32 and diagnosed yesterday

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bama351
bama351 Member Posts: 42

This is basically just a hello post. I got the call yesterday from the radiologist yesterday that the biopsy came back as cancer. I have my first appointment with oncologist on Tuesday. I suppose that is when I will get more details.

I'm 32 and even though my friends and family keeping using my age as a positive. I feel like my age is a negative. Just seems more likely to be more aggressive in a young person.

Nipple retraction is what brought me to the doctor and started this rolling. I had a history of lumps and had my last mammogram and ultrasound in 2012 that both came back clean.

The biggest thing that has me freaked out is my back. I hurt my back 6 months ago carrying my 30 pound dog back into the house. It has not gotten better. Some days are better than others but I have not been 100 percent physically since that day. With this diagnosis I feel like the back injury is due to metastasized cancer in my spine. The injury always seemed odd as I felt like I was not doing anything major that should have hurt me. Also in the last few days maybe a couple of weeks, I feel like I can feel something on my spine that's not supposed to be there. Kind of a burning sensation when I am sitting or even laying down. It's only a slight feeling in addition to the back stiffness and muscle spasms I've been having. I also have had worsening muscle weakness in my right shoulder.

Anybody else have similar back pain prior diagnosis?

Oh and one more interesting detail about myself, my wife and I have 5 small children, 3.5 year old and 5m old quadruplets. :)

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Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2015

    Dear bama, Welcome to the BCO community. We are so sorry that you received a breast cancer diagnosis yesterday but so glad that your reached out here so quickly. Try not to jump to conclusions or google your symptoms as such can add to your worries. You may want to write down your concerns in advance of meeting with your oncologist and take someone to your appointment as it can be difficult to take everything in in the beginning. You also may want to reach out on the forum Young with Breast Cancer as there are a number of topics there for young people and young people with children. It seems that you have your hands full and this is the last thing that you need to have to deal with. Catch your breath and hang in there until Tuesday when hopefully more information will be offered to you. Keep us posted. The Mods

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited January 2015
    Hi bama - So sorry for the bad news. It is devastating at any age, but especially hard for the younger ones to hear. The mods are right, there is no reason to jump to conclusions. Take things a step at a time. Congrats on the littles ones, maybe carrying them around makes your back hurt. It would make mine hurt! So glad you found us. Please let us know how everything goes.
  • concernedhubbyalan
    concernedhubbyalan Member Posts: 97
    edited January 2015

    Be careful about jumping to conclusions about your back pain and stay away from Dr. Google.

    Best of luck.

  • hummingbirdlover
    hummingbirdlover Member Posts: 421
    edited January 2015

    Hello and welcome and I'm so sorry you find yourself here, especially at such a young age! There is no good time for this crappy diagnosis but I agree that more aggressive steps are there the younger you are. That being said, my mom is 70 and just finished up with BMX, chemo and rads (and she's doing great). Good luck at your appointment and come back here for support.

    I just wanted to tell you that my best friend injured her back over a year ago and it is still bothering her. It could be a bulging or bruised disc or a whole lot of things and back injuries can be slow to heal, especially if you're active, so try not to worry about that. Easy to say but try to breathe and stay calm and take it one step at a time. They found it and now it's time to get rid of it!

    Remember that you are not alone. We have a nine year old and those sweet faces and unconditional love will give you all the strength you need. Quadruplets? Holy smokes and congratulations to you!

  • Lolis197138
    Lolis197138 Member Posts: 512
    edited January 2015

    Hi,

    Sorry to hear you are diagnosed at a young age. This forum it's a great place to come to find info or just simply vent. It is not easy. I really understand the worries of being young and aggressiveness of this disease (I was diagnosed at 33 last March) but the best way to deal with it is one step/day at a time. 

    The back pain could be due so some disc issues. But it is hard not to worry once you have been diagnosed as we are more sensitive to all the other pains. 

    Congrats on you kids!!! Use them as your strength!!!

    Big hugs!!!! 

  • jarris77
    jarris77 Member Posts: 100
    edited January 2015

    Bama, sorry to hear about your dx and your back pain. Just wanted to let you know that you don't have to be doing anything major to hurt your back. My son was a college football player (in great shape) and was walking across campus after football practice one day, sneezed, ruptured a disc and had to have surgery. Obviously this has nothing to do with your back, just hoping to help put your mind at ease that you can easily have back problems without it being cancer related.

