Starting Chemo January 2015

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  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited January 2015

    Hi Teri, I have a smart port, and they did not offer any other choice. I still have it since I will probably return to chemo after rads. I am hoping to hold off on it so I can have my summer to hit the beach. Last summer was spent at the Clinic. I hope you are doing well.

  • Brandi999
    Brandi999 Member Posts: 143
    edited January 2015

    I don't know how many of you ladies would be down with this but as an experiment, I started oil pulling with the chemo to see how well my mouth would do. I don't know if it's from the oil pulling but my mouth has remained in perfect shape. No dryness, no sores, no bleeding. It hasn't helped my taste buds going weird but even that hasn't been too severe or long lasting. I got a bottle of sunflower oil (though you can use many kinds) and swish it around in my mouth for 20 minutes before spitting it out in the toilet. It removes toxins and even whitens teeth.

  • SweetHope
    SweetHope Member Posts: 439
    edited January 2015

    Frye, when are you doing this? While you are in chemo, or at home after? During adriamycin drip I chew on ice chips. I gently brush my teeth and use Biotene each morning, day and evening. So far, so good. I think I will try my organic coconut oil. Hopes it whitens also. I'll let you know. Thanks for the info.

  • Cherylfg
    Cherylfg Member Posts: 97
    edited January 2015

    spookisgirl-I love the photo you posted. You look so happy dancing!

    Today is my first day wearing my wig to work. It's washed and ready to go but I'm a little nervous. I hope I don't forget it's a wig, reach up to push the hair out of my eyes, and then bump it out of place. Can you imagine the surprise?

    Cheryl

  • Cherylfg
    Cherylfg Member Posts: 97
    edited January 2015

    My hair is less itchy and mostly gone now. I've been using a lint roller on my head and it feels so good. It doesn't hurt at all and it makes it less itchy. I feel a little crazy lint rolling my head but, oh well.

    Cheryl

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited January 2015

    Hey Cheryl, good luck with the new "do"! You will like it more everyday that you can pop it on and go, and not have to do hair every morning! I worked 42 hours a week during chemo, and it helped so much to sleep in the extra 1/2 hour in the morning. Take care....

  • Tennisfan
    Tennisfan Member Posts: 114
    edited January 2015

    Spookisgirl, how relaxed and free you look in that picture!!!

    Cherylfg - it hasn't happened to me yet but a friend of mine told me he saw a young woman's wig fly off because of strong wind while leaving a restaurant and that she laughed it off with her dinner party so I took a mental note to do the same when it happens!

    About the itchy scalp - Look Good Feel Better ladies suggested to massage our scalp daily with sweet almond oil. She said that it will also stimulate healthier hair growth.

    Ladies, don't forget your nails!!! I use Evonails (bought online) but I read that almond or tea tree oil also works well.

    Bonne journée everybody!

    Marjo

  • PMR53
    PMR53 Member Posts: 452
    edited January 2015

    I am definitely going to try and go to The Look Good Feel Good here. It's scheduled 1 week after my next chemo. Thank you for the reminder and good experience you had!!

    Patty

  • Brandi999
    Brandi999 Member Posts: 143
    edited January 2015

    SweetHope, I do it every morning in the shower and a little after to get the whole 20 minutes. Then I brush my teeth after.

  • spookisgirl
    spookisgirl Member Posts: 96
    edited January 2015

    Cheryl--Good luck with work!!

    I feel very lucky (so far) in that I haven't had issues with either heartburn or the big 'C' so far with chemo, although I have only had heartburn once in my life previously, so it seems I am not prone to it. I hope it keeps up! My biggest issue has been nausea and headaches. I thought I had 'turned the nausea corner' but it seems back today with a vengence, so back to rescue pills for me :( I was almost 2 days without. Funny how things 'flip-flop'.


  • Cherylfg
    Cherylfg Member Posts: 97
    edited January 2015

    Thanks, Spookisgirl and Beachbum. I'll let everybody know how it goes!

    Marjo- I think that is a good reminder to always try to laugh at the craziness of this disease. I've certainly experienced things I never thought I would.

    Thanks for the reminder about the workshops. I signed up for a Look Good Feel Better workshop for this coming Monday.

