Pinched nerve or bone mets?

Hi everyone,

My wife is a little over 4 years out from diagnosis of Er- PR-/Her2+ cancer. Last month she was lifting our 38lb daughter from an awkward position and pulled something. We ended up going to the dr. that evening and he diagnosed her with a muscle strain and she got a prescription. Then the holidays came and went and everything seemed ok. It started bothering her again recently but we didn't think anything of it until she had a regular follow up with her oncologist. She had been trying a chiropractor and it might have helped a little but her onco referred her to a neuroscience center here to have them have a look.She had just had her 2nd mammo of the year and it was all good.

She has had a cold for the past 3-4 days and was taking Dayquil but day before yesterday she felt better and stopped and yesterday afternoon her shoulder/neck started hurting again her arm on that side gets a tingling sensation off and on. Now we are in worst case scenario mode hoping to god it isn't metastases. Her oncologist could have easily scheduled an MRI at the hospital where the follow ups are but I'm hoping that she doesn't feel it was necessarily an issue. We didn't hear from the neuroscience center as we were told that they would contact us. Naturally this all happened late on a Friday so we have the weekend to let this all steam.

Of course Dr. Google is the worst place to go and that is just where I have been.

Does anyone have any words of wisdom they might be able to share regarding met symptoms? I just look at our young kids and try to keep my mind occupied with non cancer thoughts.


Thanks

«13456

Comments

  • vlnrph
    vlnrph Member Posts: 1,632
    edited January 2015

    Sounds like the analgesic in the cold medicine took the edge off her discomfort. Did she restart plain acetaminophen (without the decongestant/antihistamine, etc) for relief?

    Keep in mind that lymphedema can affect the upper torso as well as the extremity if she had surgery or radiation on that side. LE often feels like tingling or tightness without much visible swelling.

    MRI does not always give a clear answer: it is sensitive but not specific. In other words, something might show up however it may not be significant or important. Further investigation would then be contemplated, perhaps a bone scan or CT. I myself had both of those a couple weeks ago due to elevated serum calcium levels. No evidence of skeletal metastases was found so next I go to an endocrinologist who will examine my parathyroid function. Since some small lung nodules were seen, there will be repeat studies every few months until they are determined to be stable.

    In addition to pain, another physical sign such as fracture would be a clue that the disease has advanced. For spread to the brain, headaches can be an indicator. Abnormal labs=liver concern.

    She is very fortunate to have a concerned hubby. Both of you try not to worry. Your specialists will order the correct diagnostic tests to rule out the worst and then you can address the real problem, hopefully a "pinched" nerve! The shoulder is a notoriously unstable joint and easy to damage even for non-football players. Physical therapy & proper exercise have been helpful to me in the past.

    Let us know what you find out.


  • BayouBabe
    BayouBabe Member Posts: 2,221
    edited January 2015

    Please take your mind off of bone mets. I have had a herniated disc in my neck that presented itself in the same way. Sore neck and shoulder, occassional tingles down my arm, even started dropping things due to numbness. An MRI showed the slipped disc in my neck, as well as degenerative disc disease. Mine was so bad that I ended up having my discs fused together and a plate and screws put in. Many people do fine with just PT, time, and/or a cortisone shot. Never wished a herniated disc on anyone before, so this will be my first. Wishing you herniated and not mets. Hugs as you wait for answers.

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2015

    Als, if I was in your wife's situation, I would report the pain to her oncologist and let him or her decide if further testing is merited. Chances are what she's dealing with is muscular, but as a bc survivor, it's entirely reasonable to ask her onc about the pain, and let him/her decide if a scan or a CA27-29 or liver function tests (AST & ALT) would be prudent. A combination of those tests should give everyone a pretty clear picture of there's anything concerning going on, or if she can proceed with a chiro or other back care without the fear of mets looming in the background.

    Good luck, and please keep us posted! (((Hugs))) to you both! Deanna

  • Als920
    Als920 Member Posts: 89
    edited January 2015

    Actually it was her oncologist who referred her to the neuroscience group because of the painful episode following the initial incident from lifting our daughter. We just got the neuro appointment and it is 3 weeks from now (the onc's office had not placed the referral yet). The main thing giving us some relief is the lack of urgency on the issue from both offices. The pain is not constant but bothersome and simply plants the "what if" seed.

    We have full faith in her oncologist as she has ordered scans in the past for other pains/issues when she had concerns so now we wait. As I had noted originally, If there had been a true concern I would hope that they would have ordered an MRI/bone scan at the hospital where the follow ups are done rather than referring to a neurologist. She has had MRI's at the hospital in the past and they were able to schedule them fairly quickly.


