Winter rads 2014-2015

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  • quiggy
    quiggy Member Posts: 315
    edited February 2015

    Sorry, PRX = prescription

  • kpmacmill
    kpmacmill Member Posts: 85
    edited February 2015

    I'm done!!!!! Yippeee!!! Just finished my last treatment, 30 total - 23 whole breast and 7 boosts. My skin is already starting to fade from the whole breast tx. I didn't have any skin issues really. Very, very red which has turned brown, but it never hurt. The only area where I got raw was my clavicle, and after a couple days of covering it with a Mepilex pad and aquaphor, it started to heal up. I feel very, very lucky. Good luck to those still finishing up, I hope it goes by fast.

  • Professor50
    Professor50 Member Posts: 220
    edited February 2015

    Congrats to all who have finished up and CONGRATULATIONS KPMACMILL!!! Wow. I am filled with envy and inspiration. I have just 4 days left and plan to draft off all of you who passed my in the other lanes of the pool.

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Quiggy, I wish they made that in a body spray size! Everything I have hurts today, and rads this afternoon! Have a nice evening.

  • yikes1
    yikes1 Member Posts: 120
    edited February 2015

    quiggy -

    thanks. I am a visual person, so this is perfect. I see, Rx only! 2%. jelly. 30ml.

    glad it is helping.


  • gemmafromlondon
    gemmafromlondon Member Posts: 138
    edited February 2015

    Every day I attend for rads I am reminded to drink plenty - more than just the usual tea/coffee etc.

    Does everyone get this advice and does it help?

    My centre has no molds, no sheets, no head positioning,no foot fastening but a small bolster under knees, and the technicians move me about to line me up with lasers/tattoos - one wears gloves, another has cold hands but no matter it is all done with humour, it is surely worse for them to have to do this about 30 times a day and I am sure nakedness is such a given that they don't notice. I think it is much less an issue in the UK where we have topless models every day in a leading newspaper. I had quite a few male doctors endeavouring to find the hidden lump at the beginning of this journey that I really do not care who sees bits of me.

    Music is available on request but I doubted their taste and decided not to have any. It does seem that they are unable to forecast who will get what side effect and how badly. Each person has a different programme dependent upon breast size, tumour position etc. and if one considers the variation in drug sea it is not surprising that there is a wide range of effects of rads.

    Get rid of that gross bra display! How can they be so insensitive?

    At least we will be through treatment when the spring comes! All the best to you all.

  • CassieCat
    CassieCat Member Posts: 1,257
    edited February 2015

    Hi all. I have my start date now: this Thursday, the 12th. I'll get my plan that day as well.

    At my scan last week they made a mold out of that blue stuff that someone else linked to, to position my arms and possibly some of my torso (hard to remember). I can't remember if it positioned my head, but I don't think it did. I got three tattoos that day: one on my sternum and one on each of my sides, below my arm pits, next to/just outside of my breasts (or what's left of my left one). They scanned with and without deep breaths and placed some kind of opaque block on my sternum/upper stomach. I was definitely left exposed at times, but it's all a bit jumbled in my head. The scan was done next door to where I'll get my treatments, so I don't know much more about what will actually be happening, etc.

    Thanks for being here.

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Gemmafromlondon, I have been told to drink water constantly during chemo, surgery, and now rads. It also keeps my blood pressure up so two fold for me. But it really does help. I drink 4 to 6 bottles per day of water.

  • WndrWoman
    WndrWoman Member Posts: 333
    edited February 2015

    gemmafromlondon. Yes, my instructions were to drink 8 8-oz. Glasses of water a day in addition to any other beverages. I was very faithful with that. I think it helps avoid fatigue along with keeping you hydrated.

    Kpmacmil. Good job - finished and minor SEs.

  • WndrWoman
    WndrWoman Member Posts: 333
    edited February 2015

    CassieCat. You will do just fine. Glad you are ready to get going.

    Beachbum102. Hang in there. Can you take Tylenol or something? Tylenol definitely helped me sleep a couple of nights.

  • farmerma
    farmerma Member Posts: 83
    edited February 2015

    Got the OK from my PS to go ahead tomorrow with the CT simulation! Although I still have some hard areas he feels the benefits of starting the radiation outweigh the benefits of waiting for all the dead fat to be absorbed. I agree! Let's get this going! So, not sure if the simulation tomorrow means I can start next week, but I'm hoping it does. The sooner I start, the sooner it's over!

