Winter rads 2014-2015

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  • CassieCat
    CassieCat Member Posts: 1,257
    edited February 2015

    Congrats to those finishing! Hurray!

    I'll be having a bolus put on every other treatment, so I had that yesterday. What an odd feeling! Yesterday's treatment did go quickly (it was #2), so I can see now what they mean when they say once you get past your first one the rest are fast. I was in and out of the building within 20 minutes, and that included a brief stop to change the time for Tuesday's appointment. I'm thinking I may grab a t-shirt to have with me, to start changing into when I'm done, as someone else mentioned. Once I'm done, I can go straight home, as I've scheduled rads for after work.

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited February 2015

    I don't think I have the guts to go braless with these old saggy things to rads as I am going to schedule it around my work schedule. What type bra is required or will they give me all of that info at my first appointment?

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Hi Cassie Cat, the tee shirt is a good idea. I put the Aloe gel on when I change from the gown to go home. I finished 3 weeks, and going well. Good Luck.

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited February 2015

    WheelyGirl, I just finished #14, I have been wearing my regular bra and clothing. I do have a soft bra that I wore sleeping after my lumpectomy, I'll switch to that if I need to. I have not had any skin changes as yet

  • dacre
    dacre Member Posts: 84
    edited February 2015

    Happy Valentine Day to all!!!

  • dacre
    dacre Member Posts: 84
    edited February 2015

    To WheelyGirl: With everything you've probably been through....going "bra-less" should be the least of your worries! Yes I understand that you have to go to work, and be dressed appropriately. But your main concern should be your health! Don't be worried about what anyone thinks ! I wear my husbands cotton tee shirts....then another shirt on top and then another one on top of that......

    If the "girls" can't behave themselves....sooooo what!

    This is your journey WheelGirl and your are entitled to follow the path that is comfortable for YOU...!

    It's difficult for all of us here....we all have different circumstances, issues, problems and emotions. Please know that everyone here is going to be supportive and understanding and give you the most information possible.

    "Hang in there girl" ps...sorry didn't mean to make a joke... Things do get better!!!



  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited February 2015

    Dacre-Thanks for the words of encouragement!  I am still working on the not caring what people think thing and have come along way, just not quite there yet. 

  • lescover
    lescover Member Posts: 7
    edited February 2015

    I thought I was going to make it to the finish line with no skin issues...   My skin started "breaking down" at treatment # 22 of 30.  Peeling, oozing and pain in a three inch line under my breast and a nickel size place under my arm.  A couple of days ago the nurse gave me a sample of Medihoney wound dressing, and it has been a lifesaver!!  I was using silvadene, but wasn't able to wear a bra.  The dressing keeps everything moist and protected.  I can do this!! 

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited February 2015

    Wheelygirl, I thought I was to the point of not caring what people thought either.  But, last weekend at the grocery store I had on a baseball cap and still have short hair, but it is long enough to stick out from under the hat, this jackass, looked me right in the eyes and said "Oh, Lord"!!!  I was mortified and the tears just rolled!!!!  It was a good thing my husband couldn't find him in the store, or I probably would have had to bail him out of jail that day.  Anyway, it does happen, but for the most part I hold my head high, covered by my stocking hat.  I was glad I had on my foobs. He probably would have fainted had he seen a flat chested woman. 

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited February 2015

    momatterwha..- I know exactly what you mean...I am getting so tired of wearing the hats.  I do not look good in any of them but do not like the wig and not brave enough yet to go bald in public.  I was just telling my husband today that I am very close to leaving the hat home.  I know my co-workers would never say anything negative, they have all been so wonderful!  My daughter tells me I have a beautiful bald head.  Unfortunately it is the complete strangers that are so incredibly rude and it isn't really that I care what they think but I have such a hard time controlling my emotions since starting chemo that there is no telling how I would react.  I am sorry you had to run into that idiot in the grocery store.  You just can't fix stupid!

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited February 2015

    Nomatterwhat, Wheelie, one way to deal with those people is to tell them why you are bald/almost bald. Something like: "funny thing about chemo, it makes your hair fall out." That will make them feel small.

    I have never had anyone make comment like that. Most folks seem to understand what has happened. I have had complete strangers come up to me and ask if I needed some prayers.

