Can we have a forum for "older" people with bc?
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Thank goodness a little sun today. Makes me happy. Yesterday there was none, and I could already feel a mild tug of the no sun blahs. It will warm up ok, but the ground was frosty looking this morning. Winter is stretching out as always. We had a couple of really nice ( up to 60's days ) but that is usually reserved for February. Nothing seems very predictable anymore -- so till we see good change I think I will have to just hope for as much sun as possible. No matter what else -- I can usually do well if I get enough sun.
Busy day in store. I did all the morning chores already since Dh had an early work morning. It's ok, staying busy is a good mood booster do when you get to subtract a bunch of work off the debit side of your work list. Wow !!! Mine is far too long. Missing a couple of days ( not that I wasn't already behind ) around home can really add some list length.
Hope you are all going to have a good Saturday. I'm always thinking and trying to send positive energy thoughts to those having problems -- as of late, medical related ones.
See you all sometime later. I will go to work sometime this early afternoon or evening -- just not as yet sure of the time. A walk at the Rec Center, as well as a few stops in town. See you then.
Blessings to all,
Jackie
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Cami,
I am sorry that Brother has passed away!

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Mike is back in the hospital. Yesterday we were at the hospital for an appointment and he collapsed in the hallway. They called out, "code blue" and doctors & nurses came running. After 9 long hours in the ER, they finally took him to his room at 10:30 last night.
Although he had a blood test Wednesday and his hemoglobin was dropping, it was still 8.6 with hematocrit of 27. Thursday he had outpatient surgery to put in the port. The anesthesia seemed to wipe him out Thursday evening and night. Friday, as I said, we had to be back at the hospital for an appointment. We'd taken his temp and he had no fever. Other than still feeling tired, he was ok and make the long walk through the hospital to his appointment, stopping to rest only once. Afterwards, as we were leaving the office, he went down.
His hemoglobin was 7.7 and he had a 101 fever. They gave him a unit of blood last night and are still doing tests to find the source of the fever. Hopefully it's not a problem with the port.
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Sandra,
No better place to collapse then in a hospital. Now to get Mike built back up over the weekend. Maybe needed more time to bounce back from the port surgery! *Hugs*
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Put simply - Time you enjoy wasting is not wasted time. That is what I believe.
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Cammie,I'm so, so sorry your brother has passed away. Though we may be expecting it, even sort of ok about it, their is am emptiness, and pain and we have to pass through all of that to totally take in that our loved one has transitioned to a kinder and more gentle place than this one had become. We think of them as gone when they are not so much that, but just that we are not able to talk to them and hear the sound of a reply -- reach out for them, but not really touch them nor feel their touch on us. It is that loss of the physical body but there was no loss of love, no loss of a loving and kind spirit, no loss of memories of good and happy times. Love never dies, but may seem far away and not quite the same for awhile, and once adjusted to the loss of physical presence, it all comes back to fill our hearts again.
Wishing you and your family as much peace as possible and strength to carry you through your sadness.
Blessings and love to you and yours, sweet friend.
Jackie
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Happy Saturday everyone.
Sandra- once again I feel for you. I remember the first time Bob said he didn't think he could walk from the hospital entrance to the dept. he needed to get to. I always dropped him at the entrance then went to park the car. That day, I made him sit just inside the entrance, and wait until I could take him down in a wheel chair. It is amazing how quickly something that never crossed your mind before, suddenly become the norm. It's a real sign of how badly our strong independent men feel when they agree to being dropped at the entrance or using a wheelchair.
Loving my time with Lucia. She is saying more words all the time, but gets her point across very clearly without words. She is extremely sweet natured and a real joy to be around.
I really don't like all the traveling I do, but it is the only way I can stay close to all the grandkids, which is the core of who I am. If they all lived locally, I would make one trip a year to see my family in NY. My son has asked me to join them on a 7 day cruise in April with his fellow coaches from the school. He hasn't convinced his wife to go yet, but wants me to go so they can have a babysitter along. I am not sure if I really want to go. I am going to see if I can convince my sister to go with me. Chances are slim to none, but I am going to try.
