Life After Cold Caps: a place for ex-cold-cappers to share

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  • Leslienva
    Leslienva Member Posts: 489
    edited February 2015

    I found two organic deodorants that work for me--Moo Goo, from an Austalian company, and Ozone Layer, a U.S. company. Both can be ordered online

  • JoeyJamesMom
    JoeyJamesMom Member Posts: 110
    edited February 2015

    Hi, Warrior_Woman :-)

    I used Tom's which is a natual deodorant for months, but had to go back to a regular deodorant.

    Chemo put me into menapause, so with all of the hot flashes Tom's wasn't cutting it!

    Unfortuanately, not even close :-(

    Have a great night.

    Lynda

  • Shelly74
    Shelly74 Member Posts: 24
    edited February 2015

    Thank you, golden paws (Kim), JoeyJamesMom, Warrior Woman, and JennJDance on the Cold Cap info. I may qualify for a clinical trial where I would not need chemo since I have only one lymph node involved if my Oncotype DX score comes back under 25. Pray for me please... Chemo is just so toxic! Will use the Cold Caps if I need it though. Hugs to all... Stay strong!

  • Warrior_Woman
    Warrior_Woman Member Posts: 1,274
    edited February 2015

    Leslie & Lynda - The point of my post is that according to Dr. Susan Love there is no relationship between antiperspirants & BC. In other words, when Frank told me to use an aluminum free deodorant he was restating an internet myth. If you like organic deodorants that's great. But if you're like me and find that they are less effective than what you used formerly, there is no BC related reason to continue to use a product you're not happy with. I'm switching back to my Powder Fresh Secret. I'm all for making lifestyle changes to reduce recurrence risk but I'm not standing on my head because someone heard that being erect causes cancer.


    "Myth: Deodorant and antiperspirants cause breast cancer.

    Fact: Skipping these toiletries won't keep your breasts cancer free.
    One email rumor claimed that antiperspirant prevents you from sweating out toxins, which can then accumulate in the lymph nodes and cause breast cancer. But in 2002, researchers at the Fred Hutchinson Cancer Research Center in Seattle conducted a study to address this rumor—and found no link between deodorant or antiperspirant and breast cancer.

    A second rumor speculated that certain chemicals in antiperspirants, such as aluminum and parabens, may cause breast cancer because there is a lower prevalence of the disease in developing countries where women don't use these products. However, toxins are not usually released through sweat, and in Europe, where antiperspirants are not widely used, the rate of breast cancer is higher than it is in the United States. Finally, although a 2004 study found parabens in the tissue of breast cancer tumors, so far no studies have shown that these or any other chemicals in deodorants and antiperspirants cause breast cancer."

  • Leslienva
    Leslienva Member Posts: 489
    edited February 2015

    I'm just extra careful because I had an apocrine type DCIS, which originates in the sweat glands.

  • JoeyJamesMom
    JoeyJamesMom Member Posts: 110
    edited February 2015

    Shelley,

    Hi, prayers going out for you!!!

    Unfortuantely, we know about the toxic chemo first hand :-(

    My last chemo treatment was Nov. 7th, 2014 and I am still feeling/seeing chemo's effects.

    Lynda

  • JoeyJamesMom
    JoeyJamesMom Member Posts: 110
    edited February 2015

    Warrior_Woman-Thanks a lot for posting that information.

    Now, I do not have to feel guilty everytime I use my regular deodorant :-)

    There was no way I could go back to work smelling stinky. lol

    Lynda

  • JoeyJamesMom
    JoeyJamesMom Member Posts: 110
    edited February 2015

    Hello, everyone.

    A few questions for you, please.

    Has anyone used Lattisse for their eye lashes?

    If so, did it work well for you? How long did it take for you to notice an improvement?

    I have been using it for close to 3 weeks now, and I haven't noticed any difference :-(

    I am bummed. I never had very long or full eye lashes, and the chemo made them even more sparse.

    My eyebrows look patchy again too.

    The joys of chemo!

