Winter rads 2014-2015
Comments
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Bippy625. Remember to dab the Silvadene on. Do not rub. It is kind of messy. Takes a long time to absorb and dry on the hurt areas. Much quicker where just pink or tan. Ideally put it on and keep the area exposed to the air for a while. Then try a loose t-shirt. Hope it helps. Just 3 days. You can do it.
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Bippy, just 3 more days then healing can begin. You got this girl! I have been following the steps u posted last week and it is working to remove the heat!
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Thank you for the welcome Coyote NV and Wonder Woman. I am grateful that my RO gave me the RX, as I have had no skin burns. One of guys there said that they started prescribing it 2 months ago, with great results.
It is true Texas is huge! It takes forever to get out of the state. I live as far south as you can go before hitting the Gulf of Mexico. My driving for rads is almost over, as today was 23 of 28. Yay!! I am hoping it has gotten rid of every last bad cell
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Bippy, you got this. You can do it. We toughed our way through chemo and surgery, and we can do this too. 3 more...go get em', and then be done. {{hugs}}
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Bippy good luck with the remaining three, you are almost there.
I did #15 today, I have 10 more full breast and 8 boosts so 18 more to go
up until 3 days ago my skin was fine and soft just slightly pinkish. Over the last 3 days my skin has dried up and feels rough, some areas are peeling, though very thin, and I am definitely tanned. Saw RO today and he mentioned I could get sores right under my breast (where peeling is most). Weird thing I got the same peeling on part of my upper arm, he tried to blame deodorant but I have not worn deodorant in a while so finally said it must be them then. Scary! I wonder where else this stuff is going. He only recommends aloe at this point still, said again it was not so much the aloe itself but the increase in circulation while applying it that helps in his opinion. Also he said to expect my skin to get rougher especially above the breast. Today I had to drive 3 hours and was wondering if in fact that could be because of the seat belt. It is the same area and we all pretty much drive to rads and back daily. Probably not but I wondered.
Work is super busy these days, helps keep my mind off bad things but at the same time very tiring. I've worked pretty much till midnight for the past 10 days including the weekend. I was telling the rads techs that rads was the highlight of my day as I got to leave the office for a bit, see the afternoon light, and listen to some music while getting zapped
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RO told me I would have 28 tx plus 5 boosts. Today they did the set up for the boosts which are scheduled to start next Wednesday. As the RO is drawing on me she tells the techs, "This area is the first week, and this area is the second week." I'm freaking out. 10 boosts? When was that decision made, and why wasn't I consulted, or at least informed? These people know I have to arrange rides, and my rides were told one more week, not two.
I am not a happy camper. I'm hurting, and skin under arm started sloughing off today. Whole area very tender.
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Good evening Rads Ladies - sounds like everyone is making it through to the end! Keep going, we will all make it to the finish line!!
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magdalene51, so what was the ROs answer? I haven't heard of 10 boosts before.
My RO noticed a red patch under my armpit. I was given some bacteria killing soap to use on the area 2-3 times a day. I didn't feel it befor, but now that they've pointed it out to me, it's been itching. I know that it's all in my mind, sigh
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mags, what crap. It is like we are a piece of meat at times, yes? Uhhhhm, we are living human beings. What a holes.
We will make it, all of us. Now that it is 3 to go I am weirdly looking forward to arguing with the RO and doing tx today. So over it! And he will benefit for all my pent up anger and frustrations. Well, another reason to WRITE THE RX. Also, He lied and or minimized the possible SEs.
wishing healing, pain relief, emotional peace to all my rads sisters. The support, care and understanding from you all is at times, the only thing that gets me through.
So.....now we can maybe get ready for the daytona 500 (derderder) and the Oscars!
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I talked with my surgeon yesterday about all the variance we have seen with the radiation burns to skin. He said that he has seen that with his patients also. I told him about our group and the discussions we have had. He is very interested in it. People rarely discuss it as a group problem. They are generally mentally involved with their personal situation. In our visit, he said it is accepted thought that it is basically the difference in every individual's skin sensitivity. Reading between the words, I got the impression that it has not been greatly investigated. He is a such record keeper ~ he has notes of everything I have ever said to him. Our other doctors are an additional resource for our investigation.