  • Als920
    Als920 Member Posts: 89
    edited January 2015

    Is it safe to assume that if our oncologist did not order any tests at the hospital where the follow up was done and we were referred to a neurologist for evaluation of the pain that there is some comfort they do not feel it is metastases? As I had mentioned before it just feels strange since they could have ordered an MRI or the like within a day or so at the hospital rather than the referral. With the neuro center appt 2 1/2 weeks out I just can't help thinking "what if" as the discomfort by her shoulder blade keeps hanging around? Not necessarily painful, but there. I have tried to push my wife and see if she'll see our family doctor who might go ahead and order the tests but she says that we have already have an appt with a specialist so lets just wait.

    Thoughts?

  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited January 2015

    I was told by my oncologist that the reason you don't see many mets to muscle is because muscle tissue is not very hospitable to cancer. That doesn't mean it never happens though. Something to add to the equation. I had a PET/CT that showed a possible shoulder muscle that lit up, but it was thought to be a misregistration between the pet and ct, and since it disappeared on the next pet/ct, that seems to be correct.

  • carpe_diem
    carpe_diem Member Posts: 1,256
    edited January 2015

    Obviously there are lots of things this can be, but just because you feel muscle pain doesn't rule our bone mets. I've had lung mets for 4.5 years now and blood tests showed increasing alkaline phoshatase for the last year. A bone scan in June was considered negative for mets, but then in October I reached up to hug a very tall houseguest and developed rotator cuff tendinitis. Then a CT scan in December showed an osteolytic lesion on the scapula and the current thinking is that the bone deterioration made the rotator cuff problem more likely. Looking back at the June bone scan, there was a small shadow on the shoulder blade that wasn't noticed at the time. I hope yours is something more easily handled, but I'd certainly ask your onc about scanning to set your mind at rest.

  • Als920
    Als920 Member Posts: 89
    edited February 2015

    Well, this time next week we should know something. Our neuro appt is this Friday and the emotional ups and downs of the "what ifs?" have been steady keeping our anxiety up.

    The shoulder blade pain and arm numbness is not constant but is still lingering. On top of everything else the appt falls on Friday the 13th!

  • BayouBabe
    BayouBabe Member Posts: 2,221
    edited February 2015


    Als920 - keeping you in my thoughts and hoping for the best possible outcome. Let us know what happens. ((((hugs)))) while you wait. (Long story, but 13 is now my lucky number. Sharing some of that luck with you!)

  • Als920
    Als920 Member Posts: 89
    edited February 2015

    Well today is the appointment with the neuro-science center. She has not had any acute pain since they called to make the appointment, just the occasional reminder that would come from shoulder blade discomfort and arm numbness. We truly pray that this is related to the lifting incident back in November when she was lifting our daughter and not what all of us are scared of. Again, we are clinging to the expertise of her oncologist who, as I said in the earlier post, had ordered immediate scans in the past when she found anything that gave her concerns. The fact that she told my DW that she wanted to refer her to this center for her shoulder issues instead of her seeing the chiropractor that she was gives us hope. The onc could have ordered the tests for the next day at the hospital if she thought it was serious, right? We had an MRI done there 2 years ago that was ordered by her.

    Anyway, I will stop rambling because it either is or isn't and now we can only wait and see what happens. Looking at the clock and knowing that we will have some sort of news in about less than 5 hours.

    The anxiety meter is starting to redline.


  • Als920
    Als920 Member Posts: 89
    edited February 2015

    More waiting ahead. The neuro center has scheduled an MRI for late Tuesday afternoon to specifically rule out recurrence.


  • sandilee
    sandilee Member Posts: 1,843
    edited February 2015

    This is smart. An MRI will show mets if they are there, for sure. Crossing my fingers that the results are clear!

  • Denise-G
    Denise-G Member Posts: 1,777
    edited February 2015

    Als920 - more prayers for you and your wife! 

  • Als920
    Als920 Member Posts: 89
    edited February 2015

    Thank you.

    This is just unreal. I am a cancer survivor as well and have my 6 month follow up on Monday. So we will both be having scans within 2 days of each other and try to keep it together for the kids sake while we wait. We were both initially diagnosed within 3 months of each other a little over 4 years ago. This is so stressful and this would be/is going into year 5 which is the magic number right?

    A lot has happened this week, and not on the good side, prior to this so I just can't imagine that life would deal this to us. Is the MRI being requested the standard for something like this or do they suspect something that they are not letting onto?

    I'm somewhat at a loss even though we don't know anything other than the doctor ordered an MRI to rule out a recurrence based on the cancer history. They prescribed steroids for her and have set up the follow up for treatment as though the recurrence was not an issue but she's not going to fill the script until she gets the results and I agree with her. Now we just have to put on the happy face for the weekend and make the best of it as though nothing is going on. Our children are both young and they are weighing very heavy on both of us if this were to be true. Our oldest was just going into preschool when we were diagnosed so he doesn't really remember and our daughter wasn't born yet. My wife was 36 weeks pregnant with her when she was diagnosed.