    Cheryl


  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited January 2015

    Hi Ladies, I loved the workshop, two hours of freedom from cancer, and I looked great when I left. I grab all the small victories I can get. I never thought that heartburn and constipation would be a topic of conversation with my friends! I had problems during chemo with beef, gravy, and any red sauce. I never had heartburn before cancer, so I keep the big bottle of Tums handy now. I skip anything fried, garlic, or any snacks and chips. So veggies is my go to snack. So a good thing. Strangely, I had to give up any soda, bye Pepsi I guess, I still love you! The bubbles are not fun for me. Grrr....

    As far as the nausea, it never stopped for me all the way through chemo. I took the meds like clockwork. For headache I took tylenol per my MO, and applied ice to the back of my neck, worked out great! I would ice my neck during the infusion as well. Never had a headache after that. Anything that works!

    Have a great afternoon, and a peaceful evening! Now I'm off to rads, putting on my battle boots. LOL

  • dstar
    dstar Member Posts: 72
    edited January 2015

    Here I am, did not know if I was going to make it through the last 48 hours. Honestly. I think I was OK with meds and SEs the first few of days, was able to hydrate well and have small meals despite nausea, slept but then I started the Sulfa drug, broad spectrum antibiotic, on Saturday-what are the side effects? Nausea etc. Could not eat or drink after Sun night, lost my cookies a few times, meds could not really control. I will not be taking Sulfa drugs anymore. Wrote a missive to my onco detailing problems. Kept trying to eat a little and drink a little, crashed hard on Monday afternoon, shaking felt like my body was shutting down. I am usually not a drama queen. my neighbor went grocery shopping for me, ginger ale and peanut m&ms. Strange choice but I kept a little down, the calories saved me. Throwing my organic healthy food cancer cookbook out the window. That woman knows nothing, has not been down this road herself. Cold apple/cherry juice was wonderful. Cold everything is wonderful, jello and popsicles are on my shopping list. Anything to stay hydrated. Walked. Drank senna tea. Slept. Woke up feeling OK this morning. I could just cry with relief. Lost 4 pounds. Hope I will get some of that back as I can drink enough now. My little terrier never left my side; I went on walks for his sake, not mine. He is getting extra salmon treats today!


    image

    To all who are suffering through this, I am right there with you, TeriMP, you just go on into your docs office and give them hell! Their attitude is beyond the pale. Considered stopping chemo. Guess I will try again with adjustments in medications. OK, I am done venting thanks for listening. Good luck to everyone.

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited January 2015

    Hi dstar, I hope you feel some better! I had AC/T and I crashed like a rock the first treatment. I called the MO and told her I needed a stronger nausea med, and that got me through. Popsicles, jello, cold fruit, mandarin oranges, and yogurt helped me a lot. I ate them every day, it was the only thing I could eat. And I was so thirsty, I drank bottles of water constantly. I put ice on my neck and that helped also. Maybe they can review the meds, and schedule it so you have them as pre meds instead of waiting for the side effects to hit. I am so sorry that you feel so bad, but don't suffer in silence. Call the MO so they can help you. The AC got better each time, but still no picnic either. I just hope you can get ahead of the side effects. If I can help, you can always send a PM.

  • SweetHope
    SweetHope Member Posts: 439
    edited January 2015

    Dstar, so sorry. Gentle hugs. I was almost in tears reading about your side effects, then when you described throwing your healthy cancer food cookbook out the window, I cracked up laughing! You are a really strong cookie and I'm sure you are going to be successful with chemo.

    Your terrier is precious. Looks about the size of my Pomeranian, Silly...short for Sylvia.

    Can't they just give you an antibiotic infusion on chemo day to replace sulfa drugs? I think I got a steroid, then antibiotic, then adriamycin drip, then cytoxan drip. Hope this was a one time only trauma.

    Yet, still, you were such a warrior! Taking your little man for walks! I wasn't near as sick as you, but I couldn't get out of bed for two days; sleeping through a lot of rib pain from Neulasta shot). (Both my poms were well taken care of by my sons.)

    image

    Mickey.

    image

    Sylvia.

    Today is day eight after first chemo. I almost feel back to normal. I hope you get your four pounds back this week and that you have no more issues. Once you feel confident, treat yourself to a big, juicy cheeseburger (but hold the onions...heartburn).

  • TeriMP
    TeriMP Member Posts: 89
    edited January 2015

    Hi Dstar, I am sorry to hear that you are having a rough time! I too do not do well with sulpha (except I swell up, the one and only time I took it my dad said I looked like a plastic surgery victim gone horribly wrong ). Have you talked to you MO to get stronger nausea meds? I found that activia yogurt, apple sauce and oatmeal have become my best friends. Can't eat cheese anymore as it tastes like eating a slab of butter.

