found report online. BIRAD5

Options
windingshores
windingshores Member Posts: 704
edited February 2015 in Waiting for Test Results

Report: Any comments? (I just took 1/4 xanax because we are still snowbound!) Thanks. I know what I am in for and have started planning.

MAMAC/DIGITAL BILAT DX MAMMOGRA Highly Suggestive of Malignancy

Attending Radiologist: xxxxxxxxxxxxxxxxx

Clinical History: Annual screening, lump in the upper outer

right breast.

Findings:

Mammography and ultrasound:There are scattered fibroglandular

tissues bilaterally (25-50% fibroglandular). On the right, the

patient has developed grouped microcalcifications in the

posterior third of the upper outer right breast, surrounded by

increasingly dense tissue that has ill-defined margins, possibly

a mass. There is no evidence of left-sided mass, architectural

distortion or grouped microcalcifications.

Further evaluation by spot magnification views of the right

breast demonstrates a persistent mass with indistinct margins

containing internal calcification, approximately 1.1 cm in

diameter.There is no skin thickening, suspicious cluster of

calcifications or dominant mass on the left.

Left breast tomography demonstrates no evidence of suspicious

mass or architectural distortion.

Ultrasound: There is a 1.2 cm solid mass in the 11 o'clock

position of the right breast 6 cm from the nipple, corresponding

to the palpable abnormality on exam.This is circumscribed and

mildly heterogeneous, with several internal foci of color Doppler

flow.There is no evidence of adenopathy in the right axilla.

Impression:

New suspicious pleomorphic grouped calcifications in the right

upper outer breast with associated sonographically visible mass,

corresponding to the area of palpable abnormality indicated by

the patient.Ultrasound guided biopsy recommended for further

evaluation.

This was performed in a separately dictated procedure immediately

followed the diagnostic exam.

ACR BIRADS CODE 5 - Highly suggestive of malignancy

Result Code: 5

Follow-up Code: B

Comments

  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited February 2015

    I guess, to state what you already know, the radiologist thinks there is a high probability of cancer, but is not sure. I believe that birads 5 means an 80/20 percent chance of cancer. Still, many are in the 20% and a lot of them post here and then find out it is benign. If, God forbid, you are in the 80%, please know it is not the end of the world. Treatments now are much better, more targetted, easier to tolerate and then there's us--the greatest support community ever. Here's hoping you don't join us, though.

  • windingshores
    windingshores Member Posts: 704
    edited February 2015

    One site online says BIRAD5 is 95% sure of malignancy. I was ready for that, in a lot of ways. I guess now it depends on node involvement and so on.

    I would be happy to get the years you have, Winning so Far. I had my kids late and if they could all make 30 with me still here I would be happy.

    Not projecting out too much (!) just the bottom line.

    You must have strong spirit. You've been through a lot.


  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited February 2015

    Sorry about the wrong stats, windingshores. I was just going on memory. Still, we have had birads 5 women with b9 results. It does happen. It sounds though like you have crossed the Rubicon, meaning you have accepted the possibility of having breast cancer, and are now looking at the other prognostic factors. That's the first real challenge, psychologically, being able to look ahead with some hope. I'll say this--women here have had terrible prognostic stats and have still lived for years. I have, for example, and there are ladies here who have had it much worse than I have. Still, we live on and laugh again and forget for long periods of time we even have cancer. You will too. BTW, I have a grandson who is 30 so I can't say that I haven't lived a full life, even if it hasn't been terribly long (so far). I'm 67, look somewhat younger, feel older most of the time, but still 'truckin' on.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2015

    I had a BIRAD 5 too. I'm 4+ years out and doing great. I wish you the best and that this will all be behind you soon, no matter what the outcome. :)

  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2015

    winding shores,

    Pop the rest of the happy pill & go to your calming place. We do hear of birad 5 turning out b9. But, I agree with you, it seems unlikely.

    Being dx, having surgery, making the necessary decisions is a roller coaster. Your nauseous & you want off. I did not find this website until I was almost done with chemo. It really is a lifesaver, you can be honest, & we all get it. Friends & family try, but they are not living with the anxiety & treatments.

    Hopefully your nodes are not involved, and if you need chemo it will be chemo-lite.

    I was dx stage 3, extra nodal extension, so I had aggressive chemo. It was not something I would want to repeat, but I sure am glad that my body was able to tolerate it. I do not have confidence that it is not hiding somewhere in my system. But life moves on, and I am lucky compared to many much younger women.

    Lots of different threads here. If needed ( hoping it's not ) find the group that starts when you do. ie, March surgeries, or April chemo group. I hang out with a very diverse group of women on the INSOMNIACS thread. Everyone is welcome. We have ladies post that are all stages, and are very supportive.

  • windingshores
    windingshores Member Posts: 704
    edited February 2015

    Thank you! I had my kids late (one at 35, one at 40, one at 42) and am now almost 64. They are my biggest concern. I am still very involved with the youngest two (daughters) due to their major health challenges (described on another thread).

    I have done pretty well until I saw the report and that threw me, but I had to look at it. In only two days I will get the biopsy results and I just want to be ready to move quickly.

