January 2015 Surgery Sisters

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  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited January 2015

    Mrs. Tee -- best wishes for surgery today!

    Fralaliso -- yes, lucky for you that you got a BMX! Amazing what imaging can miss....

    jabec -- the rescheduling really has turned out to create all sorts of challenges..... Are there any friends who can run errands for you or drive you places? I've found that lots of people want to help as long as you have a specific need to be met.

  • jabec
    jabec Member Posts: 70
    edited January 2015

    ElaineTherese - thanks for the response. It's our school vacation so a lot of my friend are going to be away the same week my family will be away, but I'm sure I can find enough friends who will be around to help out. I don't mind asking for small favors, but hate to have to ask people to drive me into the city if I have to see my PS. It's just one more thing on this awful journey to have to deal with!

    Mrs. Tee - good luck!!

  • Lulu22
    Lulu22 Member Posts: 175
    edited January 2015

    Just found out why my MO appointment has been cancelled. MO is out with the flu!

  • LisaZak
    LisaZak Member Posts: 25
    edited January 2015

    Just got home from my surgery. Everything went well, they were able to get me in earlier than scheduled, so now I get to rest from home. Everything went very smooth and I am surprised to be in little pain (although still under the influence of what they gave me at hospital.) Praying that everyone else who has upcoming surgery fares as well as I have so far. Now to wait for Path reports. They say I could hear as soon as Friday :). For anyone living in Indiana, I must say that IU Health (I went through Goshen site)has been truly wonderful.

  • Lulu22
    Lulu22 Member Posts: 175
    edited January 2015

    Glad to hear things went well, Lisa. Sending good vibes your way for a good path report.

  • Jmo06
    Jmo06 Member Posts: 159
    edited January 2015

    jabec i know asking for favors is not the most comfortable thing to do. Ive heard that a nonprofit provides rides to doctor appt , I believe its a united way. Excoworker's dad used this service frequently.

  • Carriek30
    Carriek30 Member Posts: 80
    edited January 2015

    Hi Everyone,

    I had my surgery yesterday. Lumpectomy. It went very smoothly. I am surprised like LisaZak by how good I feel. Sore and tired yesterday and today feeling pretty good. This morning I felt like I had a slight hangover (from anesthesia) but tonight good.

    Now waiting on Path report. I feel it will be all good.

    Hope everyone heals nicely.

  • CassieCat
    CassieCat Member Posts: 1,257
    edited January 2015

    The past two mornings I've woken up feeling so much better, and my range of motion seems better today too. It's always been there, but it seems freer today. I'm 20 days post MX, no recon.

    Hoping recovery goes well for those who;ve already been through it, and best wished to those with surgeries today, tomorrow and next week.

  • cinvee
    cinvee Member Posts: 74
    edited January 2015

    Hi All,

    I have been off the boards, so I am so happy to see that most are doing very well with recovery! Best of luck on the path reports.

    I was very lucky and besides finding PASH and more ALH and ADH, nothing more serious was found. My surgeon said I had the most dense breasts she had ever seen. (20 years!) She told me that we did the right thing, and that those boobs should only be in one place, a bucket. It made me feel reassured regardless of the final path. Oh, and I am shocked by how much tissue came out! 1000 on left and 890 on R. Seems like A LOT. I am 5'5, 150lbs, size 8 and previously wore a 36 DD.

    Expanders are tough. Ouch. Part of it might be that I was filled 300cc's in my expanders immediately. I had planned on just going to a C, but I wondering if I will be disappointed so small. I want to go smaller for sure, just not sure how much smaller. I still have 2 of 4 drains in 2 weeks later. CANT wait to get them out.

    LuLu, I feel for you to be rescheduled. We build our minds up so much for appointments, then boom.

    Fralaliso -- congrats on making the right decision. Scary what could have happened.

    Fralaliso -- yes, lucky for you that you got a BMX! Amazing what imaging can miss....

    Elaine, I totally agree. People want to help, being the independent person that I am, it has been hard to accept help. I have decided to think of it as ME doing something for THEM, by letting them help. Silly, I know. But letting them feel better by helping me, makes me happy.

    Cinvee

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited January 2015

    Re: accepting help -- I have a friend who organized a website for me where people sign up to help. Sometimes, it's bringing dinner; sometimes, it's picking up my daughter from sports practices, etc. The website recently allowed my DH to leave town to attend his aunt's funeral. He felt better, knowing that people would be helping out and checking in on me.

