Dr. will not call-I need help

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  • Moncove-Lake
    Moncove-Lake Member Posts: 22
    edited January 2015

    I really don't know what to think. A neighbor of my aunt had her appointment one day after I did she had the biopsy after I did. Had her surgery and went Friday for some type of a stent put in place to do radiation.

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  • wrenn
    wrenn Member Posts: 2,707
    edited January 2015

    I am confused (chemo brain?). I had read your comment about thinking about not doing surgery or treatment and now I just read back and see you did have surgery so I am not sure who you are seeing but hope it is clearer to you than it is to me. Still time wise you are within normal range.

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  • Moncove-Lake
    Moncove-Lake Member Posts: 22
    edited January 2015

    no surgery just core biopsy. A friend of my aunt that her surgery already. Things for her are moving fast. She Dr. apt. was one day after mine, her biopsy was after mine. But, she had surgery already. I think her is just a lump that was removed. She is much larger in the breast than I am.

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  • wrenn
    wrenn Member Posts: 2,707
    edited January 2015

    In one post you say "Had surgery on 1/7/15".

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  • bride
    bride Member Posts: 382
    edited January 2015

    I'm guessing you're near Union? That puts you 200 miles from the NCI designated center, the Randolph Center in Morgantown. I know you may not be able to travel to there, but it's the best cancer center in WV. Even if you can't get to them, you might want to call their Betty Puskar Breast Center at 304-293-8012. As a NCI center, they'll treat you without cost and you'll be at an excellent facility. This center does have mobile treatment/screening units. It'd be worth the call because they have a ton of resources and info.

    Best wishes,

    bride

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  • Moncove-Lake
    Moncove-Lake Member Posts: 22
    edited February 2015

    I saw the new Doctor (Dr. Barker) on the 29th. He said that the cancer had been there for a good while. He got my tissue samples from the other hospital for additional tests. He ordered a PET for 2/4. Went to an oncologist (Dr. Schor) on the 30th, he wants to start chemo on 2/18, he ordered a Muga (2/6) for my heart. Will see surgeon again on the 12th to go over all of this and for a port too. (See how fast all of this happened.. Good Doctors)

     On a Sunday evening on 1/25, Dr. Gene (the one that would not call me after my biopsy on 1/7)  left a message saying that he had my surgery approved, for me to come by his office on that Tuesday (1/27) to pick up a packet and have surgery that Thursday, 1/25. Can you believe that? I called his office that Monday and told them that leaving me a message about having surgery wasn't anyway to treat someone. That I would not believe the way he was treating me, not telling me anything about my results, what the plan was, or what he was going to do. He called back and wanted me to come into his office to discuss things. This was for 2/2/15. I called that morning and told them I was not coming.

    So, yesterday, 2/9, the doctor office (Dr. Gene) called wanting to know why I haven't been to any of my appointments? Said that they have called over and over to reach me, Not So!! Guess what? I only had one on 2/2 and I had called and said I would not be there. They said I needed to some into the office. I told them I was not coming in. In a few minutes the doctor that sent me there (Jim Lowe) called wanting to know why I had no been to any of my appointments? I didn't have any.. I told him. I told him how Gene had treated me. He said I needed to go . I told him I was but not there. The is 4cm and I have to have 8 weeks chemo before surgery, so that there will be enough tissue left to put me back together. (I am really small and Dr. Schor felt something in the upper chest wall too).

    Thank God for the you and people on this site. I called another doctor that knows what he is doing. The other I wouldn't take my dog to see. And that is how I felt like he was treating me, like I couldn't understand anything.( I understood to much to begin with. I was in nursing in high school and college, mom was a medical tech., I have been a lab tech., I worked in Doctors offices.) To him I was just a number.

    Do hope things are well with all of you.

     I have been out of town for all of these appointments, no laptop.

    Now my mother and I are trying to find a place to live in the area of my doctors and hospitals. Been really busy.

    Does anyone know about this cold cap? That people are taking about to keep you for losing hair?

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  • Moncove-Lake
    Moncove-Lake Member Posts: 22
    edited February 2015

    bride, thanks I didn't see this until today. Do they keep patients there? Or do you know?

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  • JoeyJamesMom
    JoeyJamesMom Member Posts: 110
    edited February 2015

    Hi, Monoce-Lake.

    Regarding cold caps:

    I used the Penquin Cold Caps during my chemo treatments of dose dense A/C and Taxol and was able to save my hair.

    There is a thread titled: Cold Cap Users Past and Present to save hair.

    If you are interested in reading more about cold caps you can find a lot of really good information there.

    You also may want to go to the Penquin Cold Caps website; https://penguincoldcaps.com/.

    I hope this helps and I wish you luck.

    Lynda

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  • Moncove-Lake
    Moncove-Lake Member Posts: 22
    edited February 2015

    Thanks, JoeyJames Mom for the link. Did you try the caps?

    How are you doing now?

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  • JoeyJamesMom
    JoeyJamesMom Member Posts: 110
    edited February 2015

    Hi, there :-) Yes, I used the caps. They are a lot of work and expense, but it was worth it to me.

    I am doing well. Thank you so much for asking.

    I finished my chemo treatments and had a double mastectomy on Dec. 15th.

    And no cancer was found. The Taxol destroyed my tumor and nothing spread to my lymph nodes.

    So, the Dr.s say. I pray they are right.

    If you have any questions, please feel free to ask me.

    Good luck with everything!

    Enjoy your night.

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  • Moncove-Lake
    Moncove-Lake Member Posts: 22
    edited February 2015


    JoeyJames Mom,

    That is so great. It is good to hear good news. I hope mine works the same.

    Take care

     

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  • NATSGSG
    NATSGSG Member Posts: 231
    edited May 2015


    Please go to this link and read everything in there. It should help clear many things for you

    https://community.breastcancer.org/forum/147/topic/831074?page=1#idx_1

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