Starting Chemo January 2015
Comments
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Thanks SweetHope. I did take the Zofran and it helped. Also Ativan 1 mg helps the nausea too. I am a drinking!! I have not had an issue with Constipation since 1st cycle. DH took me shopping and errands. I got 2 bright red Adirondeck chairs for our little deck that faces the sun. It felt good to get out even to KMart.
Marjo. I am glad to see you! Nausea is truly my biggest SE too. Feel better and take care in your cave !
Hugs to all. Tomorrow is March 1st. We are making progress. For those of us on neoadjuvant
we have surgery looming in our horizons.
Patty
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Tortylass
I get the Decadron, Emend and Aloxi too on chemo day. By day 2 you wouldn't know it. Good Zofran tips though. You must have nice nurses. The nurses that administer chemo don't give many tips where I go. I am thankful for this lifeline.
Patty
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Patty, I know exactly what you mean about feeling good about getting out.I have not been doing much but met up with a good friend for breakfast this morning.I still feel more energized today because of it.After chemo, surgery is going to be a breeze!!It is great to see the actual evidence that chemo is working!
Brandi999, I'm so sorry for the loss of your triplet babies. Life is tough sometimes but I agree with you that the biggest growth is the most painful!!Well said.The important thing is to recognize it and move forward.Crying is a good way to let out a little pressure along the way.Congrats on completing your last AC chemo and its proven success so far.
TeriMP, that is just horrible about the water pipe bursting and all the damage it caused.I hope things are getting better for you but hard to deal with that crap at the same time as treatment.
Jenn, I am absolutely in awe of your energy and I think it is a monumental success to accomplish your dancing achievements while dealing with BC. Congratulations!!Funny PJ story!!The mommy dog just had her pups on Wednesday now but I'm not sure yet if I am going to get a male or female pup.I want a female but there was only 2 and 3 wants.I'm keeping my fingers crossed for a female but will love a male puppy equally if that is the way it turns out. I still have lots to do to get ready for it but we have some time yet as it won't be available for pickup until Apr 24th.
Mary59g, how are you and Josie doing?I hope both well and you are thoroughly enjoying each others company.Post pics if you can!
Kristin, hope the respiratory problem you were having is gone now or much much better!!
Greetings to the new January chemo sisters!Wishing you all the best with your chemo treatments.
I went for blood work on Friday but my neutraphil count was too low 1.2.I have to go back on Monday now to see if I can still get my chemo #4 on Tuesday.I think it will be good.I had a feeling this might happen since they had me coming in 4 days before my next treatment instead of the day before.It isn't a huge deal I guess but getting the blood sample is a big problem every time.They must always take the blood from my hand now and even that isn't easy.Bah!!!
Actually chemo #4 is actually my first Taxotere infusion.I'm a bit nervous about it as I have no idea what to expect.I have read about most of the common side effects but was told yesterday that fluid retention is common and it doesn't show up sometimes until after chemo is completed.That will suck!! I decided that I will really really watch my salt intake over that period.Hope that helps.
I think I am the only one on the FEC-D chemo regimen in this group which may be why I haven't experienced the nausea AC seems to cause.I wish you all NO nausea on the Taxol portion.Fatigue is my biggest complaint.Today a new complication though was cracked skin on the upper pads of my feet.The skin was already sensitive but may have been aggravated by shopping today in my winter boots. Oh Chit! Here's my chemo brain story for the day about shopping.I had picked up a new top that I liked but my friend and I continued to browse around the department store.She ended up buying a purse while I was looking at watches.She came over to where I was and we wandered out of the store.I got halfway down the mall when I moved my jacket from one arm to the other.There to my surprise was the shirt I meant to buy. Back we went to the department store so I could pay for it!! So happy I didn't get caught leaving the store.I told my friend though if I had, I would have pulled the cancer card!!Is that bad??
Hope everyone enjoys the rest of the weekend!