    Sorry to vent. Hope everyone has a good weekend.


  • Als920
    Als920 Member Posts: 89
    edited February 2015

    Neuro diagnosis sheet says "brachial radiculitis nos-primary".

    Is this common as a metastases possibility? I know that technically it is not but just curious if anyone out there has had experience with it?

    Thanks

  • Als920
    Als920 Member Posts: 89
    edited February 2015

    Answer to my own question is yes after consulting Dr. Google. This diagnosis is fairly rare but is very often a tumor issue.


    I just dropped our 8 year old son off at a birthday party and got teary eyed watching him with all of the other happy children. It just hurts wondering if this is the last time he gets to feel like a normal, happy little boy for a while? I can't think straight at this point, my mind is clouded with the "what if" and I can't seem to push it away. This time last week we were so happy and this entire week has been awful with the MRI being ordered on Friday taking it all to the next level. Nausea seems to be my constant companion.

  • Als920
    Als920 Member Posts: 89
    edited February 2015

    Ugh.

    The MRI is at 3:15 tomorrow and we are about as scared as we can be. The internet is not a helpful thing in times like this but the constant desire for something positive keeps me looking. It's a slippery slope that just makes things darker (except for this site which I am very grateful for).

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited February 2015

    Just wanted to tell you that you and your wife and family are in my thoughts and prayers. Do yourself a favor and stay off Dr. Google. Worry will not help anything. I worry a lot and fret too so I understand but I have to tell myself what will be will be. Worry won't help ANYTHING!! My grandma used to tell me don't let tomorrow's worries rob you of the good that's right in front of you today. Lots of deep breaths, chocolate and wine helps too. Hang in there. Let us know how both of your tests go. (((((HUGS)))))

  • Als920
    Als920 Member Posts: 89
    edited February 2015

    Today is the day and I don't know that I have ever been this scared in my life. I feel like I just want to go back a few months to relive the happy times again when there was not fear and tears.

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited February 2015

    Hang in there! We all understand the fear, trust me. Praying for you guys!

  • Alicethecat
    Alicethecat Member Posts: 535
    edited February 2015

    Hello Als

    I know this is a worrying time for your wife and yourself and I feel for you both.

    Sometimes, I get similar symptoms and I looked up the causes and came across something called Piriformis Syndrome - http://www.webmd.com/pain-management/guide/pirifor...

    I tried the stretching exercises and it eased off.

    Hope this gives you something to hold on to while you are awaiting the MRI and the results.

    After having a brain MRI in 2013 - thankfully all clear - I know a little of what you're both going through.

    Hoping for good things for you both

    Alice


  • Als920
    Als920 Member Posts: 89
    edited February 2015

    Thank you Alice.

    She was already given an initial diagnosis of brachial neuritis and prescribed steroids for inflammation. They are doing the MRI to rule out mets.

    The scariest part was looking up that condition and seeing that it is fairly rare and is a common symptom of mets. I am still holding out for the cause being the lifting incident she had with our daughter in November which is when this all started.

  • new_direction
    new_direction Member Posts: 449
    edited February 2015


    Hi Als Is it possible that it is caused by radiation? If she had any?
    I know I have gotten that tingling feeling in my arm and fingers if I have forgotten to rest/put to much pressure on. It could sound like the muscle strain has started it all. Im hoping that is the case and that you get an answer soon.

  • Als920
    Als920 Member Posts: 89
    edited February 2015

    She did have rads to the chest on that side, that was 4 years ago.

  • Als920
    Als920 Member Posts: 89
    edited February 2015

    Here we go.

    The MRI is done and now we can do nothing but wait. Not sure what to do if this goes the wrong way.

  • sweetbean
    sweetbean Member Posts: 1,931
    edited February 2015

    Hey there,

    I had a bad scare last year - I went to a kickboxing class and hurt my back, so I had all this lower back pain. It turned out to be sciatica and piri formis syndrome, but I remember how scary all the tests were. I'm 4+ years out from Stage III and still cancer-free. Praying that your wife has good MRI results!

  • Als920
    Als920 Member Posts: 89
    edited February 2015

    thank you.

    I feel optimistic right now but it's actually making me even more uncomfortable.

    We've had a string of bad events over the last 9 days and I cant process much more negativity.

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited February 2015

    Did they say when the results would be in? Have you gotten results from your scan yet? Thinking of you

  • Als920
    Als920 Member Posts: 89
    edited February 2015

    they said we would know today.

  • shelleym1
    shelleym1 Member Posts: 298
    edited February 2015

    please post as soon as you know. I'm keeping you in my thoughts.

Categories