Starting Chemo February 2015

Options
Chloesmom
Chloesmom Member Posts: 1,053
Starting Chemo February 2015
«13456736

Comments

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited February 2015

    Just got the word from MO that we start chemo next Tues. Hit me like a ton of bricks as 5 weeks ago BS said no chemo and we celebrated. Hope we can all support each other here and get through this big speed bump!

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2015

    Thanks Chloesmom for starting the February 2015 forum!

    For you, and all who join in the following month, we'd like to point out some helpful links, starting with the main Breastcancer.org site's section on Chemotherapy, including what to expect, types of chemo meds, and side effect management.

    There are some really helpful key threads here in the Chemo forum too!

    Great tips and practical advice on the following discussion board threads:

    Also, Last Month's Chemo thread might be informative!

    Hope you find this helpful!

    --Your Mods

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited January 2015

    thanks for suggestions mods! Hoping others will join in soon.

  • kaw45
    kaw45 Member Posts: 2
    edited January 2015

    Hi Chloesmom,

    I am also starting chemo next week. My first treatment is on 2/5 - I am having my port put in this morning. I will have 16 treatments over 20 weeks followed by 33 radiation treatments. Finding out I had to do chemo also hit us like a ton of bricks. Originally we thought a lumpectomy (1/5) followed by 6 weeks of radiation but the pathology report from my surgery noted I had evidence of carcinoma in my lymph vascular space. So chemo is required. I was so disappointed to learn my treatment is now a six month process instead of sixweeks. I'm ready to start. The sooner I start the sooner it will be over! Trying to stay positive!

  • MaryJC
    MaryJC Member Posts: 350
    edited January 2015

    hello- I had lumpectomy in November and starting chemo on 2/18. I was supposed to start sooner but the dr never confirmed and I'm truly in no Rush. Now they wanna rush me. Ugh.

    Anyway I'm having 6 cycles of CHT every 3 weeks followed by targeted radiation. I will be on a strict nutritional regiment to lesson effects. I'm nervous and sad to have to so this. But it's for prevention of recurrence. May as well. Thank you for starting this forum where we can support each other. xox

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited January 2015

    What is strict nutritional regime? Thanks in advance?

  • MaryJC
    MaryJC Member Posts: 350
    edited January 2015

    no sugars, low protein/carbs, Ketogenic diet. Also fasting a few days prior to infusion. There have been a lot of studies on it. I Already fast periodically for other reasons. Was delighted to see the scientific benefits on the body, health Cancer/chemo.

  • MaryJC
    MaryJC Member Posts: 350
    edited January 2015

    Good Morning! I have to share that I'm emotionally not ready for this :( am u the only one? I'm also concerned about the hormone therapy after.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited January 2015

    Mary I have been on hormone therapy for 2 months. Went gluten free as I have arthritis and joint pain seems to be the biggest complaint. Having less inflammatory foods has been a help. Knock on wood it's been fine so far and I actually feel better than pre B

  • MaryJC
    MaryJC Member Posts: 350
    edited January 2015

    Hi Chloe's Mom :) yes gluten and sugar free does wonders for inflammation and healing! I'm glad you're having a great response from it. I'm getting my pizza fixes and other vices in. Altho I start chemo (ugh. HATE that word) on 2/18 I am getting in the 'zone' starting this Monday. Good luck to all of us!!

  • Mecsmama
    Mecsmama Member Posts: 20
    edited January 2015

    I thought I would join this group if you all will have me. 😊 I started chemo on Tuesday, so technically I belong in the January group, but I think I will fit better here. I am completing four rounds of cytoxan and taxotere. They will each be three weeks apart. My last one is April 1st. Today is day four of cycle one and it has been a little rough. I made it through the work week, but this afternoon and evening I feel a bit like I have the flu. My body aches. Hoping this is the worst of it and that the two weeks following will get better. Of course, then they will zap me again. :-/ 1 down 3 to go. Good luck to you all! We can do this!

