February 2015 surgery

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  • CassieCat
    CassieCat Member Posts: 1,257
    edited January 2015

    I will concur about staying ahead of the pain meds. Don't be afraid to take them! I thought I felt pretty good last week, overdid it a bit, and now am taking it much easier and trying to keep up with at least ibuprofen regularly (and something stronger in the evening when I'm done driving for the day).


  • nmh35
    nmh35 Member Posts: 96
    edited January 2015

    Thanks for the tips, ladies

  • Kimb87
    Kimb87 Member Posts: 4
    edited January 2015

    Hi everyone im new to this forum and found the site when looking up some information and havefound it very useful!

    Im a carrier of the BRCA 1 gene and Ive chosen to have risk reducing surgery.

    i undergo prophylactic bilateral mastectomy and reconstruction on the 24th of Feb and since being given a date im feeling very upset and anxious about it all (although reading all the positive stories does help!) Since I found out I was a BRCA 1 carrier I knew immediately that I wanted mastectomy as having the increased risk would have been too much of a worry for me.

    Im having both mastectomy and reconstruction done at the same time using expander implants, my PS said doing the surgery using my stomach or back muscles would not have been suitable for me (I'm a radiographer and I need to be able to have full use of my arms to be able to do my job which wasnt a guarantee with using lat dorsi muscle).

    feeling a bit nervous about it all and how I will feel after it! but know im doing it for the right reasons


  • NurseShark
    NurseShark Member Posts: 176
    edited January 2015

    hi kimba87: I am brca 1 as well, do you have a strong family history? I didn't know until after my diagnosis I h

  • Kimb87
    Kimb87 Member Posts: 4
    edited January 2015

    hi nurse shark,

    My family doesnt have a strong history of breast cancer, my gran has hsd both breast and ovsrian cancer. I live in scotland and they are trying to introduce genetic screening for the brca 1 and brca 2 genes for women and men who meet certain criteria. As my gran had both breast and ovarian. Cancer she was offered the genetic test and found she was a carrier of thr faulty gene. Since then everyone who has been tested is a carrier of this fault. We have been very lucky to find out about it as my gran is the only person to have develpoed breast cancer and im undergoing the surgery to try amd prevent breast cancer, i know it doesnt eliminate my risk but it does substantially reduce it.

    Despite knowing all the positives about the surgery its definitely the hardest decision ive ever had to make

  • RAK1
    RAK1 Member Posts: 240
    edited January 2015

     Thank you for starting this post!

    My surgery is February 20th.....Oh goodness, this is nerve racking!

     

     

  • Evilmidget
    Evilmidget Member Posts: 40
    edited January 2015

    My surgery was yesterday on the 20th of January. I had a mastectomy and sentinel lymph node dissection. It went extremely well and my BS said my lymph nodes appeared clear, but the final decision will be after the pathology (although I believe it's only about a 5% chance the pathology will refute the surgeons call.

    I was a zombie at the hospital after the surgery because I was given dilaudid and don't remember my visitors or conversations. During the night I only called for pain medication twice and only took half the dose which did the trick. I found the worst thing was having to pee and having to call the nurses because of all the tubes I was hooked up to.

    I was released today (day after surgery) and I feel awesome. I've only had a 1/2 of the pain pill so I'm awake, but pain free. I was helped with a shower before I left the hospital which felt awesome and my surgery scar (no reconstruction) looks really good.

    All-in-all, I think, except for the medication the oncologist medical doctor prescribes for my next 10 years, I'm ready to call myself done.

  • justamy
    justamy Member Posts: 532
    edited January 2015

    Hi ladies. I am having bilateral mastectomy on February 3. I only have cancer in the right but there are calcifications in the other and I am going to get a prophylactic one on the left I have been posting on the January board because we thought surgery would be the end of Jan but I went to the PS today and they scheduled it for the 3rd. I'm OK with that since my 43rd birthday is Jan 30. Now we can celebrate before surgery.

    I was really surprised at my PS appointment. They are putting in expanders and then trading them for squishies later as expected. What I didn't expect was that my PS does the nipple reconstruction and areola tattooing with all his reconstructions unless asked not to. That's fine with me as my insurance covers it. I was not going to do it because I didn't want to find someone to do it. I get nipples!

    I saw that some of you take Klonopin or ativan for anxiety disorders and are having problems w anxiety because of surgery. I have taken benzos(on Klonopin now) for 18 years for panic disorder and was experiencing additional problems. My doctor put me on Buspar in addition to my klonopin and it helps a lot.