    Lynda

  • RainDew
    RainDew Member Posts: 305
    edited February 2015

    I've been using Latisse since finishing chemo in September. It took a while for the effect to show - 6-8 weeks or so. But then I grew the most amazing eyelashes I've ever had. :-)

    Sadly they fell out again (this is because they are in synch with their cycles, so normal but a total bummer). They are starting back now, very thick (they were pretty sparse before chemo

  • JoeyJamesMom
    JoeyJamesMom Member Posts: 110
    edited February 2015

    Thank you, RainDew :-)

    I guess, I can probably expect my eye lashes to fall out too, (They just grew back!)

    My eye brows are patchy again too.

    Damn, I wonder if this is always going to be an issue.

    I finished chemo on Nov. 7th.

    I thought I would be making some progress by this time.

    Lynda

  • Shelly74
    Shelly74 Member Posts: 24
    edited February 2015

    Thank you, Lynda! Just waiting for that Oncotype test.... Enjoy your evening.

  • Hortense
    Hortense Member Posts: 982
    edited February 2015

    My lashes never fell out a second time, so it doesn't happen with everyone.

    I am avoiding parabens, sulfates and aluminum because I have heard top doctors in NYC say that they are suspicious that those maybe some of the several triggers for breast cancer. Aluminum in deodorants because it is directly applied so close to the breast - the toxin sweating theory was never mentioned.

    I may go to this year's annual Breast Cancer Symposium in early March to hear the latest news on breast cancer research as that is one of several places where I heard the recommendation to avoid aluminum.

  • SueBe
    SueBe Member Posts: 131
    edited February 2015

    Has anyone used hair gel? I am trying to keep the new curly hair in place but worry if this will hurt my old hair. I am still shedding and it's coming on 4 months since last treatment. Ugh!

  • jc254
    jc254 Member Posts: 439
    edited February 2015

    SueBe, if it's any comfort, long term shedders ( I was one of them) usually stop at about 16-17 weeks post chemo.  You're getting close. I can't imagine that hair gel would do any harm now.

  • SueBe
    SueBe Member Posts: 131
    edited February 2015

    Thanks jc254. I hope you are right. Fingers crossed.

  • HockeyCat
    HockeyCat Member Posts: 222
    edited February 2015

    SueBe, hang in there. I'm 16 weeks PFC. Looks like shedding finally stopped. I washed my hair tonight, scrubbed my scalp but only a few hairs came off. I'm going to get hair color and cut next week. Can't wait!




  • RainDew
    RainDew Member Posts: 305
    edited February 2015

    yay hockeycat! Feels awesome right??

  • SueBe
    SueBe Member Posts: 131
    edited March 2015

    HockeyCat that's great news. I am still shedding. I washed my hair today and they are still falling out. Hopefully it will end this week.

  • HockeyCat
    HockeyCat Member Posts: 222
    edited March 2015

    Thank you RainDew & SueBe. I feel so relieved now. It was very long 16 weeks, actually almost 6 months since the first chemo... I finally feel like I can move on, though I'm now dealing side effects from Tamoxifen....

  • Androniki
    Androniki Member Posts: 8
    edited March 2015

    I did 3 rounds of 3 weekly EC and 9 rounds of weekly taxol. I used the cold cap for the entire treatment. Yes, it was uncomfortable and very long (a total of 36 hours!!) but it worked really well. My hair has thinned but I still have most of it. One week after the end of treatment, I was able to visit the hairdresser for a gentle blow-dry, which was easily one of the happiest days in my life. Now, I am taking biotin to make sure the new hair comes out nice and strong, and hopefully fast. Any experiecne with biotin anyone?

  • HockeyCat
    HockeyCat Member Posts: 222
    edited March 2015

    I took biotin during chemo to save my nails. I'm taking Biosil liquid for hair regrowth. Working well, almost too well because unwanted hair is growing strong too...