  • SugarCakes
    SugarCakes Member Posts: 353
    edited January 2015

    Two weeks into this journey and I'll start chemo Monday morning after my superbowl party.  I will have 4 to 6 cycles, once every three weeks.  Chemo - surgery - radiation - more chemo.  TCHP.

  • speechmom22
    speechmom22 Member Posts: 20
    edited January 2015

    Hi Chloesmom,

    I am also starting on Tues 2/3. 1st of 4 rounds, three weeks apart. I will be taking Cytoxan and Taxotere. Radiation to follow when chemo is done. I've been spending the day cleaning and preparing for next week. I get nervous when I read about the side effects, some seem brutal. I knew from the beginning that I would need chemo because I am triple negative. Hoping we can support each other through this! I'll be thinking of you Tuesday while I'm sitting there getting my first infusion.

  • speechmom22
    speechmom22 Member Posts: 20
    edited January 2015

    I will be watching your messages closely since I am on the same regimen, just a week behind you. Hope you are managing well!! Keep posting advice! I need it!!

  • MaryJC
    MaryJC Member Posts: 350
    edited January 2015

    seems like we're all closely same regime. I don't stsrtt until the 18th tho. Anyone had to have echocardiogram? i get anxious about all these lead-in exams n bloodwork :( btw I'm er+/her2+ abs having CHT for 6 cycles every 3 weeks. Altho I'm anxious- the larger part of me is ready for war! I say lets DO THIS! I'm a psychotherapist and also very God focused. It's all faith & right attitude as we progress and preservere thru trials and difficulties. xo

  • ksm
    ksm Member Posts: 23
    edited February 2015

    I am also starting chemo this month (probably start week of the 16th). 4 treatments 3 weeks apart. Taxotere and Cytoxan. Very pleased to have found this thread. Am looking forward to the connection with others.

  • SugarCakes
    SugarCakes Member Posts: 353
    edited February 2015

    Reading the discussion board about side effects particularly from Herceptin, Perjeta, and Taxotere (also will be on Carboplatin) REALLY freaked me out, particularly things being said about fingers, toes, and nails. I left the board and started reading the general articles on chemotherapy and then those specific to my antibodies and chemo drugs, followed by ways to help. I also went to a Chemotherapy class last Wednesday. My boyfriend and I were the only ones to show up; so it was taylored specifically to my treatment. Instead of the planned hour, we got 2.5 hours! I came out feeling so much better than I felt going in.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited February 2015

    We didn't have any class. The only thing I have as support is the info on this site. I have been making a list from the suggestions from Melrose. Bought Sally Hansen nail stuff today. Would be going in blind if not for you all. I don't know if they have a class I had to go out of town to help family and. get back 10 hrs before my chemo appt. Only found out this Wedafternoon that I start chemo next Tues AM

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited February 2015

    Don't know about EKG. I had to have one before BMX because I was over 50. Since surgery was recent they have mine on file

  • speechmom22
    speechmom22 Member Posts: 20
    edited February 2015

    mary...I initially was scheduled for a cardiac muga scan as a baseline but later that same day , my MO called and said that he canceled it because I am only having 4 rounds. I'm assuming if I was scheduled for more rounds then they would have wanted it to monitor cardiac status following chemo.

  • Mecsmama
    Mecsmama Member Posts: 20
    edited February 2015

    Sugarcakes, Speechmom22, and Chloesmom I just wanted to let you know I will be thinking about you this week as you begin treatment. The morning of my first infusion I was very anxious, but the anticipation was much worse than the actual infusion. I felt great the day of the infusion. It was strange to feel fine knowing what was coursing through my veins. If you have a port make sure you get lidocaine cream to put on an hour before your infusion. I did and didn't feel a thing when the needle went in. Also, I found taking a stool softener regularly has kept the big C at bay. Keep us posted on how you are doing. I have spent most of my weekend resting. I have moments where I feel fine and moments that aren't so great. It has all been manageable though. Tried on wigs Friday, and plan to purchase one this week. I am guessing I have a week or so to go before it begins to fall out. :-/

  • Ewt717
    Ewt717 Member Posts: 41
    edited February 2015

    mecsmama. We are in the same cycle. I had my first infusion jan 31. I feel awful really. It was fine for a few hours then the flu like symptoms started and now I am just so miserable. When I started I was like, only four rounds, how bad can that be? Now I'm like, three more times??. I feel terribly achy, have headache.