  • Allmodestyisgone
    Allmodestyisgone Member Posts: 18
    edited February 2015

    Hi Everyone. I have been reading these boards for the last couple of months since my diagnosis. I have learned so much here. It helped immensely in knowing what questions to ask my BS and what to expect during this journey.

    I saw my RO today and will have a CT done in a few days and start rads in a couple weeks. I will have 2 tattoos, a head mold and will be holding my breath (lefty).

  • yikes1
    yikes1 Member Posts: 120
    edited February 2015

    Hello all,

    I have been busy thinking of ways to do the "poll".

    I saw my RO today, and gave her my rough (very rough) draft of questions compiled from reading the posts on this forum.

    She told me she would be very willing to assist in this endeavor, look over the questions, answer as needed, and help to do this [in some way].

    {I figured she would but did not want to predict her response until I actually spoke to her in person}.

    So, please chime in and provide feedback to see if this seems like a good way for me and others to continue with this?

    I am proposing a more formal poll, but really not sure it would be any better than how CoyoteNV provided her information.


    To me, at this point, it still is to answer the question "why not me", but also to try to understand and answer something like: do I really need to remove my wig?


  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited February 2015

    KPMACMIll, congrats on finishing. 

    Cassiecat, you can do this!!!  Is this the end of your journey?  I hope so.  When I finished it was such a strange feeling for me to have all this time on my hands.  I wasn't running to this doctor, or that appointment, or trying to remember which appointment was next and when.  I caught myself several times checking my cell phone during work to see if I missed a call from a doctor. 

  • quiggy
    quiggy Member Posts: 315
    edited February 2015

    yikes1, it's great your RO will help with the poll. How to get information to you (challenge here) and how the poll can go out as well as the findings. Survey Monkey?

    Anyway,lots of what's and how's but so happy you're doing this. If it helps those who follow us, and it will, it's a great thing.

  • quiggy
    quiggy Member Posts: 315
    edited February 2015

    beachbum1023, I hear ya, body spray would be awesome. Ladies...you'll be happy with the results, ask your RO's about lidocaine.


  • quiggy
    quiggy Member Posts: 315
    edited February 2015

    Cassiecat, Allmodestyisgone & Farmerma;

    Wishing you a safe and uneventful RAD journey. There's lots of great information here and heartfelt support.

    I'm on #15 of 33. It's doable, not fun but you can do it!

    I'm stealing this saying because I love it and it's very accurate!

    "Each radiation treatment is like being handed a stone. After a while, those stones get pretty heavy."

  • CassieCat
    CassieCat Member Posts: 1,257
    edited February 2015

    Nomatterwhat, it's almost the last thing. I'm also doing Herceptin infusions every three weeks up to August (and Tamoxifen for 5-10 years, but hopefully that's no biggie!).

  • WndrWoman
    WndrWoman Member Posts: 333
    edited February 2015

    Yikes1. How great that your RO is interested in a poll. My experience with Survey Monkey is that you can use it free but are limited to 10 questions. The paid version also allows for correlations such as responses just from lumpectomy people or those who had Tomo therapy. But someone would need access o the paid version. Beyond that a checklist Ike Coyote's would be simple.

  • ladyb1234
    ladyb1234 Member Posts: 1,426
    edited February 2015

    Yikes1, great that your MO is willing to assist.

    Had 2nd RADs today. I was left exposed during the initial setup. One of the guy techs came back and covered me up and apologized for the oversight and indicated they covered us up not because of harm from radiation but to ensure we felt comfortable, warm and for "Modesty". I told him I think I lost all modesty way before starting RADs, he chuckled. By the way I had a different female tech today who left me exposed -- my assigned female tech was out. The new female tech was not as "forthcoming with information" as they prep'd me nor friendly. She sounded like she was scolding me for moving after taking the x-rays. I politely said, "I don't remember moving nor did I adjust myself". The male tech stepped in quickly and polity explained the issue as both could see I was not happy with the female tech. It showed me that the demeanor of the tech has a lot to do with our experience during treatment. The RO came in before I left and apologized. I guess the "word" got out quickly that I was not a happy camper. The rest of the treatment the male tech took the lead (big smile).