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited February 2015

    This is my second post-chemo hairdo and it is a real slow grower.  Final chemo was October 21st!  This is now - 4 months post chemo.  It is thinner than it looks. I have been going "natural" for awhile now.  My eyebrows are coming in too, but the hair on my chin is going even stronger. :(

     Devil= My response to the stupid guy. 

    image


     

  • quiggy
    quiggy Member Posts: 315
    edited February 2015

    Hi everyone, just watched a documentary on HBO, "Monday's at Racines," bc story.

    Recommended, must see.

  • gemmafromlondon
    gemmafromlondon Member Posts: 138
    edited February 2015

    If you cared what you looked like before bc why the hell would you not care after? Fortunately I have not had the hair loss - no chemo- but I still do my face no matter where I am going and wear a bra if I can. It is how I see myself that matters and I am not giving up yet awhile! Modesty may have gone to hell but self esteem hasn't and I am sure that is true for all you brave women.

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited February 2015

    gemmafromlondon - I agree with you as well, this horrible thing called cancer has taken so much else from us, we should not let it take our self esteem or desire to look good.  Even though it is very difficult to feel pretty these days...when we come out of this on the other side we will know that we never gave up on the things that made us feel like ourselves!

  • quiggy
    quiggy Member Posts: 315
    edited February 2015

    How we see ourselves is a personal and emotion based reality. BC does impact our self image, no getting around that. I worry about death, health, pain and my mutilated body.

    I get up every day at 3-30 am, get ready for work (make up, hair, soft bra etc), then hit the freeway. After 8-9 hours, I drag my tired ass to treatment then home.

    I care how I look for me but also for my DH and family.

    I have Crohn's disease and had an ileostomy when I was 23, I'm 54 now. Health, body image etc., not my first rodeo. I've done this my entire adult life. Sometimes I wonder what else will be chopped off before I reach the end!

    But..... I make my way, found true love, have a successful career and every day I put one foot in front of the other and keep moving and living.

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited February 2015

    Love the hair, Coyote!!!  You finished chemo two days before I did.  Mine is about as long, with the exception of being much whiter.  I look like a minion on steroids!!!! 

    GemmafromLondon - As far as caring what you looked like before and after chemo, you are right.  I know I have changed by wearing more jewelry, doing my face everyday, taking care of my fingernails and just generally feeling "pretty".  However, losing the hair has been my downfall.  I work closely with a lady who has had colon cancer, went through chemo, twice, and radiation and never lost her hair.  I am the one who gets asked all the time how I feel, how am I doing, what did I go through and what is my prognosis.  I have even had several ladies ask me if "they" are real or not!!!!  These were the same people I talked with before my hair loss and they never asked how I was doing as I was going through chemo and radiation, because they did not see a difference in me. So, I can tell you, as many ladies can, that the hair loss is a traumatic thing and from that point on you can't hide the fact you have BC.  Some days, no matter how long I look in that mirror, I still don't like what I see and no amount of makeup is going to change that.  Going through this experience is one of the most difficult things a lot of us will ever do, but we coming out on the other side of this more loving, tolerant, patient, caring and an all around better person. 

  • quiggy
    quiggy Member Posts: 315
    edited February 2015

    Nomatterwhat.... lovely and well stated.


  • WndrWoman
    WndrWoman Member Posts: 333
    edited February 2015

    Nomatterwhat. You hit on just the reason I limited who I told I had breast cancer. If I had needed chemo, I would have told the world as it would have been clear from hair loss. I did not want people I worked with or who knew me only casually to always look at me as a person with cancer. Since I only needed radiation, I told family and a wide circle of friends and a few people I knew had experienced bc. I must say all the people I told have been very supportive although a few don't want details. That is the great gift of everyone here. We share about the whole messy business.

  • mqt64
    mqt64 Member Posts: 103
    edited February 2015

    Congratulations Professor and Reader!

    Bippy 625, I tried the ice water cloth and it did help. Only when your cold water comes from Lake Superior you don't need ice !

    I love this group! Someone always gets to the heart of an earlier post. The self esteem issue hits in so many ways both physically and emotionally and however and whatever we need to get through is ok.

    WheelyGirl, I too have sagging issues. I'm halfway through and til now have been most comfortable in a supportive sport bra. I've gotten red and have one small blister in the crease underneath. The band of the sports bras is soft and they absorb wetness and keep skin off skin . Just hand wash without fabric softener. My favorite is one made by Champion. Comfort is the name of the game. Hope it helps and may your se be few.

  • gemmafromlondon
    gemmafromlondon Member Posts: 138
    edited February 2015

    Nomatterwhat - you are absolutely right but of course it is not only bc women who lose their hair. I have a friend with lymphoma who has had an extremely traumatic time in hospital for a week every third week for a year - thus no hair and a very uncertain prognosis. I find it difficult myself to ask her how things are going as she feels certain of recovery whereas I feel I am merely on borrowed time and that the beast will get me one day.