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Bippy625, that does look painful but only 3 more. I am certainly sorry for your pain, but also jealous of only 3 more. Somehow being done or close to it and not dependent on the doctors for daily care makes it easier to speak up. I am looking forward to setting up an appointment with my surgeon to explain what methylene blue in the wrong place does to a woman's breast. "I've read about it but never saw it " he said so cavalierly. Then he said, "See you in 6 months ". I have lots of pictures to show him! If my mo hadn't taken care of it I would still be waiting for rads because it was never going to heal on its own.
Magdaline, I never heard of 10 boosts. I was surprised enough to find out I was having 5. Let us know what your ro says.
Good news, bad news, my ro says my blistered area will be out of the field for boosts but between now and then it will get worse. At least he is honest. He recommends hydrocortisone cream (steroid like the Mometosone cream), aloe, and leaving it open to air as much as possible. Only 7 regular and 5 boosts to go.
Thanks for the well wishes for my nephew. I like the cancer stomping boots idea! Apparently he is looking at surgery, chemo, and a stem cell transplant.
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As upset as I am about 10 boosts, what upset me most is how I found out about it – by hearing the RO tell the techs as she's drawing on my chest like I'm a slab of meat. I saw her the day before and she never said a word about it. And she knows I have to arrange for drivers. Grrr. When did she make that decision, and couldn't she have practiced some common courtesy by informing me rather than letting me find out by overhearing her instructions to the techs?
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magicalbean, boogity boogity boogity!
Coyote, thank you for asking your Ro and sharing. i want to be klassy with a c today and make intelligent, polite questioning in kind to mine. Luckily, I found an emergency xanax, so will be calm and unragy. I truly want to know--how many patients get burnt like me? They need to be honest. If I had known, I could have taken it better. Now, I feel like I cannot trust him. Liar or master of omission?
Mqt, ugh. Terrible nonresponsiveness. Am glad your other doc was better.
Mags, after all you have already been through, it is vile treatment. They do not listen. It is all rote to them.
As I sit here in my old, drafty house, it is 50 out and cold for us. Wearing a tank and airing out my arm, moisturizing, trying to cope, I cannot help but wonder if I even need the last 3. RO says so, but how can I trust him? Am I just frying tissue for nothing
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Mags. You are right about how you should have been told and that should include the reason for the number of boosts. I hope you will say something to the RO. My RO said lots of patients do not want to know much. Also an RO needs to be a detail person into scientific precision. That means some will not have great people/communication skills. Not an excuse of course. Up to us to educate them.
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Bippy, you need to bring in warmer weather for Sunday!!!! Crank it up!!!!!!! GO Edwards!!!
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mission hydrocodone accomplished. Bippy will sleep the sleep of the pain free righteous tonight. Well, at least less pained....i shook the bottle like a maraca and did a happy dance in the kitchen till my armpit zinged me and I had to quit.
2 more to go.
Nomatterwhat, backflips are comin
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Hey Bippy, Congrats on the goodies! I hope you sleep all night! It is -9 here tonight and the windchill is going to -20. I am going to hunker down in a soft furry blanket and try to stay warm! The wind is just brutal coming across the Lake. But I went to rads #18, and a little more tan but the armpit is looking a bit toasty. Spread on the Aquaphor, I hope it helps. I feel like a greased pig......yuk!
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I'm about to embark on my personal journey through radiation soon. I've been lurking on this wonderful site for a few weeks now. I am inspired by the strength, courage, humor, and support you all share with each other. I'm amazed that several of you have already reached the halfway point of your rads since I started following this thread. I hope time flies by as quickly for me! The beginning was a whirlwind- diagnosis, shock and fear, surgery.... Then a bit of a lull waiting for the plan to fall into place. Now, I'm ready to get started! I got this
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only 2 left! Ouchies.
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Hi SunnySydeUp and welcome to the board. You absolutely "got this!".
