Starting Chemo February 2015

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  • rossileo18
    rossileo18 Member Posts: 245
    edited February 2015

    Beachbum,

    Thanks for response. I did reach out to MO and I she thought not to worry but continue to monitor.

    We are similar in that mine is also grade 3 on the right and also triple negative with a good sized tumor. I'm 59 -- almost 60. In fact, I have AC scheduled for my big SIX-OH. Needless to say, not what I was originally planning on doing that day. The surgeon said that in my case it was better to try chemo first to see whether it shrinks with the chemo. Fingers crossed.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited February 2015

    10'days since it's CT infusion. The last 3 days I have felt like myself again, but today am a iffy in the belly. Had a great appetite yesterday and now feel a little like motion sickness. Anyone like that?

    momo I've been walking around with a butch buzzed haircut since the day after the first chemo. Mine has been tingling for about 5 days. Not looking forward to getting the fallout, but wanting to get it vow itch at the same time. Psychologically it's been easier for me to do this in transition. I put my hair in a bag and was thinking of bunching it up with little elastics as I see they sell little pieces you can attach to a ball cap. Maybe it will just go out in the backyard for the birds to use for nests

  • Mecsmama
    Mecsmama Member Posts: 20
    edited February 2015

    Hello, all. This is my last week before TC#2. I am on day 18 and my hair started falling out on day 14. It got a little worse each day. Last night I let my husband shave it. I didn't go completely bald, but it is very short. It is much easier to manage the short pieces falling out. I have not bought a wig and am thinking I may just wear head coverings for now. I feel pretty good this week which makes it harder to think about going for my second infusion. I have a little bit of a cold, but it isn't getting worse and I hope it doesn't so that I don't have to push back chemo.

  • Mchelle5520z
    Mchelle5520z Member Posts: 4
    edited February 2015

    Hello everyone. I am getting a port on 2/19 and start chemo on 2/26.  I really like and appreciate all of the posts, I know I am not alone!! Supposed to have 20 weeks of this.  I already cut my long hair above the shoulders, and might go shorter later. I have been doing a lot of reading about nutrition during chemo. I would love to know any tips or things I should or should not eat during this regimen,  or just what you had good results with. These lasf 3 months have been a whirlwind,  and I have seen and learned a lot ; I hate the number of women I see with this, I hate that some are very young, and that some are older. You just never know until you are thrown in the mix. But I hope to learn from this, and help in any way I can.

  • Mchelle5520z
    Mchelle5520z Member Posts: 4
    edited February 2015

    Hi Bikerbabe17, 

     I thought I was reading my post for a minute!!. I am getting port and starting treatments on the exact same dates. I will be thinking of you!!!

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Bikerbabe and Mchelle5520z, I hope that your chemo goes by fast! You will find a lot of info here, and any questions just ask. But I'll be glad to give you my list for chemo. While some things may have worked for me, I can't promise they will for you. But the better you manage the side effects, the better you will feel!! Your MO will write the scripts that you need for nausea meds etc., but if they don't work tell them ASAP. We all suffer through all of the treatments, but we can make it easier. Just make sure that you take the meds as soon as you need them, they won't work well if you don't take them or delay. Nausea usually doesn't just go away and you need to drink and eat to get well.

    Pick up Tums, Sennokot-S, chap stick, kleenex, popsicles and Jell-O, bottled water, hand sanitizer, fresh fruits and vegetables, eye drops and saline nasal spray, baby wipes, plastic forks and spoons, protein foods, and any approved supplements. You may not want/need all of the above but it helps to be ready. And if not sure, please check with your MO and/or chemo nurses as I am NOT a medical professional. I also take Vitamin D3 because my level is low, Biotin for my nails and hair, and B6 for neuropathy. Lint rollers and duct tape come in handy to remove the spiky hair stubble. But silk pillowcases help also. I did find some very helpful things at Sally Beauty as well. They have wig supplies, cuticle oil and sparkly nail polish. They also have silk pillow covers which feel good! And make up and eyelashes. I have one sport bag with pockets to fit all of my chemo supplies. It comes in handy to take with me, one bag and out the door.

    I also have a humidifier that really helped with the moisture level in my apartment and the dry winter heat. Some chemo will cause you to lose the nose hair, and it can be irritated. But on the other hand, you won't shave your legs either! Or any other place for that matter. Now that is a good side effect for me!

    I'm sure the others will jump in to add their suggestions as well, but ask any questions you have. Good luck! You can do this!


  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited February 2015

    Hello everyone. I did chemo in February of 2012. Just wanted to let you know you WILL get through it. It's not fun but keep your eyes on the goal. Formed some good friendships on the chemo board for Feb 2012. Still in contact with most everyone that was there. Going through something like this is scary and having others holding your hands helps. Loss of hair sucks. Bad tastes suck. So does constipation or diarrhea. If you get that one, I'm sorry. LOL. That was my main SE. Remember to drink lots of water. I mean lots! Call your onc if you are not sure about things. If I can answer any questions, feel free to pm me.

