DIEP 2014

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  • Tan72
    Tan72 Member Posts: 52
    edited January 2015

    Teacher, thank you for the reply and hope. I took the compression off the tummy and thighs a couple hours ago, I just couldn't handle it any more, think they put me in a size to small (did not do a fitting before hand) so now just wearing yoga pants until I can get another pair of compression pants. When I change the nipple dressings tomorrow I will try and keep positive. I am usually the we can do this, it's all good type of person in life, however, I have to admit there are times this marathon is getting to Me. I know this to shall pass and I appriciate the feedback

  • debiann
    debiann Member Posts: 1,200
    edited January 2015

    Wintersocks,

    I had my ultrasound today and they checked the 4 bumps that concerned me. 3 of the bumps they said are necrosis. The 4th bump didn't show up on the ultrasound. They could feel the bump and they went over it again and again trying to get an image of it, but nothing, which they said was good. The bump actually moves around a bit, sometimes being closer to the surface, other times feeling a bit deeper. They think its a stitch floating around. I'm scheduled for another US in 6 months.

  • wintersocks
    wintersocks Member Posts: 922
    edited January 2015

    debiann,

    Thanks so much for reporting back! So pleased to hear they are nothing to worry about. I am to contact the recon team and ask their advice. I was only there last week! I am not overly concerned that this lump is worrying, but I want to keep away from hospitals! I am sure you know what I mean,

    It seems that some people are more prone to developing lumps post recon then others.

    I feel suddenly fatigued 5 weeks post op, but then I did have a difficult day yesterday as my much loved moggy, Horace could not be saved from cancer in the jaw and so the decision was made.

    Feel like I need a duvet day!

  • Kanada
    Kanada Member Posts: 12
    edited January 2015


    Hi ladies - it's been ages since I contributed.  I did not have a great stomach recovery - which has lead me to decide on holding off the stage 2 until 2016.  In the meantime I'll be getting 3D tattoos on Wednesday.  The idea of nipples being prominent or flattening out has left me comfortable with my decision.  I'm 57 and have to work on my strength, which took a kicking.  All said - I would do it all again in a heartbeat. I'm very happy with the soft warm breasts.  Next is shopping for larger "over the shoulder boulder holders" !  Good wishes to everyone, Jo Ann

  • Sue007
    Sue007 Member Posts: 27
    edited January 2015

    Dear Kanada, Hope you recover nicely and get your strength back. I am 56 and thinkning of the DIEP on my right side - I'm have a horrible uncomfortable saline implant. But, I've had 4 ABD surgery and concerned with hernias. I am tenatively set for May, I need to lose 20 pounds to get to 140. I'm doing Yoga and pilates to get the muscle under the fat ready for the hit. I may chicken out, time will tell. But please let me know how you are doing. Best wishes, sue

  • Tan72
    Tan72 Member Posts: 52
    edited January 2015

    goldie4040, when did you have your phase 2 done? Did your ps say what your options were for making you happy with your nipples? My crop circles where also made small in phase 2, I am hoping over time things will relax and they will blend better, maybe stretch out a little? Best wishes

  • Geo
    Geo Member Posts: 21
    edited January 2015

    Mary,

    Silver sulfadiazine cream?

    2 months and 2 days and still have a small open wound. I'm using that cream for now

  • pollyanna5
    pollyanna5 Member Posts: 85
    edited January 2015


    Happy Belated New Year everyone :)!

    Not sure if you remember me, but I had my diep June 10, following a DCIS diagnosis in APril last year. 

    I was active on the board through the process, but upon healing and back to work at a new job, part time in August and full time almost in October, life has been busier again.

    I know I am not on  much, although I still do read some, I just wanted to say thanks to all who helped me along when I walked this journey.

    It is hard to believe it has been 7 months since surgery and 9 since diagnosis.   It feels like yesterday, and ages ago at the same time.

    Things feel pretty good, although numb from nips (or where they were!) to waist, still is weird.  I feel like I've had dental work and am stuck on permafreeze in the middle.  I expect that will always be the case a bit.

    I am set to have nipple reconstruction Sept of this year (I am in Ontario, so we wait sometimes for the non-emergency stuff, or I assume that is the reason), which is fine.  Although, I can't wait for crop circles to be gone.  I don't think anything else will need to be done.  I still have really itchy scars at times, but hoping that goes away.

    I still have trouble with bras, nothing just seems to fit.  Hoping to have this settle this year.

    I do find I still swell periodically, do you find hat at all, or is that a permanent thing?  I have a hard time with pants still, I have no waist it seems now, and things still shift during the day at times.

    I still have 30 pounds or so to lose, so I am not sure how much of that all comes into play.

    I did have another health scare in the late fall with some eye troubles (double vision, depth perception).  I had a ton of tests, and it was scary, esp. after cancer, you're a little paranoid!  They were looking, I think for something in the brain/pitaury, but it turned out to be related somehow to my laser surgery I had done 20 years ago almost (I think).  It was a lot of maybes, combined with paranioa after cancer, plus google, made me a little nutty.  But it all seems good.  Anyone else freak out with another health crisis occurred?

