Winter rads 2014-2015

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  • Bippy625
    Bippy625 Member Posts: 890
    edited February 2015

    here it is:

    imageimage

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  • Bippy625
    Bippy625 Member Posts: 890
    edited February 2015

    my BIL is always in the sun, and he swears by this stuff. It gives me instant relief, yes, who knew??? Passing it on in case it can help anyone else. The other stuff just did not do much for me.

    Good news, I am feeling much better today. Not so much heat coming off. So much happier! That is good for all, maybe we will heal up fast from rads.

    I really love reading the posts, perspectives, experiences of everyone. It helps to know we are not alone, and every step of the way our sisters are here. So incredible to have the support and safe place to cry, vent, post victories big and small, whatever we need at that moment.

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  • mqt64
    mqt64 Member Posts: 103
    edited February 2015

    Whew! I agree Coyote there has been a whole lot going on. I've been following with not enough energy to join in. I think all the babysitting of the three grandsons last week took more out of me than I thought.

    Thanks Coyote for all you do for all of us. Welcome to those just starting rads. Congrats to those who have made it through. The beauty of this website for me is that I got to hear about the good,the bad and the ugly. No one has to feel alone in this fight. There are no stupid questions and often more than one right answer. Bless you all!

    As far as CT goes I had one for my initial planning and one to plan my boosts. Yesterday I got the sharpie drawings. When they were done they took pictures and measurements and told me not to worry if they came off with washing or creams. They explained everything before they did it. I am really grateful for my techs. The other day they told me that I was getting so good that they were just going to let me tell them when I was in the right position! Just 5 more regular treatments and then 5 boosts and I'm done. My ro recommended the hydrocortisone too. It does seem to help. I still only have the one small blister and a very red breast. It is sore by Friday but much improved by Monday when it starts all over again.

    Have a restful healing weekend everyone. We just gotta hang in there.

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  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited February 2015

    Cactus Juice? Sounds a lot like tequila to me.  I'm on board for that, and I've been finished with rads since mid-December! 

    WndrWoman ~ I accept your wishes with gratitude.  It's been a labor of love and I will sincerely miss the connection when we are all completed ~ but happy for us all of course.

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  • Keri71
    Keri71 Member Posts: 1
    edited February 2015

    I am 11 treatments in to my radiation

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  • Annie88
    Annie88 Member Posts: 196
    edited February 2015

    Keri71-You are almost to the mid point! How many treatments are you having? Hope everything is going well!

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  • CassieCat
    CassieCat Member Posts: 1,257
    edited February 2015

    Keri71, welcome to the group. How is it going so far?

    Bippy, glad you found something soothing and helpful! Thanks for sharing the tip.

    I'm done with 7 so far, and so far things are fine. :)

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  • lescover
    lescover Member Posts: 7
    edited February 2015

    Last treatment was on Wednesday!!!   HappyMy DH drove me to nearly every one.  He and my daughter were teary eyed in the waiting room surrounded by the entire staff when I danced out for the last time.  Balloons, sparkling cider and hugs.  Surprise party at work with more hugs, balloons, cake and flowers.   Beautiful dinner with family this weekend.  I am loved and cancer-free.

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  • ladyb1234
    ladyb1234 Member Posts: 1,426
    edited February 2015

    9 Rad treatments down - two weeks in. 16 more rads to go -- 3 more weeks. Uneventful so far. Shoulders are just sore. Have excerises from PT and have another PT appt tomorrow. Congrats to everyone who has finished.

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  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited February 2015

    Keri71 ~ welcome to the Winter Warrior group.  I hope all is going well with your treatments and you are experiencing no significant side effects.  I put your name on the list with a starting date of Feb 6th.  If that needs corrected, please let me know.

    lescover ~ Hooray and congratulations.  It sound like you are surrounded by lots of love and great support.  That is heart warming and exactly the way it should be.  I joyfully added the smiley to your name on the list.  More hugs to you.

