Pain after uni mx

Bcky
Bcky Member Posts: 167
edited February 2015 in Pain

I had the uni mx operation on Jan.9th. There are parts where on and next to my sternum and ribs the skin is very tight against the bone. It appears that more muscle and flesh were removed than other areas of the mx. It is painful. Anyone else with the same issue? I am still having pain in that area. The feeling is like I was punched there.

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2015

    So sorry for what you are going through, Bcky! You're not alone in having pain after breast surgery, especially so soon after the surgery. There may be some things that you can do to help with that pain. It is probably worth a call to your treatment team, if it persists over time.

    Please keep us posted, and eager to hear from others.

    This is a paragraph from our site:

    In the months after mastectomy

    Your body will continue to adjust to the effects of the surgery over a period of months. Here are some things to keep in mind:

    • You may have "phantom sensations" or "phantom pain" in the months after mastectomy: As nerves regrow, you may feel a weird crawly sensation, you may itch, you may be very sensitive to touch, and you may feel pressure. Your discomfort may go away by itself, or it may persist but you adapt to it. Analgesics and NSAIDs (pronounced EN-seds) such as acetaminophen and ibuprofen usually can address the pain related to this type of nerve injury. Opioids (pronounced OH-pee-oydz) also can be used to treat this type of pain. Read more about managing phantom pain.
    • Continue doing regular arm exercises: Stay with your arm exercise routine to keep your arm limber.
    • You may experience fatigue from time to time in the early months after surgery: If you're having trouble with fatigue, ask your doctor about things you can do.
    • http://www.breastcancer.org/treatment/surgery/mast...
    We're thinking of you,
    The Mods
  • roadrash
    roadrash Member Posts: 145
    edited January 2015

    HI, I had a double on October 28th and I still have pain. I feel like I am being squezzed by someone across my ribcage. I also have sensations of itching, hotness, and pain on the topside of my breasts. My breast surgeon is very empathetic and said that it could happen for years. I wound up with having painful AWS cording so even my arms and fingertips hurt too.I am prescribed valium, ultracet, meloxicam, neurontin, flexeril, and oxycodone for the pain. I don't take any of the medications unless the stabbing pain in my arm or ribcage gets too much to bear. Tylenol and advil never helped.

    I really hope you get some relief..

  • Bcky
    Bcky Member Posts: 167
    edited January 2015

    You too thanks. Dilaudid; Oxycodone for pain. Larazepam for anxiety. Tarazodone to sleep. Tamoxifen and Effexor I start tommorow.I do not take the Oxycodone or Dilaudid unless the pain is bad. But it really hurts. The PHDs say just do your exercises. It is like there is a huge swath of flesh like a valley that the surgeon took out by my ribs and it hurts. I can feel my ribs. The surgeons assistant said the surgeon took out the fascia ,as well as, breast flesh. I do not have the tight bra feeling or being squeezed by someone (the iron bra-they call it). I am sorry you are having that. That would be maddening.

  • Ariom
    Ariom Member Posts: 6,197
    edited February 2015

    Hi Bcky, I am a Uni too, no recon. You don't mention that you had recon, so I am assuming you didn't. The feeling of being punched in the sternum, that you are describing, was something I felt too, and a kind of sandpaper, sunburn which is caused by the regeneration of the nerves that have been cut. As time goes on, that will change to other zapping and zinging sensations. I guess you are also speaking of having a concave area, where the tissue was removed. Most of my discomfort came from the disturbance of the nodes under my arm. The iron bra and extreme tightness is what the girls with the TE's or immediate recon speak about.

    I did the exercises religiously 4x each day, even though I had cording too. It hurts to do it, but it will ensure you get your range of motion back quickly. I found doing the first lot of exercises for the day, under the hot shower worked for me.

    It is very early days for you and there is still lots of inflammation, deep bruising and swelling, you've been through a really brutal surgery! I gently massaged my chest with essential oils in a carrier oil base which helped a lot with that soreness in the sternum. I can't speak for the usefulness of the pain meds, I will do anything to avoid them and had none at all, for the entire process, because I registered discomfort and strange sensation, but not pain.