Anne
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Sandra,
Seems like the frying pan and fire syndrome with you and Mike. Sure hoping they get some GOOD control going. It is hard to watch vibrant men have to struggle so hard. I so hope that they will find enough information to maybe anticipate some of the possible hurdles until the transplant is able to take place. I'd hate to think you have to walk around apprehensive all the time.
I'm thinking about both of you and sure hoping for good answers.
Jackie
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Anne, I hate for you to go on the cruise and have to spend ALL the time babysitting. Even though you love them, you need some time too. There are wonderful programs for kids on cruise ships that allow kids to be kids in a kid-only environment instead of having to behave themselves elsewhere on the ship. We see some kids when we cruise but mostly in one of the pools. A few of the older ones roam around but rarely cause a problem. (There have been a few memorable exceptions which I shudder to remember.) Once in a while we'll see a long line of kids going down the promenade with their faces painted and fun costumes they've made. I love to see it when parents dress up for formal nights and bring their little ones, also dressed up. They are so darn cute. -
Jackie,
You are right. It's sure hard to see "the strong one" so vulnerable. A friend who lost her husband a few months ago brought over a wheelchair and rollater. I didn't know what they were called. It's the walker with a seat attached. She's an R.N. who works with Mike in the Burn Unit and is so amazed that he's gone downhill so fast. Her grief is still so fresh that she identifies strongly with me. Bless her heart. It seems to be helpful for her to help me right now and I do appreciate the support.
He won't be getting out of the hospital today. I so hoped that getting a unit of blood would perk him up. But he still has a fever and is so tired. What scares me the most is that the transplant doctor will say he is too sick and no longer a candidate for the procedure.
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Little Cammi.... I'm so sorry..... I just want to cry for you and Sandra.... I just didn't think it would be this fast....
When we talked this morning, I just had no idea.... and I don't think you did either..... xoxoxoxoxo
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Cami...so sorry you lost your brother....he ditched his body, and is a spirit whom now has wings....hugs & love to and my sincere sympathy to you and your entire family.
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Sandra I am so sorry to hear that Mike is back in the hospital....hope they figure out real soon if it is an infection.....hope this boost of blood will help him get back on his feet. Sending love to you both....love y'all.
Di
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Went to doc yesterday and she believe I have a case of the flu....even though I had a fflu shot in Sept......with the shot she said my flu will be shorter and milder....and I am on TAMIFLU now to knock this bug in the a$$......I am in bed with lots of liquids at my side, order from the doc is to stay hydrated
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Hi gemma,
You are so right -- if you are enjoying yourself you are not wasting time, you are filling yourself with something special -- positive energy and emotion. So glad to see you.
Di, so hoping that Tamiflu really kicks in quickly. I probably should knock on the nearest wood but I just don't seem to be bothered with flu's, colds, and things like that. I guess my only worry for the most part are 'bigger' things -- and I just don't intend to have any more of them. I hope you are well before you know it.
It has remained fairly nice and bright out today ( whew ) but had so much to do I paid scant attention to what is coming up in the next few days. Hope it is not too bad. Working later and just came back from a two mile walk at the Rec Center. Sure glad I'm able to go and do that. I know it helps keep me in shape ( oval and a little chubby is a shape ) and if I am faithful I will lose a few pounds.
In the class I go too -- they are all for trying not to sit for long periods and they have found ( would be easier for me likely ) that if you have three bouts of exercise done for 10 minutes each time, you are doing as much and possibly even more, than if you do a complete half an hour. I'm sure part of it is in the variety and I'm sure they'd like for you to do things that get your heart rate up. Resistance exercise is also good to throw in -- so I figure I will design something where I'm doing those things -- three times a day and also walking maybe every other day or more if it seems to suit. The one thing I'm pretty sure it won't do is decrease my love of cheesecake and ice cream. Always a down side you know.
Jackie
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Sandra---sorry to hear that Mike is back in the hospital.
