Winter rads 2014-2015
Comments
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Guess I can officially join the group now. Provided that my MO clears me when I see her on Monday, I will go for my CT simulation next Wednesday. Not really too worried, just anxious to get started. The sooner I start, the sooner it's over!!! Whatever comes in the way of SE, I'll deal with those one at a time. Just a few questions:
1) Did everybody wait to start Tamoxifen (or whatever other hormonal therapy you are on) until AFTER rads? Sounds like that is going to be my MO's plan (she said she'd talk to me about the hormonal treatment more when I see her on Monday). Do you know why that is? I mean, hey, if I'm going to be thrown into menopause, bring it on--why wait!
2) Anybody else have hematomas that needed to resolve before rads could start? I still have a few small external bruises but feel lots of hard area throughout (I did have oncoplastic reconstruction, so a lot of the tissue has been shifted around). I just don't know if it's hematoma or that's just what it's going to feel like for a while. How do you know when it's gone?
3) How did everybody do with working during rads? I have a full-time computer job from home, so that one's not a problem. But I also have a part-time clerical job outside of the house. I wouldn't say it's a "desk job" because I do a lot of running around there. Just hoping I can still do both throughout. As you all know, during this journey, it's no fun having any reduction in income! Too many bills!
Glad to have all of you out there for support!
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Hi Farmerma. Welcome to the group nobody wants to join.
I started Tamoxifen after rads. I was told that it's easier to determine what TX is causing what SE when they are done separately. But-you will find that no one has the exact same DX, medical HX etc, and TX can vary quite a bit from person to person.
I had no problems during rads, but I'm retired so I was able to take it easy if necessary. I did take an afternoon nap on occasion.
You'll find everyone here is in the same boat, more or less, and the experiences of those who have completed this process will be invaluable.
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farmerma, my onc said I'd start tamox after finishing rads.
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Congratulations, Wnderwoman!!!!
Farmerma, Both my MO and RO wanted to take one thing at a time so I started Arimidex three weeks after finishing rads. I worked everyday through rads and had very little problems with my skin. Although some nights I would come home and sit and watch my husband cook dinner, but for the most part I functioned okay.
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Welcome Farmerma. I waited over 8 weeks between my lumpectomy and radiation so I could fit in a long planned two week vacation with friends (to London, gemma). Since they said the norm was to start radiation 3-6 weeks after radiation, I decided to start Anastrozole in mid November to get some protection going. My MO said it was up to me and the RO was fine with that.
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yikes1. My center routinely does a blood test when you start. I think if you just had one elsewhere they would put that in your record. A lot of women come having just finished or coinciding with chemo. My RO mentioned something about bone marrow but I did not understand. My results were fine so I did not need any further tests as radiation would not change things blood wise.
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Thanks all. No rush Coyote. I am already wearing my smiley face.
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Professor50. Glad to know we have a point woman in case of nuclear emergency. I have an image of you with a raised tube of radiagel charging forth.
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Farmerma, Welcome! I had oncoplastic reconstruction, too. Don't see too many of us around the board. I had hematomas and surface bruising for months after my surgery. I did chemo, so the bruising was gone by the time I started rads. Ask your RO about it. I will start Tamoxifen after rads. As others have posted above, it's to keep the SE separate. I had pretty extreme reactions with rads, so you most likely won't have the issues I did. That said, I could have worked the first 3 weeks of rads.
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congrats to all those DONE with rads! I start on 2/9 (so your date is right CoyoteNV). I am nervous about starting. Thanks I to those t hat settle my nerves. I was one that took a beating from Taxol, the so called easy chemo, so I focused on some of the major SEs others were reporting. I can't wait until my 5 weeks are up.
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Hope London was good for you Wndrwoman! Not nice now! Freezing.
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hi! tamoxifen after rads for me too. No seromas
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Finished rads about three weeks ago and will probably start an AI this month. My MO definitely wanted to take one thing at a time. I did work a reduced schedule through rads. The fatigue was there but not as extreme as I feared it would be. I've been getting back to a more full time schedule for the last couple of weeks.
Hugs to all who are starting, in the middle, or almost finished!
Sandy
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Welcome, farmerma!
I had been on an AI for almost 5 years when I started rads. My MO had me continue the AI through rads and then had me take two weeks off and then start another AI (Aromasin), so I've only been taking the second one for a week.
I also have two jobs. My full time job is an office job and my 2nd job is a work-at-home job. I never missed a day on the day job - my rads were at 8am and I would be at work by 9 and just work through my lunch hour to make it up. The night job was a little different. After about half way through rads, when the fatigue started to hit, I started gradually cutting back on that job because I was finding that I was making mistakes because I was so fatigued. So I spent a lot of evenings in the recliner until rads ended. I'm working my hours back up on that job, though, which is good cuz I need the money, lol!
Off to do the dishes! And glad that I have enough energy back TO do the dishes!
JJ.
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Welcome farmerma to this strange, wonderful group of warrior women. I started my Arimidex before rads because of my delay in starting rads cuz of my dye problems and second surgery. A little nausea at first, now just a dry mouth. No new joint aches or pains. Finished #9 today. Found out that there is another CT on next Friday to prepare for boosts for the last 5 treatments. New news to me! Need to talk to my RO on Tuesday. Congrats wonderwoman!
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Good evening Ladies, I finished rads #9 today, I have some tight feelings under my arm, and the skin feels warm. It feels a little like a sunburn right now. I put the aloe gel on but that doesn't seem to do much yet. I just hope it stays this way!
