Very nervous about Bi-rads 5

Options
Mkulsar46
Mkulsar46 Member Posts: 6
edited February 2015 in Waiting for Test Results

I had a mammogram ultrasound 3D three weeks ago, results came back Bi-rads 5 three palpable lesions on left breast and concern thickening skin on right breast! I finally had the core biopsy on two of the lesions yesterday and I go today to get results! I really haven't talked about it much because my husband has been in ICU for Renal Failure and I don't want to worry anyone if I don't have to so I went alone to biopsy yesterday and she wants me back in office today at 10:30am! I don't think it's good news because she wants me to have someone with me!

· Share on FacebookShare on Twitter

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2015

    Mkulsar46,

    Hang in there! We're all here for you, no matter what the results are.

    Please let us know how things go!

    --The Mods

    · Share on FacebookShare on Twitter
  • LittleMelons
    LittleMelons Member Posts: 273
    edited February 2015

    Hi there Mkulsar46 - I'm so sorry that you are going through this stressful situation.  I remember in vivid technicolor being called back after a routine mamogram and ultimately being diagnosed with bc 41/2 years ago.  It is the height of anxiety!! Most of us on here know what you are going through. But, in looking back I am so grateful that it was found and treated.  Birads 5 means there is a good chance that yours has been identified as bc.  If it has, it is good that you will begin the treatment process now.  And there are so many effective treatments these days.  Things have come a very long way for bc patients in the last twenty years.

    All the very best to you!  Please let us know how you are doing. 


     

    · Share on FacebookShare on Twitter
  • roadrash
    roadrash Member Posts: 145
    edited February 2015

    Hi, It is very hard to find balance when you are a caregiver for someone else and need to care for yourself too. I hope your husband is surrounded by great medical professionals that are going above and beyond to meet his medical needs. This is the place to come and talk no matter what the results. You have so much going on right now that it is probably a very good idea to bring someone with you. Please let us know how you it turns out.

    · Share on FacebookShare on Twitter
  • Mkulsar46
    Mkulsar46 Member Posts: 6
    edited February 2015

    Thank you for taking the time to reply! I received my results today and I am still overwhelmed! She said I have two different types of cancer, one is left breast mass 8 cm from nipple infiltrating ductal carcinoma Nottingham grade 1 of 3(5 of 9) nuclear score 2, tubule formation score 2 and mitotic rate 1,

    B) left breast mass 4 cm from nipple infiltrating ductal carcinoma with focal distinct high grade component,high nuclear grade and no tubule formation score 7 of 9 suggestive of meta plastic squamous and/or sarcoma you'd differentiation

    ER/PR/HER2-NEU evaluation pending

    I have really no idea what all this means and quite honest I went numb just listening so I did record it! She wants me to call tomorrow once I decide to either get lumpectomy or Masectomy, she said she really wouldn't know stage until after surgery and what treatment I would need. I don't know how bad this is but I don't think it's very good but I am trying to be strong and focused on getting this cancer out of me! Does anyone know what this all meAns? Thank you again!

    · Share on FacebookShare on Twitter
  • wrenn
    wrenn Member Posts: 2,707
    edited February 2015

    I'm so sorry this happened to you on top of what you were already dealing with ...and having to do it alone. It is really scary in the beginning but you will discover that things settle down once you know the plan. There are many women doing quite well here with similar dx. Do you know the size of the tumours?

    I think the best thing you can do it find a way if possible to take care of the emotional side...either venting here as much as you feel or someone close to you and even get anti anxiety meds for short term...as many of us have done.

    My tumour was metaplastic sarcoma.IDC as well. I only got to have one chemo dose due to complications and I am doing great. This site saved me mentally with the support and with all of the knowledge and tips for coping and dealing with treatment. Stick around and please take care of yourself even though you are probably putting much time and care into your husband.

    · Share on FacebookShare on Twitter
  • Mkulsar46
    Mkulsar46 Member Posts: 6
    edited February 2015

    Thank you for your support, it means alot!

    The size of the lesions are the one closest to nipple is 13MM X 19MM in diameter and then the other measuring 2CM X 1.6 CM in diameter and between them is a small 7Mm that was not biopsied but presumed another cancerous lesion

    The Doctor said she could not tell me what stage until after surgery!

    · Share on FacebookShare on Twitter
  • wrenn
    wrenn Member Posts: 2,707
    edited February 2015

    That is a lot to take in. Life will be crazy for a while but try to trust that it will even out. It is so hard in the beginning. Hang in there. I hope you get your surgery/treatment plan soon. Take care.

