight after taking the meds today! Just have to get through this part, and the worry about the next phase. I have three grandchildren I desperately want to see grow up, and they are the lights in my life.

  • Italychick
    Italychick Member Posts: 2,343
    edited March 2015

    I got my port last Monday, hurt terribly for a day, and the pain went away. So yes, definitely we are on the same track. Avmom, are you doing six rounds?

    My hair is halfway down my back, and I am waiting and letting my husband buzz it off. Wig is ready to go, and I got a couple of hats and a set of bangs to wear for beach walks.

  • avmom
    avmom Member Posts: 324
    edited March 2015

    Hi Italychick, I'm scheduled for four rounds of Adriamycin and Cytoxan (dose dense) followed by four rounds of paclitaxel (Taxol), also dose dense, so 8 rounds 2 weeks apart. If they all go according to schedule, I'll be done the first week of June. Supportive drugs include Neulasta injections each round, Zofran, aprepitant (Emend) and dexamethasone.

    I buzzed my hair on Friday after the date was confirmed for the first round, and I've worn my wig out a bit. I've got lots of scarves, but the thing I've liked best since getting my hair cut off has been a little fleece cap - soft AND warm, which is important up here in Canada. I have developed a very large affection for soft, fleecy garments lately.

    Best wishes for tomorrow

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited March 2015

    Hi March Ladies. I just wanted to drop in and wish you all well as you start chemo. I finished 11/25 AC/T, and you can do this!

    I hope you are all stocked up on your side effect meds, and have lots of cold bottled water ready to go. Be kind to yourself, get plenty of rest, and keep plenty of fresh fruits, popsicles, Jell-O, and don't forget those small snacks and protein meals. You got this. Any questions, just ask.

    Now get those cancer killing butt kicking boots on, it's Game Time! Good Luck!

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited March 2015

    rleepac, Good Luck with the AC. I had AC on Tuesday morning, but got hit with the SE on Thursday morning. I put a ice pack on my neck during infusion and it kept the headache away. Also if you have Neulasta the day after, Claritin for a few days always helped the bone pain.

  • shaz101
    shaz101 Member Posts: 718
    edited March 2015

    There will be a few of us together. I've just left the hospital now for my pre meds. I start my first chemo in about 18 hours. Just can't come quick enough now. Good luck everyone.

  • avmom
    avmom Member Posts: 324
    edited March 2015

    Oh, Shaz, I was going to wish you well tomorrow, as you start Tuesday. My bad, of course you are a day ahead of us North Americans in Oz.

    I've never been to South Australia - the closest I've been was a short stay in Melbourne, many years ago.

    I'll be thinking positive thoughts for you as well, today

  • Msmath
    Msmath Member Posts: 77
    edited March 2015

    Hugs going out to those of you starting your treatments this week. Keep strong. We can get through this!!

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited March 2015

    Shaz, I forgot the time difference too. You're about 12 hours before your treatment now? Good luck, let us know how you're doing.

    I have a little over 24 hours now.

    BB

  • Italychick
    Italychick Member Posts: 2,343
    edited March 2015

    shaz01, best of luck! Avmom, here we go! Did your doctor tell you to take Clairitin at least an hour before the Neulasta and for four days after? It supposedly helps a great deal. Just the regular form, not the one with a D after it.

    Avmom, good tip on the fleece cap. I have some ski caps that are soft, so I will dig those out.

    Anybody icing their feet and nails?

  • Trvler
    Trvler Member Posts: 3,159
    edited March 2015

    I just got back from my first MO appointment and my plan is to start chemo on March 18. I will read through the entire thread later. I need to get a shower. To those ladies who are 5 years out or 3 years out posting encouragement, God bless you. This is so helpful for those of us who are freaking out right about now. :)

  • rleepac
    rleepac Member Posts: 755
    edited March 2015

    I'm not icing my feet or nails because I have Raynaud's Disease and that will definitely cause a flare. I am painting my toenails black and my fingernails dark red. I don't remember where, but I read that icing and/or dark or opaque nail polish will help protect the nails. But I think it was the Taxol that is especially hard on nails (I don't know anything about Carboplatin or Taxotere though) and I don't start that until May. Oh well, I'm enjoying having painted nails for now...I don't usually paint them so it's sort of a treat :)

  • shaz101
    shaz101 Member Posts: 718
    edited March 2015

    Good luck avmom, italychick, Bb and thank you to everyone wishing me luck. I know we can all get through this.

    The time difference e's make a difference. Avmom if you ever decide to come back to Australia you certainly have a spare room at my place to rest your head.

    I wasn't told to take claritin. Let me know if you think it helps. As for my nails. I was told that bail polish could help, UT I didn't know it needed to be opaque! So I have painted them clear -doh! I if he redo them.

    I have a chiro appointment before my chemo to try and help relief me of these pesky migraines. They certainly are taking there toll.