Wendy
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Patty,
Glad you are feeling somewhat better. I do use the Zofran sometimes. Nausea is my companion for at least four days post infusion. It is pretty miserable at times even though I am taking the compazine round the clock and the occasional Zofran. What I notice most about the Zofran is that it makes me sleepy. Not always a bad thing especially at bedtime. I really like your mantra! I have been writing down affirmations for every round of chemo. I post them on my fridge. This week's affirmations are as follows:
"You may have to fight about all more than once to win" - Margaret Thatcher
"Better to light one small candle than to curse the darkness" -Chinese proverb
Love,
Kristin
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let me correct that first quote- sorry!
"You may have to fight a battle more than once to win " - m. Thatcher
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Wendy loved your catch up note to us all. Glad you got out for some girl time with a dear friend. So when do you get your puppy?
Patty, love the image of bright adirondack chairs in spring. Where do you live?
Marjo , Thinking about you and hoping that nausea leaves you soon! It really is unpleasant. You are really good about self care after your infusions. I know how hard it is for someone with your level of energy to make yourself stop and just go in the healing cave for awhile. I push myself a little to hard and I really need to follow your example.
Becky, how have you been feeling?
I just had AC #3 weds and the nausea was kinda bad this time and is still in the background. I read somewhere that some people note a side effect called " increased stomach awareness." I think now on Sunday mid day I am having this "increased awareness" so it at least is an improvement from the icky nausea! I plan to work tonight and tomorrow night and really look forward to the feeling of normalcy that work will bring.
Brandi, Jenn, TortyLass and other inspiring ladies, have a lovely day. I look forward to hearing how you all are doing,
xoxo
Kristin
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ok need to check in on
Cheryl, our fearless leader, how are you?
Cat, Mary,Teri,and Di in S. Africa , miss hearing from you.
Anxious to hear how you all are. Hoping you are comfortable today.
Love to you, Beachbum!
Kristin
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Wendy
If you are starting Taxotere soon, did you get the tip that Special K gave us on icing mouth and keeping fingernails and toenails chilled with frozen pea bags during Taxotere portion of infusion? I haven't had mouth sores or nail issues yet. Knock on wood. Thank you for making me laugh about being a chemo brain shoplifter. Lol. Cancer Card for sure if you needed too. I put Bio-oil on everything. It is from Walgreens and it would help your cracked feet.
Love And Hugs to all
I am worn out from the weekend.
Patty
Kristin hope you have a good couple of shifts at work!! I got those 2 red Adirondack chairs at Kmart. They are on my sun deck. I am close to,Spokane Washington. Supposed to be 50s next week. Which means 60 on that deck. Spring. Time for all of us to have something to look forward to.
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Congratulations Ladies! It is now MARCH, and look how far you have all come. I am so happy for all of you! This all started in January and even though you have all had bad days, and good days, and even some great ones, you are winning the battle! Maybe those cancer killing butt kicking boots are working. Stomp on Ladies!
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Well I passed my blood work today so will go ahead with Chemo#4 (1st taxotere) tomorrow. My neutrophils went from 1.2 to 3.4. Just glad not to postpone chemo. Sooner done sooner its over.
Patty, I did see the tip about icing fingers and toes. My cancer center doesn't do this but will let you do it if you want. I decided I won't ice but will paint the nails dark. I picked up this really nice black purple colour today and will get my daughter to help me out with it. She's does hers all the time. I will however suck on ice chips. Easy to do and it is supposed to avoid sores as well as preserve some of your taste buds? I hope the taste bud thing is true.
Kristin, I don't know when I will find out for sure if I'm getting a boy or a girl but the puppy will be ready for pickup around April 24th. I hope your work night went well and there is less stomach awareness going on! Good luck with work tonight too.
Beachbum, it is truly amazing how time is passing. How are you doing with the Rads? I hope you are having minimal to no issues!
Everyone is real quiet right now and I hope that means you are busy doing good things and not dealing with any bad SE's!
Take care everyone!