    Wishing you the best.

  • bama351
    bama351 Member Posts: 42
    edited January 2015

    Got a little bit of info today. IDC at least stage 3. 5cm. Estrogen positive. He's pretty sure it's in my lymph nodes too but since it wouldn't change the course of treatment, there was no reason to biopsy them. PET scan, MRI, and some heart test coming up. Eight rounds of chemo before surgery. Should start chemo next week.

    They told me it doesn't matter the stage now but more so the stage before surgery. I feel completely defeated. I fully expect the PET scan to bring more bad news and confirm the back pain is related.

  • 2timer
    2timer Member Posts: 590
    edited January 2015

    Sorry to hear of your dx but the others are right; there's no sense in borrowing trouble. If test shows something else then you deal with that if and when it happens.It is important to stay positive. I will pray for you and your beautiful family.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited January 2015

    oh bama - sorry about the not so great news. I have seen some amazing things happen here with chemo before surgery. It is good to find out how well it is working. Sorry hon, I hate this for you. One step at a time. We're here for you. Lean on us.

  • bama351
    bama351 Member Posts: 42
    edited January 2015

    So chemo before surgery does well? Thank you for that... I'm so down over this, I don't even feel like reading up on it.

  • concernedhubbyalan
    concernedhubbyalan Member Posts: 97
    edited January 2015

    State of mind is everything. As I post this, I am with my wife as she had her bilateral mastectomy yesterday. She has Stage II and will probably need chemo. She, like you, is in her 30's.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited January 2015

    It is a unique opportunity to find out how much the tumor shrinks. Some ladies that had neoadjuvant chemo therapy then had surgery later, show no evidence of disease after the breast surgery, not even where they initially found the tumor. If you need help coping be sure to talk to your doctor or nurse navigator about it. I'll bet those babies help get your mind of things for a while. Crossing my fingers and toes that the PET scan shows nothing sinister. It is ironic that this is the only time in our lives when we welcome a strained muscle or arthritis. Gentle hug.

  • bama351
    bama351 Member Posts: 42
    edited January 2015

    Thank you for encouragement. I really need it. I think if my back wasn't bothering me I would be more upbeat. I know it's injuried but I feel like it could be a spot on my spine that caused the injury. I would never be happier to be wrong.

  • Professor50
    Professor50 Member Posts: 220
    edited January 2015

    bama351, I am so sorry you are having to deal with all this. Hang in there and seek help when you need it. I wanted to say that it is natural to think that everything is connected. About 2 weeks after my surgery, I caught a terrible cold. I was convinced it was somehow related to cancer. And the cold, in some ways, felt way worse than cancer. I mean, I have had very little cancer-related discomfort. Actually none. But that cold kicked my butt. The pain of your injury probably is sapping you right now. That's not crazy. I will keep you and your family in my thoughts.

  • Mommy2Six
    Mommy2Six Member Posts: 119
    edited January 2015

    welcome! I was diagnosed at 29 and have six kids. Let me know if you need to talk to someone. Pm me. :)

  • bama351
    bama351 Member Posts: 42
    edited February 2015

    Just checking back in. I had my first chemo treatment last week and it sucked but that's to be expected.

    PET scan showed that my cancer has spread to my back and my liver. So my fears about my back pain were correct.

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2015

    bama351, we are so sorry to hear this news. What is the plan? How are you? How can we all be there for you?


  • bama351
    bama351 Member Posts: 42
    edited February 2015

    I'm doing ok I suppose. Thank you for asking.

    The only immediate plans is to do 4 rounds of chemo and do another PET scan. We originally talked about doing 8 rounds and then surgery.

    If my back would loosen up I think I could feel 100 percent but my back is causing mobility issues and getting me pretty frustrated.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2015

    oh bama. I don't know what to say. I am just sick about that news. Please check in with the stage Iv sisters when you have a chance. The strength and support there is fierce. I hope you have enough support at home. Anything I say seems so hollow. If you live anywhere close to OKC let me know. I suspect not. If you were closer I'd hook you up with my church. When something like this happens a church can be a great source for extra hands and help and I'm not talking solely about spiritual support. Tell me what I can do to help. I'm going to stay in touch ok?