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Cammi---so sorry you lost your brother. You and your family are in my prayers and thoughts
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This has been a busy week. My uncle passed away and the funeral was this week. Nice to see all the cousins I have not seen in a long while but would be nicer on different circumstances. At work we now have 20 children in my class each day and only 4 are girls.I am so tired by the end of the day when a few of them decide to throw tantrums during the day. I went to bed at 7 pm last night and got up at 7:30 am today. This week has been pretty nice weather but tonight it is suppose to snow and again tomorrow. Tomorrow I get to baby sit our youngest GD. She is 6 months old and a very happy baby. Our 5 year old GS in Philadelphia called to tell me he had a secret and i had to guess it. (Mommy has a baby in her tummy) He is so excited. He already has 2 brothers. The baby is due in August. This will make our 9th grandchild.
Regarding Femara---Not sure who asked about it. I take it. At first lots of hot flashes and some joint pains but after a few months the hot flashes subsided some and the joint pains left. I still have hot flashes off and on but they are doable.
Enjoy your weekend
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Cammi, so sorry to hear that your brother passed away. Hugs.
Sandra, hoping that Mike gets stronger and can come home from the hospital.
DH's girl cousin from WV and her dh arrived in New Orleans today to run in the marathon there tomorrow. We're going to the city to try to see them when they run by us on the place where we'll wait on the route. Then on Monday we'll go back to NO and get together with them. They're in their 50's and recently retired from their jobs. They chose not to have children and had good jobs so evidently they can afford to retire young and enjoy themselves doing things they want to do. Cyndi does volunteer work for Habitat for Humanity.
My foot ailment is not improving. I plan to make another appointment with the podiatrist. I may have to take a prescription anti-inflammatory instead of ibuprofen. I can't walk a lot or stand on my feet for very long. My mother suggested I have blood work and make sure my pre-diabetes hasn't become full-fledged diabetes.
Best wishes to everyone.
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I'm home after another exhausting day. Mike will be in the hospital another day for sure. The doctors did a culture and learned he had gram positive cocci infection. He got it in the OR Thursday when they put in the port. They started him on IV Vancomycin but he still has a fever. They gave him another unit of blood too. He was also dehydrated. He has lost even more weight - down to 188. I cannot get any food down him though.
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Sandra,
So many patients pick up infections while in the hospital. Mike should now start to feel better.
Please have a restful night.
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OMG!!!!! What are the odd that BOTH you and Mike getting infections in the OR....terrible! Hope the med helps and his fever goes down. Are they feeding him by IV, since he is not eating.
Hugs,
Di
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Cami - sending sympathy for the loss of your brother.
Sandra - my heart just cries with what's happening to Mike. Hope the Vanco knocks out the infection.
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Sandra, Is that the same infection you had? I'm so sorry Mike has to fight that too. I hope the extra blood perks him up. I hope you're able to get some rest for yourself. You'll need it when he comes home.
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You know, that's just baloney... We go to the Hospital for "care" and then something like that happens, to someone who is alREADY sick, and it just makes things worse! I was afraid of that too... but what else could we do? Nothing! I'm so sorry Sandra... Dang!
Morning Termite! Oh I remember little girl tantrums... Ha! And Congratulations about the new GB coming!
Sorry about your Uncle.... It's just so hard to lose someone... ANyone.....
And glad you can take the Femara...! My Oncologist wanted me to take that after I stopped the Tamoxifen, but I was just too afraid to try it... Glad it's working fo you!
Morning everyone else! Carole, what was wrong with your foot? I had Plantar's Fasciitis for a long time, until the second shot finally helped... When your feet hurt, you just hurt all over... I tried shoe inserts, even custom ones, but it was the shots that stopped it.
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Cami: so sorry about your brother, I lost my younger brother to ALS a couple years ago and it sure leaves a void in your life
Sandra: sending prayers that antibiotics work quickly.
Lew and I went to a wedding Friday - daughter of friends, we've known her since she was 4. Had a lovely evening, but such a different wedding - no flowers (except for the bride's bouquet) and no wedding cake. Table centerpieces had candles on mirrors with pine cones sprinkled with sparkles and candy dishes filled with Truffles. Corsages were handcrafted with tiny matching pinecones. Instead of the wedding cake there were 2 chocolate fountains (white and brown) with a variety of pretzels, marshmallows and fruits to dip in the chocolate, and then cupcakes. Wedding was in the banquet hall of a local motel. After the ceremony the staff cleared the chairs off the dance floor and the 2 DJ's played great dancing music. Fun to see everyone out dancing, even the little kids. Fun memorable wedding that the couple won't have to pay for the next 10 years.
