February 2015 surgery
Comments
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Sounds like our February sisters are doing well. Have appt with BS surgeon tomorrow aternoon, and hope this damn drain comes out soon. How are you all bathing? My breast is covered in gauze and a bandeau type of covering. Have not seen my breast, but want to clean up before appt. Suggestions?
God is good!
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I've been able to take everything off for showering - no bandages just the strips over the incision is in place. Showering with the drains is a PITA, but something that occurred to me, after the fact, is if you can get a hold of a glow stick necklace or two you can use those to hang the JP drains around your neck while you shower. I've been resting mine on the soap tray in our shower and it limits my movement. Wish I would have thought about the necklace before! Hoping to have them out tomorrow.
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My PS did not allow showers with the drain, just sponge baths. I used baby wipes
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So my I have 2 drains and 1 got clogged today and I kept trying to get it unclogged and it took all day. I soaked my new mastectomy bra as well as a ton of bandages. I've unclogged them before but the clog was under my skin and it was very hard to get. I cant wait until I get them put! But I have surgery tomorrow to relocate my TEs so it will be awhile...sigh..
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for showering with JP drains, I just used a shoelace round my neck - pinned one drain to each end. Worked perfectly!!
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rain dew, that's a great idea! I've read a lanyard works well too, I'm hoping to have only one drain, we shall see.
BBwithBc45, I like the baby wipes idea, does your skin feel sticky afterwards
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My surgery was a week ago and I think I've been doing well, but I'm also at the point that I'm feeling like I'm done with this pain. 4 days of it was manageable, now I want it to be over! I have been off Percocet for a a few days except for at night time - just taking extra strength Tylenol, which I guess explains why I'm still feeling a decent amount of pain. Everything looks good to me and I go to the PS today for my follow up and I'm hoping that at least 2 of the drains come out. I'm dying to take a real shower, but am not allowed to until all the drains are gone. I'm ready to feel like a "real" person already!! Just needed to blow off some steam - thanks!
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Rose0766 - I did not have a problem with skin stickiness. Maybe I was just so focused on the general feeling of fatigue, discomfort, side effects from pain meds and this whole cancer business that skin did not bother me. I was moreannoyed by not having my hair washed everyday.
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Hair? What's that? Teehee! I guess one good thing about being bald is not worrying about washing my hair after surgery. (Just wanted to give you sisters a laugh.) Love, Jean
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I am waiting for a call from my surgeon. I can feel the anxiety bubbling up inside me. I know she won't have path results but I just want to ask her about the excisional biopsies on Friday and why the right breast was more invasive than anticipated.
I did check my mamo/sono/core biopsy reports (they've been tucked away in the bottom of the closet) and now understand the Birad rating of 5. I am such a mess on the inside and a bruised stitched up mess on the outside. Its the waiting. I just want to get on with my life and have a plan of action.
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Yes Audrey, waiting is hard. I'll be praying for you. Let us know how you're doing, Love, Jean
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I have lost all hope of a positive outcome. Today is a day for tears. I have not cried for two weeks. I have been told 80% of biopsy results are benign but everything I read says 95% of birad 5 results are positive.
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Just praying for everyone, yesterday, today and tomorrow. Sorry for TMI, but finally got rid of constipation since 2/5!
God is good!
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AudreyB, please, hang in there. You just never know. I understand the anxiety, I've been through similar a few times now in the past couple of months. Just the thought of the results was causing me to feel like I was going to pass out.
My results unfortunately were worse than I was hoping for, especially since every step of the way (recall mammo, ultrasound, biopsy, lumpectomy) I kept hearing that the chances are it's nothing, that 80% of them are benign. And every step I was in the other 20%. Why couldn't I win the freaking lottery instead?!
But you just never know. It is easy to misinterpret what we read on the Internet, especially if we're not medical professionals.
Once you get your results, whatever they may be, you'll have a plan of action, and things will start to unfold.
I'm sending positive thoughts your way.
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Ladies-I wish to add myself to the February list. I am scheduled for lumpectomy this Thursday, 2/12 followed by bilateral breast reconstruction 2/20. I feel everyone's pain and anxiety but admit that with each post I read, my strength is renewed. All of you have been supportive and wonderful to each other and I believe that when you can see past your own anxiety and discomfort and be able to support complete strangers, God will support you in your time of need. Stay strong!
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jean I love your sense of humor! It's all perspective, isn't it?
Fourminor- looks like you did your exchange right at four months. Is this recuperation easier? Any drains?
I can't wait for the drains to come out, they just hinder mobility so much. I haven't moved far from couch to bed to bathroom.
I'm trying a day with just Tylenol instead of paid meds. The side effects are driving me crazy. I think the worst is the antibiotic- makes me dizzy and gives me a headache right after each dose. That med stops with the drains, so that will be an awesome day.
Showered yesterday and it felt great although a little cumbersome. I had my husband wash my hair with his clumsy man hands. But it was sweet. He's been as supportive as he knows how. We're all learning I suppose.