    It is amazing that something that was my identity 6 months ago, and consumed so much of my time and thoughts, daily becomes a more distant memory.  I think that is a bit why I come back less, is that it is not so prevalent in my day to day thoughts,  anyone else find this?

     

    Anyway, couldn't sleep and was thinking of this, and wanted to pop in and say hello and thanks!

  • mary625
    mary625 Member Posts: 1,056
    edited January 2015

    The cream is called Silvabsorb.

  • Janet_M
    Janet_M Member Posts: 1,068
    edited January 2015

    Winter - I'm so sorry to hear about Horace! That's such a big loss. I know that pets bring such indescribable comfort through all the sh*tty times, and if I could, I'd send one of my pets over to crawl under the duvet with you.( Too bad none of the cats have their own private plane. Or a passport).

  • Dlia
    Dlia Member Posts: 191
    edited January 2015

    Hi Ladies I know some of you have already had your surgery, but is there anyone who had implants and are now having them removed for the Diep? I initially had the lumpectomy, when I found out I had Her2 I had the double mastectomy and now because I have lumps in both breast that are so close to the implants the ps is concerned about infection. I don't have a lot of info about the surgery but I have to lose 35-40 lbs first. So far I lost 10 lbs. Any info after post op will be appreciated.

  • Tan72
    Tan72 Member Posts: 52
    edited January 2015

    Dila, I had the lumpectomy first then DIEP after chemo, I did not have implants so can't offer any advice there, I have heard others mention it on this thread, however, this thread does not seem to be as active anymore. There is a DIEP 2015 thread that is more active and some folks have moved to that one, if you don't get a response here you might try the 2015 thread. I had three different consults before choosing a ps, one said I needed to lose about 30 lb and the other didn't have a weight requirement. I had my DIEP in mid Sept and my phase 2 two weeks ago. It's a long haul, however, I am glad I did it and it is nice that they are warm and soft to the touch. Good luck with your future procedure and great job on losing 10 lbs and getting closer to your goal.

  • Sue007
    Sue007 Member Posts: 27
    edited January 2015

    Hi Tan 72, So glad you're doing well and happy with your results. I was not able to find the DIEP 2015 thread. I typed in DIEP 2015. is there a better way of finding it? thanks sue

  • Morwenna
    Morwenna Member Posts: 1,063
    edited January 2015

    Sue,

    Here's a link https://community.breastcancer.org/forum/44/topic/...

    Otherwise, go to Reconstruction Forum, and you can find it there .....

  • jmb5
    jmb5 Member Posts: 532
    edited January 2015

    Sue, this is a board for women who are done with reconstruction and moving on. Might get some responses there too...

    https://community.breastcancer.org/forum/44/topic/812166?page=162#idx_4849

  • Sue007
    Sue007 Member Posts: 27
    edited January 2015

    Thank you so much, the decision is really a hard one and it's great this site and wonderful people exist. Thanks Sue

  • Sue007
    Sue007 Member Posts: 27
    edited January 2015

    Thank you so much, I just went to the site and put it in my favorites. Thanks again.

  • caligirl3
    caligirl3 Member Posts: 86
    edited February 2015

    Hello ladies,

    I am 8 weeks out now from my first stage DIEP. Had a few bumps in the road due to a positive Dx. Doing better now. Have been working with PT due to lack of ROM on my arm. In regards to stage 2. How long is the recovery period for that? Especially if you have a job that is physically demanding. Trying to figure out timing before my next appointment with the surgeon. Your replies would be greatly appreciated:) Thank you!

  • Sassy01
    Sassy01 Member Posts: 61
    edited February 2015

    Caligirl, everyone is different after Stage 2. I had some sections of my abdominal incisions reopened to remove some necrosis, lots of lipo, fat grafting,etc. I was up walking the town the day after I got out of the hospital. When I got home I got extremely tired physically and emotionally. I went back to work 1.5 weeks after, but I sit at a desk all day. So, other than being tired it was not physically taxing on me. I've heard other women say that the lipo hurt. To me it felt like I had had a really good workout. If you are normally very active and physical I would think you'll do just fine.

  • SaltyJack
    SaltyJack Member Posts: 420
    edited February 2015

    Cali, I just had Stage 2 on Friday and like Sassy, I'm up and around with no problems. I just had a right (old/non-cancer) breast lift (whatever -plasty they call it) and fat grafting from my inner thighs to fill in a couple of low patches on the DIEP/left breast. I took a couple of 800 mg. motrin the first day and another today but went to church this morning and walked 2-1/2 miles with a neighbor this afternoon. I'm a little sore in the inner thighs and where the drain is under my arm on the right side but I'm figuring when I go back to the PS this week and he takes the drain out, I'll have no real limitations. So - guess you can take time off from work if you want/need to (depending on how much moving you'll have to do - stretching up pulls a bit) but you should be fine.