    I visited my surgeon today for a post-op visit. Everything looks OK, though there is a little swelling in my right arm (can you say lymphedema?). He also gave me a brochure with a series of exercises to do to improve my range of motion in my right arm. Ugh. Just looking at the diagrams is painful. If I find them too difficult to do on my own, I'm supposed to call and he'll refer me to a physical therapist.

    I always feel best when I just wake up in the morning; I think I'll try my exercises then.

  • Lulu22
    Lulu22 Member Posts: 175
    edited January 2015

    I used this site and found it very helpful:

    http://www.lotsahelpinghands.com

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited January 2015

    LuLu22 -- my friend used lotsahelpinghands, too! Great minds think alike.

  • MrsTee
    MrsTee Member Posts: 21
    edited January 2015

    Good morning ladies . I am 2 days post BMX and still in the hospital had some terrible nausea and vomiting . After they changed my meds I've been doing better but may have to go back to the OR because of some fluid build up on my right side (nervous yet once again!) won't know anything until later this morning. Glad that others have been doing well - need to read to catch up on everyone been way out of it! :

  • Msmath
    Msmath Member Posts: 77
    edited January 2015

    MrsTee- sorry to hear you may go back to OR. I will keep you in my thoughts and prayers. I'm getting ready for my BMX this morning. I'm a little nervous but feel confident with my decision. I'll check back as soon as I feel up to it.

  • CassieCat
    CassieCat Member Posts: 1,257
    edited January 2015

    MrsTee, sorry to hear about the nausea and fluids. :( I hope everything is OK. Please keep us posted.

    Msmath, good luck today!!!

  • BooInLosAngeles
    BooInLosAngeles Member Posts: 6
    edited January 2015

    Nine days post UMx and I got my drain removed today - HUZZAH. Surgeon decided to leave the staples in for another week, though.

  • CassieCat
    CassieCat Member Posts: 1,257
    edited January 2015

    Boo, I got my drain out and half my staples a week or so after surgery but had to wait another week for the rest of the staples. Just getting the drain out makes a big difference, though! Congrats. :)

  • AudreyB
    AudreyB Member Posts: 377
    edited January 2015

    Hi everyone.

    On 1/13 I went to my Dr having found a lump on my left breast. I went for a mamo and sono on 1/15. After 5 hours of repeated mamos and a 2.5 hour sono I was told I needed core needle biopsies on both breasts!!

    Had the biopsies on 1/22 and while results were benign I was told results do not match what is seen on film. Path report states highly suggestive of malignancy.

    I met with a surgeon on 1/28 and am scheduled for bilateral surgical excision in a hospital next Friday 2/6. Needless to say I'm terrified. Surgeon said the same things every other surgeon seems to say, 80% benign yada yada. I feel like I'm watching a movie and know all the lines.

    My question is from experience will my recovery from biopsy surgery take a little longer since I'm having both breasts done? I know everyone is different just want some idea of what I'm facing regarding pain and recovery. Both masses are large and at the side of my breasts extending to the nipple area. Dr said she will make side incisions.

    Thank you all

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited January 2015

    Audry, of course you are anxious. Hopefully they are benign but it is wise to err on the side of caution. I had a lumpectomy in August and it was easypeasy. I never even opened the bottle of pain meds. I was sore for a week or so but certainly it was manageable. While everyone reacts differently, I hope your recovery is quick and easy too. Are they checking lymph nodes as well? If you check the February 15 surgery sisters thread and scroll up a bit there is a link from the moderators giving a lot of tips and useful information. Love, Jean

  • AudreyB
    AudreyB Member Posts: 377
    edited January 2015

    thank you zjrosenthal. No mention of nodes yet. Dr said to take this one step at a time with surgical biopsies being the next step. She did mention if biopsies come back positive we would then talk about mastectomy but I'm not to worry about that just yet. Really now????? LOL. I'm trying to think positive and see some humor in this horrible situation. My life is just on hold right now and I know everyone reading this knows exactly how I feel.

  • CassieCat
    CassieCat Member Posts: 1,257
    edited January 2015

    Audrey, I don't have any experience with that kind of biopsy or with having something done to both breasts at the same time, but I can say that recovery from my MX has been fairly easy and the pain was never too bad. The worst of it was in my armpit where my surgeon did have to go in for two lymph nodes. Good luck to you, and here's hoping for benign results!!