  • ladyb1234
    ladyb1234 Member Posts: 1,426
    edited February 2015

    Quick question, this is only the second RAD and I feel blah and no energy after the appt. Felt fine before appt. Is that normal? Somewhat light headed? Maybe not enough water? Any suggestions. I meet with RO tomorrow for weekly review and will mention it too her.

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited February 2015

    kpmacmill - So glad that you are done...done...done!  It's a long haul through all the stuff bc (refuse to give it caps) throws at us.  Glad it went well for you.

    Yikes1 - Gosh, I'm so glad that you ran with the ball! I know that your heart is in it.  How great is that.... your RO is on board with it.  "Perfect." 

    farmerma - hope your day hurries up and gets here for you!

    Welcome to the Winter Warriors board, Allmodestyisgone (You, my friend. definitely need a nickname ! Winking I hope your journey through rads is an easy one.  Fortunately, time goes by amazingly fast

  • Gatomal
    Gatomal Member Posts: 483
    edited February 2015

    great job kpmcmill! Congrats to you! How do you feel? Relieved? Strange? Hugs to you.

  • windgirl
    windgirl Member Posts: 340
    edited February 2015

    Cassie, happy to hear you got your date so you can get this step behind you soon. I had my 10th treatment today. I have 15 more full breast and 8 boosts left. I got a lumpectomy so mine maybe more in number than yours. So far it is moving pretty quick, although with every treatment I am anxious to see if my skin will change. So far I have tanned a bit but my understanding is that skin issues really start after the 3rd week so fingers crossed. My center recommends aloe so I have been putting it on three times a day. Initially I could not find 100% aloe they recommend and got Lilly of the earth aloe from wholefoods. It's 99% and seems like it has some vitamins in it too. Yesterday I finally found the 100% one (fruit of the earth brand) and used it before bed but I really like the other one better. This 100% one did not dry as quick and seemed to stick make my skin stick to my tshirt. Maybe I just have to wait a bit longer before wearing anything. So I decided to use them both. I also got aquafor, only because I saw it mentioned here but I was not too fond of it after one use so I continued with the aloe. I did have some swelling by my 3rd rads and continue to have it. It feels like my boobs when I had pms. Other than that no discomfort during or after the procedure.

    Ladyb, I don't have fatigue but I do feel more sleepy. I am passing out on the sofa if I lie down, and this started with the rads. I still continue to go to work full time but if I have skin issues or feel sleepy during the day I will prefer to work from home. As I mentioned above, my main side effect so far is swelling.

    I wish you both, and everyone else going through this now, lots of good luck.

  • windgirl
    windgirl Member Posts: 340
    edited February 2015

    Tmi question for you ladies, how do you deal with underarm hair that is growing on your rads side? I had shaved initially but now I am worried of damaging the skin and those suckers are growing faster than the hair on my head

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Windgirl, I just had rads #12 today, and I just let it grow. But my armpit is red, tender, and starting to burn. I deal with it, and they can too! :)

  • windgirl
    windgirl Member Posts: 340
    edited February 2015

    :)) beachbum that's funny. I was shaving the top half because I figured the radiation would take care of the bottom half being zapped but clearly this beam was not made for hair removal!

  • quiggy
    quiggy Member Posts: 315
    edited February 2015

    windgirl, I shaved the first week then stopped because started burning. Now I'm shaved on the right and "natural" on the left.

    I love that we have this place to ask things like this. :)

  • WndrWoman
    WndrWoman Member Posts: 333
    edited February 2015

    windgirl My instructions say no shaving. The hair sort of stops growing so don't imagine hair down to your waist at the end of 7 weeks. :-)

    They told me I could use a hairdryer on cool to dry my armpit after showering.

    Ladyb. Several people have mentioned being tired the first week which then seems to let up until later weeks. Lots of water and little walks help.

  • gemmafromlondon
    gemmafromlondon Member Posts: 138
    edited February 2015

    Glad everybody seems to be coping well with rads. Don't know if it is the water drinking (I normally hate the stuff!) but I have not felt the least tired so far. Have to drive 40 minutes each way and now half way through but I am only doing three weeks and am told it is possible the ses may start in earnest the end of this second week. So far just a bit sunburned and itchy. I'll keep you posted.

    I asked today about differences in molds etc.and was told that they were an expensive addition that not all centres could cope with and also required massive storage areas which would not be practicable at the hospital as they treat so many people at a time for so many cancers.

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