    Thank You Nurseshark for creating this board. Hope Levi is doing good and congrats on finishing Chemo! Hugs everyone...Amy

  • NurseShark
    NurseShark Member Posts: 176
    edited January 2015
  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited January 2015

    Wow Levi is growing so fast. He is adorable. Heres a new one one of my grand with my great granddaughter, little Valentina. She will be a month old this coming Monday! Love, Jean

    image

  • NurseShark
    NurseShark Member Posts: 176
    edited January 2015

    so beautiful jean !!! Levi is 10 weeks now.weighed 14lbs at appt this week 😚

  • RAK1
    RAK1 Member Posts: 240
    edited January 2015


    All of you the babies, grandchildren and great grandchildren are Beautiful, God bless them all!

     

  • nmh35
    nmh35 Member Posts: 96
    edited January 2015

    I can't believe there is only one more week until February and this February 2015 group will me the current surgery group! It's starting to hit me how close its getting, but at the same time I'm ready to get this over with because the wait has been long.

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited January 2015

    I'm having a mastectomy with TE on February 2nd - Groundhog Day as Sunseta1969 pointed out. I'm very nervous. My problem is that I get impatient with myself and with the healing process.

  • jabec
    jabec Member Posts: 70
    edited January 2015

    My surgery for BMX was scheduled for tomorrow in NYC but because of the damn blizzard the hospital canceled all surgeries tomorrow and I am now scheduled for Feb 3rd. So, I'm now joining you on the February surgery group. To be this close to having the surgery over with and then finding out at 11:30 today that it's canceled is so hard - I just want it done! At least I'll get to spend tomorrow curled up with my kids watching movies since school has already been canceled. the worst part is that my dad is scheduled to come on Friday with his 40 year old girlfriend (he's 72 and I'm 45) because he was going to help with the kids. He's still coming Friday and I'll now be expected to entertain them all weekend - just what I didn't want to do! Deep breaths...... and maybe some valium :)

  • NurseShark
    NurseShark Member Posts: 176
    edited January 2015

    welcome Jabec: that sucks!!! The anticipation waiting is the worst part :(.are you having reconstruction?/te/implants?

    My in laws visited this past weekend . I am just a week out from taxol and didn't really want visitors but caved bc I feel bad not letting them see grandson.... but FIL was sniffing and sneezing !!! And now I have a fricken head cold.....I wish I had told them not to come..I've made it through this far without any extra illness.


  • jabec
    jabec Member Posts: 70
    edited January 2015

    NurseShark - that's so annoying that you now have a cold from your FIL!! By the way, your baby is beautiful! I'm so sorry you have cancer at this stage of motherhood :( but soon enough you will be healthy and cancer free.

    Yes, the anticipation was the worst and having to wait another week is going to drive me crazy. I'm having TE's put in during the surgery, then implants. When my dad comes I was going to use the excuse that I didn't feel well so I wouldn't have to interact much, but now he's talking about going out to dinner Friday and Saturday night, etc. He will at least be useful picking my kids up from school next Tuesday when I have finally have surgery (hopefully, if there's no more snow!) Otherwise, it's just more stress added on top of everything else!

  • Jeeper4
    Jeeper4 Member Posts: 70
    edited January 2015

    jeeper4: feb. 3 lumpectomy (reexcision)/lymph node biopsy

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2015

    Hi all, and thanks for sharing on the February 2015 thread!

    Here's some good information for you and future posters to help prepare for your surgeries:

    Check out some good info from the main Breastcancer.org site on Surgery, including:

    Also, the Treatment Side Effects section is a great resource for tips to help manage any side effects you may experience.

    Lots of practical advice here on helping to prepare for surgery:Shopping/packing/to-do list for surgery + recovery....

    Also, you may find it helpful to chat with ladies from past months' surgery threads to get first-hand stories of their experience; see the January 2015 Surgery Sisters thread.

    Hope this helps and good luck with all of your surgeries!

    --Your Mods

  • JustAJennifer
    JustAJennifer Member Posts: 85
    edited January 2015

    Hi everyone, I've been following many, many groups here, but I will call this one home for the time being! I enjoy reading the January pre and post surgery updates because I like knowing what's ahead for me. I'm scheduled for 2/6 unilateral mastectomy with TEat Memorial Sloan Kettering in NY. Just today, I received my genetic results- negative for brca1, brca2 and palb2. I had waited to post until I knew for sure if I was going uni or bi based on the genetic results. I'm very relieved to have surgery in my sights. I've had two lumpectomies with positive margins for DCIS.

    Thank you to everyone for sharing your stories- they are so helpful to so many. I'm sure many read who don't post, so know your voice carries much farther than it may seem.