Wendy
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Day 5 and still feel crappy. This was AC #3 and I feel like the chemo taste is worse this time. I'm very depressed about it. Im going to try not to let myself get in that hole though. I hate to think I have to go through it again in 9 days.
For those on AC then T, did you wait two or three weeks in between the two? Also, is anybody else doing lower dose weekly T? I will be and this go around has me a bit miserable about getting weekly infusions in the future.
I don't want to eat anything because it all tastes bad. I'm forcing myself to eat some, but water doesn't even taste right!!
Sorry for the whining.
Jena
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Jena, I'm not on the same chemo cocktail but my taste buds have gotten worse after each infusion. The one thing that I found helpful was salt but now I want to avoid that too as Taxotere is apparently quite bad for fluid retention. Another thing that I can handle is bread. Not the greatest in nutritional value but sometimes you just have to get something in your system to avoid nausea too. Hope this improves for you.
Even worse than taste buds sometimes for me is my sense of smell. Everything is so chemical smelling it seems. I can totally understand now why they post about being scent free at my cancer center.
Patty, forgot to say that I used the Bio-oil Sunday and today and it is really helping. Thanks for the tip!!
Wendy
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Wendy, glad your WBC elevated! They areup to 3.4 in one day or one week? ! I don't believe I had fluid retention from Taxotere but I may have had a little. I brought 4 little bags of frozen peas and I put 2 on my lap and dug my fingers in it. I think it has saved my nails. The nurses don't really care what you do where I go. They don't say much. Some are more warm and fuzzy than others. I am glad you found Bio-oil. It's natural and I love it.
My taste buds and smell are very affected and everything tastes bad. I thought it was the Carboplatin. Nasty stuff.
Jena it's okay to whine. I encourage it. chemo is difficult. Life is hard for all of us right now. That's why we are here. No one including our families understand how we feel. Although my mom had chemo 10 years ago and she is alive and well. She won't let me whine much. Stronger woman than I am.
It is hard to stay up on nutrition when everything tastes horrible. That smell thing is right on. Anything funny and I get set off.
Thank you Beachbum. Bless you sweet lady. Yea for March! I am like Marjo. In my cave with my fuzzy blanket and good book.
Love and hugs.
Patty
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The netrophils rose from 1.2 to 3.4 in 3 days. I have no idea how low they can get on chemo though. All the other counts were okay just the neutrophils were low on Friday. This doesn't happen to everyone. I think I just have a slow system overall.
I asked about the Neulasta once and they told me that they don't do that on my chemo cocktail unless you are ill/neutropenic. It isn't a dose dense regimen so the level should be able to get where it needs to be in the 3 week cycle.
That's good to hear you didn't get a lot if any of fluid retention on Taxotere. I think what they scared me with is that it can hit after you are done treatment. Whatever will be will be though. As we are all discovering if it isn't one thing its another so going with the flow. Finding a warm comfy hideaway is a good place to be.
Wendy
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Hi RV6gal, I did not retain fluid, but I have retained new fat on my rear. I gained 9 pounds after chemo. The Doctors tell me that our metabolism changes from chemo. WTH? So now I am having to fight the weight gain, it is a slow go. I had hoped to lose weight, not gain it. One would think after I lost all my hair and a boob that it would have dropped at least a couple pounds! Oh no I gained. My nurses cracked up when I freaked out about gaining. I told them I thought my boobs must have been smaller than I thought. Who gains weight staying in the hospital for 4 days?? This really sucks. I have 3 rads left, I hope the skin holds up. The armpit is pretty toasted. But the rash is making me bonkers itching. 3 more, 3 more, 3 more, 3 more..................Grrr!
Sounds like you are doing well, and it's MARCH! Another month closer, the time is going to Spring forward, and the snow shall melt!! Praying for warm air and sunshine. Dang all that cold air from Canada!
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Hi, Everybody.