    Try to be kind to yourself, you're body is healing right now, but it will continue to change in both feeling and appearance. I am sure there will be others who will come along to share their expriences too. Take it easy!

  • Bcky
    Bcky Member Posts: 167
    edited February 2015

    Thankyou so much Ariom. Yes like being punched in the sternum. Exactly. Thankyou.I thought I was alone in that. My surgeon fell and broke her arm and is out on leave. I see the surgeons assistant and she says what you do to just do my excersises. I am hoping to see my lymphodema therapist soon. I have been wearing the same compression sleeve since my lumpectomy in October and finally months later all the other compression things I need are being mailed to me. Three month wait almost. I had the basic unfortune of dealing with a lousy prosthesis place that thought they could keep my compression garments so so long. My mom came to stay two weeks with me for unimx surgery. I brought her in to the compression garment place. Still nothing. I finally asked my PHD to call them and today my stuff is getting mailed. Emotionally and psychologically I am not ready for recon. I am seeing a cancer psychologist and psychiatrist for some really bad PTSD from this DX. Yes it is a concave area just above the suture line. Thankyou becuase people are acting like I should be up and about and all done yet I am still very tired at times. Thankyou for acknowledging it takes time. MX is an amputation no matter the way they say it.

    *Thanks RoadRash hope you feel better too. Many years of pain. I am sorry. Partially my hesitancy to get recon.

  • Ariom
    Ariom Member Posts: 6,197
    edited February 2015

    Awww, Bcky, I am so sorry you've had this crap to deal with. It isn't fair! I can't imagine what was holding up you LE garments, but at least they are on the way now.

    I know it's hard, but you have to try not to let the way others, "think" you should be doing, affect you. They have no clue what you have been through, or how your body is in extreme stress and healing mode, all at the same time.

    I couldn't understand what all the weird sensations were that I was feeling, so I actually watched a Mx surgery on the internet, purely for my own interest, certainly, this is not for everyone, but I have to tell you, it was brutal! I don't care what anyone says, I believe that even though we are knocked out, our body knows what is happening to it and that is why, like with all kinds of medical procedures, some people are affected more profoundly, than others.

    I was one who suffered extreme tiredness after my Umx. I don't do anesthesia well. I seriously, could drop off to sleep mid sentence in the early weeks, after surgery. That's very normal!

    If anyone gives you a hard time, just smile and say "We can discuss this again, when you've been through something similar!"

    Gentle hugs to you! Take care of you and let us know how you're doing!


  • Bcky
    Bcky Member Posts: 167
    edited February 2015
  • roadrash
    roadrash Member Posts: 145
    edited February 2015

    Bcky- I am seeing a therapist now too. This has been an ordeal to say the least. I really feel it down to my inner being. Thank you for having the courage to share that with us. On top of my breast issues, I actually have 4 herniated discs, spinal stenosis and severe degenerative disc disease. I was out of work for two years because of it. After numerous procedures I was able to finally find a new job and then BAM the breast issues, bmx and now reconstruction and it's all been in 3 months. People who have not gone through this process just don't understand. My own family think I should have been over it. I have terrible AWS cording and that is not helping. I just want you to know that your feelings are real. Our lives have been premanently altered at lightning speed. We need to give our bodies and minds time to heal. I am thankful for all the support and encouragement on this site.

    I am hoping that the pain lessens up and you have more better days. You will be in my thoughts.

  • Bcky
    Bcky Member Posts: 167
    edited February 2015

    Thankyou Road Rash. I was making it in my career and finally saving decent money. Getting excellent reviews from clients. Then BC. I am so depressed and sad. Very scared. I have PTSD the psychiatrist says. All the drugs they give cannot take away the reality of fear of death and cancer for me. I saw two therapists today and one specializes in cancer. She had cancer herself as a child. Somedays I want to simply fall asleep and not wake up. I used to be a type A person. Excelling at everything. Now I have not plucked my eyebrows in two weeks. My clothes are dirty. I have not gotten the mail in days. I need groceries. I am just so overwhelmed that after two therapists I came home and slept a few hours. I just took an Ativan and will sleep again. I have no appointments tommorow and have zero plans to deal with anything. On the 4th I will deal with things. I have an appt that day. Why are PHDs and Drs surprised when we are so depressed and sad? You are so right we were forced to deal with such a traumatic dx so fast. Facing BC. Somedays I can't. I am selling all I own and will move back to my families home state in 3 months when the lease is up. I live thousands miles away from family.