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  • LARock
    LARock Member Posts: 229
    edited February 2015

    Lescover - congrats! Sounds like a great celebration.

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  • Annie88
    Annie88 Member Posts: 196
    edited February 2015

    lescover- congrats on finishing your rt! It must feel great to be done. You are loved by your family and friends! I will be done this Wednesday with mine! It will be nice not making that trek everyday. I plan on going to the gym on Thursday afternoon and get back into my workout routine. It will be nice to wear deodorant and a bra again too!

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  • WndrWoman
    WndrWoman Member Posts: 333
    edited February 2015

    lescover Thanks for sharing your wonderful celebrations. So glad you have that love and support around you. Way to go!

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  • Bippy625
    Bippy625 Member Posts: 890
    edited February 2015

    LAST ONE TODAY!!!!

    end of a long road. We will be partying a little tonight, good food and friends. Burn feels better but looks like hell. I will take it!

    Be well my rads sisters

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  • Professor50
    Professor50 Member Posts: 220
    edited February 2015

    Congrats to all who have made it and you go Bippy! I found that last day to be really emotional. Such a journey.

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  • CassieCat
    CassieCat Member Posts: 1,257
    edited February 2015

    Congrats lescover and bippy!

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  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited February 2015

    This is our list of Winter Warriors as of February 23, 2015 - We are still growing!  The Winter Warrior sign up will be over soon.  Our Spring will be a new beginning.

    October / November Start

    MeneK – Oct 24 ThumbsUp.................... MagicalBean - Oct 28Happy......... Mmtagirl - Nov 3 Happy

    MarieBernice6234 - Nov 4 Happy ... Hope50 - Nov 5 Happy..................  dennyvol - Nov 5 Happy

    CAS4 - Nov 6 Happy........................ Beachbaby65 - Nov 4 Happy.......... CoyoteNV - Nov 10 Happy

    Lush61 - Nov 13 ThumbsUp.................... Rosa54 - Nov 13 ThumbsUp.................  Beachlady28 – Nov 17 Happy

    Nomatterwhat - Nov 17 Happy......... LMVerma  Nov 18 Happy................ katieC12 – Nov 18 Happy

    Lorrilynne - Nov 18 ThumbsUp.............. Gongshow18 - Nov 20 Happy.........Yikes1 - Nov 20 Happy

    Birdgirl11 - Nov 23 Happy.............  Perfectlyimperfect39 - Nov 23 HappySingsing1020 -Happy

    December Start

    Pita119 - Dec 1 Happy.................. SandyLovesLucy - Dec 1Happy......... AnasNana - Dec 1 ThumbsUp

     HockeyCat - Dec 3 Happy......... . CanuckMom Dec 4 Happy................  MeanMomto3 - Dec 4 Happy

    JustJean - Dec 5 Happy...............  runningcello - Dec 9 Happy............... carynbrit - Dec 10 Happy

     ForHisGlory - Dec 10 Happy........ Davida58 - Dec 10 Happy....................SCMom - Dec 11 Happy

    eileenpg - Dec 16 Happy.............. Linzer – Dec 16 Happy....................... WndrWoman - Dec 16 Happy

     sweetbanker - Dec 16 Happy........  labelle - Dec 17 Happy.......................  Slavrich - Dec 27Happy

    InGodshands - Dec 18 Happy....... Catie57 - Dec 18 Happy........................ lilactulip - Dec 18 ThumbsUp

     PoppyK - Dec 29 Happy.............. kpmacmill - Dec 29 Happy....................  Jlynn13 - Dec 29 ThumbsUp

     gretchy - Dec 29  ThumbsUp...............Bellegirl - Dec 30 Happy

    January Start

    reader425 - Jan 2 Happy................ILCMom - Jan 2................................ Purrrrana99 - Jan 5