    I will definitely be venting to my MO next week when I see her regarding the lack of help/sensitivity the staff has displayed.

    I've read that those of you with petslet them cuddle with you; I have put up a baby gate to keep my room germ free and am scared to pet them. Am I being crazy?!?!

    These are my two, the bigger one is Diesel (5) and the little one is Havok (3); unfortunately the younger was diagnosed with cancer a month before myself (my poor husband could write a country song regarding our last year), so we had to have his front leg removed to get the cancer out. He is our little tripod now.

    image

    I hope you start to feel better soon and a the other ladies are doing well.

    Lots of love!

    Teri

  • dstar
    dstar Member Posts: 72
    edited January 2015

    Thanks Beachbum, Teri and SweetHope for your warm support, it is appreciated. Love the doggie photos, let that genie out the bottle, I guess! So sweet, Sylvia and Mickey, Diesel and Havok (those booties just kill me) ! You know Teri, it is a small risk to let my dog near me, but so important for my emotional well-being. I keep him washed, don't let him lick me, and wash my hands frequently. Otis is very careful to do just what I need him to, he understands in his way that I am sick. In my informational packet it stated that it is fine to pet animals if you wash your hands after. That being said, you should do whatever you are most comfortable doing.

    Keep feeling better, though my stomach feels like maybe a tank rolled over it. Just had a long talk with my onco nurse, she is kind and thinks I had a reaction to the sulpha as well. I probably won't be on another antibiotic after this experience. I will be taking ativan from now on as an extra anti-nausea protection, very low dose. My lesson in this is to call the consulting nurse service that I have available to me 24 hours a day when beginning to feel bad instead of just trying to wait it out, on a long, slow slid. Dehydration makes nausea and vomiting worse, an IV would have helped a lot. Wasn't thinking clearly then, got to try to take action before that point.

    Beachbum, you keep saying, "let your onco doc know your symptoms, don't suffer in silence, meds can be adjusted, you can be helped." Please keep repeating that message; I have really heard you now and it is so important! I hope anyone reading this reaches out for help before you get as sick as I was, let me be the example of the one who stayed quiet for too long; it is difficult to know what to expect of your first treatment yet no one else need suffer like that. There really is no point. None. How was your first radiation appointment? OK I hope!

    Stay strong ladies. I am happily eating whatever I want! I might have a vanilla cupcake or something crazy like that! After a soft scrambled egg and some vegie. Going for another walk soon!

    Warm Regards, Dana


  • Cherylfg
    Cherylfg Member Posts: 97
    edited January 2015

    imagedstar- I'm sorry you had such a rough time but good for you for speaking up!

    I love all of the dog pictures. We have Jack Cat and he is a big, fluffy sweetheart. He is indoor-outdoor and I still pet him. He seems to understand that I'm going through something and does his best to comfort me. Since I've started chemo, he is never far from my side and is usually sitting pushed up against me.

    I'm happy to report that my wig was a success. A few of my students told me they liked my haircut. If they only knew!

    Cheryl

  • mommacat4
    mommacat4 Member Posts: 215
    edited January 2015

    Dstar, I am glad that you sought help. Your symptoms and reactions made me cry. Then of course throwing your healthy book out the window made me laugh. Keep on top of the SE'S. I found that eating something through the day helps. For instance, I have a huge bowl of grapes in the fridge so every time I walk by my fridge or open it I grab a handful ( about 6 or 7) grapes just so my stomach never has a chance to get empty. Yesterday I cut up a bunch of vegetables (celery, cucumber, red and green bell peppers) and have them readily available as well. Also fresh green beens.

    Ladies, the pictures of your 4 legged kids are precious. I too have a cat who won't leave my side. She insists on sleeping on or between my legs. I sleep on the couch a lot in the reclined position so she is right with me. When I sleep in my bed, she is there. I have another cat who is around me a lot too but the cats bicker among themselves and the 2nd cat keeps her distance.

    Beachbum, you are a trooper and a wealth of information. Thank you for being here to guide us. And support us.

    Cherylfg, I am so glad your new hair worked out great for you. I am surprised you are able to work. Congrats to you. I work in a production based business and there is no way I would be able to keep my production standards with going to the bathroom all the time and the headaches and the fatigue.

    I started losing my hair last night. One strand at a time. Today it was 10 strands at a time. I plan on having a hair shaving party with my best friend and sister tomorrow. My sister insists on shaving her head. Oh, my cousin too. It will be emotional but fun at the same time.