    Hugs and much love.

    Monica

  • Bikerbabe17
    Bikerbabe17 Member Posts: 116
    edited February 2015

    My before and after pics. Now I just need to do my chemo bag shopping, and find some hats. My mom and co-worker are making me hats and scarves. Just want to find some sleep hats, I have a small head and am having a hard time finding hats to fit. Anyone have some good sites to look at

    imageimage

  • Bikerbabe17
    Bikerbabe17 Member Posts: 116
    edited February 2015

    mchelle--I'll be thinking of you too. How many rounds of treatments will you be getting

  • SugarCakes
    SugarCakes Member Posts: 353
    edited February 2015

    Bikerbabe! I love the haircut, the color and the highlights! I wish I had been more creative and played with my hair while I still had some to play with.

  • Mardea15
    Mardea15 Member Posts: 65
    edited February 2015

    Bikerbabe, I like your haircut. Looks great! I used the TLCDirect.org site for hats as they're specifically designed for hair loss so have more coverage than regular hats.

    Beachbum, that was a great list you gave for a chemo kit.

    This has been a better week for me. My husband & I went out for Valentine's Day brunch yesterday. Food really tasted good, & was great to get out.

    It's Day 12 after chemo #1. Starting to lose strands of hair today, no big chunks, just strands every time I run my fingers through my hair. Have an appt to get it all off on Thurs (day 16). I'm wondering if it will already be gone by then. In that case I'll just have her shave off whatever is left & style my two wigs. For some reason, I didn't think it would happen this soon...


  • CarolynAnne
    CarolynAnne Member Posts: 57
    edited February 2015

    Well, since I was having the tightness in my chest in Fri, I called my MO. They wanted me to come in right away for tests, so off to the ER I went. They did EKG, chest xray, bloodwork and urine(?). Then CT scan which showed a possible clot in Jugular vein in neck. Ultrasound confirmed it. So now I am on daily Arixtra injections. I still have the aching in my chest though. I think my body just Hates this port since most of my aches are on that left side. Maybe this Is just going to be my new norm. Sigh.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited February 2015

    Sorry you are having such a rough time. CarolynAnne

  • SugarCakes
    SugarCakes Member Posts: 353
    edited February 2015

    Cycle 1, Day 14: Hair is coming out. I started gently pulling it and it's coming out in chunks. At least it waited until I returned from a weekend getaway with the BF. It's pretty short as it is because I got it shaved pretty low on Day 2. Guess I'll plan to have whatever is left shaved in a couple days

  • vr423
    vr423 Member Posts: 29
    edited February 2015

    I'm 39, and have ILC. I had a mastectomy with axillary lymph node removal, 1/20 lymph nodes involved.

    I will start chemo on February 26, 3 rounds of FEC 3 rounds of dosataxel. The closer my start date gets, the more scared that I get. I've already cut off my long hair, hoping that will make the hair loss less traumatic. I'm nervous that the side effects will make it hard to care for my three kids.

    Glad to have found this board for support.

    Valerie

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Hello vr423, Welcome to the group, I hope we can help you with any questions you may have. I finished chemo 11/25 but drop in to see how everyone here is doing. Have you gotten a wig or some hats to wear? Since you cut your hair, being different may be helpful for you. It won't be such a big change. My hair is growing out and feels super soft. So a good thing for me. Once you get rolling, the time really does fly by.

    Do you have any questions that may help you?

  • HopeInTheStars
    HopeInTheStars Member Posts: 14
    edited February 2015

    BikerBabe17 - beautiful hair! Here's mine before and now. I added the bangs after diagnosis and then purple after my PET scan.

    .imageimage

  • Bikerbabe17
    Bikerbabe17 Member Posts: 116
    edited February 2015


    Hope in the Stars, beautiful!  Isn't is fun to be a little adventures!  I love the color, I was deciding between pink and purple, pink won.

    Valerie, we start chemo on the same day, Cher22 is also starting the same day.  Read thur Beachbum's earlier post, it's pretty good.  Find a bag to put your chemo "stuff" in, so it's ready.  that's my next step.  And yes, I'm feeling pretty scared about the SE.  Trying to breath thur the tears as they come pretty regularly.

    I'm going to a LBFB workshop this afternoon.  As I have the day off from work.  I brought some scarves, so maybe she can show me how to tie them in pretty ways.  Also, this site has some pretty hats, and in smaller sizes.  Kind of expensive, but I think I get a few to round out my wardrobe.

    I was really hoping to have my hair for my 55th birthday, but it doesn't sound like that is to be, so I need to find a pretty green hat.