    · Share on FacebookShare on Twitter
  • roadrash
    roadrash Member Posts: 145
    edited February 2015

    Hi, Thank you for letting us know. It wasn't the best news but you would are going to find out rather uickly how progressive and advanced many of the treatments are now. I need to also mention, that You are an AMAZING woman. I know you are numb and overwhelmed but we are here for you. You are going to get a lot of great feedback from seasoned warriors on this board. We all like our doctors but if you have the time a second opinon is always a good idea. One breast specialist might have a different way treatment plan in mind for you. I don't know what kind of insurance you have but with so much going on, it wouldn't hurt to speak with a therapist. Wren gave you a great sugestion in regards to taking a medication, if needed. I was prescribed a medication when I went through all of my biopsies because the waiting was having a negative effect on the quality of my life. You did the right thing by recording your session with your doctor. You have all our support.Thinking of you.-Nancy

    · Share on FacebookShare on Twitter
  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2015

    Mkuslar,

    Sorry to read your bad news. Dealing with this & an ill hubby is too much....

    It is impossible for the Drs. to be able to stage you, because there is still the unknowns. Did they biopsy your sentinel node? If they are all clean, treatments are easier. If there are axillary nodes with Cancer, you are most likely going to need chemo.

    My Breast surgeon was very pro lumpectomy, so I went with it. Your situation is different, listen to what he/she says. Lots of women want 2nd opinions. I live in a smallish rural area. I did not want to do that, drag it out. The tumor board, at the Cancer center, reviewed my case & made a suggestion for my chemo plan.

    It is really a roller coaster in the beginning. Lots of waiting for appts. Be kind to yourself

    · Share on FacebookShare on Twitter
  • Mkulsar46
    Mkulsar46 Member Posts: 6
    edited February 2015

    I appreciate all your support! My Doctor told me to stay off the Internet as far as looking up my diagnosis, she said there is alot of misinformation but she said this site is the best one to go to for info and for support and I'm so glad I did, I would normally talk to my husband or my kids but they have had so much to worry about with their Dad over the last week, I really don't want to put them thru any more than I have to! The Hospital took my husband off life support yesterday after they did Dyalysis and he was breathing on his own and he knew who I was so hopefully we have some good news finally! I am going to call my Doctor today and let them know I choose the Double Masectomy with reconstructive surgery and then we can go from there! Thank you again!

    · Share on FacebookShare on Twitter
  • BodhisattvaNH
    BodhisattvaNH Member Posts: 29
    edited February 2015

    Mkulsar46 You and your husband are in my thoughts. Sending healing love and light your way. I'm so sorry for all that you are going through.

    · Share on FacebookShare on Twitter
  • Dancermom1999
    Dancermom1999 Member Posts: 122
    edited February 2015

    Mkulsar46 - I am so sorry for all you are going through. I was diagnosed with BC in left breast in Nov. 2013 and had a double mx in January 2014. Very happy with my decision and the reconstruction process with implants. I did not want to keep getting called back each year as I had been for 7 years and then finally the diagnosis. I wish you the very best.

    · Share on FacebookShare on Twitter
  • marie5890
    marie5890 Member Posts: 3,594
    edited February 2015

    Mkulsar,

    Here is a Facebook link to this group


    http://www.facebook.com/groups/124869030878992/


    This a group of women who have been Dx-ed with metaplastic BC. They can help you navigate this with the help of others.

    Please do not research the internet about this. the data is very dated.

    · Share on FacebookShare on Twitter
  • Mkulsar46
    Mkulsar46 Member Posts: 6
    edited February 2015

    hi marie5890,

    I tried to join that Facebook group but

    I am not sure it went thru! How do I go about it? Thank you

    · Share on FacebookShare on Twitter
  • bridgegal25
    bridgegal25 Member Posts: 60
    edited February 2015

    Hi there -- I have been reading your posts and you sure have a lot to deal with right now.  This board is the best and you will get a lot of support here as you already have seen.  I would love for you to be able to get some counselling or therapy. It would help you so so much.  They have come so far with breast cancer and there are many many support groups out there and so many new treatments.  Ask for help -- don't refuse it -- seek support where you can get it.Your surgical team can help you with that,.    My story is for another day.  One day at a time, breathe deeply and yes, do not seek the help of Dr. Google. This is the best place to be.  We are all here for one another.  The best to you and hang in there.  This is a fight you will win.    I am going to do just that.   Shirl

    · Share on FacebookShare on Twitter
  • DocBabs
    DocBabs Member Posts: 775
    edited February 2015

    Mkulsar46, sorry about your diagnosis but there are some really good treatments around today that will help you out. You indicated that you want a BMX and I agree with you. I chose the same thing. One surgery and no routine worry about the other side. My thoughts and prayers will be with you and your husband for continued recoveries.