Hang in there all of us, every day is a little better than the last. And if it isn't, hope for a better day tomorrow.
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OK, I put my big girl panties on. Thank you BB for your kind words.
I just took a shower which takes twice as long now, and put my makeup on.
This situation does not define me. This situation will not define me. I am a strong, loved woman and I will get through this.
Prayers for all.
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justamy thinking of you and your TE fix surgery today. Hope by now you are done and through the worst of it.
Jabec- did you get your drains out today?
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Had my visit with the PS today and got 2 of the 4 drains out. He said everything looks great. However, the earliest the other 2 drains are coming out is Friday and my entire family has a trip planned to Mexico leaving Sunday. PS said that even if drains come out on Friday he's not really comfortable letting me go on the trip on Sunday because he wants to check me again before he lets me travel. My next appointment with him won't be until next Tuesday. I'm so bummed about this, especially since my surgery got postponed a week because of the "blizzard" we ended up not having in NY. Had they done the surgery on time I doubt there would even be a discussion about whether I could go. The question is whether I go on Sunday and hope that I don't develop an infection or fluid buildup (both slim chances and I'm only a plane ride away), try to meet up with the rest of the family on Wednesday, or have my husband go with the kids and the rest of his family while I stay home feeling sorry for myself. I know that it's just a trip and there will be others, but with everything else I've been through I was hoping I could lie on a lounge chair by the pool and recuperate instead of sitting on the couch by myself in the cold and snow.
JustAmy - I hope the surgery went well today and that you are put back together the right way
JustAJennifer - that's great that you can shower. I'm not supposed to shower until my drains are out. Getting 2 out today was just a tease since I still can't shower! I've been washing my hair in the sink and using a handheld shower to clean my lower half, but I'm dying to take a real shower.
AudreyB - I'm so sorry things aren't turning out how you hoped, but I'm glad to see that you are coping as best you can until you have answers.
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your right Jean, what is hair? Been with out mine about the same amount of time you've been without yours!
Im just hoping to have recovered from chemo enough to feel strong enough for surgery. I'm glad my surgeon insists on 4 weeks down time after chemo finishes. I'm getting an additional two weeks due to scheduling difficulties as PS is out of town next week.
Jabec: I know how you feel in regards to the trip, we had a cruise booked and paid for when I was diagnosed and chemo started, MO didn't recommend going due to the close proximity of so many people so we canceled, my health and well being came first.
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jabec
If you do go to Mexico, is it in an area with water quality issues? I've gotten eye infections from opening my eyes in the shower overseas(along with the big "D" because I rinsed my toothbrush in the tap water)...could there be potential problems with the drain sites?
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I know that I should just be happy that I'm through the surgery and healing well, but to have the entire family on a trip without me sucks (did I mention that my in-laws are paying for the whole trip - so would be missing out on a free trip with all the sisters, cousins, etc). We would be staying at one of the top resorts in the Riveria Maya that I assume has good quality water and I know to only drink bottled water. We spent 2 weeks in China a couple of years ago where we had to use bottled water just to brush our teeth and had no problems. The drain sites should be healed by the time I go (if I go at all) and I know that I can't swim. If the drains don't come out on Friday, the point is moot, but I at least want to feel like I have some say in the decision to go or not. I will be OK even if I don't go, but I'm having a little pity party today about it, especially since it was the hospital's (wrong) decision to cancel my original scheduled surgery.
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Went to BS this afternoon for path reports, and thought getting drain out. First time I am seeing my breast, not too bad, but armpit is ugh! Anyway, going for more surgery re-incision ? in the morning to get the last bit of cells they did not get. Overwhelmed again, but at least I know what to expect, just seems so soon!
Blessings to all. God is good.
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Bxmast scheduled for 2/12/15. IDC 1 cm on right found on mamo 11 months after neg mamo. Not taking any chances. No reconstruction for me. Going to go flat and see how I feel. Can always go back later if not happy!
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I'm thinking of all you strong ladies. The first 2 weeks are hard, but then it gets easier. I couldn't wash my hair for 2 was and just found it easier to go to a hair salon. I needed to take oxycodone for 3 weeks solid and Valium at night for the tightness for 4 wks. I also had 6 drains and the last 2 finally were finally taking out at 4 weeks. I had no choice, but to go back to work after 6 days and it was a horrible decision. Please ladies, if you can take off of work or chores to rest, please do it. Your bodies have gone through so much physically, emotionally and mentally.
Lovemylab- there are some great posts on preparing for surgery and aftercare. I am so much better prepared now from these ladies for my exchange then I was for my bmx. I hope you makea speedy recovery and we are here for you.
Aubrey- sending you thoughts and prayers of peace, strength and comfort.
Fmmbw- I hope your procedure is quick and easy. Sending you good thoughts and prayers that everything is a success.
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jabec-that is the worst. I really hope you end up able to go. My fingers are crossed for you. I can totally get why this is important to you.