    Bev

  • wintersocks
    wintersocks Member Posts: 922
    edited February 2015

    Was seen at the recon clinic today, the PS checked the little nodule thingy that came up just over a month after after the DIEP procedure. He asked me if it had gotten any bigger. I said I thought it had a little. He said 'I think we should get that out for peace of mind'. I asked him was he concerned and he said 'no', and suggested it might be fat necrosis or a stitch. So how come I am ??

    I will get an appt for 2 weeks or so and get it out under local.

    It is 3 years next week since my dx. I can't bear the thought of having another biopsy at this time.

    Did any one else get this kind of thing after the DIEP procedure? It came up about 5 weeks following.

    Feeling anxious ++


  • LAstar
    LAstar Member Posts: 1,574
    edited February 2015

    Wintersocks, I had a few small lumps pop up 10 months after my sgap 2 years ago. I noticed that several of the women in my cohort also had lumps at about the same time. I believe that in every case they were oil cysts from necrosis. Mine were verified through MRI but others had biopsies. 5 weeks is considerably sooner but perhaps it's connected to your earlier MX? I read that oil cysts are common for any sort of breast injury. I hope that's all it is - it seems very likely.

  • debiann
    debiann Member Posts: 1,200
    edited February 2015

    Wintersocks, I have 3 bumps like that. Mine started about 6 or seven weeks after surgery. My bs keeps telling me they are nothing to worry about, but to give me peace of mind she ordered an ultrasound. 2 of the bumps showed up as being necrosis, the third bump didn't show up at all, so while they tell me that's good, I didn't really achieve peace of mind. They will redo the ultrasound in June just to make sure nothing is starting. I really wanted the BS to take it out and biopsy it, but she said no. I'll be asking her again when I see her in April.

  • wintersocks
    wintersocks Member Posts: 922
    edited February 2015

    LAstar, Thanks for your reply, it's comforting to know that this is common. I will consult Dr Google on 'oil cysts'; It's interesting how some are biopsies and others MRI. Did you leave them and they dispersed without any intervention?

    Debiann, Your time frame then is similar to mine, quite soon after surgery. I think if you haven't achieved peace of mind then then it's only right that they do something to help you get to peace. I didn't really feel uncomfortable in leaving it, but I guess he saw the anxious look on my face. It really is only a 10 minute job, and of course we won't have much pain. So maybe it'd worth doing?

    It's so nice to come here and have people help when things feel wobbly, my nerves that is!


  • jmb5
    jmb5 Member Posts: 532
    edited February 2015

    wintersocks, I found a small lump on the bottom of my breast not too long after my second fat grafting surgery, so it was 9 months after my original DIEP. My BS had me get an MRI, and they were pretty confident it was an oil cyst from necrosis because there was fluid in it. It has since gone away. The doctor who did the MRI wanted me to come back in 3 months, which would be the start of a new insurance deductible. I said no way, and she basically said that was her recommendation, and she wasn't responsible if something went wrong. I saw my PS shortly after that, and she reassured me that everything is fine and that I don't need any further MRI's, that oil cysts are common after fat grafting. PS doesn't think I need any further imaging, but my BS wants to do a mammogram every year, so I don't know what I'll do when the time comes.

  • Sue007
    Sue007 Member Posts: 27
    edited February 2015

    Hi All, I am still wrestling with the decision of doing the DIEP or cohesive gel implant. Is there anyone on this site that regrets the DIEP Flap surgery and wishes they would have opted for the Implant? Anyone had any abdominal wall hernias?


    Thanks

  • Trvler
    Trvler Member Posts: 3,159
    edited February 2015

    Sue: I am also in the Chicago area. I am curious if you have met with any PS's yet?

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited March 2015

    Question about revision surgery. I had a left unilateral stacked diep in December and everything looks great! It was redone because of a failed gap flap on that side, my right non cancer side(gap flap) did well so I have one of each! I am tired of all the surgeries (4 in the last 12 mos), two of them almost 8 hours My foobs need a little tweaking, not much, with symmetry and I don't know if I can do another surgery. Did any of you feel this way?

  • LAstar
    LAstar Member Posts: 1,574
    edited March 2015

    Gram, I had a uni-DIEP a month ago for a failed left-side sgap flap and I feel just the same way. I cannot imagine having surgery #7, and my standards for being done are dropping like a rock. I figure I'll wait a few months to see how everything settles then decide if I want the final tweak this year while my out-of-pocket is met. My stage 1 results look great, and it's nice to be symmetric again. Maybe that's good enough.

  • Janet_M
    Janet_M Member Posts: 1,068
    edited March 2015

    That 'standards dropping like a rock' comment made me laugh out loud. And, it hit close to home. I had a bilateral DIEP and I was once aiming for perfection but now by boobs, though not a perfect match, and not perfectly formed, are perfect for me.I could go for more fine tuning, but I'm happy with the way I am. In my case, a good bra fixes everything.

    Grandmaof2boys - Nothing wrong with changing your game plan. Four surgeries in a year is a lot to deal with. I'm guessing you're at the stage where you don't want anyone to touch you (in a surgical kind of way). So - live with it for a while and see how you feel. Maybe you're done. Or maybe you'll get a second wind and feel the need for more tweaking further down the road.

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