    Cath57 - Jan 5  ......................... Professor50 - Jan 5 Happy...................fossf - Jan 7

    Lulubelle1 - Jan 8 Happy............. lescover - Jan 8 Happy.......................  Nancy6540 - Jan 12 .Happy

    Saltygirl - Jan 12  .......................aj103014 - Jan 12 Happy.................... Fionascottie - Jan 13

    Magdalene51 - Jan 15 .............. quiggy - Jan 19 ................................. Annie88 - Jan 19

    chtease - Jan 19 ....................... Bippy625 - Jan 20 Happy......................Dacre - Jan 20

    feelingoverwhelmed - Jan 20 ....KYBLUEEYES - Jan 20 ....................Beachbum1023 - Jan 22

    Cavalier - Jan 22 Happy................ mqt64 - jan 26 ................................ Sjacobs146 - Jan 26

    Windgirl - Jan 28 .......................  Hotdogmommy - Jan 29

    February Start

    JeniferE - Feb 1 .......................  LARock - Feb 2 ............................  Chrissie29 - Feb 2

    gemmafromlondon - Feb 2 Happy.keri71 - Feb 6?.............................  ladyb1234 - Feb 9

    CassieCat - Feb 12 .................. Texas94 - Feb 16 ........................... Leslie58 - Feb 16

    farmerma - Feb 23 .................... Dotwithkitties Feb 23 .................... SunnySydeUp - Feb 23

    Allmodestyisgone - Feb 24

    February Start Dates Not Known

    intothewoods - Feb ?..................... MaggieCat - Feb ? ..................... ThinkingPositive - Feb ?

    March Start

    WheelyGirl - March 2 .................... Kayfry - Mar 4 ............................  Booklady1 - Mar 9

     zjrosenthal Mar ? .........................  Redhead01 - Mar ?

     

    Special Sister Warriors and Warriors who stopped for a visit, but for various reasons didn't stick around. No start date determined.  We wish them well.

    Minnielee; surrrana99; Coloradocancermom; Shuf; bjeaneg, knittingPT, Shayne36, KGotThis, ckr1956, funthing42

    Mary59G Happy- No Rads needed !!

     

    Happy= Reported Complete

    ThumbsUp = Should be Complete by now.

     

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  • mqt64
    mqt64 Member Posts: 103
    edited February 2015

    Congratulations lescover! Sounds like great celebrations.

    Bippy, you go girl! We always knew you would make it!

    Annie88, congrats to you too!

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  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited February 2015

    Have a super wonderful day, Bippy!

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  • WndrWoman
    WndrWoman Member Posts: 333
    edited February 2015

    Bippy625. I can hear your celebratory cheers all the way in RI. You made it!

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  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Going Morning Ladies! This is the last week of February!! Spring is just around the corner, and the end of rads is coming. I have #20 today, and I have a rash on my chest, and the armpit is pretty red. Looks pretty tanned otherwise. I'll be glad to get this behind me. I hope everyone had a great weekend. Now it's Game On for 5 more days. We got this!

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  • Dotwithkitties
    Dotwithkitties Member Posts: 8
    edited February 2015

    Hey Farmerma and SunntSideUp, we all had our first treatment today. Uneventful for me, I did follow everyone's advice and slathered up with aloe before getting dressed. Does anyone know why they had signs up warning you to tell the therapist If you had left the country recently? what would traveling have to do with radiation? I will have to ask tomorrow.

    Bippy, party hard tonight, you deserve it!

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  • Mary59G
    Mary59G Member Posts: 139
    edited February 2015

    Hi there, maybe some of you can give me some insight on radiation??? I have an appointment in the morning with a radiologist. Not sure what I should be asking or anything..........please any advise will help me. Very nervous!!

    Thanks.........looks like you all are doing well.

    Mary

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  • JustJean
    JustJean Member Posts: 327
    edited February 2015

    The reason for the travel question is because of Ebola.