Yesterday was busy. Blood work first thing in the morning. Everything must have been good because I didn't receive any calls about it. Then on to MO who scheduled another Echocardiagram for tomorrow. I'm short of breath too much lately...just getting dressed causes the same increased breathing as walking up a hill. I hope it is just chemo fatigue and not my heart...that would stop chemo immediately. And of course I don't want heart issues.
I do not want to quit chemo or the clinical trial. I have DD AC#4 this Friday then on to DD Taxol; so I am almost halfway there. So far my SEs have been typical and mild but I would put up with a lot more to keep cancer away.
Years from now I want to feel that I did everything available today to help prevent a recurrence. Plus this trial is important to me. So I am trying to not worry...that's not working...and I don't want to take any Xanax because I feel it might effect the echo. This sucks!
I've done a good job so far of "Don't go there 'til you get there" but now I'm worrying about Radiation, too. Since my cancer was at 9 o'clock on the left breast that places radiation directly over my heart. If I do have a heart issue, this means some real serious decisions will need to be made. I wish my brain wouldn't go there now.
So to end this post on a good note, I had a fun time at the Look Good Feel Better luncheon after leaving the MO office. It was a lovely distraction with about 20 women at various stages of this cancer process. The name suits it well. Please attend one if it is offered near you. The American Cancer Society is very active with my cancer center. They are scheduling some get togethers for us with a painting class and crochet class. And we were all invited back for the April LGFG lunch as long as we bring our new makeup kits too.
Stay safe and warm. This Spring will have so much more meaning to us all. I hope it gets here soon.
XOXO, Becky
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SweetHope, I hope your echo cones back OK!
Jena
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Sweethope, I hope it is chemo fatigue too. I have experience that myself. Things that took little energy before are monumental now. Good luck with the Echocardiogram tomorrow! The waiting game is indeed hard. As we all know, encouraging words help but don't take the worry away. How quickly to do give you the results?
Beachbum, crap about the rear thing. I started off well endowed there and don't need no more!! It totally sucks that there a few good things that come from cancer on a physical level. I think it is great if people believe some things improve. If I had to choose one physical improvement it would be the weight issue and that's just not going to be the case. The metabolism thing is further screwed up with age and I'm on the downside of that too. Turning 51 this month! Double crap shoot!! LOL I know that is definitely going to be my issue as I think that is why the heartburn bother me so! I cracked up about the boob thing as I was hoping for some great weight reduction after my UMX, never happened!! Ha ha ha... 2 more, 2 more, 2 more rads to go now!! Done Thursday? Hope the after effects clear up quick for you!!!
Got my daughter to paint my nails last night in prep for chemo today. I will post a pic separately. Makes me feel a bit funny as I don't tend to use polish. I think they turned out good though. One more small adjustment for the cause!!
Chemo # 4 in 4 hours. Hoping it goes smoothly!
Take care all my January chemo sisters!
Wendy
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RV6gal, nice nails!! She did a great job on those. Chemo today, just pull up the cancer killing butt kicking boots, and stomp on! I too am on the high side of age at 58. I feel like 80 some days. All the creaky joints, tripping over my numb feet, and waiting on my hair to grow. And the weight gain, that really ticks me off. It is so hard to drop it when I am dead tired, and slow moving. I have to quit stopping after rads for homemade ice cream and hot fudge! Good thing I am done on Thursday, LOL.
Rads is another story, my armpit is pretty red. So I'll let you know how it finishes. Thanks!
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Hi everyone-I'm almost two weeks out from my last round of AC and I'm feeling pretty good. Except for fatigue and dry mouth, the rest of my side effects have subsided. Spring is here early and I've been enjoying the sunshine and the somewhat warmer weather. I'm glad to see everybody is doing well.
Cheryl
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Hi ladies!