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"Don't let life discourage you; everyone who got where he is had to begin where he was."
Richard L. Evans -
Thank you everyone for u'r kind words--this was a shock for my family---he was golfing last month ad then he was filled with cancer, came home with hospice and died 2 days later--I never got there yet, so I'm still mad at him.
Oh Sandra this is so difficult for you and I do know what u'r going thru, but as soon as they figure out sometings it should be easier or u--and take care of u'rsel too.
Wren u'r not really 98 like our outdated Chevy, are u? I think Chevy got a stamp on her body for being outdated to see--so she's just trying to prove she stil has it, but it's everywhere it shouldn't be. She's used to it.
Joey and I were home alone last nite and we both got about 4 hrs. sleep. The dog and cat (I'm not using their names, I'm mad at them) were trying to out d each other for attention. Waking us up all nite long. At one point Joey sits up in bed and says Mammaw all I want to do is sleep and they won't let us. So we're like Zombies, well I don't think we look that bad.
Carole I hope u figure out what wrong, cousin gets gout in her toe and she said it's very painful.
K Jackie is it snowing there, it is here, a fine snow and looks slippery tho. So far the nice weather is over. But of course u will no doubt find sunshine which I enjoy.
OK Ladies I'l close for now---talk to u later xoxox
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Termite,
Just add me in there. It is difficult to lose of our loved ones. Even when you feel that they are better off ( out of the disability, pain, and all over loss ) the 'space' in between being viably here and then gone takes time.
Sandra ( Chevy ) hit it on the head about the reasons to go to the hospital -- we do it to get better. Then again, I've so often heard it said that hospitals are some of the "worst" places in the world to have to go if your trying and hoping to avoid germs. They have so many and in one of my nursing classes ( I did not obviously become a nurse ) the assignment was to learn how to wash one's hands. Easy enough you'd think. So, we all did with really GOOD instructions from the class teacher. After washing and drying our hands, she has some spray I think it was --- and spray our hands --well, red spots showed up where the hands were still 'dirty'. I think only one person in the class passed that day.
This is only to say that WE all think we do a good job of the SIMPLE chore of washing our hands, but we likely don't. Still, in the main, in your own home it probably ( since you and the household ) are all used to the germs there, won't make a BIG difference though I'd still try to do a really good job. In a hospital setting that is probably glowing all over from HEAVY-DUTY germs and some rather nasty ones -- if you don't do such a hot job of it, problems can arise.
Puffin,
Your wedding story was something. The wedding couple were probably right -- keeping costs down, and taking some of the mind- boggling elaborateness out of it -- no muss, fuss, or worries so everyone can relax and enjoy. I think of the words, simplify, simplify, simplify -- I don't think the extraordinary production helps you hold the marriage together. I do know there have been marriages where the debt lasted longer!!!!
Icky here today. Deck was all wet from the rain -- and though I can see some lighter looking skies for the moment, the weather-man indicated off and on showers through the day -- well, Miss Weather Whiner is not go to say it -- just going to wait for that special light that tracking says will be here tomorrow. Yay !!!!
See you all later.
Blessings
Jackie
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Di, the infection Mike has is gram positive cocci. I had gram positive staph. How nice that the OR has a variety to choose from.
He's still running a fever in spite of two doses of IV Vancomycin. All the doctor's offices and clinics are in the same big building as the inpatient rooms so tomorrow I'm going to speak to his hematologist. It shocks me that she wasn't called in over the weekend. Same with the interventional radiologist who put in the port. He wanted to be contacted if Mike got a fever but to my knowledge did not answer the page. You'd think there would be someone else in his department to cover on weekends. The internal medicine guys are doing a good job and he's being cared for, but I'd feel better if his hematologist was in the loop. Tomorrow I'll see to it, even if I have to cause a scene. I've always felt appreciative that we have access to this particular hospital but this shakes my faith. With a bone marrow transplant coming up in the same facility, I'm full of questions that NEED answers.
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