     

     

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Chemo bag - I use an Igloo soft side lunch bag/cooler for my bag. It has plenty of pockets for all the stuff, and the insert comes out to wash. And it has a back pocket that will fit an iPad or Kindle. I will recycle it to the original use later, when I can pack beverages and lunch for the beach!

    Good Luck this week Ladies - It's Game On!

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Oops - the Look Good Feel Better workshop was great! I had so much fun, and the make up kit is really nice. It is certainly worth the time to go. It felt good to just do something other than BC. Let me know how you liked it!

  • Bikerbabe17
    Bikerbabe17 Member Posts: 116
    edited February 2015

    Oh....the beach, sunshine and warmth, back on the bike...can't wait.  Just noticed my typo, thanks

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Bikerbabe, typo, no worries. I just hope that you have a great time, I did! Now off to the beach.......

  • CassieCat
    CassieCat Member Posts: 1,257
    edited February 2015

    I just wanted to pop in and wish all you ladies well as you start chemo this month. I buzzed my hair at about 5 days into by 2nd cycle. I bought a wig and a halo but never wore them. I thought I'd want them, but it turns out I was more of a hat girl. Now that my hair's about half an inch long again, I just go out as is. One piece of advice is to stay as well-hydrated as you can throughout chemo. I think it makes everything better and being dehydrated can cause lots problems. I don't think I could have gotten through with my sanity intact if it hadn't been for my August chemo group! Chemo isn't easy, but it's tolerable. You can do it. {{hugs}}

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited February 2015

    Sugarcakes you are a day ahead of me. Only lost hair below the waist today. Can't wait to move on and get that part over with as it's such a nuisance. So glad to be starting week 3 and getting more energy.

    Had bad chemo brain on Saturday and struggled to help DH with taxes. Thinking was overwhelming Would be able to do it today though. Just did 30 min on the Exercycle

    Kudos to those that have to be in the workplace and my heart ogre out to those with no choice There is no way I could keep my job as it takes too much concentration. Haven't been off work this long in 30 years!

  • LaLaP
    LaLaP Member Posts: 10
    edited February 2015

    Hi ladies

    I am 36 years and about to start chemo next week. I also have to put a port in since my viens are tiny from having chemo at 16 for Hodgkins Lymphoma. I wont be having Adriamycin as i had that when i was 16 and have reached my lifetime limit. My MO and RO believe this breast cancer is from having radiation at 16. I will be on Taxotere and Cyclophosphamide. I am going to cut my locs that i have nurtured for the past 4 years. I am due to have 4 cycles beginning Feb 25. Anyone with a port can you tell me how the procedure was to put it in? How did you find it?

    image

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Hi LaLaP, what a fantastic trooper! You are amazing. I had my port put in by a vascular surgeon, very simple and painless procedure. I have mine in the left chest, and it sits just above the skin. It is about the size of a dime, and I can easily hide it with clothing and scarves. But so nice to have for blood draws and chemo. I have a tube of lidocaine that I put on it one hour before they access it. I just put it on the port and cover it with saran wrap to keep it off my clothes. My nurses remove the bandage when they are ready to start the chemo. Very easy, and saves your veins.

    I am so sorry that you have to be here, but you will find a lot of support and love here. Everyone is so helpful. Just let us know what we can do for you! Take Care.

  • SugarCakes
    SugarCakes Member Posts: 353
    edited February 2015

    LalaP, I love your locks. I have always wanted to try them but that wasn't happening with this girl that was so use to relaxers. Well, I'm thinking I'll get my chance when the hair grows back! Hey! If I don't like them or if it's not for me, cutting them and starting again should not be hard after this.

    But, no worries. You'll get them back ;)

  • Bikerbabe17
    Bikerbabe17 Member Posts: 116
    edited February 2015

    hi LaLa, glad to see you made it over to this board.  My port goes in this Friday, so I'll be sure to let you know how it goes, and if yours is going in sooner, please let me know how yours goes. 

    I think that makes 5 of us starting chemo next week. You, myself, Valerie (vr423), mchelle5520, and cher22.  Anyone else I missed?


  • vr423
    vr423 Member Posts: 29
    edited February 2015

    is anybody else not having a port

  • eheinrich
    eheinrich Member Posts: 792
    edited February 2015

    So glad I found this site. I was diagnosed in January, mastectomy 1/29, start chemo on 2/24. I'm really, really nervous. Everything still seems unreal. How exactly is it that I/we have this whole new set of things to think about? Reconstruction or not? Hats or wigs or scarves? What to pack in a chemo bag? What's the proper balance between being brave & crying like a baby? How to have conversations with folks about other stuff when this is mainly the only thing I'm currently thinking about?

    Whew - glad that's off my chest.

    Thanks ladies for all of the tips on here.


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