  • speechmom22
    speechmom22 Member Posts: 20
    edited February 2015

    mescmama...glad that you are managing well. It really helps me know what to expect. I went shopping today and got all of the things on my list so that I am prepared for SE. Did you take a steroid pill before your infusion? I am calling my MO tomorrow because he didn't mention it but it is mentioned in the paperwork about the CT. I just want to make sure.

    ewt717...so sorry to hear that you are not feeling well at all. I get migraines so the headache is something I am worried about. Hope it gets better tomorrow!

  • Mecsmama
    Mecsmama Member Posts: 20
    edited February 2015

    speechmom22, my steroids were all on the pre-meds they gave me before the chemo infusions.


    Ewt717, I am sorry you are not feeling well. I struggle with headaches as well, but have been fortunate not to get one since the infusion. One thing my chemo nurse said is that the cytoxan can cause headaches and if it did they would slow down the drip next time and that would fix it. I told her I struggle with headaches and she slowed it down on the first go round. It may be worth mentioning at your next treatment.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited February 2015

    I take steroid at 8 am and pm tomorrow. Getting weak in the knees thinking about Tues. Seriously wonder if my husband is going to have to carry me Into the place in a wagon. I can understand how people cant get on airplanes! Anyone else freaking out? Not as upset about hair as Infusio

  • SugarCakes
    SugarCakes Member Posts: 353
    edited February 2015

    Thank you metsmama. I have been awake since 3:30am. Well my son started crying and I got up to console him. Before that, sleep was terrible, though. I am a single mom by choice but have a serious boyfriend now. He is actully planning on going home right after my infusion today. My drs said I will likely feel fine the day of and the day after but good lord, it's my first treatment! I am so mad and disappointed in him. I have managed to completely forgot about my diagnosis and the road ahead at times. In the very beginning, 2.5 weeks ago, the news hit my BF harder than it hit me, it seemed. I hosted a SuperBowl party last night and I know everyone would have been shocked if they knew where I was heading this morning. Sometimes I think my positive attitude makes him think I am totally fine and able to handle parts of this alone. I have sisters that are wonderful and plan to be here when they can. One is in Vegas right now, one gave birth yesterday! And another is watching the kids of the one that gave birth yesterday. Oh well, hopefully I will feel fine today. Upset with the BF regardless. Sorry for the vent

  • Damselfly
    Damselfly Member Posts: 62
    edited February 2015

    Good morning ladies!

    Thought I would check in here. I am due to start Cytoxin and Adriamycin on February 16th. I am enjoying my hair while I can, and working on getting back to feeling as good as possible after port insertion etc. I'm going to have 4 cycles total, three weeks apart. Not looking forward to the side effects but your good advice and hard won wisdom is already helping. I hope everyone is having the best day possible.

  • Mecsmama
    Mecsmama Member Posts: 20
    edited February 2015

    Well, I am off to the doc in an hour. I have an itchy rash on my neck and shoulders. We shall see what they say. I am hoping they will give me something to relieve the itch. Other than that I feel like I might have turned a corner. Today is day 7 and I am feeling a bit better. Of course, I took the day off of work and have been resting, so we shall see how things go when I return to work tomorrow.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited February 2015

    didn't mean to be Debbie Downer. Everyone here has been so supportive. Am in better shape today. Took my 1st steroid this morning. Packing stuff fortomorrows adventure is actually helping me stay relaxed

  • MaryJC
    MaryJC Member Posts: 350
    edited February 2015

    hi damsselfie- I see we have similar Dx. Mine was idc stage 1 but er+/her+ grade 3 however they have me on 6 cycles of chemo every 21 days. Then I have 6 weeks radiation. Feel like my treatment is very aggressive. Thoughts?

Categories