Good luck to the next ladies getting ready for surgery. I am one week post surgery and feeling great. Still sore but off the pain meds. You can do it
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Your support here to each other is amazing and inspiring to read :-)
Good luck to all of you preparing for surgery this month! You may find the section on What to Expect with Surgery a little helpful.
AudreyB, (we're thinking of you!) xoxo
Waitingtoexhale and jabec, yay to you both doing great one week post surgery
Sending kind thoughts to you all
The mods
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Hello Audrey
I am thinking of you often and I hope you are doing okay. We had our excisional biopsies on the same day, so biopsy sisters? It's awfully scary, isn't it. My recovery hasn't been too bad, but my surgery wasn't as extensive as yours. Right breast only, but there's a long incision along the side. I am small to begin with, so the surgeon said there would be a difference. I'm hoping not too noticeable, but really at this point it's a secondary concern after the results. If I have cancer there will likely be more surgery anyway.
The waiting is so hard. I go back and forth between feeling like I've got this and can handle this and completely terrified of what the results will be and the unknown. Reading these boards is a huge comfort as I can see firsthand that so many are dealing with what I'm so frightened of with strength, humor, and love and living life to the fullest. It makes me hopeful that maybe I can too if it comes to that.
I will probably know more today or tomorrow and yes I'm scared. I hope and pray both of us get good results.
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I just woke up from ten hours of sleeping, trying to catch up on all posts. Audrey I'm sorry you are in the waiting game, that part sucks. I find as tough as it is sometimes, straightforward information is better. Not sure I know why you were having excisional biopsy--was the core inconclusive or discordant with the imaging? i have had it all now--steroetactic, ultrasound guided, needle localization, lumpectomy, re-excision, sentinel node biopsy and mastectomy. We always make our decisions with the best information we have at the time, but the information we really need is not knowable. Cancer in my opinion is a series of crappy decisions where you have to choose the least awful out of nothing that you would ever want. Try to focus on just what you have to do now.
Last night i was having hot flashes so bad I thought I had a fever. My drainage output has dropped so i should be having that pulled on Thursday at my post op appointment. After that I have to race to MO's office in Brooklyn for my next Zoladex implant and we're starting our 4 year old in a new school and I'm hoping I can get him there at 12:30.
Yes, I have a drain after exchange, and I'm sorry to tell you that when I woke up I was actually in MORE pain than after the mastectomy/TE placement which shocked me as I was not prepared for that. But there is a lot of pocket work in recreating an inframamammary fold and all of the discomfort was under the implant. Any motion that required abdominal muscles hurt. After two days of round the clock opiods I was able to cut back to every six hours and yesterday I went on Advil during the day as i was tired of the mental fog. But as far as the arm--i do not seem to have any of the shoulder tightness I did with the first surgery. I could still slip my hand behind my head without an issue.
I am forbidden to shower until 48 hours AFTER drain is pulled so really hoping this is going tomorrow.
Been obsessively reading about implants the past few days (not that i can change what I have) I believe i have an Allergan 410 (i.e. gummy). I wanted this because the skin on my chest above my TE was thin enough that i could make out my ribs and I could not deal with summer clothing like that. I figure that i know this isn't real--its not fooling me or my husband, so how it looks is more important than how it feels, since my goal is not to have people staring at my chest and trying to figure out what happened --seeing ripples--such that i feel i have to say something. From the top of my bra it looks pretty amazing. Husband was also impressed on the bandage switch. But I'm also aware that this puppy is not going to be moving anywhere and it won't squish into bras like a more fluid round could. I just keep telling myself there was nothing that was going to really recreate what it was and thats it. The crappy decision was form or feel. It is a lot softer than the TE so that's an improvement.
I did not do anything to my native breast to make them match. As I said above, this isn't about how its going to look to me or hubs as we know the truth. PS advised against a lift because even though I have some droop ( one pregnancy and I'm in my late 40's) and he could pick it back up to where it was, it would be at the cost of a scar around my nipple and down and around my inframammary fold and possibly some loss of sensation. And he said, over time, its would droop again anyway so they will not permanently match and I will have to wear a bra no matter what. Some of the women on the uni board have said that the lift surgery was more to recover from than the exchange. I am also wary of scar tissue making my right mammogram more difficult to read in the future
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I went to doc yesterday and he removed all bandages 5 days post op. I have to lots of polysporin around drain openings and gauze over there. I was surprised. And I can take a shower. I'm too paranoid so won't be taking one. I got a surgical bra with removable pockets for the drains. I find that helpful for the drains, they don't hang as much.
Getting better but still can't get into bed by myself . sleeping on my back sucks!
Rose, u'll be fine after chemo for surgery.
Justamy, good luck on the fixing.
I didn't freak out looking at myself. I know the first surgery helped but I was really calm. Is that wierd? I guess after 6 mths of chemo, no hair, I really feel like a cyborg. This is not me. My shell is really being worked on
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