    I had my 2nd chemo treatment today and other than a little nausea and a headache I feel fine. But I think I will lose more hair tonight because of the strength of the new dose of Adriamiacin.

    Take care ladies. ....

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited January 2015

    Hi Cherylfg, I am so glad that the students liked the new haircut!! You had to be be smiling from ear to ear. Feels good to have someone notice, and it's our little secret. I love your cat. I have fish, great to watch but not a warm fuzzy for me. I was concerned about cleaning the fish, and my nurses told me to keep my hands clean, but other than that I haven't had any problem taking care of them.

    dstar, I am so happy you feel better. It's all about managing the side effects to get through this. I have wonderful chemo nurses, and they helped me so much with fantastic info to make it work for me. Just get ahead of it, it's nice to kick back and have some control over this nightmare! I was concerned about all the meds, and the nurses told me you have them for a reason, tough for a person that barely takes tylenol for a headache. We went through the list, and it worked every time to kill the side effects before I felt ill. But now you get it, make it work for you. I was afraid to take too many, but I was scared to not take enough! Thankfully it worked. Any other questions, just ask!

    mommacat4, I love cold grapes, and I drank alot of 100% grape juice. Just a small 6 to 8 ounces at a time, but it was refreshing and cold. The AC/T is a rough go as I found out myself. It kicked my butt, and I still fight some of the side effects. I hope your MO's are on top of getting all of the tests for your heart. I had the pounding heart and shortness of breathe, be sure to let them know if you think anything is unusual. I also had the numb toes and hands, another thing to let them know asap to get you on the meds for it right away. I am doing pretty well with neuropathy now, it is getting better. I had #3 rads today, so far so good! Thank you for the kind words, cancer can be a very lonely place, I am happy to do anything to help.

    TeriMP, I have been laying low at home simply because the flu here in Cleveland has been so bad. I don't want to get any germs. I did get my flu and pneumonia shots just in case it helps ward off the bug. I love your dogs, just adorable. People probably have more germs, I would give them a huge hug. I clean my fish tank, and they can be pretty poopish, but I wash my hands a lot, and don't put my hands in the water any more than I have too. So far so good. I picked up some long handle cleaning tools that helps also.

    One thing I found out along this path is ask questions, and then ask more!! I have a social worker and a financial counselor through the cancer center. Look for resources, such as gas cards to help with travel to treatment, and the Look Good Feel Better program. It's free, and I had a blast. 2 hours of playing with make up, scarves, and no focusing on cancer. We laughed so much, it was just joyful. It's free from the American Cancer Society. It's all online, call and see if you have it close to you. I've received a handmade quilt from a local church group, they donate them to the cancer center. Others knit hats, another local group makes earrings. There are some very giving, kind, and compassionate people out there. Some volunteer to drive if you need transportation for treatment. Ask for what you need. We cannot change the cancer we all have, but we can change how we get through it!

    To all of you, have a very wonderful morning, and let's teach the world to sing in perfect harmony.......much love and peace! Cheryl


  • dimccleland
    dimccleland Member Posts: 59
    edited January 2015

    Love that I can read the posts on this forum and laugh and cry at the same time ...

    Dstar, I feel your pain with regards the side effects but am laughing at your comment about the cookbook because I did exactly the same thing!!

    Cherylfg, the mental image of you, lint rolling your head makes me laugh too!!

    Last week, post my first treatment, was incredibly tough for me in terms of fatigue and general chemo side-effects. As with my earlier post, I have been really struggling with chronic heartburn and diarrhea and also with eating ... everything I eat just goes straight through me. Tried to go back to work last week and probably managed four productive hours a day for three days but that was it ... guess its better than nothing!

    I had my second round of Taxol yesterday (the Herceptin and Perjeta will be given every three weeks) ... my MO weighs me every week and when I got on the scale yesterday, she nearly had a heart attack as I'd lost 8 pounds in a week. I do have the weight to lose but she was concerned with rapid weight loss. She has booked me in to see the dietician when I do my next round of treatment and has also changed my meds to see if we can improve the heartburn and diarrhea.

    Like most of you, favourite foods are still things like apple sauce, jelly and really cold papaya and grapes but I realise I need to eat a little bit more. Went and bought the makings of chicken noodle soup this morning and have put it all in the slow cooker so will see if that appeals. I am completely off red meat, fish, eggs and cheese so hopefully it will sit okay with me.

    Right, I feel a snooze coming on ... woke up this morning full of energy, managed a trip to the grocery store and did a load of laundry but I am crashing fast ... will check in again later.