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If you have no positive nodes do they focus the radiation on the tumor area only or do they still do the armpit area? Does anyone know, I'm trying to get myself psyched up for that portion of treatment in a few weeks.
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Good morning WheelyGirl, my treatment area for rads does go all the way up to include the armpit and shoulder area but it may be because of my Stage IV. This is a one hit wonder treatment plan for me. Or as I call it, go big or go home! It is painless, quick, and the days go by fast. I have #10 today already. I apply 100% clear Aloe Gel after rads, and several times during the evening. I wear soft tees and no bra to promote healing and keep the area clean and dry without pressure. And I still follow healthy eating and consume plain water to hydrate. And a walk does the body and soul good! I hope your rads go fast, and well!
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Wheely-I had no node involvement but my armpit was included in TX. I was surprised that it was one area that didn't get irritated from the radiation. Bonus was that it zapped the hair-didn't have to shave for 6 weeks. Now it's growing back sporadically.
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Wheely. I had no nodes but the armpit was impacted. That was my first area to get red and peel. Harder to get the cream/gel to the skin with the unshaven hair. Try to keep your arm away from the body to let air in and to avoid friction as much as possible.
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Okay, so is it impossible to wear a bra during rads? I am planning on working through that part of treatment and wouldn't dare show up at work with these girls sitting where they sit without a bra. Any suggestions on the bra issue?
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Wheelygirl, I have not bought any bras yet, but I did try sports bras that I have and they worked well. I don't wear a bra now, but I do wear sports top with support so I can use my foob. Right now a bra is annoyting for me.
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Wndrwoman! LOL!!! Yes, My SuperCharged Radiagel and I are unstoppable in the face of radiation.
My MO started me on tamoxifen as soon as she could. I even said, "You mean even before and then during radiation?" And she was like, "Um. Yes!?" I don't know why. But I will say that all has gone very well with both things and I am just so excited to be heading into my LAST 5 boosts starting Monday.
I have been oddly teary-eyed today just thinking back on the last 25 treatments, how I felt the first time I walked into that cancer center, how weird and strange it all seemed and still sort of does. I am going to be a biscuit next Friday even though I am going to be just so happy to be done.... Powering. All. The. Way. Through.
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Also, WheelyGirl, I think side effects vary greatly from person to person. I have worn a bra everyday during this time and have gone to work and it has been no big. I took some advil one day for some mild discomfort. My gel would seem to really be rapidly absorbed into my skin the first few weeks. More recently it seems to not be absorbing as much so my bra/shirt sort of sticks more. But that's the only complaint I've had. (That and just being pooped...)
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WheelyGirl, just finished #10 today. I had no node involvement but they still do the whole breast which includes at least part of the axilla. So far so good with Aloe Vera gel and Eucerin cream, just a little pink. I'm still having no problem with bras but the best is yet to come with 5 boosts at the end. I can still do sports bras which for me stop the jiggling and rubbing. I bought some cheap thin cotton ones for just keeping skin off skin in the end if I need them. Hurts too much to go without anything if I'm up moving around. Everyone is so individual! Best wishes for uneventful rads!
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wheely, me too. i had one node loaded with cancer pre chemo, but zip left in it at surgery and nothing in the other 14 they took out. Even so, they are zappin my pit.
I will say, today was 15 outta 25 and not bad as I feared. Maybe it is the dunkin donutsI sling to my techs every week?!
My chest is fine, not even pink. Pit is pink, and tight feeling. Lidocaine is a dream. I mix my rx cream with the aloe solarelief gel, and go to town. No worries!
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I'm gearing up for March rads. Do we have anyone else on that timetable here? I have my simulation in 2 weeks (2/16), then 4 weeks Tx (includes 4 boosts at the end). For some reason I've been really anxious about this part of it, so would love some company or words of wisdom as the time comes nearer!
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Hi Kayfry, I started rads on 1/26 and so far so good. Super quick, and no issues yet. The skin looks a little tan, but I put 100% aloe gel on it, and the techs and nurses said it looks good so far. They said to pat the gel on and let it dry, do not rub the skin. Wear larger loose soft shirts and no bra if possible. Take warm not hot showers, and do not rub the wet skin. I have 28 treatments, 18 to go. The RO said she would evaluate my skin and tolerance before she decides on the boost. I will keep you posted.
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Thanks, Beachbum, really glad it's going well for you so far! I've been collecting moisturizers (well, 2 of them, one being the Aquaphor I've hard a lot of people use. The other one is just aloe and Vitamin E in a cream, which looks nice. But maybe I need aloe gel to round it out! I would love not to have the boosts, in which case I'd have just 15 treatments (the so-called Canadian protocol). I'll be interested to hear what your RO decides about that.
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Wheelygirl, I had no lymph nodes involved but still got radiated from the neck to the ribs, front to back, including the armpit. I see a lot of clients during the day and most of my attorneys are men, so I had to wear a bra to work everyday. I actually cut a long piece of foam and pinned it to my bra. It made one of my foobs stick out further than the other, but it certainly helped the skin issues. At night I had a wrap from my mastectomy and put a soft hand towel against my skin and then wrapped my body to help keep my skin from touching anything. For me, radiation was easier than chemo, by far. I had 33 treatments and didn't have time to think about them, as I did them on my lunch hour every day. My wonderful techs knew that I was on my lunch hour and always had me in and out in about 45 minutes, except when I had to see the RO and even he tried to get me out of as soon as he could. You can do this, piece of cake!!!!!!
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