    I shouldn't be thinking about them beinig without me. It is involuntary and I am trying to stop. If we did not have 6 feet of snow and wind chill of minus 20 it would be easier to distract myself! I do know the statistics for making it 5 year are pretty good for most stages.

    This site is wonderful. Thanks and you are all inspiring. In a little while I hope to be helpful to someone else :)


  • muska
    muska Member Posts: 1,195
    edited February 2015

    Hi windingshores, based on your weather report you are probably somewhere around Boston. BIRADS5 is not what one wants to hear, but on the positive side the mass they noticed does not appear to be large.

    Good luck to you and PM me if you have 'local' questions.

  • marie5890
    marie5890 Member Posts: 3,594
    edited February 2015

    Ok Deep breath. With a BIRADS 5, more likely thank not, you will be getting a cancer Dx. On occasion, a BIRADS5 comes back b9, but that is not typical.

    SO, with that in mind, a few things.

    1)"breast cancer" is an umbrella term that cover a whole host of different kinds of cancer that can affect the breast. I think there is about 22 different kinds. With that in mind, it will take some time for *your* cancer picture to come into view.

    2) In the "Just Diagnosed" forum there are a couple of thread that can be helpful to you as you get your ducks in a row, while you *wait* to know exactly what you are dealing with One is at the top of that forum put up by the Moderators with links. Another is entitled "Just Diagnosed--Get Prepared". In there you will find some practical advice from what others have learned was helpful them in the initial stages.

    3) Please stay away from Dr Google. a) he is not a doctor b) a lot of what is out there is dated c) again, there are all kinds of cancer that can affect the breast and you don't know exactly what you are dealing with yet

    4) Keep up with the xanax. Even women who normally don't reach for pharmicutial help found that, in the initial stages of their Dx, they needed some sort of anti-anxiety meds to help keep their head and heart quiet. There is going to be a lot of information coming your way. You need to keep your head as quiet and clear as you can while you make your decisions.

    5)This webstie is a great place for information. With that said, I always advise ladies to stay within those forums and threads that best reflects to what they know about their situation. For example, right now I would say stick to the "Just Diagnosed" forum. Later, go to the "Treatment" sections, etc. As you find out what kind of cancer you have (i.e. ER? PR? Her2? ) etc, there are forums for that.

    Hang tight. Keep breathing. Based on the preliminary look of it being 1.1 cm , that would put you in Stage 1 (very early stage). A more accurate determination will come later, but hang on to that. What is seen is small.

  • tgtg
    tgtg Member Posts: 266
    edited February 2015

    Windingshores, The report you posted reads like the one I got two+ years ago, even down to the 11 o'clock position 5 cm above the nipple. Of course, I too hoped I would turn out to be one of the lucky ones whose biopsy turned out negative, but I wasn't! But the diagnosis is not the end of the world, especially when the tumor is small and found early. And being older, as I was too, has its advantages, as things usually move and grow more slowly as we age. So relax as much as you can, live in the present, and if there is a cancer, do what needs to be done to get rid of it. I found that the limbo of not knowing was far harder to deal with than knowing for sure that the tumor would be removed a few weeks later. And as others have said, be careful to avoid unreliable websites that you locate via Google. This is a good source of information, both medical professionals and from other women who have been through what you might be going through. Best wishes to you and your family, TG

  • windingshores
    windingshores Member Posts: 704
    edited February 2015

    Thanks all.

    I am a little more nervous about this than the "palpable" lump:  "grouped microcalcifications in the posterior third of the upper outer right breast, surrounded by increasingly dense tissue that has ill-defined margins, possibly a mass. But I will find out more this week.

    My daughter is having a CTA for a residual effect from a serious brain injury on Friday and may have an important, even life-saving, procedure that I want to accompany her for.  I am still getting up twice overnight to test her blood sugar and should probably stop that soon. My mother has been in the hospital but I am letting go of my responsibilities for her as of today: I talked with my brother. I will go to a meeting with her social worker but she will have to have arrangements for home that do not involve me.

    Your comments about size, and about avoiding Google, and how to use this site, are all valuable. I bought the Mayo Clinic book today for a general overview and have learned a lot. Another book coming from Amazon. This is how I deal with things. Once I have the facts specific to my own situation, I will be able to use this site and other references in a better way.

    In a way, I am spared the anxiety about cancer or not. I think it is pretty clear I have cancer. So I am just waiting for more info really. Thanks again for the hopeful comments, and the realism as well. Honestly, if I can have 5 more years I will be happy. My girls will be almost 30 then.

    Off to take a Benadryl for sleep! Will consider a half Xanax tomorrow, moving up!

    Good luck to others as they wait.

     

     

     


     

  • Sassa
    Sassa Member Posts: 1,588
    edited February 2015

    I had a BIRADS 5 finding on my left breast. Because I had already been diagnosed with cancer in my right breast and had opted for a mastectomy, I was terribly asymmetrical with a remaining over sized left breast.

    I skipped all the rigmarole of follow up testing and biopsies and went straight for a simple mastectomy. All the slicing and dicing of the left breast after removal found only benign conditions in the breast.

    Just a note: I have never regretted going straight for the mastectomy and had a glorious two years going totally flat. I eventually decided to do reconstruction.

  • windingshores
    windingshores Member Posts: 704
    edited February 2015

    Sassa, what a story! Thank you...

Categories