LymphaPress (I'm in Love)

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AmyQ
AmyQ Member Posts: 2,182
edited January 2015 in Lymphedema

I have been dealing with a substantial lymphedema flair of my right arm since mid-October requiring 4 to 5 times a week manual massage from a LE specialist. I've been then wrapping which has only helped in the short run. In other words, I cannot continue daily treatment for an hour+ a day not including wrapping so my therapist suggested a device called LymphaPress - after a lot of paperwork, it got approved and delivered today. I am in LOVE with this machine. My arm feels and looks 100% better. Oh my gosh I can't even begin to explain the difference. I only had 1 treatment so far, for an hour but it's easy to put on, turn on and let it do its magic.

I hope this isn't a situation where it's effectiveness wears off bc I love this too much. I know LE can't be cured but if I could get my arm back to pre-October 2014 I'd be so happy.

Just wondering if anyone else has or uses something similar and what their experience is.

Amy

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  • glennie19
    glennie19 Member Posts: 6,398
    edited January 2015


    Wow, Amy, that is awesome!! I'm so glad it is working for you!   I have not used anything like this, but it looks very impressive.  And I bet it was pricey!  Yikes!

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  • AmyQ
    AmyQ Member Posts: 2,182
    edited January 2015

    Fortunately insurance paid for it. I most likely would have rented if it didn't.

    I am looking at the back of my hand and can see skin wrinkles again and tendons. Something I haven't seen in a long time. Oh it's the little things isn't it?

    Amy

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  • glennie19
    glennie19 Member Posts: 6,398
    edited January 2015


    Yes, that is wonderful!!  I check for my tendons every day when I wake up!   I totally understand.

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  • Doughboy
    Doughboy Member Posts: 31
    edited January 2015

    I have an appointment to have a demonstration so I can order one. Do you still need to wear the sleeve all of the time

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  • Doughboy
    Doughboy Member Posts: 31
    edited January 2015

    I have an appointment to have a demonstration so I can order one. Do you still need to wear the sleeve all of the time

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  • hugz4u
    hugz4u Member Posts: 2,781
    edited January 2015

    Doughboy, From my understanding the machine will help drain your fluid in LE area but you still need to wear garments in order that you don't fill up. Garments control the fluid. I dont have anything like this but I dream about the flexitouch and lymphapress all the time. There are a few girls that use machines and I am sure they will chime in.

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  • AmyQ
    AmyQ Member Posts: 2,182
    edited January 2015

    I use my LymphaPress for 1 hour a day and do not wear my sleeve, but I wasn't wearing it before my machine came. I guess I'm not a compliant patient but I still love my LymphaPress.

    Amy

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  • vlnrph
    vlnrph Member Posts: 1,632
    edited January 2015

    I have a FlexiTouch which was selected for the "vest" wrap design to help address my truncal edema. Unlike LymphaPress, mine also has a thigh/upper leg piece that begins the 60 minute sequence by squeezing the groin area in order to help clear those nodes. Older pumps only took care of the extremity up to the shoulder. Newer products are more comprehensive.

    During my in home demonstration, the therapist measured my arm & wrist before and after a partial treatment so we would have documented results to show the insurance company. Prior authorization was granted, I started using the machine and then they refused to pay. After several months, I complained to our state government and finally got reimbursement plus interest.

    If you want to try this type of approach to LE, do some research and don't give up should your coverage initially be denied. You can appeal and hopefully win!

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  • Kicks
    Kicks Member Posts: 4,131
    edited January 2015

    I have a FlexiTouch and have had it for 4+ yrs. Love it and use daily.

    My FlexiTouch covers a lot more areas than the pictures at LymphPress. It takes an hour to run the cycle. The different parts of the garments include upper leg/groin and lower body, upper body as a vest and arm. My issues are basically only in elbow (a bit above and below). This encourages other nodes to be 'ready' for the flow from other areas that are being manually moved toward them.

    What keeps me 'under control' is using my FlexiTouch daily, wearing my custom day garments (Juzo) while up and active, wearing my Solaris at night with an opera length IsoToner glove under it (per my LET guys orders).

    I am very active (outdoors) and not 'slowed down' at all by LE. The more I do the better for me.

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  • AussieElaine
    AussieElaine Member Posts: 64
    edited January 2015


    hi ladies, what do these machines cost? I'm in Australia and know for sure insurance would not cover the cost. many thanks

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  • AmyQ
    AmyQ Member Posts: 2,182
    edited January 2015

    I heard $1,800 after the deductible. Maybe you could rent.

    Amy

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  • Doughboy
    Doughboy Member Posts: 31
    edited January 2015

    Kicks, what is a Solaris

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  • Doughboy
    Doughboy Member Posts: 31
    edited January 2015

    Kicks, what is a Solaris

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  • Kicks
    Kicks Member Posts: 4,131
    edited January 2015

    I have no idea what a FlexiTouch costs, with or without insurance. My care is through VA so it was ordered and I got it. My care has been everything I could ask for. My IBC care was immediately outsourced as was my eye issues. (Hubby has also gotten great care through VA.)

    Day garments are 'active' - designed to work while we are 'active' (moving around). Night garments are 'passive'- designed to work while we are not active (sleeping). Solaris is one of the manufacturers of night garments. They are bulkier than day garments. Because of my 'crazy somewhat webbed' hands and the bulkiness of night garments, I have a gauntle style hand portion on mine but it helps to use an opera length IsoToner glove (a medical version of) to give hand/fingers a bit of support. (Per my LET guys orders.)

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