Scans, tumor markers and circulating tumor cells

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mary625
mary625 Member Posts: 1,056
edited March 2015 in Stage III Breast Cancer

Would there be any interest in maintaining a list here of metropolitan areas where one can receive scans and blood tests for tumor markers and circulating tumor cells, if that is one's choice?  I don't care what is supposed to be going on re: standard of care, some women are getting them. I'm all about individual choice and what's right for each woman.  I know that travel or having out-of-network bills is not for everyone.  Here is my input:

Arlington, TX:  scans and tumor markers

Seattle, WA:  tumor markers (scan t/b/d after tumor markers)

New Orleans:  PET scan (annually--told this by an interventional radiologist)

I think it would be best not to name doctors or hospitals.  Anyone who is interested could PM the poster to get the contact info.  

Comments

  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020
  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited October 2014

    Is it an area of the country, or the philosophy of the oncologist?  Mine draws tumor markers four times a year, and has said she'll do a PET scan yearly for five years.  I'm in Southern California.

  • Momine
    Momine Member Posts: 7,859
    edited October 2014

    Athens, Greece, private doc: for stage 3: full blood panel and tumor markers at each visit; annual CT and bone scan first 2 years, thereafter chest X-ray and liver U/S annually (along with blood and TMs).

  • lovujja
    lovujja Member Posts: 119
    edited October 2014

    Hi there,

    I am back after a long time. Busy with work and family doing great. I go to Mayo Clinic Rochester and after 2 yrs of completion of my treatment they only do blood works, nothing else unless i have some issues. I had severe head ache and they did CT scan about a year ago and i suspected rib bone enlargement on my chest area and had a bone scan ordered by my primary physician. Both came normal. God willing, hope i don't have to ask anything for a long time.

     My husband is starting a hard cider, mead and fruit wine business (made without chemical) in Mpls, MN. So i have been very busy helping him for past six  months. Enjoy this beautiful fall.

    Love you all.

    LOVUJJA

  • katcar0001
    katcar0001 Member Posts: 621
    edited February 2015

    You can go to any major city in Mexico and get all these tests and scans for a reasonable cost and without a prescription. Even in my small town, I can walk into a lab and order a TM test for about 350 pesos (less than $25) and you get results the same day. Maybe make it a mini-vac? Go to P.V. or Ixtapa?

  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2015

    Tampa, FL - tumor markers (CA27/29, CEA) done at each follow-up since diagnosis, had a pre-chemo PET, post-chemo PET, one a year later.  MO will order either future PET or MRI depending on symptoms - no problem.  My MO is in the largest independent oncology practice in the US.

    Edited to add - sorry, just realized this is a stage III thread but thought the info is applicable for the subject title if people are looking for locations.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited February 2015

    I have to ask, Special, Fl Cancer Specialists? I had them, Humana kicked them out of network. Booooo

  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2015

    spookiesmom - yes FCS, I also have Humana, but it is through Tricare so I was able to stay.  I know my doc was sure that Humana would relent at the last minute, but I guess they didn't.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited February 2015

    No, they didn't. I sort of feel I had the last laugh, my new MO had been with FCS, but had left there about 6 months prior

  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2015

    spookiesmom - glad it worked out for you - good that your new MO had the FCS experience so their treatment model is familiar.

  • Lolis197138
    Lolis197138 Member Posts: 512
    edited March 2015

    My MO and BS said no routine checks, not even blood work. Wondering my GP will be able to order some blood work? 

    What markers are you checked for?

  • Momine
    Momine Member Posts: 7,859
    edited March 2015

    Lolis, my docs do a full blood panel, which includes blood calcium level, cholesterol and liver function tests. A good doc can tell a fair amount from that. I also think it is prudent in any event, considering the possible SEs of treatment.

    They also test three cancer markers on me: CA15-3, CA125 and CEA. The tumor markers are controversial and notoriously unreliable, which is why a lot of docs don't use them. They are also fairly expensive tests.

  • Lolis197138
    Lolis197138 Member Posts: 512
    edited March 2015

    Thanks Momine!! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2015

    Lolis, what do you mean by "routine" checks? You are still being seen by your MO every like 6 months right? I'm 6 years out and finally only seeing MO once a year now. She will do tumor markers and full panel plus cholesterol, Vit D. I'm thinking about removing ovaries even though going through menopause. If it is covered by insurance it may be an option.

  • annika12
    annika12 Member Posts: 433
    edited March 2015

    My MO sees me every 6-8 weeks for exam and blood work for 2 years , yearly mammograms but thats it....no mri or scans unless I have issues!! But then the cancer was found by "accident" on mammo,mri or blood. No symptoms or pain either. ...

  • Lolis197138
    Lolis197138 Member Posts: 512
    edited March 2015

    No routine checks in terms of CAT scan or tumor markers. 

    I am seeing her in June and I am not scheduled for any blood work. She will see me every 6 months but no blood work. I am going to ask my GP to order a comprehensive blood work as I am forever tired. 

    My BS mentioned mammogram and MRI on the other breast regularly. 

    I had heterogeneous breasts and wondering if the mammo will pick up anything. I have this small pea lump on the good side that hurts to touch, wondering what it could be. 

  • Warrior50
    Warrior50 Member Posts: 94
    edited March 2015


    At MD Anderson in Houston they do CA 15-3 and CBC every 3 months for 5 years.  Bone scans and chest X-ray once a year.  No more mammograms for me because of bilateral mastectomy, but otherwise they would do that once a year.

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