    I'll probably log on from my chair later. Here we go! Let's hope for an anti climax xxxx

  • rleepac
    rleepac Member Posts: 755
    edited March 2015

    I think the opaque nail polish was because the chemo is light sensitive...or makes the nailbeds light snesitive...or I don't know - it had something to do with light LoL...I just remember it said dark or opaque

  • shaz101
    shaz101 Member Posts: 718
    edited March 2015

    Thanks rleepac, my nails are all different lengths as they break off all the time working with horses. They will look silly, but who cares. It'll take a bit of focus off of my bald head

  • Italychick
    Italychick Member Posts: 2,343
    edited March 2015

    Sitting here at chemo infusion now and I asked them again, they said the Claritin definitely helps with the Neulasta shot. Take at least hour and a half before the shot, and four 4-5 days after. She said I can also take it for a day or two in advance of the shot. Not sure why it works, but I am going to take it. Before this cancer, I never took so much as an Advil, now I am loaded with everything. Oh well, life goes on.

    Shaz101, what time are you starting your chemo? Are you there now?

    The are person here said I will probably feel ok until Wednesday or Thursday, then maybe fatigue and slight nausea. But she said some women feel nothing. So I'm hoping for nothing!

  • shaz101
    shaz101 Member Posts: 718
    edited March 2015

    Nice to hear from you Italychick. I'm not having neulasta, so that would be why.

    I'm on the afternoon run I start in about 6 hours.

    I hope you have Little to no side effects. What time is it there? Do you have someone with you?

    Thinking of you X

  • Italychick
    Italychick Member Posts: 2,343
    edited March 2015

    It is 12:22 pm. here. I'm in San Diego. Our business has an Australia office, so I think you are early morning there? I sent my husband home - I am strong on my own, but a wimp when there is someone around for me to whine to. But he is coming up and bringing me lunch. First chemo going in right now, Taxotere. I had all the pre-meds.

    Chat when you are in chemo if you need to. I will be thinking of you, and watching for any updates on your treatment! Xoxo! We can do this! And we will both get our long pretty hair back.

  • shaz101
    shaz101 Member Posts: 718
    edited March 2015

    It's 7:45am here. I'm the same as you. I'm stronger on my own. I have my mum coming and she's good as she doesn't fuss. I feel for en as she went through this with my dad and unfortunately he didn't make it. He had 2 primaries. Renal and lung.

    If my partner went I'd be wimpy with him too, he fusses too much.

    Thank you. I will log on as soon as I'm settled. Hopefully you will be resting at home well. Thinking of you xxx we will do this!

  • Italychick
    Italychick Member Posts: 2,343
    edited March 2015

    Sorry about your dad, that must have been terrible to go through. My Taxotere is almost done, then the Carboplatin starts next. I had an itchy reaction and some tingling to the Taxotere so they gave me 25 mgs. of Benadryl. All has gone fine after that, so far. Mainly I am bored, but since it is raining outside (rare for San Diego), I will survive. I just hate the downtime for all this stuff, would rather be out riding my bike, hiking, etc.

    Tell your mum hi too, and I am glad she is there for you today!

  • Italychick
    Italychick Member Posts: 2,343
    edited March 2015

    Avmom, are you still in chemo? Just thinking of you and checking in to see how you are doing.

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited March 2015

    Thinking of you you Ladies, going through chemo today. Sending hugs.

    BB

  • avmom
    avmom Member Posts: 324
    edited March 2015

    Hello, all. I just arriived back home after treatment #1 - seven to go. My nurse was very nice, and explained each step as she went along. My port worked perfectly, and after the initial stick, wasn't uncomfortable at all. Adriamycin first (the red one), took a little more than 20 minutes, "pushed" by the nurse rather than it going through a pump or by gravity. Then a flush, and the Cytoxan (cyclophosphamide) went in through the infusion pump. My vitals just before we started were fine, even with my blood pressure up about 30 points. I'm "normally" around 95/60, so 127/75 is high for me, but nothing to worry about. The drive home was about an hour and half. I feel a little strange, and I'm tired, but no nausea, to speak of.

    I feel more confident, now that I've actually done the procedure. As Beachbum has said, game on

  • Italychick
    Italychick Member Posts: 2,343
    edited March 2015

    Awesome Avmom. Glad it went well for you. My blood pressure was elevated too - not a shocker!

    They have a numbing spray you can get on your port before the stick - it helps a lot.

    Big hugs! We got this!

  • shaz101
    shaz101 Member Posts: 718
    edited March 2015

    great news avmom. Here's hoping the SE are minimal.

    Thanks BB same to you as the out down begins. How are you feeling?

    Thanks italychick, it was certainly a very sad time. I know he's watching me and sending me strength. I'm glad they got the itching under control.

  • Trvler
    Trvler Member Posts: 3,159
    edited March 2015

    Did everyone have their surgery first? I am trying to read all the comments and the surgeries.

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