    · Share on FacebookShare on Twitter
  • Mkulsar46
    Mkulsar46 Member Posts: 6
    edited February 2015

    thank you again for each and every one of your posts to support me, I can never thank you enough! Alot has happened since I last posted so I will update you, good news first; my husband was discharged from hospital and is doing much better, he will probably be getting home dyalysis but we won't know until his lab report comes back tomorrow, he is on oxygen 24 hours a day but he is alive and he is getting stronger everyday thank God. I found a day training program for my daughter Terri who has cerebral palsy. That I feel comfortable with her going for awhile so that I can do this surgery and treatment! I also hired someone to do evening care with her for the days I won't be able to and my husband has a nurse that comes in so at least that part is done. My Doctor called to schedule double Masectomy on Feb 26 but she had to check to make sure reconstruction Doctor would be available on that date, turns out he doesn't accept Aetna HMO, so they said I should find another doctor to perform both the surgery and reconstruction which really had me worried because I felt comfortable with her, so after talking to my husband he agreed that I would call doctor back and just pay for the reconstruction out of pocket so I could stay with her but her assistant said the doctor would rather have me go thru Moffitt cancer center in Tampa which is almost 1 1/2 hours away so now I have to pick up my films from radiology and biopsy pathology report from doctor and go to a whole new Doctor who is male! I am just so frustrated, and then after finding more info on Metaplastic squamous, I am getting worried that maybe I shouldn't bother with reconstruction if my prodnosis is not good, the doctor was very clear stating that it has invaded the chest wall and surrounding tissue! I'm very worried!

    Maureen

    · Share on FacebookShare on Twitter
  • wrenn
    wrenn Member Posts: 2,707
    edited February 2015

    Mkulsar, Sometimes I wonder how much some people are forced to endure. You have had to deal with so much it is unbelievable.

    I am so glad your husband is doing better (my sister does in home dialysis so I am hoping he gets a nurse like her). She loves her patients. I am also relieved on your behalf that you found care for you daughter.

    Regarding the new doctor and all that entails it seems like so much to deal with but maybe having to rethink reconstruction is not a bad idea. I watched my friends go through that and although for most it was worth it some didn't think so. I myself had a BMX without reconstruction and only needed plain tylenol the day after the surgery. I was able to do everything on my own.

    It is something you will have to be sure of no matter what your prognosis. I wish you peace. I am going to trust the gods that it will work out in the end but in the mean time sending you hugs. Take care.

    · Share on FacebookShare on Twitter
  • bridgegal25
    bridgegal25 Member Posts: 60
    edited February 2015

    Hi Maureen -- So happy for you that your husband is out of the hospital and that you have help for your daughter. When I first read your most recent post, I got so angry at your doctor telling you to be treated somewhere else and not where you are comfortable even with you paying for your reconstruction.  I liked Wrenn's advice to you to you to just deal with one thing at a time and think about reconstruction at a later time.   I don't know where you are being treated now. If it's a cancer center or a hospital, I think a call to the top brass there might bode you well with your current circumstances. I have to presume that this is closer to home for you rather than where it was suggested you go now.  I realize you felt comfortable with your doctor, but there has to be some compassion on her part under these current circumstances.  That's why I suggested calling the powers that be where you are being treated now.  I also realize that this is a very personal decision on you and your family's part so forgive me putting in my two cents.  I just sometimes feel that doctors are too quick to dismiss circumstances without going the extra mile.   Vent away on here -- we are listening.   Shirl

    · Share on FacebookShare on Twitter
  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited February 2015

    Just an idea to lessen the stress: can't you decide to have reconstruction later. I know that precludes certain options, but women do it all the time. I waited 3 years to have reconstruction.

    · Share on FacebookShare on Twitter
  • kris1114
    kris1114 Member Posts: 82
    edited February 2015

    Hello. They cannot give you a stage until after they can remove the entire tumor and know it's complete size and stats so to speak. I was originally thought to have had 2.7cm via core biopsy guided ultrasound. After surgery, it ended up being 8.6cm. 2.7cm invasive, with the rest being in situ (contained).

    If you do not have a multi focal disease like me (multiple tumors in same breast) you may be a lumpectomy candidate.

    You sound like you are very strong!

    · Share on FacebookShare on Twitter
  • AudreyB
    AudreyB Member Posts: 377
    edited February 2015

    My prayers are with you.

    · Share on FacebookShare on Twitter
  • Moderators
    Moderators Member Posts: 25,912
    edited February 2015

    Dear Mkulsar46, welcome to BCO where you already know are caring people. You are having a bad time but so glad your husband it home and we hope he keeps improving. Glad you have care arranged for hubby and daughter, but sorry you are having run-around re surgery. Moffit center may be as blessing in disguise, despite long trip time, as they may have everything you need re medical treatment and surgeons. We hope that is the case and wish you well.

    Beware of Dr Google, but there are articles on IDC on our main site for reliable information, such as IDC — Invasive Ductal Carcinoma where you'll learn about symptoms, diagnosis, treatment, etc.

    We hope this helps and ask for help anytime.

    The Mods

    · Share on FacebookShare on Twitter

Categories