  • lulud471
    lulud471 Member Posts: 89
    edited February 2015


    Like the post above, I don't know what to say & feel like anything I say will seem hollow.  Hoping you have a strong support system - whether family or friends.  If not, please seek emotional support from discussion boards here but also practical support like American Cancer Society can help if you need rides to treatments, etc.  Sending positive thoughts your way and truly wishing the best for you. 

     

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited February 2015

    bama I too am sorry to hear you got this news. I just wanted you to know I am thinking of you. Big hugs

    Nancy

  • bama351
    bama351 Member Posts: 42
    edited February 2015

    Thank you all for the kind words. Me and my crew live in central Alabama.

    Yes farmerlucy, I would like to keep it touch, that sounds nice.

  • Becs511
    Becs511 Member Posts: 303
    edited February 2015

    Hi Bama. I was 32 when diagnosed at Stage 4 also (now 33). As someone who is the same age, and has been at it almost a year, please feel free to private message if you want to talk or vent or ask questions.

    Being young with this certainly has its share of challenges, especially since most people in our age group have not been touched by cancer. But our bodies tend to bounce back from treatments faster than others.

    Trust me, once you get a little further into treatment and becomes part of your daily routine, things do get a little eaiser.

  • DiveCat
    DiveCat Member Posts: 968
    edited February 2015

    I am so sorry to hear your "gut feeling" was confirmed. Have you had a chance yet to review a new "game plan" with your medical providers?


    I do hope you head over to the Stage IV forum, there are women there who, like you, were diagnosed at or near their original diagnosis with Stage IV (and I know there are a couple women around your age or younger as well) as well as many who had a later recurrence, but in any event I know you will get the support (and place to run through all the emotions, events, and experiences not only without judgment, but a lot of empathy).

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited February 2015

    hi Bama, I hope you are having a good afternoon! What can we do to help?? Everyone here will step up to answer whatever questions you may have.

    What chemo are you on? I had AC/T then surgery. I just finished rads #10 today. But not about me, but I have disc issues in my lower back and neck. They are from years ago when I was at the farm and chasing horses, cows, and goats! I think throwing all the hay bales into the loft may have helped the injury also, and a car wreck. But try to separate the pains and side effects so you can explain the symptoms to the Doctors. It's good to be able to say when it started just in case its from the chemo or meds. I always keep a spiral notebook with my daily meds, food and water intake, and any issues or side effects. Not sure if that works for you, you have your hands full.

    Take care, I hope you feel well, and let's us know how we can help you! Just ask!

  • bama351
    bama351 Member Posts: 42
    edited February 2015

    I thought you ladies might enjoy this story.

    Both my grandmothers died of Cancer. Lung and Breast. I did not get much time with either because one died when I was young and I lived in a different state from the other. So I have just a few memories of either one of their cancer stories. So the story I was told about my mother's mother, the one with breast cancer, was she was 60 at the time of diagnosis and all they know about the tumors is that it was ER+. This was in the early 90s. She did not see a doctor about her breasts until the skin had started to dimple like an orange and she had some deformity. And she had tumors in both breasts. She refused any treatment outside of surgery. (That part I remember so I know it's true). So she had modified bilateral mastectomy and ran up a bunch of debt waiting to die. Except she didn't. Several years later, 5 or so, she had some bone pain she passed off as bursitis that turned out to be bone metastasis. The only treatment after this was radiation. She tried Tamoxifen but for whatever reason she did not tolerate it and stopped. She lived to be 75. I was impressed that she lived 15 years.

  • bama351
    bama351 Member Posts: 42
    edited February 2015

    When we initially discussed it, he said 8 rounds of chemo. 4 each of two different types. I'm not sure what the second one is (I haven't asked alot of questions- I'll come around- just been going through the motions so far). But I am currently doing AC.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2015

    That is a great story about your grandmother. I hope chemo is tolerable for you and that you have lots of help with the babies. Any chance they're all sleeping through the night? My 11 mo old granddaughter still isn't - she has her mama trained well! Praying that you find some relief from the back pain.


  • bama351
    bama351 Member Posts: 42
    edited February 2015

    All four are great sleepers.. They go down at 830-900 every night and make it to about 730-800 the next morning.. It's been very nice

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2015

    Hi bama - just checking in - how are you doing? Have you had round two of chemo yet? Thinking of you.

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