    Di xx

  • mommacat4
    mommacat4 Member Posts: 215
    edited January 2015

    dimccleland,

    I had horrible fatigue. I was god for maybe 2 hours or so then I was whipped out for the rest of the day until day 11 after treatment, then I had a lot of energy, I went grocery shopping, washed and cut up all the fruit and vegetables I bought ( in preparation for my 2nd chemo treatment which was Wednesday the 28th). Drove my daughter somewhere. It was a new me for 2 days. Day 11 and 12. But by the end of the day both days my hips were hurting and I ran out of steam. Then day 13 my energy was gone. Fatigue all over again and my hair started coming out in strands. Not clumps. Then day 14 was my 2nd treatment. Now my hair is coming out in larger bunches of strands and if I just shake my head strands will fall out without even touching them. I am not telling you this to scare you but rather to share with you and maybe prepare you. We are on different chemo cocktails so I don't know how yours works.

    Best wishes, praying for all of you fine woman.

  • spookisgirl
    spookisgirl Member Posts: 96
    edited January 2015

    I notice my hair starting to thin today. Seem too soon. It is just strands coming away with my hand, and at least it is not itchy anymore.

    Love all the 4 legged posts! Have to add a pic of my 'kids' :)

    image


    This is Sascha (gray) and Gremlin (orange) brother and sister littermates :) They are liking the extra 'naptimes' with mom :)

  • PMR53
    PMR53 Member Posts: 452
    edited January 2015

    Dstar

    I am sorry and here is a big hug for all the horrible SE. I too laughed about that damn cookbook. I am bring followed by a Naturpathic Doctor and his diet plan is pretty much out the window too. Nothing sounds good except Strawberry Gatorade, cold cereal and maybe toast. I love peanut m&ms too I will have to try them. . I have been taking all my vitamins. I kept a journal of the SE and when I go Monday will plead for a reduced cocktail. I crashed on day 3 to 6. If not for my daughter I would have gone to the hospital.

    I love all of these animal pictures. Isn't it amazing our pets know we need extra support. They know we are sick and hurting. My 14 year old cat lays right by my side. God bless her.

    I read all your posts and thank you for your kind words, advice and brutal truths. Have a good day. One day at a time.

    Patty

  • Cherylfg
    Cherylfg Member Posts: 97
    edited January 2015

    I have that cookbook and haven't opened it once. All I want to eat are simple, salty, carbs with a side of meat.

    I had my vitamin d checked with my last blood work. It was pretty low but given that I live in Seattle, nobody has been surprised. Has anybody else had their vitamin d checked?

    Cheryl

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited January 2015

    Hi Cheryl, I just had mine checked. Low vitamin D seems to be low in breast cancer patients from what I have found out. I was taking 1000 mg every morning, with the test results, the Doctor has increased it to 2000 mg. I live near cloudy Cleveland, and we have very little sun here as well. Have a great day!

  • spookisgirl
    spookisgirl Member Posts: 96
    edited January 2015

    I live in sunny Victoria, just above Seattle, and I have been on vitamin D supplements for 2 years now, BC or not because of low test results.

  • Cherylfg
    Cherylfg Member Posts: 97
    edited January 2015

    Beachbum- I keep forgetting to tell you that I grew up on the Eastside of Cleveland. I lived in Lyndhurst and Beachwood. I went to Ohio State for college but I moved from Ohio after I graduated.

    Cheryl

  • PMR53
    PMR53 Member Posts: 452
    edited January 2015

    Hi Cheryl

    My Vitamin D last year was 24 which is low. I am taking 3000 units a day. My ND put me on Vitamin D drops It's more pure than the kind found in the store. He doesn't like the fillers in the pill form I guess. I will probably check it after chemo.

    Patty

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited January 2015

    Hi fellow Buckeye cherylfg!! I hope you saw the game, it was great, and finishing on top! And the best damn band in the land. What a season for them. Uh sorry Ducks. I wish my Browns, Cavs, and Indians would produce as well as OSU.

    It seems that my side effects from chemo are going away, and I now have eyelashes! I even put mascara on today. And my eyebrows are almost back as well. Much easier to put on my make up. And my hair, it's 1/2" short. It is too weird to call it long! But it is so soft, and all mine. My last chemo was 8 weeks ago. I take Biotin to help my hair and nails. It is OTC.

    I hope everyone is well, and resting and eating. Have a great evening. Cheryl

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