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  • ThinkingPositive
    ThinkingPositive Member Posts: 834
    edited February 2015

    Mary59G...are they recommending radiation for you? I see you had a mastectomy with one node positive. My diagnosis was similar. Just finished chemo and need to make a decision on radiation. I wasn't sure what to ask either. Once they told me I was in gray area...you start to wonder. My concern was reconstuction, I have a tissue expander and will be going for an implant. The radiologist talked about the whole procedure then told me I was in a gray area.. and it was my choice. Its almost three weeks which is when I should be starting and I still am not decided. I went back again to ask questions and she basically told me that she was not recommending that I needed to have the radiation, but I am still worrying about it. I am curious to know what your RO tells you... Please post!!! I was very nervous as well.

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  • ThinkingPositive
    ThinkingPositive Member Posts: 834
    edited February 2015

    Does anyone know how long you have to start radiation after last chemo. I thought they told me 3 weeks...but I am not sure. Still Thinking about radiation..I am one of those in the gray area. What happens if you change your mind to do it and the 3 weeks is up. Also is there anyone out there who had mastectomy and did radiation? Were you told that it was recommending or was it your decision. My three weeks is Thursday and still have not decided. Help!!!!

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  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Thinking Positive, I had a mastectomy 12/15 and started rads 1/26. But I'm Stage IV. So pretty black and white for me I guess. I have 28 by script, and then she will see how my skin is holding up before she decides if I need to do the boost. But I don't have much left to boost. I do have a bolus every other day. But my armpit is starting to turn dark red/brown and I have a rash on my chest that is so itchy, like poison ivy itchy! Annoying if anything touches it. I guess a lot of things would play into the decision like your age, reconstruction, work/home life, stage, grade, etc. But they did tell me that if I refused to do it, the window would close and I go on to chemo again. Not sure why, but I was going to do it anyways. Living and doing rads was a pretty easy choice for me. I am more concerned about the heart damage from Adriamycin than going to rads. And yes breathing and coughing is a side effect of heart damage. So meds and a new ECHO every 3 months for life for me. Not too sure if I hate the disease or the side effects more!

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  • ThinkingPositive
    ThinkingPositive Member Posts: 834
    edited February 2015

    beachbum..so sorry for what you are going through.. the heart damage was one of the reasons that I opted not to do ACT..I feared that since I have high blood pressure, murmur and a slow leaky valve. Hope everything goes well for you. I just don't understand ro telling me that" I am not recommending that you need to have it, its your choice" . She tells me it was a good surgery, 10mm clear margins.. small tumor, 11mm, Then I had one positive node, 8mm which she said is samll with extracapsular invasion, but 16 others negative, So she does not think I need radiation to the auxilla area, if they were to do radiation she would do only clavical area where no nodes were removed and the breast. I have tissue expander, going for final fill tomorrow and not sure I can take the TE for another 6-8 months, it feels like it is going to explode now.

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  • quiggy
    quiggy Member Posts: 315
    edited February 2015

    Hi Mary59G,

    Understanding that you're nervous, it's part of this crummy disease process.

    To answer your question; make a list of questions because it can be overwhelming. Take someone with you if possible.

    I researched about the SEs, methods etc and asked direct questions relating to temporary issues (skin, pain, etc) and to long-term or permanent issues like lung and heart damage.

    You can see from our board that some ROs are open, honest and good partners, sadly others are not.

    It's your body, feel empowered to push back. Use what works for you for skin care, you know your body.

    How many treatments? Boosts? What time for the appointments? How can you reach help after hours? Contact numbers? What if you can't come in?

    You'll become familiar with the drill pretty quickly.

    Good luck my sister, I hope you have little/no SEs! Speed through, you'll be done before you know it.

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  • quiggy
    quiggy Member Posts: 315
    edited February 2015

    congrats to all who have recently finished!! Happy for you and I'm sending you best wishes for a quick return to good health and happiness!

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