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited February 2015

    Not me, Gemma, I am going to fight this beast and I am going to win!!!!!!  I am going to live long enough to be a burden to my children and to my (hopefully someday) grandchildren. 

  • Leslie58
    Leslie58 Member Posts: 4
    edited February 2015

    Hi, I'm new here but have been lurking for awhile.  Love this site!  I have learned so much from all the amazing women here.  Thank You!  I start rads tomorrow.  Even after reading most of the posts on this thread...I'm still nervous.  I was dx Dec. 15th, had lumpectomy on Jan 2nd.   I'm thankful this was caught early!   I had the best diagnosis under the circumstances.  A down side, I have to travel 160 miles (round trip) for treatment.  I'm lucky there is a free bus service that I will be able to take starting Tuesday.  I will be driving tomorrow for the first appointment since it will take longer with the adjustments they said they'd make.  The bus leaves at 11:30 and I should be back home by 3:00.  I'm still having a hard time wrapping my brain around this whole thing.  Which I'm sure you all can relate.  I've come through with flying colors so far, and now the next step in the journey begins.  I'm glad too....seems like it's taken forever to get to this point.  I will have 30 treatments, with the last 5 being boost's.

    Again...Thank You to all that have shared your experiences.  Know that it has helped so many.  I will check in with my experiences as well.  Hope their as positive as many here have shared.

    Leslie

  • quiggy
    quiggy Member Posts: 315
    edited February 2015

    Hi Leslie58,

    Welcome to the group. Sorry you have to travel so far for treatment. Maybe the time on the bus will provide some "down" time for rest, reading, pinterest, whatever.

    This RAD thing can feel like it never ends, but we can see from our bc sisters, it does!

    Wishing you smooth sailing and an uneventful RAD experience. :)

  • gemmafromlondon
    gemmafromlondon Member Posts: 138
    edited February 2015

    Glad you have got a free bus - that will take a lot of the stress I hope and probably better than the daily drive most of us do. You will surely be well read/educated/entertained by the end of the rads.! All the best.

  • Bippy625
    Bippy625 Member Posts: 890
    edited February 2015

    hi Leslie, welcome to our world here. Rads is not as bad as chemo, and not bad at all for most. I am in the middle I think.

    Only SIX LEFT! Very red under arm, meh, it bothers me but is not horrible. More annoying. Today herceptin in the am and rads in the pm, wooohooo! I am about to be paroled from a scary prison where they hurt you in overly polite, aseptic ways. I am terrified of the prospect of returning to normal society but cannot wait for the release date.

    Take care all my NE or sniw covered sisters



  • WndrWoman
    WndrWoman Member Posts: 333
    edited February 2015

    Hi, Leslie, You will do just fine. I finished 10 days ago and my 3 peeling areas are 95% healed. So the skin recovers quickly with whatever creams your place recommends. I recommend a few shoulder rolls and simple stretches before your session starts. Set-up and the simulation and first zap session will be longer. Soon it will be routine. Drink lots of water to stay hydrated. Let us know how it goes and if you have any hurdles.

  • CassieCat
    CassieCat Member Posts: 1,257
    edited February 2015

    Leslie, I just started and have #3 today, so I'm right there with you.

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Good morning Ladies, I am going to rads #16 today. So far so good. It is a little tan, and a little pink in the underarm. The shoulder feels a little tight, but I have been doing my exercises so that is getting better. I use Aloe Gel 100% clear about 5 to 6 times a day. I wear soft tees and a soft zip jacket over it since I don't wear my bra right now. I'm just glad it's cold right now to layer my shirts. My Mom always told me to wear clean underwear, I'm not wearing a bra or my boob! Geez...........

  • Dotwithkitties
    Dotwithkitties Member Posts: 8
    edited February 2015

    Hi Ladies - I went for my CT scan on Friday, have my simulation on 2/20 and will have the first of 30 treatments on 2/23. I have the sharpie marks covered with stickers now - I can't believe they are staying put. I am stressing over how I am going to get through this and work over these six weeks. I'm taking every bit of advice I see here seriously, since you have all been in my shoes. I can't tell you how many hours I have spent trying on uncomfortable wireless bras that don't stay in place. I have several sports bras that I have been living in since my lumpectomy, but won't those feel too tight on the burned skin?

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