  • AudreyB
    AudreyB Member Posts: 377
    edited January 2015
    1. Thank you CassieCat. Best wishes to you for a speedy recovery!!!
  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited January 2015

    Any tips,from those having had ALND?

  • trailrose
    trailrose Member Posts: 219
    edited January 2015

    Cassiecat- You are recovering so gracefully. Such a great attitude!

    Okay Ladies I am 11 days post op from my BMX. My drains came out yesterday and that didn't hurt at all. The PS says I'm healing nicely. The painful cramps I was feeling on the right side of my chest are gone! I think it's because the tight ace bandage and drains were removed. So no more Percocet and Flexaril just ibuprofen.

    I will be getting my first fill next Friday. I will keep you posted on my experience.

    I still can't look at my incisions. I just need time.


  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited January 2015

    zjrosenfeld -- I had ALND with my lumpectomy -- they took out 20 nodes (all clear). Because they took out so many nodes, my drain stayed in 2.5 weeks. But, now it's out. Unlike a sentinel node situation, the surgeon has to cut across some nerves to get out so many nodes. So, there's a numb spot in my armpit. Today, I went to the pool with my husband and sons to work on some of my exercises -- it's definitely the ALND which reduces the range of motion in my right arm. A little swelling in the right arm but no serious lymphedema yet. A lymphedema specialist is coming to my hospital on Wednesday to speak to the BC group -- since I got ALND and am at risk, I will try to make his talk.

  • concernedhubbyalan
    concernedhubbyalan Member Posts: 97
    edited January 2015

    11 days post op and my DW is back in the hospital. She had necrosis in he right reconstructed breast and contracted cellulitis. On a postive note, she had her first bowel movement since surgery, always a plus.

    The PS is doing a debridement on Tuesday.

  • Birder
    Birder Member Posts: 11
    edited January 2015

    Hi again-had my lumpectomy on 1-29: needle localization, radionuclides in breast went fine as well as surgery removing cancer and 3 sentinel nodes. However my surgeon was unable to get a port in on either side though she tried for additional 1 1'2 hrs of surgery. So I will have to see an 'interventional radiologist' who will inject dye in my breast veins to find a way to put port in but that is later. Like others above I have had little pain from surgery and not used any pain pills.

    Though this was outpatient surgery they used general anesthesia and I got very nauseated from it. They gave me a lot of anti-nausea meds that made me groggy but let me go around 7 pm to return with my friend to the motel. Total screw-up on getting me oxygen as now I need 24/7 and the portable concentrator (I purchased myself for my copd use overnight as could not get insurance to cover lighter weight concentrator) I knew was not going to hold up to that much use overheated yesterday twice and had to be off. I started 8 am to get through the hoops to get a regular oxygen concentrator and some small bottles to 7 pm yesterday to finally get the oxygen delivered to my motel. Was unable to get certified by medicare to pay for it due to super tight restrictions and catch 22's so paid for it myself.

    Was very tired yesterday from multiple phone calls trying to get oxygen I fell asleep early last night and awoke at 2:30 am. I coughed up a little blood so out of an abundance of caution I got a cab to take me to the emergency room as my friend had gone home. They took another x ray and said it was the same as the one they took right after surgery to make sure they had not breached my lungs. Doc said likely from endothracheal tube they put in during surgery that can scratch going in or out.

    Now waiting for another friend driving up from town I live in with some home made soup and bread. She was supposed to bring me a stool softener but instead brought a mild stimulant laxative so will make do. Otherwise I am doing well, taking my dog out several times a day and walked at least 500 ft in several small walks today.

  • concernedhubbyalan
    concernedhubbyalan Member Posts: 97
    edited January 2015

    My wife and I like to talk about "2 months ago",  B4 cancer, infections, 50k dr. appts, etc.

    We just finished paing off our school loans and looking at buying our first house.

    Needless to say, this sucks.

  • Jmo06
    Jmo06 Member Posts: 159
    edited February 2015

    so sorry concernedhubbyalan totally suks 1 good thing u have each other lil sunshine

  • concernedhubbyalan
    concernedhubbyalan Member Posts: 97
    edited February 2015

    It is what it is. I volunteered for the job, when I said I do.

    Five years from now, we are throwong the biggest party in history.

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