  • Lucy55
    Lucy55 Member Posts: 3,044
    edited February 2015

    Yes.. It certainly takes time to get over a mascetomy.. I know that being squeezed feeling your talking about.. I always think it feels as if someone has wrapped duct tape around me.. It's not as bad now.. But still doesn't feel right yet.. I'm also struggling to get full shoulder movement back.. I've always been an active person.. So am a tad shocked at how long it is taking..





  • roadrash
    roadrash Member Posts: 145
    edited February 2015

    Bcky, too bad you don't live by me. I used to be type A too. I was an athlete and now I haven't exercised in 3 months. What the heck is the point? It did get so bad that I had to go speak with someone. I clearly know that I have changed. You and I both know these treatments have really affected us. I think doctor's are surprised when we say we are depressed or blue because we are suppose to be grateful to be alive and grateful to have had successful treatment. They don't get it. I am grateful but now I am always waiting for the shoe to drop. The good news is that you and I both recognized that something wasn't right and went to go talk to someone. We are on the right path. It sounds like your current therapist understands the struggles and challenges you are facing right now. I think it is a good idea to relocate and move closer to family.


    Lucy55- That's me too. Surprised by how long this is taking for me. They failed to mention that I was going to feel like an elephant was sitting on my chest and getting bear hugged all the time. You never realize how much you use your shoulder on a daily basis until you can't use it the same way anymore.


    I m hoping that we all have better and pain free days.

  • Bcky
    Bcky Member Posts: 167
    edited February 2015

    Today I made myself bathe. I bathe if I have to go somewhere but avoid it if home alone because the MX scar is really scarey.Today I washed my clothes; dealt with bills; and grocery shopped a bags worth. I filled the tank. I get very overwhelmed and have to stop when the overwhelm starts. I tried lifting the grocery bag with handles with my right arm because my mx was my left breast. My muscles really pulled in the sternum area....really pulled. Ouch! So I got a carriage. Came home and took half an oxycodone. My sternum hurt just from that grocery bag. I think that these cancer specialists know how devastating and traumatic this dx is but unless they are therapists they cannot and do not want to deal with it. PHDs do the physical work then therapists the mental. I hate it too when PHds treat us like we are silly/ crazy because we are so sad or scared. I cried in therapy so hard yesterday that I napped three hours after then that night slept 12 hours. To me it is the remaining pain of surgery. The fear of death. Feeling like I have lost everything and lost the most important thing of all. My health. My worry free health. Having cancer always on the back of ones mind is exhausting and scarey. I started Tamoxifen three days ago. I have lost my appetite completely. I am forcing myself to eat Japanese noodle soup and pop tarts. Not healthy but it is food. I cannot wait to go home(1000s miles away) to family. After surgery for mx I was placed in a recovery room next door to a woman that projectile vomited all night and really suffered. I knew who she was because I heard her talking to her surgeon before surgery. I heard her voice in her recovery room.She sounded good before surgery. Anyway the next morning her PHD came in and told her husband she was not doing well. She needed palliative then Hospice care. I was so thoroughly scared by listening to her all night then the a.m that after returning home from surgery I was beyond anxious and crawling out of my skin with fright. After my uni mx I was in my recovery room alone with a morphine drip desperatley trying to rest with many blankets. I asked why I was so cold. The nurse said shock. My mom was with me for surgery but left after and left me alone that night and the next day until discharge. It seems that it takes all the courage I have to face the day. I want to stay and hide in my apt. I told the RN that I found listening to a human being suffering all night long traumatic and more exhausting mentally than I already was from my surgery. Her response was hospitals are no place to rest. She insisted I sponge bathe but I was still freezing. Hospitals give me the creeps now. She did not care that I was freezing and I had to bathe with an IV bag;nerve blocking ball and blood ball thing etc. I have PTSD now and do not know I will ever forget the sound of that poor woman suffering.