I have been lurking for a while. Finally ready to join in on the conversation. I was diagnosed December 23 with Her2 positive breast cancer. I had a large 4cm tumor surrounded by more than 6 less than 1cm satellite tumors. I started chemo January 15. My third infusion will be tomorrow. I've been feeling great the last two weeks after a very rough second infusion(I got the stomach virus which reared its ugly head as soon as I sat down in the chemo chair). This definitely set me back with the recovery time. Anyway, I'm nervous again about chemo tomorrow but I am happy to find you ladies who are also going throughchemo. I am on TCHP. I am 37 with two children under 2.
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Welcome raleighgirl, We are so glad that you reached out here and will look forward to your posts as your treatment continues. You have joined a caring and knowledgable community. We look forward to hearing from you. The Mods
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Hello Ladies; well AC Chemo #3 was last Thursday and the good news is I got a jump on the constipation so the bowels are working well this time, thank God!! However, the fatigue and chemo brain this time is intense to say the least! I tried to get out for a couple errands with my Mom (she's making me a cancer ribbon quilt) and I could barely walk, stand and my purse must weigh 100 lbs!!
Raleighgirl, I started my AC chemo on Jan. 15th too; each one has presented a different recovery however this one is just kicking my butt mentally and energy wise; a little nausea but I drink peppermint tea to help as well as I have Phenagren. I'm sorry to hear about the stomach bug I got it too but 4 days before chemo 2 and I was over it. My WBC count is slow to rise but seems to get where it needs to be just in time for each round.
I have to say, my taste buds are worse this time and I feel like I can't get enough to drink to not feel dehydrated; my legs feel like weighted noodles and when I look in the mirror I look "grey" and lifeless. I may go in for fluids if I don't feel better by Thursday.....I just keep thinking 1 more AC....1 more AC after this then it's on to Taxol; praying my energy will return at least somewhat once I switch over.
I lost 9 lbs with the first round, gained 11 back on the 2nd and I pretty much know I've lost a few with this round (3). I usually get a few good days before each round so I try and get to the gym for at least a little cardio or activity; however this time I feel I'll be good to get back to work by mid next week.
I lost both breasts and had a Lat Flap which I have to fight with myself about how ugly I feel it looks; I know it's better than leaving a chance of the cancer coming back; however I still fight with it.....full reconstructive surgery will be at the end of the year; however not sure how that can ever look "normal" or "repaired"....and now I feel like I'm whining.
I turned 47, 12 days after my AC Chemo 1 and some days I feel 80; After AC is Taxol for 12 weeks the radiation for 5 weeks....one day this will all be behind us ladies....I live for that day!!
My thoughts and prayers are with all of you; I have suggested this site to another lady that just got diagnosed with triple negative BC; I told her how this site and you ladies have saved my life more than once with information and support!! Thank you!
Fight like a girl; never stop!
Lara
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LCH033, almost there!! I finished AC/T on 11/25 and I wanted to cheer you on. You got this! I will say the fatigue is cumulative, so expect to be tired. Sleep as much as possible. Don't try to do too much, you are fighting a battle to win the war. Save your energy for what you need it for. I drank 4 to 6 bottles of water per day. I was always thirsty and always hungry. Give your body what it wants, it helps a lot.
Look for the American Cancer Society online. They offer Look Good Feel Better, a really fun free class on wigs, scarves, and make up. They also give you a free make up kit that is really nice. I have so much fun there! Something to look forward to. And the make up is really nice. It will give you some color, show you how to apply eyebrows, and hide missing eyelashes. Mine came out on Taxol, but grew back nice and thick! Awkward, but it was fast. And my hair started to grow back after the first Taxol!! I take Biotin for my hair growth, it's cheap and my MO approved it. It is working great for me. My hair is 1" long already. I had dense dose Taxol x 4.
I am 58 so this isn't a cake walk, but some days I feel 80 too! But I finished chemo, surgery, and almost done with rads. Keep going, one day at a time! Take Care
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Hi Beachbum1023, thank you for the encouragement!! I will check out the Look Good Feel Better; I still have partial eyebrows and a few eyelashes and 1 more round of AC on 3/19. Then Taxol every week x 12. After that radiation for 5 weeks. I already take Biotin, have since I got diagnosed to help with hair loss and grow back. I shaved my head 2 weeks after the 1st AC when it really started falling out.