  • Fourminor
    Fourminor Member Posts: 354
    edited January 2015

    Hi,

    I'm in. February 6, TE exchange/reconstruction

    4

  • RainDew
    RainDew Member Posts: 305
    edited January 2015

    me too!!

    Feb 23 for exchange surgery. Woot! Been a long time coming - can't wait to lose these rocks.

    Happy to answer questions on bmx too - it wasn't nearly as bad as I feared.

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited January 2015

    Being a planner I am trying to gear up physically, emotionally and spiritually for my ALND surgery on February 12. I am making mental lists for what to pack for my stay with my sister/nurse after surgery. Any suggestions would be helpful. I won't be having breast surgery as I had a lumpectomy last August with clear margins. Thanks, Love, Jean

  • waiting-to-exhale
    waiting-to-exhale Member Posts: 61
    edited February 2015

    hi all, My surgery is coming up quick. It is Feb 3rd, I am having a masectomy on my right side with immediate reconstruction with an implant. My diagnosis was jan.15. Does anyone feel their tumors getting bigger? Mine was 1.5cm in december and was 2.2cm at the biopsy in early January. It feels double the size now. I think I must have a really agressive cancer. Thats what is freaking me out the most, feeling it grow while waiting. Thanks for starting the thread.

  • waiting-to-exhale
    waiting-to-exhale Member Posts: 61
    edited February 2015

    i need a packing list too. I just went out and bought some jersey button up pj's and loose button up tops. My worry has been about not being able to wear deodarant while healing. I just found some deodorant at a health food store that supposedly last 72hrs. Im trying it out now, Lavilin Bio Balance 72hr. I am skeptical.

    I would love to hear how others are prepping.

  • jabec
    jabec Member Posts: 70
    edited February 2015

    Waiting-to-exhale - my BMX surgery is also Feb 3 (in 2 days!). I was supposed to go in last Tuesday but it was canceled due to the "blizzard" in the northeast. We are getting a storm tonight, but thankfully all should be clear for Tuesday. My diagnosis was on Dec. 12th, so I know how nerve racking waiting can be, especially when my surgery was postponed. At least you will have this cancer out in a couple of days. Good luck to you!!

    I also am getting everything ready that I may need, but any suggestions of things I may have forgotten would be appreciated. I have some button up pajamas and zip-up sweatshirts. I also got Pink Pockets (pockets you can stick to the inside of your shirt that can each hold 2 drains). If anyone is interested, the website is: http://www.pink-pockets.com. I am bringing dry shampoo to the hospital because my concern is how greasy my hair will be after 2 days. I read somewhere that my husband should bring chapstick to the recovery room because my lips will be very dry. I bought several small pillows and bolsters to help with getting comfortable after surgery. That's pretty much all I can think of. I'm at the point that I'm almost excited for the surgery because I just want it done already!!

  • farmerjo
    farmerjo Member Posts: 518
    edited February 2015

    Bilateral mastectomy with immediate reconstruction 2/13.

  • Shelly74
    Shelly74 Member Posts: 24
    edited February 2015

    Go ahead and add me to the list... BMX with TE on 2/6 in Dallas, TX. Good luck, Ladies! Here's to a speedy recovery!

  • roadrash
    roadrash Member Posts: 145
    edited February 2015

    Hi everyone, I see I am in good company this month. I am having surgery to exchange my tissue expanders for implants on 2/19. I will be at a small local hospital where I had my bmx in October. They all know my name after numerous surgeries for breast issues over the years. I actually know what days certain soups are offered at the hospital. I am so hoping that this is my last surgery for a while. Fingers crossed.

    Waiting to exhale- Hugs to you. I was so glad to have the stuff growing inside of me gone! It was a good feeling to know when I woke up that whatever was growing is me was now in some lab.

    I just read a whole bunch of great tips and suggestions on this board under the surgery thread. Great info on the drains on that board. For me the drains were a real PIA. I couldn't trust my hubby to exercise good handwashing so I bought him a box of gloves in case I needed him. A notebook or pad is important to record the fluid in your drains too.

    For me, I have to keep my surgeries a secret from my employer. I took off 6 days for my BMX and will take off 2 for this exchange.

    I am wishing us all a successful surgery and a speedy recovery. Blessings to you all.

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited February 2015

    My surgery is tomorrow morning, I have to be in the hospital by 5:30 am and we're having a blizzard now.

    I am growing very anxious, scared. I need some talking to. Any words of wisdom, dear Ladies? :)

    Roadrash - I'm sorry you have to keep your surgeries a secret. That has to be very stressful. Thankfully my employer is supportive, I cannot imagine how I would deal in your situation.

    BB

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