Some of your bc sisters have sailed through treatment, others have not. We're all unique and I think one of the benefits of sharing is so you'll be aware and not worried if things go off track. Normal is relative. Lots of great insight and advice here too.
I wish you smooth sailing!!!
If you need us, we're here.
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I'm at 6 done now. I'm using calendula gel daily, after my treatment, and aloe at night. It might not help at all, but I don't think it's going to hurt either. And if it helps at all, then it's worth it.
SunnySydeUp, welcome. I hope it goes smoothly for you.
Bippy, ouch.
I'm so bummed for you. I hope it heals quickly once you're through your last two treatments.
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Bippy625;
You're almost there! I'm super happy for you. Sorry it's been crapy for you. I'm burning in the same area, 11 to go for me. You've inspired me to push on, I seriously considered quitting.
I'm pissed at the RO, she's a dismissive you know what! I am too emotional and nervous to speak up now but my plan is to do so, with enthusiasm, when this is done.
I admire and respect your bravery.
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Good evening Ladies, what a group! We got this. I finished #18, and it is looking good for now. My chest is tanned and my armpit is a little red. The shoulder is a little stiff, but I am back to doing my exercises. So I hope it keeps going well. I put the Aloe gel on before I leave rads, and then I keep putting it on during the evening. I put Aquaphor on when I go to bed. Greasy but if it works, I'm all good with it. In the morning its a shower and Aloe, and then I put it on again after rads.
Have a comfortable evening!
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Bippy625;
You're almost there! I'm super happy for you. Sorry it's been crapy for you. I'm burning in the same area, 11 to go for me. You've inspired me to push on, I seriously considered quitting.
I'm pissed at the RO, she's a dismissive you know what! I am too emotional and nervous to speak up now but my plan is to do so, with enthusiasm, when this is done.
I admire and respect your bravery.
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bippy that looks painful
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100% aloe gel after RADs in the PM and in the am. Aquafor sometimes and recently, 2% lidocaine gel two to five times a day. A coworker did this treatment and did -0- gels or ointments and she got a little tan, nothing else.
No rhyme or reason to any of this!!!
BTW, my agency has 250 employees and 6 of us have bc.
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Hello everyone! 24th down and 4 to go, unless there is some surprise treatment! The drive is really growing old, but it could be worse. Bippy, that looks very sensitive- ouch!I don't mean to overstep, but maybe you wouldn't mind answering Quiggy. What type of agency do you work for? I am a counselor at an elementary school
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Annie88, I work for a government agency, state level. It's a demanding position and of course, legislation is in session and we are presenting budgets. No option to call in sick. I commute two hours a day and my treatment center is in my home town, yay! Today I was an hour late to treatment because of work and traffic. The techs were so nice about it.
Can't wait to be done!!
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I am so sorry that more of us are having the worse side effects. I was hoping that none of you would have to go through what I did (and still am, over 4 weeks after being done).
Lidocaine is your friend. Use it liberally. What worked for me was to slather the no-stick bandage with Silvadene and put it over the lidocained (is that a word? It is now!) area. It stuck better to the bandage (used a q-tip to smear it on there) than trying to put it on my chest.
Hugs to all.
My appointment with my RO for tomorrow got cancelled and is now next Friday. She's going to hear an earful from me, I can tell you that. I am so so so not happy with the lack of information and support that I received, and I'm going to tell her so. The unfortunate thing for me is that this place is the closest to my home in the Cleveland Clinic system and I would like to not have to travel any further than that when I need rads for the bone mets in the future. This means that I am limited to one of the 3 ROs there. One I know I would never have. I'm not happy with mine. And the third one is the one who was on call the day I called in and he is the one who never called me back and caused me days of extreme pain. No good choices.
Skin is healed. Inside is not. Doing my exercises, though, and that is going ok. And I woke up on the right side of the grass this morning and I am grateful for that.
Talked to my supervisor today and told him that if I can get everything worked out I will file for disability at the end of summer so that i can be there for our crazy busy time (I work for a city government in the Engineering/Building department and summer is nuts) and so I can train someone to do the things that right now only I know how to do. He was very supportive.
Cancer sucks.
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