Lupron

Glad2BeAlive, so glad you found us, and so sorry that you are going through so much.

Have you told your physicians about this pain?

Here is a very short summary of Lupron on our site. One of the side effects being osteoporosis, and this may be connected with the bone pain that you are experiencing, but only your treatment team could really diagnosis and treat this issue.

Lupron

We hope that you hear from others here, and please keep us posted on what you find out from your treatment team.

Warmly,

The Mods

Hi Gladtobealive,

I have been on monthly Lupron injections for about 9 months. I will tell you that the days following my first few injections were awful - intense hot flashes, pains in my knees and ankles, and visible swelling in my legs and right side (ALND side). The first few months, I told my husband "I HATE LUPRON" on a regular basis. I tried to drink lots of water and push through the discomfort to ride my recumbent stationary bike. I feel this helps. I still can't ride for about 24 hours after... However, my body must be adjusting because the intense discomfort (swelling and pain) only lasts about 24 hours now. The hot flashes have normalized. And, I return to my new normal within about 72 hours! There is hope - I hope that you will have the same experience. (That said, when I was told that I would need to have Lupron injections for 5 more years, I agreed to proceed with an Oophorectomy, to avoid those 60 shots... I am 53 and ready for menopause) Best wishes

hi-- I've been on lupron for 1.5 years now. Weight gain, joint pain are just a few side effects. I know it's counterintuitive but try to see if you can move a bit more...it took some of the stiffness and pain out of my joints. Also-- have you asked if you could try an AI instead of tamoxifen while you are on lupron? Over time, it's gotten better for me, but I do still get stiff if I've been still for a while (like first thing in the morning or if I've been sitting down too long).