How Many Are We?

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  • nred2002
    nred2002 Member Posts: 59
    edited January 2015

    Shutterbug Hoping you get good news on the scans!

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  • smiley47
    smiley47 Member Posts: 215
    edited January 2015

    H

    Welcome Beachbum 1023:

    I think because your cancer is triple negative like me the oncs will want to do chemo but you raised the point about having heart problems due to the side effects of chemo so my best advice would be to talk to your doctors to find a chemo that works best for you and does not wear too much on the heart. You could also post on the triple negative thread on this site and see if anyone has a similiar situation, I'm sure someone will pop up with advice for you. The ladies here are very helpful and caring and offer a great support. Good luck with your treatment plan


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  • smiley47
    smiley47 Member Posts: 215
    edited January 2015

    Welcome smangie:

    I hope you find the answers to your concerns, the ladies here are very knowledgable and have given me peace at times of high stress and worry due to my condition. My cancer was hormone positive but I went through them quickly with progression and now I am stable hopefully on taxol. Goodluck and keep us posted

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  • smangie
    smangie Member Posts: 3
    edited January 2015

    Hi. Thanks for welcoming me.

    @ beachbum203:

    I have mets to my lungs and liver. I will be starting gemtaxol. The regimen I'm following is not the typical 3 week cycle but a 4 week cycle which is supposed to be easier to tolerate and more effective. Your oncologist should be able to customise a plan for you.

    Saw my surgeon on Fri, he's hesitant about putting in a port as my left lung I partially collapsed and there is some effusion. He's shopping around for an anesthesiologist that will make him 100% comfortable. In the interim I start chemo (gemtaxol) on Thur. I would love to know if anyone had an ease with SOB/effusion/collapse with chemo and how long it takes. Also, can you continue to work on gemtaxol? I'm fine coming in to office with my bald head as I did it before in 2007. My office building is huge, back to the stares in the elevator, back to people feeling sorry for me, back to insensitive questions .... I'm prepping :)

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  • LoriKnous
    LoriKnous Member Posts: 80
    edited January 2015

    Hello ladies, I haven't been on the sight in a very long time. My mets was found in March of 2012, and the original dx was in April of 2007. I'm ER/PR- and Her2+ so i'v been on Herceptin and Perjeta since then with a lil zometa thrown in every 3 mo. Thankfully they have kept things from progressing any further at this point.

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  • Partyoffive
    Partyoffive Member Posts: 188
    edited January 2015

    count me in-I have been a lurker for quite some time(diagnosed 18 months ago) multiple bone mets. I am done lurking and want to be counted.

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  • AnnieIam
    AnnieIam Member Posts: 42
    edited January 2015

    Yip, I agree. ...count me in. Hehehe! Never thought I'd ask to be counted in on a Stage 4 list.....but here I am

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  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited January 2015

    Hi All, please count me in!! If enough of us sign in they may do some research and find us a cure! I'm triple negative also. Thanks!

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited January 2015


    I don't think I ever signed in - so here I am.

    Linda

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  • Beasly
    Beasly Member Posts: 10
    edited February 2015


    Hi,

    I was diagnosed in April 2014.  Breast cancer to lungs and bones.  Had Adramyacin and Taxol (sorry about the spelling), and now I'm on Tamoxifen.  No mastectomy or radiation. 

    Every time I have a PetScan I spend hours googling medical terms, and trying to narrow down my odds.  Results today mention uptake in my brain, but then no mention of it in the summary. 

    Anyway, I am here, and happy to meet you all. 

     

     

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  • LolaHank
    LolaHank Member Posts: 28
    edited February 2015

    Count me in, if your still counting! Diagnosed with bone/liver mets in October. After 5 years of being cancer free. NEVER thought this would happen again, absolutely no signs. No pain at all. Found at a yearly check up with oncologist. Pretty pissed off at the whole drug world as my onco wanted to start chemo immediately. I didn't even have another port yet. Only 1 arm can be used due to lymphedema. Got 2nd opinion at MD Anderson and started femara for 3 months. Will get results this week to see what is next. So happy to see ladies on here who are so uplifting and compassionate. You all are a rare breed! Pleasure to meet yall!

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  • courtnjury
    courtnjury Member Posts: 6
    edited February 2015

    Count me in... I have been lurking for awhile. Was diagnosed November 3 2013as stage 4 with bone mets. Had chemo and rads and lumpectomy last year, was doing good on Arimidex then it stopped working. So this year started off with rads to the spine and starting chemo again on Friday, then I will be starting another inhibitor. Hoping this year we find the right combo:-)

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  • VegasNurse
    VegasNurse Member Posts: 36
    edited February 2015

    I was diagnosed March 2014 after suffering a pathological fracture of my left hip over a small slip and fall. Stage four from the get go with mets to multiple bones. I'm 91 percent ER positive 5 percent PR positive. Her 2 neg. grade 2.Last pet scan last week showed no more active cancer. Thank you for this site and this forum.

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  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    Good evening Vegas Nurse, welcome to the club! I am Stage IV, triple negative, and mets. I have nothing but bad luck, so no betting Vegas for me! But it is what it is. So how are you feeling, and how is your treatment plan going? I have done chemo, surgery, and now rads. I hope to have a break soon. Visit us often you will find a lot of support here.