  • glennie19
    glennie19 Member Posts: 6,398
    edited February 2015

    Bcky:  it is a very traumatic event.  You are not even one month since surgery,, so rest is really important!  Eat comfort food, but do try to get some protein.  Maybe a protein shake smoothie?  Mac and cheese?  Maybe people are cold after surgery,, it is hard on the body.  They should have given you warmed blankets. And I bet it was hard being next to someone vomiting all night. Goodness,, that must have been rough.  Take it easy on yourself. 

  • Bcky
    Bcky Member Posts: 167
    edited February 2015

    Thankyou Glenny. It was horrifying. I so desperately needed to rest that night and calm down my own fears of my own surgery. Thankyou for validating I am ok and just doing the best I can and right now it has to be enough. I bought organic mac and cheese and the Japanese noodle soup has bits of chicken.I have lymphedema in my left arm and trunkal too from the lumpectomy. The Lymph specialist helped allot and I wear my compression garments. I have to see her again now because of this mx. The surgeon said they had to tie my left arm down during mx surgery. My left arm was real swollen but it has gone way down and looks normal now.

  • glennie19
    glennie19 Member Posts: 6,398
    edited February 2015


    Oh, ugh,, you have lymphedema too?  I can certainly relate to that.  How are you sleeping?  Are you able to sleep OK?  ask your doctor for something to help you sleep like Ativan or Xanax or Valium if you need something.  Take it day by day. Us ladies here on the forum are here for you.

  • Bcky
    Bcky Member Posts: 167
    edited February 2015

    Glennie I have been taking Ativan since my Lumpectomy in Oct. It is really a help. Some nights I cannot sleep well. Other nights I sleep for hours and hours. The psychiatrist gave me trazadone to sleep but I am not using it because it can cause heart arrythmia. I am waiting on her recieving my echocardiogram results via consent form. I am so glad for your responses Glennie. Thanks. I am here for you too.

  • Bcky
    Bcky Member Posts: 167
    edited February 2015

    Also above my mx scar is like a deep indent. My skin is so close to the bone. Does anyone have that? My sternum hurts but that indent does too. I see the PHD on the 4th. I already showed it to her but my original surgeon is on sick leave.

  • Bcky
    Bcky Member Posts: 167
    edited February 2015

    Finally on the 12th I can see a surgeon to take a good look at my mx. My original surgeon is still on leave but Another surgeon will help. I should not need dilaudid/ocycodones anymore yet tonight I just took one before I go to sleep. My mx hurts still a great deal. I went to my Breast Cancer support group tonight and shared my concerns.

  • Ariom
    Ariom Member Posts: 6,197
    edited February 2015

    That's good news Bcky. How did you find the support group? Were they helpful at all?

  • Bcky
    Bcky Member Posts: 167
    edited February 2015

    The support group is helpful. I have been going since Nov. Others there told me they had sternum pain too. I found them by contacting 1800 numbers and support group contacts the hospital gave me. thanks

  • glennie19
    glennie19 Member Posts: 6,398
    edited February 2015


    Bcky,, i hope the other surgeon will help.  You are only one month out! Your body is still healing. I'm glad that you have the support group to go to.

  • Bcky
    Bcky Member Posts: 167
    edited February 2015

    Thanks glennie....what a cute dog! My sternum hurt a little less today but I slept 12 hours on oxycodone and ativan.

  • Ariom
    Ariom Member Posts: 6,197
    edited February 2015

    Bcky, so glad you have found a support group that you enjoy going to. It always makes you feel better when there are others who relate to what you're experiencing. As I mentioned in another post, the sternum pain is very common after Mx surgery.

    I just got back from my BC support group, monthly meeting, our first since December, so lots of news to catch up on.

  • Bcky
    Bcky Member Posts: 167
    edited February 2015

    Thanks Ariom. Yes the Support Groups help. It will ease my mind to see a surgeon to explain why my sternum hurts so bad. But thankyou for reassuring me in the other past posts that it is normal. It relieved allot of anxiety.

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