Did you have any SE's with Taxol? The fatigue and Chemo brain is indescribable with AC and I've had some women say the Taxol is just as bad?
Thank you again! I love this site!
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Raleighgirl, sorry you find yourself here but welcome to the January thread. I think we all get nervous but as Beachbum posted, one day at a time.
LCH033, this is the place to whine if you need too. Never worry about that! I am leaning more and more to no reconstruction. I'm worried that I would never be happy anyway and I don't know if I want to go through all the hassle. The one thing I am learning here is no decision has 100% satisfaction!!! I do like "fight like a girl" . We are tough enough!!
Chemo #4 for me today is in the bag and it went ok! No allergic reaction yet. My chin broke out in a rash this time within 1/2 hour of taking Ondansetron prior to chemo. I don't remember that happening this time. It doesn't itch or hurt just red. A bit weird. I'll keep an eye on it as I have to take 1 more pill tonight. Steroids make me feel a bit energetic so not sure when I will hit the downside of that.. LOL
Cheryl, glad to hear things are going well and you are enjoying your Spring weather!!
Take care everyone!!
Wendy
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Hi LCH033, I had dense dose Taxol x4, and the nausea was minimal. I was very thirsty and hungry. My toenails were very loose and I lost 6 of them but they are growing back in pretty fast. My fingernails turned funky colors but they are back to normal also. I did not have a response to Taxol, the tumor grew. I cannot have any Taxane chemo from now on. Very unusual response, it is rare that happens. I did lose the eyebrows and eyelashes after the first Taxol. But my hair started to grow back quickly after the first Taxol. I have thick lashes now and the eyebrows are almost back. I finished 11/25.
I would say the AC was worse for me, but I was dense dose. The fatigue is cumulative, so be good to yourself and rest!
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pretty nails, wendy!
Got through my work stretch despite rather constant nausea... Super tired tonight, hanging with my son enjoying his company so much. Promise to write more later. Love to you all!
Kristin
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Hello Everyone,
I haven't been on the thread in a week and a half. I missed reading and posting with you ladies. I actually was reading posts on Saturday February 21st when I got a call that my 19 year old daughter was taken to the hospital for overdosing on prescription pain meds. I haven't been on here till now. I just picked her up from the behavioral health center today but not before I got a call that my 88 year old grandmother was unresponsive at her care home. I had to go to the hospital for her before I could pick up my daughter and of course the 2 facilities are on the opposite side of town from one another.
I managed to do both. Grandmother is still in hospital under observation for tonight. My sister stayed with her while I picked up my daughter.
And a dear friend for many years sent me a drop dead email out of nowhere. I have heard that some friends you expect to go through this with you will surprise you and some that you don't expect to support you will be there the whole way. I guess it truly is real.
Brandy, you said it best when you said things you go through make you stronger. Sorry. Chemo brain can't remember exactly what you said.
I finished AC#4 on February 25th, se's include very horrible Big C., fatigued, stress but I am not convinced that's all chemo.... lol. Everything tastes really bad even water. Heightened sense of smell. Bloating. Ugh...
I start weekly Taxol on March 11th ×12 weeks. I am not looking forward to that from reading some of the se's.
On a positive note, dh and my 24 year anniversary is coming up on the 9th and I have a look good feel better class that day. Dh usually works nights but asked for that night off. Yeah.....
Beachbum, once again, thank you for all your support.
Ladies with new and upcoming puppies, that's precious. I love it. Oh, and be gentle with the great danes, they are gentle giants. 🐶 🐕
oh, was the cute little monkey every finally named? Can't wait to find out...
to all the new ladies here, I hope we can be of some encouragement and support to you especially in your time of need.
Have a good night ladies. Just one more thing. A rose from my rose bush.
Enjoy
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