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  • Missy328
    Missy328 Member Posts: 31
    edited February 2015

    I have stage IV with mets to lymph nodes and one bone - T 5

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  • Shikha86
    Shikha86 Member Posts: 1
    edited February 2015

    I am here coz of my mom. She has stage 4 that was diagnosed last year. I read a lot but this is my first post. I feel much stronger after reading your posts.

    Thank you all!!!

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  • joanie848
    joanie848 Member Posts: 1
    edited March 2015

    Count me in too! The club nobody wants to join, but grateful not to be alone. I have been lurking...dx last march mets to lymph nodes and bone after believing i beat Stage 2 twice! Found lump in my armpit near radiation site and bone scan and biopsies revealed mets. 

    On Lupron, arimidex and zometa and trying to remain positive despite yukky side effects!

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  • miraclerose
    miraclerose Member Posts: 1
    edited March 2015

    Diagnosed at 27 while 5 months pregnant. I was induced for delivery at 34 weeks, had my first PET CT scan 3 days after. It revealed lymph nodes and bone Mets in my hip. My significant other left mid pregnancy and now I'm a single mom of an infant and a 4 year old. Living 5 hours away from my family, I am a walking miracle. Responding well to treatment, hardly any fatigue or nausea, and feeling truly blessed to have the Lord's favor and provision so that I can still do my motherly obligations and undergo treatment. I am 28 years old with handsome boys and kicking this Stage IV cancer's butt.

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  • josalive
    josalive Member Posts: 76
    edited March 2015

    You can add me to the list as well. Diagnosed Stage IV with met on my liver on March 5th 2015. Just started Taxotere/Herceptin/Perjeta and hoping for a long ride as I also have very young children. Thinking of you all every day.

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  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited March 2015

    Hi josalive, Welcome! You will find that nobody is alone here, we all walk together. Ask any questions that you may have, you will have a lot of support here. And it is nice to be with all of us who get it, and you can spend the time with your kids as carefree as possible. I find it a comfort to visit here often, and keep my home life separate from BC as much as I can. How old are your kids?

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  • AnnM5850
    AnnM5850 Member Posts: 3
    edited March 2015

    Hi everyone-

    I am Ann, I have Stage IV met. breast cancer, I am 39, and was diagnosed in June of 2013. Originally, I had bone mets but on 2/13/15, they found mets to my brain as well. Did 10 whole brain radiation treatments, and feeling fine....still working! I have a 5 year old daughter and a 9 year old son who has cerebral palsy. Just thought I would say hi.

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  • smiley47
    smiley47 Member Posts: 215
    edited March 2015

    Welcome to the group, you will definately be an inspiration to the group. You will find the support and educated responses very helpful and comforting

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  • nikkiw1973
    nikkiw1973 Member Posts: 4
    edited March 2015

    Hello. I just made a year this month from being diagnosed. I have been taking Herceptin since May 2014 and Tamoxifen since March 2014. My tumor markers started out at over 2000 when I was diagnosed. I am thrilled to say that I am down to 180 a year later. I get Zometa infusions once a month. I am supposed to get radiation on my upper and mid back in a few weeks. This will be round three of radiation. I have mets to lungs, spine and ovaries.

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  • Moderators
    Moderators Member Posts: 25,912
    edited March 2015

    Dear nikkiw1973, Welcome to the BCO community. We are so glad that you reached out to lend your story. Please stay connected and keep us posted. This is a wonderful source of support and information. The Mods

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  • nikkiw1973
    nikkiw1973 Member Posts: 4
    edited March 2015

    I will and thanks.

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  • Bonski68
    Bonski68 Member Posts: 57
    edited April 2015

    I've been part of the Stage IV community since my dx date on 17 Mar 14. It still hasn't sunk in. I have so many things to do for my kids' keepsakes but also suffering from depression, anxiety and fibromylagia. My husband and I are currently going through a divorce (should be finalized on 8 May). My 3 kids (My boys are young adults and my daughter is 16) live with their father in the in the UK (he's Active Duty military). My daughter wants to come live with me, but I don't know know if I can give her the support she needs (she is also depressed and has learning disabilities :(

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  • JustJean
    JustJean Member Posts: 327
    edited April 2015

    I've not been looking forward to this post but I'm now a part of this group of incredibly supportive women. Mets to bones were found late last year. Been fighting bc for over 9 years now.


    So... hi y'all.


    JJ

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  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited April 2015

    JustJean, welcome to our little club! Sorry after all the things you have been through, you are now here. I hope that we all stay here for a long time :) Cheryl

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  • Allyme
    Allyme Member Posts: 319
    edited April 2015

    Hey Everyone!

    Lost count of what number I'm supposed to be, but I have been around here for about 7 months. I was dx stage 4 bc at the ER, when I had went for abdominal pain. I was originally told I was just constipated, and how badly I wish that was true! I have Mets to my liver and spine. Currently just on Herceptin and Perjeta, and trying to make everyday count with my husband of 17yrs and my loving 15 year old daughter. I'm so thankful for the advice, information, and friendships I have made here. It makes it a little easier to know I'm not alone in this nightmare. Thankful for the sense of community and, at times, humor. Wishing the best for us all, and this wacky keyboard!! :)

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  • suems
    suems Member Posts: 133
    edited April 2015

    Count me into the Stage 4 group, too. First diagnosed with IDC plus 22/24 nodes in January 2015, then 2 bone mets found on my hip in the follow-up scans. I am on Tamoxifen, and start radiation in a week.

    Still trying to get my head around the whole thing - I have learned so much more from this site than anything else I've found so far.

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