  • incognitomom
    incognitomom Member Posts: 103
    edited March 2015

    SueBe,

    Take heart! I just stopped shedding and I know you, HockeyCat and I all ended at the same time. It's great not being paranoid every time I touch my hair. You'll get there!

  • Leslienva
    Leslienva Member Posts: 489
    edited March 2015

    I used the Bio-Sil drops all during chemo and my nails looked great! I'm still using it now that I'm done. I'm two months PFC and my hair isn't shedding as much. But I still haven't had a trim. I'm being extra careful. Now that I discovered foam rollers, I kind of like the longer length.

  • CurlyG23
    CurlyG23 Member Posts: 36
    edited March 2015

    YAY, I can finally join the club/ post here also!

    image

  • CurlyG23
    CurlyG23 Member Posts: 36
    edited March 2015
  • goldenpawsKim
    goldenpawsKim Member Posts: 165
    edited March 2015

    CurlyG - LOVE the nails!! CONGRATS!!

  • incognitomom
    incognitomom Member Posts: 103
    edited March 2015

    Looking good Curly! Congrats!!!

  • CurlyG23
    CurlyG23 Member Posts: 36
    edited March 2015

    Golden Paws & Harrysmom, THANKS! feels good to say I'm done...

    Hope to see Gatomal on this thread SOON?!

    So happy have sent those bleepin caps back today...though they didn't work well for me, I recently posted my picture timeline on the on the cold cap thread pg 436...BEWARE, it's kinda scary. I'll post a shorter version here....

    I need advice??? 2 things...first, Geralyn had told me it's ok to cut off the random last few long ugly strands...Now that I have a short new do, I'm not as worked about shedding...haven't shed for a few weeks (yet there was HARDLY any hair left to shed)...but, I'm scared to lose my short hairs, which is prob unlikely, (But u never know) SO I plan on following the few months after protocol of "babying" the hair with regards to PH/Paraben free shampoo, cold temp etc, but I will use a headband for cuter style when I feel like it, but my question is how often can I shampoo now? every two or three days? I know I need to be gentle, but I just wanna scrub the SH#T out of my scalp!!! I have also bought the nisim FAST shampoo as recommended way earlier on this thread for faster growth from a stylist/member...they make a PH/paraben free version, but I may wait a month or so cuz think it needs to be used daily or at least every 2 days. With curly hair, I've never been a daily washer anyways.

    Second, has anyone hear of the DIY hair growth masks? most are coconut/Extra virgin/caster oil based mask/ scalp/hair treatments (some recipes have egg, honey, some onion) for hair growth? you leave in for an hour or so (some sleep w/ it overnight) & then wash out....It's all over youtube, & I am very tempted to try it eventually, but not sure when I can put oil/oils on my hair. I have only used bio silk on my length ends & w/ a slick pony tail...I really worry oil & water don't mix, so it may be a pain in the butt to wash out &I'll just look like a big grease ball....ANY ONE have any DIY/home remedies experience w/ this?

    thanks,

    Lori

    imageimageimage


  • Leslienva
    Leslienva Member Posts: 489
    edited March 2015

    Curlygirl, it looks like you have a lot of hair, even tho it's short. It's like you lost the 90% off the bottom because it doesn't look like you lost much off the top. Anyway, I'm still sticking to the two washes a week routine even tho I'm two months out. But I DO scrub a little harder now and my scalp feels a lot better. And I wash my bangs or at least wet them down to style them nearly every day. I still haven't had a hair trim because once I got off chemo, my hair started to look better and I've been able to curl it. I'll probably wait a few more weeks and get several inches cut off.

  • Hortense
    Hortense Member Posts: 982
    edited March 2015

    Curly - Try using Nioxin #4 shampoo and conditioner. It worked wonders for me by getting rid of the buildup on my scalp and hair. My hair immediately looked better. Keep treating your hair gently.

    I suggest taking BioSil liquid. It has been clinically proven to grow thicker stronger hair and helped me regrow what I had lost. My hairdresser was so impressed by the results that she, and others in the salon, recommend it to their clients.

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